Hello all,
I’ve been diagnosed with stage 3, grade 3 TNBC and I’m desperate to start treatment before the cancer progresses.
For those with a similar diagnosis, I was wondering what timeframe you dealt with between diagnosis and treatment.
Here is mine:
7 October: suspicious mammagram and ultrasound
22 October: received biopsy, PET, MRI, CAT results leading to diagnosis.
31 October: due to meet with multidisciplinary team to discuss next move.
I’ll be so much happier once the treatment starts. I have a baby and a 6-year-old and struggling with the fear of spread while waiting.
Thanks for your input
We are so so sorry to hear this. It must be such a worrying time for you.
I would really recommend reaching out to our nurses if you are feeling overwhelmed, or if you have any questions. Sometimes it can just be helpful to talk things through. You can reach them on our free helpline 0808 800 6000, and you can call them as many times as you want or need.
We also have some information on our website about what to expect during treatment which can be found here: Treatment | Breast Cancer Now
I truly hope you are able to get some answers soon, and that you are able to find comfort and support in the meantime.
Thinking of you,
Chloe
Waiting for a plan has been the hardest part for me as well. In my case, my diagnosis of IDC came on Aug 5. The labs came back on the receptors several days later and I was ultimately diagnosed with Grade 3 TNBC on Aug 11. I had an MRI on the 13 and met with Oncologist and Surgeon on Aug 15. My port was put in on the 21st, had full body scan on the 22nd and my first Chemo treatment on Aug 25th. As I am typing this it seems to have moved pretty quickly but it sure didn’t feel like it at the time.
Knowing how aggressive TNBC can be, my biggest worry, like you, was that it was spreading every day. Try not to go down the rabbit hole of what-if. Trust your care team that they are on top of it.
I am now 10 weeks into 12 weeks weekly taxol. I had a mammogram today to check progress. Since I have 2 clusters of microcalcifications, it’s apparently had to tell if they have shrunk, as they are small specs as apposed to one tumor. Looks like there are not any new ones, which means no spread which is a relief. I was hopeful for a more noticeable improvement, but the surgeon was very pleased and said it was good news.
After 2 more taxol treatments I’ll start AC every other week for 4 treatments, followed by surgery sometime in January.
I have had to make myself not look farther than tomorrow and take it day by day. Give yourself some grace and try to stay positive. I know it’s hard and seems to take forever, but you’ll get there.
Good luck and keep us updated.
Kristy