Morning valentines
My last 2 posts have disappeared into thin air, just incase anyone thinks I have left the group
FEC 2 DAY 3 CC
Was dreading the second dose and the cold cap second time round but I have to say it went really well. Was sick twice that night but woke up yesterday really hungry and have no more nausea or vomiting since. Just to add to the debate on the injections I was in a/e and released after 2 doses of iv antiobiotics and home on tablets and I was not receiving any booster injections.
Featherbird as Jo says 37.5 twice or 38 is when to panic .ALison and Kim hope you get out of hospital soon. Millymolly good luck today hope it goes ok.All other valentines hope you all are bearing up
Buddy
Morning all x Fect round 2 & the beloved day 10 for me , aaahhh to feel normal again & only 1 pill to pop is heaven ( Omoprazole for that burning stomach , fab if anyone is suffering & not on it see your gp or onc ) , just a sore throat nothing too bad hooray ! I love day 10 xxx
Mandy, may be too late but I would take your bf , it’s nice to have a bit of support plus it’s boring I usually have to wait 2 hours before starting & I felt a bit dizzy & woozy afterwards so not ideal to drive , good luck & pleased your day has finally arrived x
Hope your ok Tup & everyone else in first week of chemo
hope Alison & Kim make an escape today x
With you Angie on the Chanel Hydtomax moisturiser I’ve used it for a few years & occasionally try a cheaper one but always regret it & go back , the serum is fantastic too if u fancy that on your birthday list
The end of my last post was missing can’t remember what i put !!! Other than Chris, I answer to a lot of names but Brian will not be one of them lol
Morning Valentines. Day 7 FEC cycle 2. Had an ok night and woke feeling reasonably human apart from the never ending furry sore mouth. Thinking of those of you in hospital or worried about temperatures and flu like symptoms. I have been told that I must call the hospital if my temperature hits 37.5. I haven’t been offered any injections. It was mentioned last week when my neutrophils were low but on a kind of ‘let’s see what happens’ basis. And then my neutrophils went back up again.
Not doing much today. More reading and odd little jobs. OH at work so the dog and I have the house to ourselves. I have a four year old big fluffy chocolate labradoodle called Rosie (or Rosie McRosie of the clan McRosie in deference to my OH’s Scottishness) who has a lovely nature and looks after me well. I might post a picture of her!
I had a call out of the blue yesterday from an ex colleague who I hadn’t seen for 5 years. He had heard from someone I was unwell. Unusual and quite brave (in my recent experience) for a man to make a call like that so I was impressed. And of course it was lovely to catch up with what he and his family are doing. Silver linings and all that!
Have a good day lovely people.
Angie xx
FEC-T round 1, day 21 , should be having round 2 today, but it’s been delayed thanks to last weeks infection and neutropenia - grrr, I should enjoy the fact I have an extra week of feeling ok after losing most of last week to the hospital, but I just want to get on with it.
Welcome to the thread Fightingit, sorry you’ve had to join us.
Mandy, good luck today, it’ll be such a relief to get off the starting blocks, hope the side effects are minimal for you. I did take the other half with me to chemo, though there probably wasn’t much point, he basically sat there and read his magazine whilst I talked to the nurse who was administering the drugs, he even left at one point to make a phonecall. I didn’t feel safe to drive home afterwards, I think it’s an effect from the steroids, but I felt
what I can only describe as “weird” and couldn’t concentrate on anything.
Good luck to anyone else getting chemo today, hope everyone’s side effects are behaving and that those in hospital get out soon
Jo
x
Mornings all valentines
FEC 1 day 2
feeling SO nauseous and really spaced out. The DN is due today to give injection (booster for blood) and OH is going to learn how to do it. (Wondering if this thoughtis causing nauseou - he is rather heavy handed bless him !)
wishing all fellow travellers a good a day as pos. Thinking of you Mandy.
Chris yes our hospitals are not far apart. My rads will be at Colchester.
Tup x
Morning Valentines!! Hospital day 3. Today I get a trip out my room to x-ray (in a face mask) - how exiting!!! Not sure if I’ll be hand-cuffed to a nurse!! Other than that feeling well and hoping for release tomorrow. Accidentally walked into the loo opening up an ulcer and causing the air to turn blue. It was smarting after that. Temperature stable around 37 but I have never had a temperature and this is high for me - which they are aware of. Really useful to know your baseline temp - mine is between 35.6-36.2 for example. When I has appendisitis the highest temp was 37.4. Not useful really!!!
