hi ladies
It seems we are all suffering at the mo.( Come on Hamley You can do it !)
My thrush is in my nether regions but i shoved up a canesten pessary and am applying cream 3 times a day. My nails are a rainbow of colours. I noticed that they absolutely stank so i cut them really short and cleaned out as much dead stuff as possible. smells a bit better but they feel papery and as if they are about to depart from my fingers and toes - yuck!
My mom made me laugh and cry yesterday. She had her fall 2 weeks ago and has been in hospital ever since with a broken pelvis. After she had been in a WHOLE week she hadnt done a poo. A WHOLE WEEK!!! So the nurses gave her 2 enemas - which didnt do anything. So they gave her some mega shifting stuff and then - are you sitting down ladies - they put her in a pair of “poo pants”. Pants which she has to poo in. Ok ok i can see that it is easier for the staff to take off the pants and clean the area but … my mom is an able 95 year old with all her faculties. How DEGRADING!!! so my mom went on strike yesterday. She refused breakfast, a wash, a walk and has categorically refused any more cryptonite plus poo pants! Good for her! I spoke to her and to the staff and the deal is that she will walk the length of the corridors twice a day using her zimmer frame in the hope that the movement will help her bowels to work. She is also upping her fruit and veg . The sooner she is moved to the rehab place the better!!!
Bordercollies, thanks for your support.
Lisa, You moan all you want, I do and always feel a bit better when the other ladies here offer support and suggestions. It’ a blessing.
Mandy, I’m going to have a recon, I’m going to see my PS next week to make sure that I know what’s going to happen before I have the mx. I don’t want to be told ‘oh what a shame, if you had done ‘A’ we would have got a better result with ‘B’’ after the event. I’m going to have a second mx after rads but understand it will be a long time befoe my skin recoovers enough for the recon. I’ve already decided I want to be a D cup though!
Cybele, I’m going to ask for extra steroids too. I hope you’ll feel better soon.
Cress, perhaps we could do a murder mystery weekend with cancer/chemo as the victim.
Maire, congrats on finishing, it’s really time to look forward to your holiday now. I wish I could come with you.
Coyotegi, my finger nails have suffer a bit too; they’re ridged and somewhat brittle. Still that VERY expensive hand cream I treated myself to smells lovely!
QD, your Mum sounds like quite a lady. My SIL died of bone cancer in Nov 2012 and for her humiliation was nearly as bad as the pain.
My hair has started to grow back. It’s got no colour in it at the moment, not even grey. I’ve suddenly got a full compliment of hair on my legs (great!) but my lady garden remains very drafty (sorry to be so indelicate). Nothing about me is very lady like at the moment.
Love and hugs to all, we’re all getting there.
Evening ladies , spoke to the nurse today about feeling crappy , she is going to send an email to oncologist and maybe I’ll have my dose reduced tomorrow if I’m not up to scratch , which I have mixed feelings about as I have one unclear margin so I wanted the full lot , the nurse did say that tax was really hard going and that I’m doing really well as I down to have 6 of the b***ers , mine was a fast growing swine and tn but no node involvement , she did say it wouldn’t make any difference if I had it reduced which I don’t understand , also now I’m thinking am I imaginging that I’m feeling crappy because I’m sure I give myself symptoms just by thinking about them, anyway we will see what tommorrow brings when I see oncologist in morning xxx
cress, hope the weaning off the drugs not too bad , how’s the temp at mo , I’ll try double dose omaprazole thanks , and yeah to this trout eating a big Easter egg x
cybelle , can’t believe your feeling crap again , thinking of you and I’m willing your temp to keep down, sending cool neut kick up the arse hugs , can’t you arrange to get a script of antibiotics from your chemo dept as a precaution to help you x
mandy, it’s a horrible feeling isn’t it this lung thing , it does feel a little easier after taking steroids , but I still feel weak and wiped out and I look so pale , how many tax did you have and did you have the full dose x
marie, yeah to finishing rads , shocking council trying to close your school grrrr , what’s it all coming to , suppose it’s all money as usual x
coyotegi, glad you feeling better after tax reduction , I’ve had 4 and 5 th maybe reduced tom, maybe your right about them blasting us with the highest and see how we tolerate it , doesn’t feel too good though does it , oh I’m a podiatrist so I mess with feet, I know disgusting , but if your nail doesn’t look inflamed or red can you try and clip it off if it’s loose as you might pull it on your socks , but you should get podiatry treatment free on Nhs with our medical problems , can you ask your chemo nurse x
QD, your poor mum that’s awful , she does right and she seems like an amazing lady , she must be so uncomfortable too not going for a wk , poor thing , hope the walking works , poo pants !!! They do not sound attractive all x
Hi Lisa
I had 3 tax after 3 fec. Like you Grade 3 and Triple negative and no node involvement. I chose to have mx first. why did you have 6 t???
