Morning all
Not talked for a while but have been reading in the background as I have been in another dark place, took the wrong path and ended up lost. Welies got well and truly stuck in a swamp and couldnt move. First real breakdown since dx. Went to Robert Ogden centre in leeds and cried and cried to all the volunteers, they were angels. Just listened and gave me a session of reiki, probably to get me out of the waiting area, I was like something demented! Feel a bit better today but void of all good thoughts, only had 2 x chemo and like a wreck. Ok rant over, off for a coffee and fag love to all
Alison x
Sometimes just listening is a lot more than ‘just’, it’s enormously important. I was a wreck for a while after FEC2 as well.
Cheryl
To All
IGNORE ALL I SAID ABOUT FEC2 - I had the worst day ever yesterday.
The zip of my tent was rudely opened yesterday morning by YourHeadIsNoLongerAttachedToYourBody. Honestly, there i was sleeping in my waterlogged state (3L!! Don’t panic, the future of your children’s maths is safe in my hands) feeling quite pleased with myself,when this thing walks in and gets into my sleeping bag!
Of course, it did’nt stop there. Having efficiently severed my head from all lucid thought It invited StomchCrampsFromHell to join in. At this point there wasn’t much room but these two seemed quite happy. I knew i was in trouble when they got out their breakfasts - they obviously meant to be there for the duration.
Now Campers, please imagine the scene and then add the waft of egg and bacon and kippers. Yes - kippers!! Quite clearly StomachCrampsFromHell takes his position very seriously, to the point of inducing more of said cramps at every opportunity, so kippers for breakfast, in a small, enclosed space, seems the obvious food of choice.
This all concluded with the arrival of OHGODHOWSICKCANIBE, who stayed with me all day.
Finally, with the arrival of the trustee Cyclizine (in the form of pills) i was able to wrestle them out of my tent.
So I am now holed up and feeling much better. Have taken a pill this morning as i thought YourHeadIsNoLongerAttachedToYourBody have a jiggle at the tent zip and i don’t want it getting in again.
2-fingered-salute hanging limply over tent but i’m hanging on!!
love to all x
I’m glad you’re better today. I’m trying not to brood on the question of whether FEC2 will be the worst, or whether it’s just going to get worse every time. At least I have reached the point where I can be a little more active, but one of the problems with being stuck in bed is that you have too much brooding time.
Headinthebucket seems like a positive alternative sometimes.
Cheryl
Ohh, SCACO, that doesn’t sound nice. Want to borrow a flamethrower?
I’ve been out with BePrepared today. Went to the dentist to get a checkup so I don’t have anyone poking round in my mouth during chemo. A couple of fillings are lose so he’s going to fix them, and he will also write me a prescription for Difflam in case I end up needing it. Also got a hygienist appt for tomorrow to make sure my mouth is as healthy as it can be before the truck hits. I like my dentist, he didn’t look all shocked, didn’t get all sympathetic, just dealt with stuff in a practical manner, just what I needed.
Will be going out looking for comfy clothes for my darling man to wear in hospital, and will try to work out what’s what regarding the dog and our assorted children.
Bucket is very comfortable now it’s back in its place, but if you really need it, SCACO, I’ll lend it to you.
Alison, next time you get stuck in any swamps let us know and we’ll come along with ropes and floats to get you out. There are so many swamps in these woods, the safest place is definitely surrounded by fellow campers. Hope your head’s in a better place today.
And the ClearMargins fairy seems to be in a very good mood now that she and the Results Monster are in a deep and meaningful relationship, so I’ll keep feeding her on cakes and pouring Crabbies or London Pride down her neck so she looks kindly on those who are waiting for her to come calling.
CM - Difflam is great stuff - your onc and gp will also do scrips on request for you… and make sure you’ve sent off your prescription exemption thing to get five years free scrips… if anyone hasn’t done that, ask your gp’s receptionist for the form, fill it in there and then, and hand it back so your gp can finish it off and send it away. Absolutely worth doing xxxx
Got that already - told you BePrepared and me are best buddies!
This is what she got me to do in the odd moments when I took my head out of my bucket to take a peek:
Bought pjs ready for surgery (didn’t need them but have discovered the joys of having a pj day at home.)
had flu jab (didn’t hurt, no side-effects.)
booked for Mirena coil removal (6/8 Pr+ so surgeon said it was a good idea.)
had hair cut short when chemo became definite (might as well enjoy a proper haircut for a few weeks while getting over the shock of not having long hair.)
Got car serviced
booked wig fitting
booked LGFB session
Spoke to GP to get portacath sorted out
Been to dentist for checkup (filling to follow)
booked dental hygienist (want to have best possible oral health before chemo messes with my mouth)
Going to book myself on a headstrong session as well.
