hello yesterday was lovely feel crap today though, mum just told me i should ask other people for lift to hospital as i cant keep expecting my parents to ferry me to the hospital for impending rads as its too expensive and time consuming and the worry of my cancer has had a huge emotional impact on them, didnt i realise that?
I know i shouldnt moan and yes they have been worried but its upset me ALOT, and im not feeling great physically so its all getting a bit much right now
oh Sharon! it seems so unfair that the epi hasn’t settled down a bit but hopefully the next batch of anti nausea will work. The colleagues don’t sound mega suportive either - i did much the same as you and whipped it off - they are used to it now and if they don’t like it…tough.
But well done for going back to work. Caroline and OH are right but it’s hard knowing they are! I got the same line from Caroline and i will take notice but while i can i will - or something like that!! My job’s not physically strenuous and i can work from home so cutting out the driving helps.
Anna, i am not surprised that you feel upset, i’d be in bits (oh and the cancer’s not had an emotional impact on you either??? - gah family!!!). Can the rads not be done in Rugby? or could hosp transport not help? i thought you were looking good yesterday and was dead inpressed with the hair - i know you said it had been really long but i thought short really suited you.
I’ve just woken up after a 3 and a half hour nap…don’t know if i feel better or worse!!!
Take care J xx
Hi to you all
Just a quick question I am due to see Prof Grieves before my next 4th chemo session (I am seeing him tomorrow as they cant get me in next Thursday) I know it is routine but what is discussed at this follow up?
Will I need to ask questions?
Thanks for your ;help
Sharon
they couldn’t get me in either… and i was finally offered 28th april - 2 days before next treatment. i didn’t think it was worth it because me the lucky soul on tratment so have turned it down and will just see whoever on 30th. i think it is normally to check you are ok and to give a chance to ask qs and talk re next stage of treatment… most importantly for him to see you are ok as well.
Caroline did say i could get apptment if i felt i needed one… but basically i am ok, so no point.
make the most of opportunity to ask!
best of everything
J
hi everyone
Hi Anna
How goes it? Me ok tho i thre my rattle out of the pram alst week at one point because i just want it all to be done - patience is not my strong point!!! i’ve calmed down again now.
J
Hi to you all
My Chemo has been cancelled due to cold sore throat and cough so feeling a bit rough caught if from my OH his man flu suppose to have it tomorrow (Thursday). Blood count okay though Hopefully they will get me in on Monday as I am going on my sons football tour next Friday and I feel rough with the EPI for about 4-5 days. I have begged Caroline not to have me in the day before as I will feel rough.
Well going to bed now
Speak to you soon
Hope you are all well after your chemo treatments
Sharon
x
hey - as sweet as Caroline looks - she will NOT let u unless she thinks u ok. So. Life matters too - defer chemo for a week - not the end of the world…
smiling re caroline - gosh i have NEVER eaten so well… behaved so much since i met her
still feeling rough caroline is phoning me again om Monday to see how i am again, if temp goes up or feeling worse than today I will need to go to hospital. I have never felt so ill with a cold. I have a horrid taste in my mouth which caroline says is a mixture of the chemo drugs and the antibotics. Prof Grieves is hoping that the antibotics will kick in by tomorrow.
Sorry must sound like the only person that is ill.
hope you are all well
Hi
Hope you don’t mind me butting in.Don’t know who Caroline is- assume bc nurse-my bc nurse is excellent - but I will also say they are noit at hand at all hours - so if your temp is up dont wait and go to A/E or call a nimber thay have given you.My temp was up after chemo and had infection so please make the call
Mary
x
Hi Shazjan Hope you will be feeling better soon and won’t need to go into hospital. I wonder if Caro ever goes on this site ,if so she must have a chuckle, we make her sound a right harradin . Bless her and Julie they are fantastic and wo’nt take any chances. I had to spend a few days on ONC ward and they were equally fantastic. So try not to worry to much if you have to go inBUT hope you do’nt, just cossett yourself. I feel we are very lucky in having Prof Grieves saw Dr Ham MON, the Prof was in London and he was ok to. Let me know how you are please !!! All the best Love Bobbie.xxxxxxxxxxx Oh by the way they do’nt mess about at Cov A&E if you are a chemo patient. I was seen within 10 mins and was whisked to the ward in no time!!!
Hi Sharon
hope you feeling better now?
Good to see you about Bobbie…and Mary… u are more than welcome.
I hope every is doing ok.
I’m hitting the chemo run on wed with xeloda pills, if bloods ok. LOL i have been eating enuff fruit veg/frsh food to cause a shortage.
Jennifer x
Hi Jennifer
Feeling a bit better but still have a sight temp Caroline is calling me today, still have a cold but I cant stop coughing, finished the antibotics yesterday not sure what they will do today with me. They have given me a new date of Thursday for my chemo but supposed to be away on Friday so asking caroline if i can delay for a couple of days, but suppose it depends on if I still have this cold.
Hope everyone is well.
Wondered why my OH didn’come back with fruit and veg yesterday when I sent him shopping LOL
Take care on Wednesday
Sharon
xx
I hope you feel better today. this stuff and what we can do is weird…
I wrote loads of things and deleted…
but i wish u all the best
j xxx
Hi everyone: Haven’t been on here since mid-April but thought I would just update you nice supportive people.
Have finally got rid of the seroma - little bit left but the body can look after that, no more draining!
Will be starting my chemo on 27 May after my hol. I decided I needed some time away to relax and give my system a boost and, although not pleased, the Prof agreed. Went to see him week ago to get someone speaking sense to me. I was fed up with being told the technicalities of Grade 3 oestrogen positive cancer, but no one told me how it affected ME. Well he did - didn’t really want to hear but at least I now know - if I have no treatment will be back in “a few” (doctor speak for 3/5) years with a cancer he will not be able to cure, at the moment he says he can cure me. My survival rate is so low (40% ten years with nothing, 67% with everything) because of the aggressive nature of the cancer. So no choice there then!!
Am working this week, away in Norfolk next week - pls let weather stay good - and then down to business.
WIll let you know how I get on - just hope the side effects are not too bad.
luv to everyone, hope you are all OK.
Julia
XXX
HI Julia, Naomi , Jen and yours truly are all with Prof Grieves, at Cov. Trust him he is soooooooo caring and honest and for a Prof very approachable . I have had 4 EPI and 2 CMF have 2 more to go. Then 5wks of Rads. We are all different and cope as individuals whilst supporting one another . Also have two friends who do not use site and they are going through BC/ chemo, its good to have support of others. I see counsellor once a month and have reflexogy also at Cov.Keep in touch and let me know how you get on all the very best. love Bobbie…
Hi Julia
i think good for u having the hol!!! hope you have had a lovely time.
hope every one else feeling good
J x
had message from Bobbie on another thread… the girl is up for coffee.
v glad that you are feeling better Bobbie
hello everyone should we try to arrange it on this thread then?
Anna
I think so but we need to keep bumping it up so people see it?
Bobbie…when are u up for coffee then?