YOO-HOO SLEEP FAIRY
WTF ARE YOU?
Sigh…
It’s five to four and sleep is still absent.
I think OH is menopausal. I’ve had to change the bed and he is now sleeping on a bath towel.
As you can imagine, cold, clammy sheets aren’t helping my search for the arms of Morpheus.
Sleep Fairy, come, dear, I need you. I’ll give you a foamy banana!
OMG, OH is snoring now. ARRRGHHHH
Ninja same here men can sleep anywhere mine snoring head off a poke might be needed in min I’m the one on the towel it’s easier than trying move him piriton it gd for knocking u out even if only now and then hope u get some slp Laura
Yes, I’ve got one of those at home - he’s long been banished to another room! I can even hear him quite loud and clear from there.
Ninja - you’re very poetic and funny. Send that poxy sleep fairy my way!
Quarter to five and counting.
Anyone fancy a cuppa?
Morning!! Someone was definitely hogging the sleep fairy last night. Finally fell asleep at 2, up again at 5…
Ninja - your sleep patterns must be well and truly effed if you’re having steroids every week!!!
My sleep has been effed since I started with fibromyalgia in 2003 and insomnia is not a stranger but the Dex day every week is when I don’t sleep at all.
Five to six and not slept yet.
Help ma Boab!
I was up every 1 and 1/2 hours, either the loo or drinks, at least I am flushing out the drugs.
(has someone moved the keys on this laptop - I have to keep going back to edit?)
Maybe I could just borrow the sleep fairy after breakfast and I’ll go back to bed for a couple of hours? Pretty Please !-]
Love to all and small SE’s
June
Mouth (wisdom tooth) so so sore now, time to ring GP I think. My gum is totally swollen and I’ve had enough.
And as for the sleep fairy, well I’ve given up on her and may have to resort to sleeping tablets tonight.
Sandy, if you’re going on weekly Her, then you’ll be on weekly Dex as well!
We should start a club - what will your day be?
OK guys, I fess up, I had all the sleep fairies last night … purposely didnt doze thru the day and went to bed really late, and off I went. Somebody else’s turn tonight … has been suggested to try Horlicks and burn lavendar oil in the bedroom … I don’t think the person that suggested this really understands steroids!!!
B*gger! Really! I’m on Wednesdays too!!
Sandy - yeah, Her can cause allergic reactions so I get IV Dex, Ondansatron(sp), Ranitidine (aka Zirtek) and Piriton. If you don’t fall asleep immediately after the Piriton, you will when you get home!
I got the same cocktail with Tax, too.
BUT, although they may give you some TTOs for the first go, I always refuse them as I just don’t get any nausea (and hence no constipation) with Tax/Her.
AND now I’ve stopped EC, my hair’s coming back. 0.5 mm last week, 1mm this week.
Hiya I think I also had the sleep fairy last night, I fell asleep on sofa last evening then went straight back off to sleep when I went to bed, all in all I had a grand total of… da da daaaaaaaaaaaaaaaa FOURTEEN HOURS SLEEP !
Woke up feeling pretty good this morning, then went for rads and feel whacked out again. I think I’ll take the dog for another long walk when I get home from work and attempt another marathon sleep in.
I’m having a day off work tomorrow too, woooo hoooo housework beckons lol.
Ha I laugh in the face of sleep fairies, lovely doctor gave me some more sleeping tablets so at least I’ll get a good nights sleep tonight and not sit up worrying about tomorrow’s scans all night. Mouth still really sore though, the doc said just keep using the Difflam cos it’s not thrush.
Saphy don’t do the house work on your day off, do something nice instead!
X
Back to the woods and collapsed in my tent on a nice big pile of cushions after being Taxol’d today. Just over 6 hours at the hospital, an 8.70 parking charge , plus 40 minutes drive each way. I
would be shattered without the piriton!
Talking of which, I mentioned to the chemo nurse that we had been discussing driving home after chemo - she said definately no driving for 24 hrs after intravenous piriton. Mmm DH not keen to lose nearly 4 hrs a week driving me there and back ( he won’t stay - his patience would never tolerate the delays). Not sure what my options are - a taxi would be £30 each way and would have to get 3 buses, take half a day to get there, and a long walk too by public transport.
Had an interesting comment from Oncy today - my wbc’s were still low and borderline for treatment at 1.08 - apparently a recent retrospective study showed that people who have problems with wbc’s when undergoing chemo tend to have better outcomes over the long term. They haven’t yet dome the research to try to find out why, but have 2 theories:
- the bone marrow and the cancer have the same DNA so it is a sign that the chemo is attacking any cancer cells hard too
- the chemo is being held in the body longer and having a greater overall effect ( not sure how this one is related to the bone marrow though)
so those of us that suffer this problem can console ourselves with thinking of the benefits.
He is currently dubious about whether we will be able to complete the course of Taxol though - will have to see if reducing the dose solves the problem, as it is apparently not ideal to miss doses on this - it needs the weekly intensity. However he says that I will have already had the majority of the benefits from the treatments I have already had. Let’s hope so!
Hope everyone has a better night’s sleep tonight - I am expecting the every 2 hrs wake up game after Dex today, so may see you on line if you are awake.
Xxx
Thanks for that info, PW. I’ve been close to neutropenic a few times and was very NP once and got admitted. So maybe I’m not such a poor newts patient after all.
Hmmmm…my worry about having such high newts (almost 7 on my last 2 chemos!!) is that they’re not blasting me enough. My lump hasn’t gone down (4 chemos in now). Also not getting any of the other side effects such as sore mouth, constipation, thrush, feeling sick etc. Just tiredness and hair loss and a tiny bit of queasiness on the first couple of days - but nothing to stop me from eating like a pig. I know I should be careful with what I wish for and maybe the TAX truck will hit me hard…but I can’t help but worry! I want to be thinking that they’re blasting these little b*ggers. I’ve brought it up with my onc every time I see him and he doesn’t seem very concerned. So maybe I’m alright…!
Anyone else out there worried that they’re coping too well…?!
Sandy - maybe you are just very robust.
Sore mouth comes from low newts. Believe me, you don’t want severe mucositis; I was Nil By Mouth with it once, couldn’t even drink water. Admitted again!