Starting chemo in February 2012

Black nail polish with a white Crackle Glaze over the top looks lovely!

Hugs and xxxxx
Di

Pre chemo assessment for me tomorrow…nerves are kicking in.

Hi,I had my pre treatment assesment yesterday,was fine,have a lovely chemo nurse,we sat opposite each other on big comfy leather sofas and she went through everything and every drug with us,she was so friendly and made us laugh alot too! put me at ease as soon as she started talking,I am starting my chemo on monday and just want to get started now,feel like Ive waited forever,good luck for today and let me know how you get on…hugs…lozxxx

Morning ladies,
Well my coldsore is still huge! The creams don’t seem to be working! I hope its gone for tuesday…
Good luck Anng for today! I was nervous like you.
Hope everyone SE’s are very small.

No snow here in leeds so might go out shopping with my lo!
Got my occy health lady ringing me today so that will be fun!
Have a good day everyone!
Love
Fran x

Hi Fran,

Just popping in from September to give some advice re your cold sore. I get them and have found the creams don’t work for me. I would recommend using Boots Cold Sore lotion - it will probably sting but it dries them up. (The creams tend to feed them for me).

If you’ve already had your first lot of chemo, you can go to the Drs and get sore anti-viral tablets (as a rule GPs don’t hand them out but if your immune system is compromised they will)

Hope you soon recover and have small se’s with your chemo!

Axx

hello ladies,

I had my first chemo yesterday not too bad. came home confidently armed with three lots of sickness tablets and vomited anyway!! Tried the cold cap - headache and frost bite for the first 30 mins then went completely numb - shall see if it works. hope all goes ok for everyone. xxx

Hi Lyne123
the steroids are to help with the nausea usually. You take them for three days after the chemo xxx

Thanks SamLou x

Hi
Well today has been spent at A andE as i had severe chest pain. It started last night and I thought it was heart burn, gavisgon did nothing, still had it this am. Phoned hospital who agreed it most probably was ,but just incase, get checked at the dr’s. where they promptly sent me to A and E even offered to phone an ambulance ( talk about fear of god). After ECG, blood tests ,chest x ray was told all was fine , so it was indegestion!!!
I took the chemo card that had been given to me and showed that when i first arrived, ive never been seen so quickly.
Home now , still with pain but tablets to take, soon im going to start rattling.

knoxybabes- everyone has different SE’s but most common seems to be ‘the hungover feeling’ the day after and nausea or sickness.

Janeyb- thanks for your post, its always nice to hear from people who have been there and done it

Good luck to those just about to start, we will all get there together
Gill xx

Gill, you must of got a scare. Good to hear it is indigestion (I mean it is good it is nothing more serious). Really hope you feel better soon.

Loz, I am the day after you for starting. All went well today, feel better now I have seen and spoke with the nurses. Just to wait for Tuesday now.

Samlou, hope your feeling better now and no more sickness.

Fran, hope the cold sore disappears sharpish.

Hope everyone else is well…x

Hi All I went yesterday to see onc today had call from hospital next appointment 21st Feb then 22nd for first treatment 0f 6. not sure how I feel today all happened so fast have been reading for a while but did not join as I felt a bit in limbo not knowing what was to happen next, but I am pleased to be getting on with it for my sake and my familys good Luck to us all x

Hi all

I now have my date for the first chemo of FEC - 22nd ~Feb. How do I feel? Scared, apprehensive, confused, curious, nervous, terrified? Lots of emotions, but as you said Looby pleased to be out of this limbo and to get on with it. This bc has just been an inconvenience and I’m going to beat it.

I know I’ll probably be at the chemo centre all day as I’m on this drug trial (if I’m accepted),sometimes wish I hadn’t bothered with it as I have to have so much, blood tests, dental check, CT scan etc.

Well I have to get on with it. Bought a Kindle today to take with me for the long session, have to get my daughter to help me to set it up though. OH says it’s an early birthday present. Have chemo on the day BEFORE my birthday AND I’m going to see darling Matt C (X Factor) concert ON my birthday! Hope I’m not throwing up everywhere!

Hey ho, bring it on!

Fran love, sorry about the cold sore, doesn’t it feel like you’ve grown another set of lips!

Gill, glad it wasn’t anything more sinister.

Samlou, thanks for the info about the cold cap and steroids - brain freeze and weight gain - lurvely!

Loz: Mmmm! I think that there are comfy leather sofas in the Bobby Robson Centre where I’m going. Good luck for Monday.

Have a good and restful weekend everyone

Hugs and xxxxx
Di

Hi all, hope you do not mind me joining; found this site such a tremendous support since dx 23dec. Start 6xFEC 21st feb after having WLE lumpectomy. Had to have it drained second time today and now it feels like a pulled muscle under the arm??? quite painful to stretch or use that arm now (anyone had similar??)

