Thanks JANE,
Played with wig and found that some creative brushing and using a wig spray has solved the problem,though now have St.Eroid headache so wondering around in Dobby mode,and head and hand massage plus Paracetamol,have dodgy stomach so cant take Iboprufen,Keeping up my dose Magnesium Oxide for constipation,still hope to enjoy the bonfire dont think I could manage a baked spud though,but a chip buttie would be lovely before taste buds go!!Mulled wine,lovely.
(((HUGS)))Mavis
Oh Saphy good luck for today, I will be keeping my fingers tightly crossed for you
X
Threw all off my toys out of my nest yesterday, but managed to hold onto a few green cuttings. I will behave today now that railway engine is beginning to move off my chest and back.
Another day of DVDs and blood lettings.
How is everybody doing? Supertrouper you have so much energy. I hope this cycle is ok.
Ducky how are the feathers ruffled or smooth.
Mavis if anybody can cut that fringe it is you, when Hairy Haggis had a trim I though there wood be nothing left, but if is ok.
Tigerpig, poodlepatch, how is the nausea. Has anybody heard from Twinkle.
Seroma watch over Ninja and jo do hope so.
Sorry If I have left anybody out… Rather tired
.lots of gentle hugs
Cacklesxxx
Oh Saphy - just what you DON’T need! Big hug… let us know…
From the edge of Rads Rushes looking back, you guys are having such a tough time. I was patrolling through the tents last night with the flame thrower (and Soddit) trying to get a few gremlins…Lit a candle or two… Ducky, you looked great on the lagoon in the moonlight - so serene - but I bet the old feet are going like the clappers underneath! I got my DD to take photo of head/hair, so I could “show off” and was SO gutted at how little there is… don’t feel like showing off any more… grumpy with the friends who’ve told me how fab the fuzz is…
Jane don’t worry about your lack of hair mine looks about the same as yours , I also took photos but was so disappointed with how little I have I could n’t put pic on !!
At least it’s coming back slowly but surely.
Hope JoC and Ninja are feeling better,
Off the Hospital for Herceptin today, hope they find my vein today last time was painful !
Jean
Thanks jane
Glad I looked so lovely on the lagoon moonlight becomes me it goes with my feathers theres a song there somewhere. With numb tingling web feet I am waddling even more now.
xxDucky
Oh dear Saphy, we’d better all get on flamethrower patrol for you. Sending huge hugs and keeping everything crossed.
My big news for the day - I’ve had my hair cut! It’s extremely short and fine but a lovely sort of pixie cut and definitely a style rather than an accident of growth.
My hairdresser cut off my waist length plait for me just before I started chemo and she’s such a lovely person and a brilliant hairdresser. I just told her to do whatever she liked with the style. I really like my short hair - wish I’d had the courage to have it cut short years ago instead of having a curly mane for 27 years!!!
Jane xxx
Wow! Hair! a CUT!!! Going off to the envy bench…
Not really - bonfire again tonight - the baked potatoes were fab last night…
Hi Ladies, well Ultrasounds and Mammo’s done, the Radiographer was lovely and answered my questions, she thinks the shadow on my right boobie which was found in March, seems not to have changed at all and she thinks the lump on my left could be a cyst on the scar tissue. They have given the pictures to the surgeon to study, I was told to go home, carry on with life, relax and go back on November 3rd. Obviously she’s not the expert but I’d bet that she’s seen loads and loads so I’m going to try not to worry and just carry on as normal.
Thanks for your kind words ladies, big ((((Hugs)))) for you all.
Eunice x
I think you’re right Eunice - generally, if they’re worried, they say very little, in my experience! So it sounds like you can put down the worry bag for a while…
We’ve got other newbies on the way I think, so I’ve asked the chaps to put the welcome mats out…
Fingers crossed that the radiographer is right, Saphy.
Give the fuzz plenty of TLC, ladies. I don’t really have enough to warrant a trim yet, but it’s hair, hair! HAIR! (Must remind OH to take a pic of the back of my head.)
I finally phoned to ask for the results of my one year mammo. The nurse read them to me, including the wonderful words ‘no signs of any malignancies’. So it looks as though I am tiptoeing into the land of NED.
I’ll stand a round tomorrow evening, ok? And there will be cake.
Cheryl
Had a miserable post TAX nauseous night and morning,heavy legs and arms,relaxation tapes meditation nothing worked,huddled in my tent,then magically at lunchtime all gloom lifted I had been reading a book “say bah to cancer” very uplifting,but I think my strong anti emetic and last steroids did the trick,do hope it is not a false dawn!