After the first Tax, i had 4 and 5 reduced by 20%. this was on the advice of my onc as he said that given i had felt so poorly (unreasonably???) that the risk of damage to major organs was probably not worth doing the full 100%. Ive still felt rough but nowhere near as bad as i was…i was going to ask if i should have the remaining 40% as a follow up, but assumed that they would have suggested it if it was a sensible theory!
I believe that it is quite common to reduce the dose…
Will be thinking of you tommorrow…
Night night crackers
xxx
Hi coyotegi - have you tried clotrimazole for the fungussy nail?
Mandy - im doing 3 x tax then 3 x fec. my 2nd dose of tax was reduced as well. its not uncommon.
Cybele - hope you feel better soon.
Lisa - 6 x tax is harsh. If you cna get a reduction do so. I know we all want top beat the b’stard but we have to survive too.
Oh Hamley - you did make me laugh re your lady garden!!!
my mom moved last night to the rehab centre. Hoo ray!!!
QD
Feeling a bit down after seeing the doc today. Basically he is saying he has a few more things to follow up, but his current opinion is that I am just really unlucky. The inflammation and loss of mobility I am experiencing are the result of the surgery, chemo and rads conspiring to do damage. At this stage he doesn’t think it can be “fixed” and only time will tell how it will turn out. He wants to focus on treating the symptoms. He wanted to start steriods but I resisted for now. Pain killers and anti-depressants are the plan. This was my second opinion. When I have had my holiday I need a third opinion. I will just keep getting them until one of them says what I want to hear…
Hi Cress
You really have had a tough time…good on you resisting nasty steroids…so many are so quick to prescribe them and they make you feel like sh*t!
Is it any consolation to say that you’ve beat the arse off the cancer? probably not, but I’m trying to be helpful…
I burst out crying today while waiting for my rads meaaureup. I was the youngest there. I went by myself and felt so alone, vulnerable and hard done by. I also still feel shocking from this last tax…it seems to be hanging around too much. I was violently sick last night (the first timeever) and generally feel weak and my lungs are really painful…
I’m sure it is the poison playing tricks with my head but I wish i had my life back and i wish that when i looked in the mirror I actually look like me coz i dont at the moment!!
Sorry Cress, sooooo wanted to make you feel better…
Tomorrow is another day!
QD - hope your mum ok xx
Cressida-I hate that you’re feeling down. Surely the pain will ease off as your body heals. Your Doc seems a bit ‘glass half empty’.
I’ll give you a 3rd opinion if you like: you are going to have a good holiday and your spirits will lift. By summer you will be feeling much better and will be ready to party with the crackers-we just won’t do any dancing that invloves lifting arms up and swinging pieces of clothing about!!!
Mandy-Don’t put up with feeling rubbish. It might be worth getting checked out.
I’m not suffering from chemo misery anymore but I have the garage mechanic blues: car failed its MOT. Just cost me £240 for mot/service and to fix something to do with tyre bearing. Have not a clue what I’m paying for.
Mandy and cress, so sorry your feeling shit at the mo , mandy I would def get checked out tom if you feeling rough , is your temp ok , I think I’m having 6 tax as I have an unclear margin and they keep saying I’m young , I’ve had my chemo today at a reduced dose , my onc is now worried about my toes now tingling , which has now today turned into a burning pain, did anyone else have this x
QQ, hope your mum gets better treatment in the rehab centre and avoids poo pants at all costs xxx
lv to everyone , would like to go to bed but the steroids and burning feet are not going to let me xxx
Hi All. Seem to have gone a bit astray lately, a couple of my posts went missing, so it’s catch up time. Michelle, so glas that you’ve finally had a successful treatment - whoop whoop, onward and upward. Cress, glad they’ve finally sorted out your meds and you’ve had some much needed relief and sleep at long last. Maire, I know what you mean about being cold then waking up soaked, and the ‘chemo smell’ ugh, unless it’s only me that smells like that?!?!Cybelle, great blog, really enjoy it, but I know where you’re coming from re the ‘prison sentence’. Am so jealous of the fact of the holiday planning etc, unfortunately not sure what’s happening with treatment yet, so can’t plan anything for a while, but ohh it would be sooo good to get some sun on the old bones!! Queen Drama, hope your mum is improving and gets on ok when they move her, she sounds marvellous for her age. Hope the thrush goes away quicker than the snow!! Manage3d to get up to London last week to see the Bodyguard, a long day as I live in Somerset, but well worth the trip and feeling knackered for the following two days!! Made me feel ‘normal’ doing something I used to do regular! Well I had my last chemo to-day + 3rd Herceptin - yipee. Can’t quite believe it, seems a bit surreal! Have decided to try for Supremo Trial and Persephone Trial. Have read results of trial so far, felt I had nothing to lose, plus you get a genetic blood test aswell, and I thought no one else in my family had ever had BC til my aunt, who has dementia, mentioned last week that my grandads sister had it. I wouldn’t have been eligible for rads, as I was in the ‘grey area’, I couldn’t decide what to do about the Supremo trial, so asked my onc what she thought, as she specialises in rads. She said if like me she couldn’t decide then she would go for the trial and let the computer decide, so I decided to go along with that, what the hell the more you can throw at this the better. Hope you all have a se free and enjoyable Easter. Sand x
Morning all,
Today is bright and sunny in my neck of the woods. Hope you are all waking up to similar weather where you are.
