Border Collies - glad to hear FEC 5 is going well. x
I must say it’s made a huge mental difference to me having got FEC4 inside me. After fEC3 everyone was going ‘yay- halfway’, but I just kept thinking 'i ‘ve gone though all this, and now I’m going to have to go through the same amount all over again’ Whereas now, having had 2/3 of it, it seems so much closer t othe end. Only 2 more t ogo.
Mind you, still got the horrors of days 5-10 of this dose to get through… I wish we could have more steroids . I LOVE the steroids.
Cybele - I’ll post you my steroids… I have a weeks worth due to my infection and they make me even more bad tempered than usual… (which is really bad!)
Hugs to everyone… will catch up with the posts later as been feeling generally wiped out.
xxxxx
Aww cybelle what a pain the backside , so sorry you had to go through all that again , no wonder you dread going , hope your sickness not too bad this time to compensate , we also have heat packs for veins and such, its strange how everywhere is so different xxx
The hallucinations I had was from other drugs not the chemo , I’m having 6 TC , I’ve just had 3rd one on 14th feb , chemo is a little sod isn’t I, I thought I was coming round on day 7, but oh no , then had a day of being on the toilet followed by a day of very strange muscle spasms in my back, which I know is from my injections to boost my blood cells I have from day 5 to 10 , my mouth is also very sore like the rest of you , horrible isn’t it, I can’t taste anything and have a vile taste , I’m also on fungal tablets but still my tongue is furred up , but it hasn’t stopped me shovelling food in , wonder if chemo does attact teeth as a few of us seem to be having problems, I pick my guard up tues to stop me grinding my teeth at night , I did this before all this but has got worse , I keep waking at 2.30 am too and then not much sleep , I’m also avoiding social outings , i just don’t feel in mood , plus ill make myself ill by thinking I’ll pick an infection up , plus I feel like I look like a bloated beast
lv to you all xxx
Cybelle ask for the heated pad. The cold cap is still horrid but its is a bit comforting. My son got me a cuddly Bagpuss that goes in the microwave and stays hot for an hour or so. Between the two I could just about manage. Last time I gave up with the cold cap and lost all my hair but this time I stuck it out and still have my hair. I guess its worth but it didnt always seem like it.
I’ve been really good all week, eating extremely healthy food, but today the steroids got to me and I ate a WHOLE BOX of Maltesers which my OH gave me a while back, and I had been nobly ignoring, and that was 600 calories and a whole load of poisonous sugar in one fell swoop.
I do love Maltesers.
Never mind, hopefully the chemo will nuke the bad effects of the sugar…
Cressida ~ Thanx for advice on pain relief, will definitely ask for something stronger next time. Will try slice of lemon in water. Will contact Human Rights Commission with petition against TAX and Baileys not tastingright, in due course!xQueen Drama ~ Day 10 for me tomorrow, so will expect to wake up bald! Will definitely try the elderflower, and hot red berry sounds good too, I can tolerate black tea, just about!x
Shellebelle ~ Sounds like our experiences so far are similar, did you just have EC or FEC? As you say, a doddle copared to TAX. Do you think it’s the injections that are knocking us around? I had them from day 2 - 8 inc, and my stomach has been really painful ever since, feels like an elephants been sat on it! When I had them after FEC, I had back spasms each time the day after finishing the injections. Were you prescribed lansoprazole, as I’ve not heard of that before? My toes are still painfull, feel as though they’ve been in a vice! Went out for first time today and did a small supermarket shop, couldn’t believe how shattered I was afterwards. Funny you liking hot chocolate too, have you tried it with squirty cream on the top, just adds a bit of luxury, without much extra calories!! mmmm … How many more TAX have you to have, and are you having Herceptin with it or not? I suppose the only good thing is that we have had one lot, so that’s one lot less to have!! Talking of teeth, another one of mine broke off tonight, wonder if we’ll have any left by the end of all this!!!
This forum is the best thing ever, at least we know how it is for us all, as we’ve all been or are going through it. and aren’t fobbed off by oncologists saying they can’t see chemo causing these different problems! Keep posting ladies and keep smiling
Cybele - I can’t take the steroids because they give me hallucinations. All I get is some steroid in my infusion and that’s it. Got some left over from FEC x 1 if you’re desperate - just say the word. I felt like you at FEC x4 that somehow the end was in sight and amazingly FEC x5 seemed to come around quicker than the previous sessions. I feel as if I’ve been trapped in some kind of time warp since diagnosis in November and that aliens had somehow taken complete control of my life - now at FEC 5 I’m beginning to see some light at the end of the tunnel. You sound as if you’ve had a better day today. Actually I thought it was compulsary to consume the entire box of Maltesers - it certainly is in our house. This rule came about because OH would always leave a solitary Malteser in the box, not wishing to appear a pig after having eaten them all and there is nothing worse than seeing a box on a table and getting the gastric juices flowing in anticipation of a chockie, to open the box and find ONE in there. Maltesers just have to be eaten!!
Sorry to hear you Crackers are having a rubbish time at the moment. Cybele your hospital experience sounds horrendous. Hope some changes can be made so that it doesn’t happen again.
Cressida-Hope you enjoyed the party. I have avoided all social gatherings mainly because I just could not be bothered putting the effort into being pleasant.
MandyP-I haven’t had ringing ears but have been getting shuddering in my left ear. It has abated now.
I’m now 17 days past my last Tax and feeling fine except for my eyes which feel really burny (and look terrible-I’ve aged a decade around my eye). I feel my eyesight has been affected too. My other complaint is a very sore bum. I fear it’s piles and think I’m going to have to visit the doctor about it. Do the indignities never end?