My onc told me I could drive, but not to and from chemo and not if feeling sick or tired. Makes sense!! Also company is great during chemo as there is lots of hanging around. My oh came with me and we both chatted to the lovely nurse (Sam) whilst being drugged.
My silver lining is my puppy cocker spaniel Laity. I am really missing him this week and can’t wait get home and cuddle him. He is 14 weeks old and a real cutie!!! It’s hard work, but gives me something to take my mind off this crap. I have loads of offers of help to walk him if I am not up to it. I have fantastic friends!!
Not keeping track too well of who is doing what. But you are all in my thoughts. Thankfully the iPhone keeps me sane and I read all the posts but its hard to look back over them and remember who said/is doing what.
Thanks for all your well wishes
Alison xxx
FEC1 minus 30 minutes!
Waiting for my lift. BF taking me. Feel sick already! 
x
Good luck Mandy! xxxxxxxxxx
good luck , you`ll be fine. big hugs xx
Good Luck Mandy xx
FEC-T 100 1st cycle day 16
Morning Valentines!
I had an interesting night. At 3 o’clock I woke up with a severe pain in my chest on the left had side under my bust (not the BC side) accompanied by left shoulder pain. I rang my chemo ward as I didnt know what to do with myself with pain. I didnt think I was having a heart attack but I got as far as left shoulder pain when telling her my symptoms and she said " stop right there and ring an Ambulance. I knew deep down that It wasnt my heart but she made me worried so I woke my Husband and asked him to take me to A&E 5 minutes away. I got the hospital and they stuck me on an ECG did all the usual tests. They ruled my heart out and then she listened to my chest thinking it may be a chest infection, my chest was clear. My husband pointed out that I had my PICC line flushed yesterday and was concerned it could be a blood clot but the Dr said the pain was in the wrong place. She then gave me some Co Codamol and said she would be back in 30 minutes to do another ECG and to see how I was. Over the next 30 minutes the pain slowly went from a 10 to as 7 and eventually a 5. The next ECG was fine and after another 30 minutes they let me go with no real diagnosis other than she thought it could be muscular due to coughing. Sorry but there was no way this was a muscle pull. She pressed on my ribs to rule out a broken rib but it didnt hurt This pain was like severe cramp and hurt when I breathed
10:44
The tablets have now worn off and I can feel it coming back so have taken more. The left shoulder pain has now gone completely.
I feel such a fool and terrible for getting my husband up at 3 when he has to go to work at 5:30. I dont know if this anything at all to with being on chemo but just wanted to tell you ladies in case any of you experience the same thing during one of your cycles. I even feel stupid writing about it on here but at the time it was very scary and the pain was unbearable.
Thanks for listening and I truly hope you are all OK today what ever stage in your cycle you are
Funki x
Hi Valentines
Would you ladies accept a newbie? I was actually part of the September thread as that’s when I started my chemo - supposed to be four EC then four tax but have lots of complications along the way, namely an allergic reaction to the taxanes so had my surgery brought forward to january and I have just started six cycles of Gemcarbo in Feb.
I’m guessing I might be the only one on Gemcarbo as most of you are doing FEC-T but the side effects are pretty similar and it would be nice to have some company along the way.
Sorry to hear some of the valentine ladies have already had complications and delays but it seems nigh on impossible to get through treatment in a straightforward fashion. I’m due my second gemcarbo today but have already been warned my blood counts might be too low after my last blood test. Really hoping not as want to get this treatment done and dusted…been at it since september and is looking like it will go on until at least july now. Ugh!
Good luck to all you ladies having treatment today.
x
Hello In shock and welcome to the Valentines thread. You sound like you have been through the mill already you poor thing!
I hope you are able to have your treatment today and it all goes OK for you.
Funki X
Hi
Would you accept another ‘newbie’ - on the last day of February. Even though I haven’t posted much, I have found all your comments so helpful and informative.
My story is long and complicated involving hereditary breast cancer, 10 months of misdiagnosis followed by an ‘unexpected’ diagnosis of medullary breast cancer but even this is not concrete, a whole load of scary tests, being told that I didn’t need chemo and then being told I definitely did by another hospital. I’ve experienced all the usual SE on the TC chemo treatment and some less common ones including a constant 6 week period, cystitis, relentless acid reflux and injection site blistering.