I spent yesterday in Glasgow prom dress shopping with my niece (don’t get me started on the whole ‘prom’ issue!). I thought I’d bounced back reasonably well but I was absolutely knackered and had to keep sitting down. My legs were so achey I could barely climb the stairs. I also had a bit of a flush at the till in Monsoon. I was desperate to whip off my wig and hat ensemble. Wish I could will some hair onto my head so I can ditch Cher once and for all but, realistically, think it will be closer to Christmas before we can part ways…and I might have to get a toupee!
Can you believe we’ve made it from Christmas to Easter? Though it’s been awful it has also been really fast.
I just want to wish everyone a Happy Easter. I’ll be rolling eggs with the family tomorrow-or lobbing them down the hill really.
Then it’s off to Rome next week-where I’ll turn 50. Yikes. If anyone has been and can offer any tips they’ll be gratefully received.
Good luck with the last Chemo, Cybele. I found the side effects much more bearable on my last cycle just because I knew it was the last!
I’m a bit lost with what stage everyone is at but most will be moving closer to the finishing line so hope you’re all continuing to cope with the chemo and all the other trials that life throws at you!
Cress, so sorry to hear you’re still having such a hard time. I’m sure your holiday will get your spirits up a little and who knows, perhaps your 3rd opinion will be a little more optimstic, good luck.
QD, good news on your Mum, poo pants sounded awful.
Maire, happy Birthday for when you’re away, what a lovely way to celebrate your Birthday and finishing all this horror.
Sand, what are the trials your going for? My onc is going to put me forward for a rads trial which is being directed from Royal Marsden Hospital in London, but my brother who’s a Therapeutic Radiographer says he thinks the trial which involves 5 treatments instead of 15 is not as good as the original and questions the reasons for the trial; to reduce the inconvenience of the number of hospital visits for the patient or is it cost saving for the hospital? I’m going to have to ask for more details without using the words cost and saving. My onc didn’t tell me the name of the trial becuase he says I’m jumping ahead; I have to finish chemo and have my mx before rads and he wants me to consentrate on that.
My last chemo is on Friday, slightly delayed due to the bank holidays, what a pain. I can’t wait for it to be all over, SEs and all.
Marie
Get an ice cream at Old Bridge near Vatican City, they are amazing.
I was in Rome this time last year. I loved it.
In Gran Canaria at the moment enjoying some rest and sun and nearly feel normal.
Have an amazing birthday.
I stayed at the Rome Cavalieri which was lovely.
Maire - What a great place to spend your Birthday in - best way to see Rome is to get bus pass - you can get on and off whenever you feel like it. I think they have two lines, red and yellow, great vaue. Also the Vatican is usually quieter around 4.30pm. I loved it in Rome and I’m sure you will too, though I never found the Trevi Fountain!! have a great time. Hamley, I had MX in November and margins were clear, although had 2 nodes affected out of 22, so would not have been eligible for rads, so they said I was in ‘grey area’?!? The trials are to see if rads will benefit the ‘grey area folk’ and help prevent a recurrence. You either have 15 lots or none, depending on what the computer decides, it’s called the SUPREMO trial if you want to look it up x
Can’t quite believe it, seems a bit surreal! Have decided to try for Supremo Trial and Persephone Trial. Have read results of trial so far, felt I had nothing to lose, plus you get a genetic blood test aswell, and I thought no one else in my family had ever had BC til my aunt, who has dementia, mentioned last week that my grandads sister had it. I wouldn’t have been eligible for rads, as I was in the ‘grey area’, I couldn’t decide what to do about the Supremo trial, so asked my onc what she thought, as she specialises in rads. She said if like me she couldn’t decide then she would go for the trial and let the computer decide, so I decided to go along with that, what the hell the more you can throw at this the better. Hope you all have a se free and enjoyable Easter. Sand x