Getting my first radiotherapy session this week and my next Herceptin, so I’ll get to see what it feels like without chemo. Just hope it’s not the Herceptin making my eyes sore.
hi, i havent really been on here since the first time as was coping really well , but to night if i dont say some of the words screaming round my head i will be running,ok make that hobbling, out the door to the funny farm…its a rant i,m afraid WTF with more bloody effects from chemo. i have had enough, friends say “only 2 more to go” and "nearly there, well guess what , i dont want 2 more and i want to be past there…sod the taste in mouth and foul food, exhaustion even when done NOTHING, pounding heart, fingers and toes that feel like they have been shut in a drawer or something, not sleeping and generally feeling pathetic. want to cry but cant, want a hug but live on own and who wants to hug me anyway. thought the T part was going to be ok but guess not
Hi coyetegi. Rant away - thats why we are here. im living and praying for my last bl**dy chemo and if another person says youre 2 thirds through I will hit em!
On a positive note - though its too late for you now Cress for this weekend (did it go well?) but might be of some interest in the future.
A company called Cami Confidential makes lacy tops for breast surgey patients and they do a comfort cushion which cushions the under arm area.
Good luck with the radiotherapy Maire. Let us know how it went.
Hi to you all Crackers out there, not been on here much this time round, keep loosing track on how everyone is, my SE are not very good with computers at the moment, it feels like i am car sick when i start to read anything or type , my mouth is the worst this time, MOTH MOUTH is the one for me this FEC SE cant taste a thing toung is very tender, and gone off all types of food, drink, except tomatoe soup, i can taste that so been living on that for a few days, hopefuly this moth mouth wont carry on for much longer,
Sorry got to go, starting to feel car sick again very strange feeling.
lolly
x
Coyotegi ~ I’m so sorry you’re having a rough time at the moment. Tax is harsh and I know exactly what you mean about feeling you don’t want any more. I had done quite well myself on the first 3 cycles of EC chemo, almost lulled into a false sense of semi comfort, but then it changed to Taxotere and it’s all so very different now. Like you, I have another 2 cycles to go (next on 7th March) and I’m more consumed with dread about facing this again, twice, than actually focusing on anything positive right now.
It’s almost like we get to the halfway point and feel slightly euphoric for a brief moment, then that wears off after the next dose of poison when the effects are taking their toll on our already bruised and battered weary bodies. Yes, we may be nearer the end, but knowing you ‘only have 2 more rounds to go’ is still twice as far away and not as good as only having 1 more chemo to face, so I understand your frustration at those comments from friends and family etc., they’re up there with the ‘you’re looking well’ ones we have all come to love to hate
I know it’s not the same, but here’s a virtual <<<<hug>>>> from me and I hope you can draw that little bit of extra strength and support from this forum and know that you are not alone, you are strong and we can do this together. You might need to come back here more often and shout, scream and cry but nobody here minds that one little bit xxx
Coyotegi - BIG HUG xxx
It’s so bl***y hard, isn’t it?
I am in the bad part of FEC4 now, and yesterday I just wanted to scream and tear my hair out and smash the windows…
I took a Lorazepam last night, woke up briefly to take anti nausea meds this morning, then went back to sleep for the rest of the morning.
I haven’t had many sofa days so far, but todat is definitely one of them. Am still in my pyjamas at 1.15, and there’s going to be another Lorazepam tonight. I don’t know why I’ve been resisting taking them.
Cress - the Omeprazole is dEFINITELY helping with the txoic stomach , thank God - it’s not nearly so bad this time , touch wood.
I’m also despairing at the thought of having t ogo through this two more times. It’s just sheer torture. I seem to have been feeling sick for the whole of my life. I’m on 4 different anti-nausea meds, plus steroids, but was still retching early this morning, and nearly threw up the meds.
I sometimes think about just stopping the chemo, but I suppose it would be daft having got this far. But I keep remembering that for my particular type of cancer/tumour, there is only a 7-8% chance that this is doing me ANY GOOD AT ALL.
that drives me crazy…
Hi All. There are so many of us having a horrible time at the moment. I’m just passed the worst of FEC 4 now and am also dreading the next two. No one but you lovely ladies understands, so Coyotegi, stick with us, we know best.
Shellebelle, you put into words what I’m feeling.
Hang on in there, Cybele, I know it’s rubbish. Big hug. I’m in my PJs too (2.18pm). I’ve got to get dressed to go food shopping shortly; before the crowds hit the supermarket, but I’ve enjoyed slobbing out today.
Omeprazole is definately good for stomach problems, but have you read the leaflet? Mine says ‘Omeprazole may cause a reduction in the number of white blood cells and your resistance to infection may be decreased’. I reluctantly stopped taking them as I’ve been prescribed antibiotics (Ciprofloxacin) to help build my white blood cells up because of low counts on the last 2 cycles. I’m no expert, but this all seems very contradictory to me and I don’t want chemo to be delayed if possible.
Hugs to all.
good evening , I’ve got out of the house today , day 11 of tax and C no 3 , feel shattered now and I could just go to bed now , still can’t taste , I do wish I could eat healthy but I can’t bring myself to do so, I keep saying to myself after all this I will eat well to try and help stop this bugger from coming back , my toes feel abit strange though hope it’s not the neuropathy coming on , I’m getting very bored now as well of not being able to drive and get about and do normal stuff
mandy p, I have a whushing noise in my ears at night , I did have ringing but that was when I was on some antibiotics
coyotegi, sorry your having a rough time it’s utter s…t isn’t it, but rant rant rant and rant some more , it’s hard to rant to people you know because they mean well so use this forum to rant as much as you need , sending a big hug , I’m also on my own but I have a little boy that I make hug me but he’s like a slippery eel to hug xxxx
* my post was supposed to have <<< hug >>> in it but I think between my chemo brain and trapped finger feeling I managed to delete the word hug