Is there anything else I’ve forgotten that I should do before it all kicks off?
I know I will also need to get my chemo caddy sorted as well, so will be reading that thread shortly to get my ideas together.
Hi everybody 2nd day post fec1 or is it 3rd day? Had it on Mon but yesterday was kinda lost but would have been scary without the help I’d already had on here.I will def take the flamethrower next time
Getting the chemo was fine- soaked my hand in hot water for few minutes which really expanded my vein so didn’t even feel the needle going in.Sipped away at my ginger tea with arm with drip wrapped in warming blanket - kept warming pad on at hame and no pain in arm.
Enjoyed my dinner took my pills and felt fine------but didn’t sleep!
Shouted for all the fairy’s I could think of to no avail.
Tuesday a bit disorientated because of lack of sleep so phoned doc who prescribed 7 sleeping pills! Forgot 2 Domperidol and was sick x1-won’t do that again!
TODAY ____YEES Bringitonfairy here- had a great sleep last night -feel fine pills organised, healthy eating allowing hubby to spoil me but already planning when I can hit the shops and maybe dinner Friday night!
Moral is- first fecers-get the sleeping pills take it easy (think I did too much that 1st day when I got the fec)and get back in dem woods ! Thanks again everybody ----getting the knitting out now- might even tell hubby what I’m knitting!
CM - anything else you’ve forgotten?? - Merkin silly!
Marym - glad the sleeping pills worked - the steroids you have to take will keep you bright eyed and busy tailed at all sorts of ungodly hours! I have never quite got around to asking for sleeping pills, but mostly because I can’t be bothered to make a doctor’s appointment…lol. That may change with TAX when the steroid dosage goes through the roof… or I may just be on here at 4 in the morning!
Glad that the se’s have been manageable so far, yes, don’t forget your Dom Perignon!
Sophie xx
You’ll never believe it ! As I was submitting post the phone went! Marie Curie nurses to ask if I was still available to help at a fair in two weeks! I explained what was happening but hopefully should be able to come along .lolol
CM I’d forget my head if it wasn’t stuck on- who knows what’ll happen with the wig!
Hello all!
FEC2 is now nicely brewing in my veins and so far I just feel a bit floaty and my mouth and fingers feel peculiar. I suspect the FEC gremlins are waiting until I relax, then they’ll attack, but so far so good.
I think the howmanydrugscanonepersonneed fairy visited though - they gave me a carrier bag to bring them home in this time! I’ve got the usual 8 post FEC ones, plus a Neulasta jab for the district nurse to give me tomorrow to prevent the return of cellulitis, several boxes of antibiotics in case it does come back, four bottles of mouthwash and something for when the bungupyourinnards gremlin strikes. I’ve had to get a bigger box to keep them all in!
Now sitting relaxing on fluffy cushions in the tent with a glass of dry ginger and some sherbert lemons.
Oh, nearly forgot - the leg waxing fairy visited in the night and my stubble has magically disappeared! Woohoo! I wonder if it’s gone off romping with those missing eyebrows?
Jane xxx
'Afternoon all.
Been to see a wig consultant at lunchtime - fantastic lady!! Got a really lovely one, then celebrated the weirdness of it all down the pub with my sister.
Tomorrow, the results from my SNB last week. I’m practising my resigned and perfectly calm response in the hope that I remember how to do it at the time…
Must be time for a cuppa again - anyone for a drink of something?
hi ladies
i just wanted to say you are all so wonderfull
i love reading these stories in the woods,
im feeling alittle down today, its 6 day post fec 1
love and hugs
Donna
xx
plus ive had a bad head 
hi amber,
ill have what your having,
xx
Afternoon campers,
am home safe & sound from Fec 1, not feeling too bad but have to admit to taking tablets before i feel wrong 
Off to the tent for a nap whilst children are at rugby match, tea is bubbling away in slow cooker (lets see if i am this Organised by fec 3,lol), am thinking hospital have been misinformed & have me down as some kind of sex maniac as was offered a pregnancy test (soooo not required) & then given a chat about using condoms so as not too pass toxic chemo to Oh, now theres a thought …
Sarah.xx
helloooo Sarah, ive been thinking about you today,
so glad you are back home and feeling ok, thats your first one down now bab,
well done
love and hugs
Donna
keep drinking, water xxx
Well done Sarah - first one ticked off! Keep popping those pills - they really work!
I’m seriously offended that I wasn’t offered a pregnancy test. I’m not that old, am I?!
Jane xxx
Sarah, I was firmly instructed to take the anti sickness pills on schedule, no waiting to feel bad first, so well done.
Sex, what’s that? I must have known once…
Cheryl