Due to my mum passing away from breast cancer when I was young, I’ve had regular mammograms. A lump appeared a year ago but was dismissed. During this time, I supported a family member who contracted breast cancer, trained and completed the marathon Moonwalk, believing that my lump was benign. Deep down, I knew this was not true but noone seemed to believe me…
The expectation is that I have the BRCA1 gene so am preparing myself for more surgery and stress. I also have 2 teenage children so implications of this could be massive. As a result of all this, I’m finding it hard to stay positive. Reading the comments on this site, though, has helped me greatly and made me realise that others are suffering too.
Morning all you lovely Valentines.
Welcome to our newbies, Inshock & Penguin68 - they’re a great bunch of girls here, so you’re in good company.
Alison I hope you are released soon. Take care x
Mandy - good luck with round 1. I think you were wise to get company as the steroids made me woozy after chemo.
Funki - I hope the pain subsides soon. I would rather be forewarned of potential SEs than go into panic mode when something ‘different’ happened, so definitely tell us if you experience anything out of the norm.
Tup & Bluerose - I hope round 1 wasn’t too bad for you.
Everyone else I hope the SEs aren’t too bad at the min & those still incarcerated, I hope you’re home soon.
I still have all my hair, but I suppose it’s early days yet. At the minute the only SE I’m really suffering from is cystitis. I’ve never had anything like this before & it’s killing me lol. God help anyone who suffers this regularly.
Dyane
FEC 1/6, day 9, Antrim Area Hospital
Welcome Penguin – sorry you have had to join us, but we are glad to have another “sister”. In fact, I would say that the friends who have re-emerged in my life are the only good part of this whole experience so far. I haven’t lived in the US since the late '70’s, and those I was still in touch with had dwindled down to about 3. All of a sudden I’m receiving frequent emails from about 20 people over there. Its great to catch up with them all. I’ve also gotten a lot closer to all my in-laws. My husband is one of 6, and we now are hearing from every one of them regularly.
A bit tense about Cycle 2 tomorrow. The Oncologist is changing all my meds, so I hope that will take care of the 14 days of nausea!!! I will be trying the cold cap again, but I am shedding quite heavily now and have a bit of a bald spot on top, so I may be for the chop! Mind you, all you bald ladies are looking so good that you give me hope.
Poor husband left at 6 am for the plant sale, it was minus 2 degrees here as he drove down the driveway. It lasts until 5 p.m, but at least he has a gazebo!!! He was sounding all chirpy when he called to let me know all the things he had forgotten to take (first show of the year – always takes time to get back in the swing) Oh yes, success in bidding on a recliner chair on EBay!!! Third time lucky and got a nice looking one in fairly good condition for £25.99. Its about 30 miles away and my long suffering husband will go pick it up on Saturday.
Hugs to you all, and certainly hope the hospitals empty of Valentines by the weekend! Love, Louise
Welcome to the gang Penguin68 x
Thanks for your kind words Dyane. I appreciate it x
Good luck for tomorrow Louise and I hope the new meds sort out your nausea problem you had round 1 X
Funkilala - I am posting because of what you said about the pains you had on left hand side under bust and shoulder pain. I had exactly the same thing: 29/1/10 while on FEC, I had breathlessness and pain on inspiration, so was sent to A&E , given antibiotics and sent home. The pain went away. Pulmonary embolism wasn’t mentioned to me, but in my medical notes they were investigating for that.
A month later I had bad pains again around left ribs and shoulder - this time I was kept in hospital for a week with a pulmonary embolism and had Klexane injections (blood thinners) every day for 6 months.
A PE is a possible result of chemotherapy treatment - I was unlucky to get one. I hope all will be well for you now, but if you get pains like that again, DO get seen straightaway!!
Jenxx
News from the hospital bed. I am waiting for a microbiology test result and a chest X-ray and then I can go home. I am no longer neutropenic!!! I will still be having FEC and have an oncology appointment on Thursday if my ulcers are healed I will then have chemo 2. I will be having the injections for 7 days and have been warned about the se and told to take paracetamol. I think I may purchase some new hot water bottles too!! I will probably be home tomorrow as the results may not be here today. I can manage 1 more night, but that’s it though.
Welcome to our new ladies!! You’ll get all the support you need here with these lovely ladies ( and you get to call yourself a Valentine too).
I hope everyone else is doing alright with se and waiting. Love to you all Alison xxx