Hi.
I have been waiting for someone to start a thread for April but it’s not happened so here I am.
Starting Fec x 6 on April 8th and looking for anyone else who is starting around the same time.
I know I have to get through this for my 4 year old. Just not sure i can do it on my own.
Diagnosed after finding lump before Xmas, two biopsies, lumpectomy and shave and now 14 days post mastectomy and immediate reconstruction. 37mm tumour grade 2 er+ pr+ her2- 1/10 positive lymph glands.
xx
I will join you! I had chemo (TAC x 8) originally in 2010 after bilateral PBC diagnosis, now have SBC so am about to start another round (trial so not sure yet which drug). Waiting to get my treatment dates but expect to start next week. Although I found it very doable last time round (worked full time, had a 7 year old, carried on as normal) this time I am more fearful so be good to have the support here.
Molliana well done for,starting the thread I am sure you will unfortunately be joined by others? I am from the April thread last year although I had my first chemo on March 27th. I joined the April thread as most ladies would have been on their second session.
The thread and the forum have supported me all the way through the journey and I am sure I would have ended up most depressed without it. I live in Cyprus where there is no emotional support they expect your family to support your emotional needs here and it’s a bit hard when there is only my husband and me here! I do have three grown up children 2 in the UK and 1 in France.
Sadly some of our ladies have stopped posting but some of us still post and we are meeting up in July when I come over to the UK. We have shared so much not always cancer related. We have helped each other and shared our experiences through chemo, surgery, radiotherapy and for some of us Herceptin.
You can do this and you have come to the right place where you will be supported each step of the way. Good luck and do post regularly with any worries.
Hi Molli I will be starting sometime in April. Just waiting for date, bone dexa scan and heart scan. Hopefully, (what a stupid thing to say - hopeful for having chemo lol) will hear this week sometime. 3 weeks post MX and node removal - doing ok. Val
Hi Ladies,
I too am an April Fool …
Chemo start on 14th just EC for me.
Have had the pre chemo hair cut so gone from shoulder length blonde to spikey reddy purple. My mother was quite shocked and was about to utter the words " what will your father say" when I pointed out in about 5 weeks it will have falen out!
PS I AM 50 so quite chuffed I can still shock em.
Anyway girls we will kick this well and truely in the butt.
Molliana - go be our pathfinder, we’re proud of you!
Had my first of four treatment today having TC.
This is my second time with bc had it in my left side three year’s ago and now a new lump in the right side.Its triple negative this time the other side was estrogen positive so its a new cancer and has not spread .Have to look at all the positives.I have had a central line fitted as my veins were not good and it made it so much easier. Off now for a rest
Hello everyone!
I guess I am going to be the first to start in April so far.
I have had my echo today. It was fine except I had to get my newly reconstructed boob out which I wasn’t that keen on showing but the lovely lady was just that, lovely
tonight I am meeting some random strangers in a pub. They all happen to be under 50 and have had breast cancer! I am a bit nervous and it’s definitely a bizarre journey I am on ![]()
I hope you are all ok today x
Hi ladies, i am like Rosie from April 2014 thread- as Rosie says the forum has been and continues to be a massive support during the past year! I had Fec-T and herceptin starting a year ago this week, i had chemo before surgery, then radiotherapy afterwards, now having herceptin. My first chemo session i was terrified, but it was painfree, sat talking to other ladies whilst being given chemo, nurses are lovely. Dont put up with side effects, there are medications to help with everything, Emend for sickness, diffilam mouthwash, etc, etc, so dont suffer! Also if you contact macmillan you are entitled to a grant to help with things- i got £400.00, as i am self employed it really helped me. I carried on working throughout all my treatments and found to keep life as " normal" as possible helped me a lot. You will find sharing your worries and good and bad days on here very comforting, i wish you all the very best, you will feel more settled as your treatment gets started. Wendy.?
Hi I too am an April starter. My first FEC is scheduled for April 14th so storm I shall be thinking of you too that day! Had my pre chemo chat this week - info overload. I did come out wondering if any poor soul has ever had ALL of the side effects there are just SO many ! I was a little like a rabbit in the headlights yesterday but have calmed again today. Got my short haircut booked for Friday morning and then will be ready and waiting!