Cheryl how long since you lost your hair, in general how long did it take for each woodlander now growing hair from hair loss?Again fantasy moonlight tonight,very dull and chilly here,need to really line the sleep bag with plenty of soft yew needles.Dont forget the candle bank in the chapel still under group DDW on gratefulness.org
Love and Light to all woodies,carousing or sleeping,
xxMAVIS
Mavis, I started chemo at the end of April… finished end of July. By then, some of the others were getting their hair back, as the TAX doesn’t attack it… I was not one of those! I didn’t get any sign of life for 8.5 weeks… then just the signs of something beginning to happen… there seems to be a noticeable difference every week now, if I’m honest, despite my impatience. I too hope you continue to feel better… Are you taking ginger tablets for the nausea too? Off to liglht a candle before bed. Got to set the alarm tonight and go into work in the morning. That’ll be a shock to the system! Just for the morning (and lunch)… night woodies… sleep tight…
Mavis, I had FEC-T. I had my first chemo in January. FEC saw off my head, leg and underarm hair and Tax saw off the rest (Tax seems to be very variable in its effects on hair). I had absolutely no body hair AT ALL.
I had my last Tax on May 4th so my fine, wispy, just-long-enough-to-cut hair has taken five months to get this far - a bit pathetic really, but at least it’s there!
Saphy - sounds good - still keeping everything crossed for you. 
Jane xxx
Sorry you are feeling yucky Mavis. No moonlight here just the security light left on. The book sounds good, perhaps we could all write one some day.
I went to my nest in great joy because the pain had lifted , but now my heart is pounding to the rhythm of my husbands sleep. Do I waken him? Blast temp up again.
Sleep well steroid girls. Good luck for tomorrow.
Cackles
P.s.More hair on arms than head still. Anybody seen a thin badgers pelt…
My sympathies to all still going through the sleepless chemo nights.
I started 6 FEC in January and was lucky to go through without delays, finishing in April. I didn’t lose quite everything, as some body and facial hair hung on, and I was never quite a skinhead, having a bit of white granddad fuzz. I was just shedding until around halfway through FEC 2, when what was left was so patchy that I scissored the remaining longer bits and then got out my electric razor and shaved the rest down to suedehead.
I think I had the first fine regrowth around the middle of May and now it’s about 2 inches. It didn’t grow back evenly, though, because the back was a bit slower to start and I had a thin area on the top of my head for a while.
BTW Mavis and others, I think a fair few of the features of the DDW were discovered during sleepless nights. I know the Lagoon was. It doesn’t always work, but I often find that fantasising about beautiful places takes my mind off whatever is keeping me awake, or at least that it would make the steroid/chemo wakefulness a little more bearable. Dream houses is another favourite, but less reliable if you go from that to fretting about the state of your real house.
Cheryl
Sorry you’re feeling like a pile of pants Mavis.
On the hair front: I started in Jan and only had FEC (allergic to T). Id lost the lot by end of Feb, eyelashes and eyebrows included. I like to refer to this as my ‘Zippy Look’ (from the 70s kids show Rainbow). Last FEC was the end of April and it started coming back the end of may. Its now really thick and curly - I had my first haircut Wednesday! Not my style of choice but a style nonetheless! I guess I’ve been happy wigless since August.
I’m plodding thru’ Rads Rushes. My skin is holding up with no change at all but the tightness I that had been easing after my recon is coming back. Bum. I’m guessing it’s a temporary thing as it eases over night. Obviously I’ve got a risk with the implant but cos it’s behind the muscle and is only half full with silicone (it’s in 2 compartments with one being able to be filled with saline if needed after rads) the risk is as little as can be. Never mind, just need to keep going - the fields are in sight ! I can’t stumble now.
Xxx
Hello Campers
Just reading this thread and enjoying the general “Up yours, BC Fairy!” attitude displayed by one and all. Just had my WLE and SNB a week ago so still have The Verdict (on nodes etc), radiotherapy and tamoxifen to come (no chemo please, I’m chicken) am a bit of a newby compared to you ladies.
One thing I found deeply depressing was reading some info on diet which banned some things I like including (among others) all red meat, cheese, milk, and worst of all - alcohol (NOooooo…) All of which is totally refuted by the next thing you read, so you don’t know what the hell to think or do.
Picture my delight to find the woods are alive with the sound of gin/wine swilling cake hounds. Yippeee!
Cover me, I’m goin’ in…
MonicaS
The woods have never seemed darker, All going wrong… had my mx 3 weeks ago 15 nodes removed 11 cancerous, had bone scan, ct scan ct showed abnormalitys with lymhs in my pelvis not related to Breast Cancer, but to cervical, so back to drawing board, more scans and terrifyingly only have another 3 weeks till Chemo has to start for me… gave them history, no one seems to look at it. Feel lost
Dearest Monica do not be depressed the woods are full of wonderful people who will show you the way, or even astray. The JM bar is open whenever we want it and pastries etc abound in yurks. Some indwellers make wonderful lemon drizzle cakes, Zummerset Apple cakes and wonderful chutney. Problem is we seem to be laid low with taxing problems today.
Diet is a horrible word. We obey the non pasteurised diet cos we do not want bugs. However thereof not a single person that passes chocolates, cakes, sweets, on the feed your steroid night prowls. Others who know the way through the marshes will come and welcome you. When they give you the tour of the Lagoon , chapel ,rads rushes etc could you keep an eye open for my hair. Thin Badgers Pelt with bleached blonde ends, reward to be given on return
I am in my nest in the yew tree today but hope to wander about tomorrow
Gentle non space invading hug
Cackles