As for chemo i am terrified of SE esp the vomitting/nausea and all the scary stuff about tempertures etc. My husbands away til the end of feb so im relying on my 19 yr old daughter which i am a bit worried about but there is no one else?
But today was a good day after depths of despair yesterday and endless sobbing and felt much better after second drain today as in pressure relief. thanks to you all posting here been reading and now hope you don’t mind me joining in. HG xx

Hi
I start my chemo on Friday too
Dreading it. Scared with worry
18 weeks of hell.
Hoping it will get better

Hi Ladies,
I’m a little late to the party. I was dx on Jan 17th and was due to have WLE and node clearance yesterday, but after talking with the onc on Wed we have decided to have chemo first to see if we can save my nodes.
I’m 37 and discovered a lump in Dec. Dx with IDC grade II, 1.3cm, ER+ HER2- and a biopsy of my enlarged node showed cancer had spread. I’m very active with three little girls (and one big boy), and dreaded having a node clearance. So they suggested doing chemo first to see if they could shrink the node and then do a SNB at my WLE. Of course, if the SNB comes back positive, I’d have to return for a full clearance, but at least it gives me a chance. Then I’m due for rads after surgery and finally Tamoxifen.
I’ve been offered the ARTemis clinical trial to take Avastin with the first four chemos (I’m having 3xFEC and 3xT). Has anyone else been asked to take part?
Look forward to getting to know you all. Some of my best friends in the world are ladies I met on a Babycentre.co.uk forum 8 years ago. :slight_smile:
Carrie x

How does Maunuka honey help!?

Morning all,
Well only 3 more sleeps till i start the magic juice.

Welcome Carrie to this site the ladies are amazing. I met loads of ladies on babycentre my eldest is nearly 8. its the best way of talking things through with people who are going through it.
Also welcome to hollygypsy.
I think we will all get through it together.
Di yes i did feel like i had grown another set of lips. Its actually looking alot better today. I phoned up the onc people and they said dont worry about it so thats good, plus i can take the painkillers still.
I was wondering about manuka honey too, what does it do! how does it help?
Well I’m going to get a wig today. So I suppose I should get dressed.
its so cold today -12 this morning when i woke up its gone down to a warm -4.
loz good luck for monday
Anng -good luck for tuesday same as me.
Gill hope you are feeling better today.
Samlou - hope you feel better
rosichin-good luck for friday.
Let the countdown commence then we will have done one and it will be one less.
Lots of love and stay warm and well.
Rght better go and get my lo’s sorted they seem to be wrestling each other with no clothes on not a good pic.
L
Fran xx

Good luck fran for loopy juice tuesday! just been to tescos and got my supplies ready for monday,not sure what the manuka honey is supposed to do but I did see it in tescos,nearly 10 quid for a small jar though! was looking for lifemel honey as I,ve been told that it boosts your white cells,if anybody knows where I can get it or knows of any other products good for cells please share,all the best to those starting chemo this week,we will get through this together…hugs all around…lozxxx

and welcome to all the new ladies who have found yourselves here too,and I must say that I have only been on here a few weeks,diagnosed on 16th jan ( sons birthday)…the ladies on here really do help alot…hugs lozxx

Hello February ladies,
I’m butting in from December thread to try to reassure any of you who are waiting to start chemo. I am half-way through 6xFEC and can honestly say that it’s bearable. I have had one slight setback when white blood count went down before third treatment and I had to wait a week. They gave me an immune-boosting injection the day after FEC3 and I have been very well on this cycle.
The first day of each cycle I was very nauseous until the nurse who gave me my third told me to take metaclopramide when I got home - the improvement was amazing. Your GP can prescribe it and you take three a day when you need it. It can be taken along with the steroids we are given after each treatment. I don’t know if it’s suitable for anyone having treatment other than FEC but the treatment centre can tell you that.
Manukah honey is not a magic substance but it is anti-bacterial and soothes a sore throat if sipped from a spoon. Its main medical use is on wound dressings where it fights infection as well as antibiotics, so it’s worth having a jar in the house and taking a spoonful from the jar or stirred into a hot lemon drink.
My one word of advice is not to stress if you feel tired - let your house-keeping slip until you feel up to it, which you will. The first week is always draining and you need to ask for help from family and friends if possible.
Rosiechin, it isn’t 18 weeks of hell. More like 6 weeks of feeling rotten scattered among another 12 of being glad to be feeling fit to get on with life.
I’m sorry if that all sounds a bit ‘preachy’, but I remember only too well my sheer terror at the thought of chemotherapy before I started and I would have liked someone to tell me this. Losing your hair is going to be tough but the wigs are good and we’re lucky to be having treatment that will finish before summer comes and makes it too uncomfortable to hide the shiny head.
Good luck to all of you.
Love,
Kathleen