Hey ladies , I just wanted to wish you all good luck . I’m from the October 2014 thread . I finished my chemo 6 weeks ago and am 2/3 of the way through rads . I found chemo difficult at times ,but there were many days when I was ok , went shopping , met friends , rode my horse ,cleaned the house (a bit !) but I got through it , got used to the ups and downs , good days and bad days . I kept my mind focused on completion and knowing that I was in a temporary situation and would come out of it knowing I had done everything possible . I wish you all well and like many have said before me , use the forum as a means of support as friends and family can only do so much and don’t always understand in the same way as people on the forum xxx
Hello everyone
I very rarely drop by the BCC forums these days, but this time four years ago I was waiting with trepidation for my first chemo. I’d already had an mx, with full node clearance and immediate LD flap recon and, after my FEC-T chemo, went on to have 25 sessions of rads.
What can I say… Chemo is sh""te but ‘doable’ - I got off reasonably lightly with sde effects, but everyone is different. With the advice of your medical teams and the support you will find here, you will find your way through. What I can say is tha,t four years on from starting chemo, I am back (and have been for some time) living life to the full. Yes, I have some scars and lasting effects of treatment, but I work full time, ride horses and party hard in my ‘spare’ time. Since finishing active treatment I have been on fabulous holidays, walked up Snowdon (raising lots of money) and done all sorts of things that, in the depths of chemo, feeling a bit crap and with no energy, I could only dream of.
Hang on in there - it will pass.
I’ve done stuff I might not have done without my cancer diagnosis, but the one thing that I really cherish are the people I have ‘met’ (virtually and in reality) and life-long friends I have made because of it. I hope that you are all as lucky.
I see that there are a couple of you for whom this is the second time round. For those of you facing BC for the first time, please don’t get too spooked - it does happen, but doesn’t always. For those of you facing this again, I wish you luck and there were two people I know who were going through treatment the same time as me who were ‘second timers’ - one recurrance and one new primary. They are both well and happy and I had lunch with them a coupleof months ago.
Sorry for rambling, but I just wanted to drop by and offer a bit of encouragement. Good luck to all of you.
Dx
Getting nervous now. Three days to go ![]()
Four days after my first tc chemo not feeling good today aches n pains and it’s a lovely sunny day what a waste but I have have a lovely weekend with my family so I am going to take it easy
I have lots of chocolate and intend to eat whatever I want since starting chemo in three days I doubt it will matter! I think I will be a wreck by Wednesday!
Kellc I hope you will feel better xx
Hi girls please may I join your group. I had WLE and SNB on 12th March (grade 3 stage 2a) and I am currently waiting to see oncologist and for a date to start chemo but I “hope” it to be this month. I am struggling with the waiting and I really need to know my plan of attack. Thankfully kids are currently occupying my mind while they are on school holidays. Good luck to those of you starting this week xxx
Hi tussie Joint Pain kicked in on sat night ached all over have plenty of painkillers spent the past two days sleeping but beginning to feel normal again just had some chockices as mouth is a little sore.just take it easy
Has anyone been to their chemo info session yet? I am having mine on Wednesday right before I start treatment so won’t have enough time to take it all in.
I was wondering what they give you steroids for?
I was also just reading a leaflet about cold cap and it says you have to have wet hair and apply conditioner to leave in while the cap is on? Anyone heard of this and whether I have to take conditioner with me? Or anything I might need to take on Wednesday?
x
I’m halfway through my chemo but felt I had a useful contribution to make for Molliana so hope you don’t me posting here. Yes, they will wet your hair before using the cold cap and you need conditioner. My unit insist it is Simple conditioner and they use a lot! It’s very painful to start with but after 15 - 20 minutes it does get easier. Take some paracetamol half an hour beforehand to help. Also buy some dry shampoo. Wash your hair as little as possible and use the dry shampoo in between. I’d spent 2 years growing my hair when I had my diagnosis and was desperate to keep it. Mine has thinned but I have no bald patches and haven’t needed to use the wig I bought or headscarves at all so far. Good Luck. Hope this helps a bit.
Iv jugs started fec-t had one lot due next on thurs ! My first one was ok I wasn’t sick which is gud as I’m a sickly person ! Hope The next one is the same ! Hope u do ok xxx
Damn. I have been awake half the night. I had a horrible nightmare that there was a girl called Metastasis sitting on the end of my bed and she wouldn’t leave me alone. She looked like a cross between my twin sister and one of the lego men on the xbox!
Also I am waivering about the cold cap. I am thinking if there is even a tiny risk for scalp metastasis then why would I even risk it! My hair will grow back. I don’t know why they can’t sort out the wig appointment before you start chemo so that I would feel much more confident about not doing the cold cap!
I am also completely panicing about the ultrasound I have right before chemo on my good boob! It’s been painful down the outer edge for weeks and there is definitely thickening.
Ggaaa!