Hi Lolly,
Blubbing till bog eyed is entirely normal behaviour, especially when between treatments. We don’t have to wait till Sat if you want to have a coffee. I am stuck here waiting for BT today and tomorrow I am having my hair coloured again. If you want to meet tomorrow pm or thurs/fri then you can have a good laugh at my bright red hair. That shoud cheer you up.
Listening to Jeremy Vine talking about Angelina Jolie’s breasts at the mo - that prob won’t cheer you up tho,
xxxx
Hi Ladies.
Poor Lolly. It will get better, the time between chemo and rads seems to have been a difficult one for several of us.
Cress, I hope you’ll be sporting red hair when we meet up, I’d love to see it, I’d love to be as bold as that but I’m just not as outgoing a person as to be able to carry it off.
Tam isn’t too bad so far. I’ve had very stiff hands in the mornings each day since taking the very first one. I’m not sure if that’s an SE or coincidence. The hot flushes seem to have faded and don’t seem to be as frequent at the moment.
I’ve had quite a big day today. Firstly I’ve been for my rads set up appointment and got my titoos done. Having done it I don’t know what I was worried about. Secondly, I’ve been me rather than the person who pretends to be me. Confused? Yes, that means I’ve worn no wig and no prosthesis all day so far, it was just me and it felt really good. I also got an extra helping of cheese on my jacket potato lunch out, a large latte instead of the medium one I paid for, you wouldn’t believe how many doors got opened for me and how many people caught my eye to smile and say ‘hello’. It won’t stop me from wearing my prosthesis in future but the wig may be a goner. My hair is only about 1cm long, but it covers most of my head except where my wig pulls it out at the back, that’s a good reason not to wear it.
My rads start date is 5th Jun, not long now.
Hi ladies, thanks for useful comments.
I am hoping to colour my hair fairly quickly as having been grey since my 20,s and dyed it religiously , i dont fancy being the grey it is growing out as! I went RED when diagnosed and fancy it again…or maybe we all need to be pink for london, one way to recognise everyone. I am in Hertfordshire so london good for me. hugs to all.x
Hamley - I am not especially bold or outgoing - the hair is just about being alive and having hair - why not mess about with it? Cancer is some serious sh*t and I need to be frivolous. Well done on going out as you, and especially on getting coffee upgrades. One more bonus of cancer. A wig that pulls out your hair? Sounds like an evil wig that is tryng to protect it’s reason for being. Ask it if it can get coffee upgrades - I bet it can’t.
Coyotegi - a Hertfordshire girl? Lolly and I are in Bedfordshire. Whereabouts are you? (PM me if you want to). Maybe we can all get together.
xxxx
hi just thought i would share that i wore my wig twice i didnt like the look it gave me so been everywhere without it, i sometimes forget that i have no hair until like you say someone catches my eye and gives me a look that says oh dear.
Mine is growing back grey and brown not sure what colour wil come through the most but will dye it if need be.
lolly
x
Went for a bra fitting today. The assistant was so nice to me I burst into tears. I thought I had it all under control but obviously not.
All good otherwise, rads burn peeling a bit but not sore and tamoxifen 2 months in so far so good.
Herceptin 9 on thursday.
hope everyone is feeling a little better.
Hamley, lovely to hear about your positive day.
Lolly, mz6507, I’m still emotional too.
Agree with all, tamoxifen not too bad.
I started my “Mindfulness” course today, it was quite relaxing, but I got emotional too.
Cress, carry on being frivolous, hope it comes to me soon too!
Sarah.x
Hamley, good to hear about your positive day.
Lolly & mz6507, I’m still emotional too!
Cress, carry on being frivolous, hoping to join in sometime soon…
I went to my first session on the Mindfulness course today, in a bid to learn to live in the moment, to cope with my secondary dx. The meditation was calming, but I didn’t really like going there & got emotional. Planning to go again next week and keep giving it a go.
Sarah.x
Typical - I lost my post & re-typed, now I can see they’re both there!
Lolly - I too do not like my wig and have started to go au naturele although not quite braved the school playground and thanks to the cold weather have worn my wooly hat.
My hair is a mix of dark brown and grey and still a bit shiny on the top as it is taking longer to grow. Have finally mastered the art of the false eyelashes! ha ha!
SP - I start the Mindfulness course next week. so will be interesting to hear how yours progresses.
Hope everyone else keeping on keeping on…
xxx
Hello from the north Aegean!
I’m having a truly fabulous time and chemo is really starting to feel like a long time ago now…
I cannot begin to tell you how much my mental state has been improved by getting away from London, having some warm and sunny weather - it is perfect, sunny but not too hot, with a cool breeze - being back in my camel barn, and being reunited with my cat.
Also feeling SO much better physically now - still get tired easily, but otherwise am absolutely fine. Chemo is starting to feel like a bad dream…
The only fly in the ointment is starting rads on Tuesday, after I fly back on Monday. Boo to that. Am anointing myself religiously with Aloe Vera gel to prepare, as per Border Collies’ instructions.
Hope you’re all feeling better too, and for those who aren’t BIG HUGS - this too shall pass.
Caroline xxxxx
ps was v.amused to read that Hamley’s wig is apparently demonically possessed…
Hi all
Cress - its true i have no shame!!!i teach hormones sorry teenagers!
today was my daughters year 11 leaving mass it was very long at 2.5hrs (legs were plaited by the end) but it was lovely and i cried buckets. dont know why - shes going back for 6th form!!
Lolly - i sobbed for no apparent reason after chemo 6. its normal.
Hamley - well done on the free top ups etc! your wig clearly has a mind of its own.
Coytegi - what dye do you use? ive always fancied going purple. I have 1-2mm at mo and its a myriad of colour. i thought of getting some mascara and using that on the ends rather than a full dye.
Mz - mmm when people are kind it can make you cry. My daughters head mistress hugged me today and i started blubbing!
SP _ whats a mindfullness course?
Cybele- glad youre enjoying the hol. i hav bought some aloe vera gel in readiness for my rads too. just got to get through the surgery next thursday. eek!
Love to all
QDx
Good news QD - when I got to the hairdressers I changed my mind and now my hair is purple. I wonder if I can get some kind of royalties from Wella Fresh. Anyway, Lolly has seen it, so she can tell you if you want a second opinion. I love it, xxx
Just had a quick browse back to see what my chemo brain might have missed,
Shellebelle - you should have started rads now - hopefully you are feeling a bit better. I tend to feel better when actually getting on with something, rather than waiting for it. Let us know how it is going.
Sarah - when are you having that scan? What has persuaded you to go for the WLE?
I haven’t made any progress organising meet up. Feel a bit bad for Maire regarding the idea of London. Maybe, if I organise a London one Maire could organise a northern one? Then we can merge the two into the Christmas party? Actually Maire - you are the mummy of the thread anyway, so really you should organise the whole thing, whilst I concentrate on chosing hair colours. 
If we are going to do London - any ideas for venues where we can all meet, hear what each other is saying, and have nice food?
xxxx
Finger nails are dropping off…nice… thought I could forget all that chemo sh*te
x
hi Mandy mine too horrid isnt it! Ive now taken off all my nail varnish and am rubbing aveeno cream in. they seem a bit softer .
cress - how bout covent garden then aone of the parks? can you put up a pic of you in purple hair!!!
QD
Hello all
Cress - breast ultrasound due late May, I’ve delayed WLE decision until then, but oncologist + GP both think better to have it than not, on the basis of “de-bulking” what’s left of the tumour, leaving less for the drugs to deal with.
QD - Mindfulness is a meditation based 8 week program that’s supposed to help you live in the moment. I went to the first session & it was ok, but I’m struggling a bit as I don’t really want to be doing it, let alone the 45 mins practice each day!
Sarah.x
Hi Folks,
Haven’t posted for a while but have been checking in daily. I’m back to my normal hours at work which is exhausting both physically and emotionally (threat of closure). Have also been popping those nasty pills. So far my cold/clammy flushes have continued as they were with the chemopause. They haven’t gotten any worse. If I could just whip off my wig it would make life easier. I am still freezing with goosebumps followed by clammy and sweaty. Nice! My moods been a bit up and down but it’s more worry about Tamoxifen than a chemical change I suspect. Am also desperately trying to lose weight. My sister is losing pounds on slimming world programme and I have given it a go but it doesn’t seem to be working for me despite following it to the letter.
My finger nails have also gone a bit funny. They haven’t fallen off but it look as though there are wee air pockets between the nail and skin. My thumbs are also beginning to crack. Not sure if this is the Herceptin.
But other than all that I’m Hunky Dory!
Do not worry about a London venue Cressida, it’s as easy to get to as other more northern spots. Bring it on.
Hi all
had pre op assessment today and apparently im “fit and healthy”!!! shame about the cancer then! so im getting mentally prepared for next thursday eek!!!
sp - thanks for the info on mindfulness. that’s one i wont be going to! its bad enough actually living in the moment without having to meditate on it!!!
Maire - any def dates etc re closure. the not knowing must be worse than anything else.
huggles to all!
QD x
Hi ladies , how are you all , I’m having good days and very tired grumpy days , I’m also very cold one min and boiling hot the next , more in bed though, my nails are white with ridges and look like they may peel off , and im still on the painkillers for sore legs and feet , im going to wean myself off them after surgery , I’ve actually been to a pub today to meet a few friends for the first time since diagnosis in oct , I wore my ferret wig for the first time which was a big thing for me , i cold capped but hair isnt very good but is growing back through, im sick of seeing my head in a hat , it was so nice to be normal for a few hours , I’ve got my surgery on 29th may , having a cavity shave , I’ve had my pre op , they didnt take any bloods as I had them done in the chemo unit a few days before , I’ve got abit of a scratchy throat at mo which I’m hoping is hay fever , how long does our immune systems get back to normal , I’m still at home with my little lad and my mum feeling better but waiting on an appt for an op herself , I’ll read your posts tom to catch up as I’m off to my mums so I’ll have time to read through properly , I have to write my replies down first as I’ve only got my phone and I forget what everyone has said ha ha , there is drilling coming from next door , I hope they stop in next hr as it will be bedtime for my son grrrr , lv to everyone xxx