Yikes, thanks Jen! I can still feel the pain under my bust as the meds are wearing off but the pain in my shoulder only hurts now if I lay on that side. I’m a bit worried now and not sure what to do. Would there be any other SE with a PE? I have just had a look on Dr Google and apparently it would have shown something in my ECG if I had a PE but I will certainly go back if it gets worse or doesnt get better in the next 24 hours
Thanks again x
Funki - all I can say is that the rib area/shoulder pains I had with the PE did not go away, and after an hour in the hospital I got sharp pain in heart area when I breathed in, couldn’t take a breath without it hurting. They gave me oramorph, which got rid of the pains straightaway (lovely stuff!). I know that you will keep an eye on yourself - if anything worsens don’t be afraid to contact doc’s about it. Hope it resolves itself!! Jen xx
Hi Valentines
Day 21 1st of 3xFEC 3xTax
Welcome In Shock and Penguin, sorry to hear you’ve both been having a rough time xx
Funki, don’t ever feel you’re over reacting! I think we are all on the edge of seats where our health is concerned at the moment and I deffinately got the impression from both the onco and the chemo nurses that they would rather you made a fuss about nothing than sat on something! Hope it doesn’t happen again, sounds really scary!
Drinks lots of cranberrry juice Dyane! It does help xx
Hoping our ladies in hospital are ok and escape soon! Also hoping SEs are behaving for Tup, Bluerose, Ami, Mandy, Kath? and anyone else in first few days of cycle! xx
Quick moan! Spent most of day at hospital for 20 minute bloodtests as my new meds weren’t ready and in the end had to leave without to make school run! Grrr! Now have to get there an hour early tomorrow to take anti sickness before 2nd chemo!! Moan over! Not such a big deal in the grand scheme of things!
Can’t believe 3 weeks gone already!! If time can carry on at that speed until Summer I shall be very happy! Louise we can be chemo buddies tomorrow (providing my blood tests are ok!), we are both trying new meds so lets hope for a nausea free cycle!
AngieK looking great!
Hugs to all
Elaine x
(At last - FEC1 day 1! yeahhhhhhh!)
Thank you all for your good luck wishes.
Welcome Inshock & Penguin68. sorry you have to join us particularly after an already long journey through BC. I feel for you as my road has been a little bumpy too! I hope you find the site, particularly this thread, as comforting as I do.
Ladies still in Stalag - hope they let you out as you plan. If not we’ll be round with the virtual shovels to start tunnelling!
Funkie, I hope that pain has gone. You get back there if it hasn’t.
I’m now home having had my poison and been for lunch at the garden centre with my BF. We were looking at the Camillia’s as I was telling her about the weird feeling you get as they put the steroid in. Low and behold, one of them was called ‘Mrs Tingley’! Needless to say she insisted in buying her for me as a reminder of the experience. Lovely it is too.
Mrs Tingley
It Feels a bit disconcerting waiting for SE’s to hit. I do feel a bit sick but think that may have more to do with the huge piece of rich fruit cake I just ate than the Chemo.
Distric Nurse just called phoned to say hospital have requested a visit to give the injection tomorrow lunchtime. It’s Neulasta (pegfilgrastim). Apparently it has to be given 24 hours later. I have it in the fridge.
Onc and Chemo nurses assured me that if I have any problems to ring and if in any doubt go to A&E. Apparently, if you’re having chemo, when your file comes up on the computer it brings up an alert to call a specialist oncology nurse and there’s one on duty 24/7. I was impressed. I wonder if it’s true?
Right I’m off to light the fire and watch something easy from my ever growing DVD collection.
Hugs to all,
Mandy
Hi Mandy! Good to hear you’re out after FEC1 -time to just rest now and indulge yourself with nice things to eat whenever you feel ok to, and drink lots. Main thing is to take all meds on time, and take extra anti-sickness meds as soon as you feel at all queasy.
Jenx
Fec T
fec 2, day 1
Second round seemed to go well, although I have a bit of a headache, possibly as I’m feeling tired. A lady opposite me in treatment bay was having cold cap. It was her second time and she was giving it one more go, but her hair is coming out, so she might give it up next time.
Notice that the hungry munchies are back. 
I had two chicken salad sandwiches and a coffee before treatment, and two iced lemon drinks while having cyclophosphamide. Was hungry when I got home, so had two BBQ chicken wraps, full of salad stuff, followed by a bar of flapjack cake. Was still hungry, so OH did me a pot noodle with 2 slices of bread and butter and a cup of coffee - smashing. He says I can’t have anything else for at least an hour!! Oh yes, I’ve got the injections again. Start them on Sunday, that’ll be day 4.
Dyane, don’t know what I was thinking of. Flu jabs are usually given from September to January.Sorry to put you in an embarrassing position with nurse.
Tup, a foot massaged, how lovely, could do with one of those. Hope your SEs don’t get worse. Tinnitus is awful. My doc suggested putting radio on low, tuned slightly off a station, if it get too bad. Never tried it though as OH wouldn’t be able to sleep and his snoring drowns out any extra noises I hear. 
Mandy, is it essential to keep newts while on chemo? Most are having problems with neuts I know, and that’s bad enough.
I go to chemo alone, as I use hospital transport. Glad to say it worked well this time. Appointment 12.30, arrived at hospital at 10.10 went to look around Macmillans, had the sandwiches and a coffee from WRVS shop, went to book in, drugs were ready, so they started me at about 11am. Finished just after 12, made next appointment, nurse rang for transport. Was downstairs waiting at 1pm, transport arrived 10 mins later, home around 2pm. If only I could believe it would work that well every time!!
Jo, how frustrating, having to wait an extra week. Hope you’re ok to have it next week.
Alison, my base temp is about the same as yours. So do I wait until it reaches 38, or what. Thankfully I’ve not felt too bad up to now, but I’m fully aware that COULD change. Glad to hear your neuts (newts) are returning to normal.
Mandy, hope all goes well today.
Funki, sorry to hear you are still having all sorts of problems, gentle, but big hugs heading your way.
Welcome to Inshock and penguin. Sorry you find yourselves here. Hope we can help you through it. 
Linda in the waiting room, It’s March tomorrow, so surely not long now for your start. 
Love and hugs to everyone
Kath xxx
Pleased it went ok for you Mandy & hope the Ses are minimal
isnt it amazing what we tolerate , I posted earlier that I’m great today & I am …apart from sore throat, constipation , piles & fuzzy mouth !! But no sickness , dizziness or tiredness so everything else pales into insignificance yet two month ago id be whining like mad !
Funki I agree with others we mustn’t ignore SEs , I went to A&E in round one as I had a rash that kept spreading across my chest , 10pm on a Sunday 2 hours waiting on the oncology ward etc , it turned out just to be a reaction to the meds & I felt I had wasted everyone’s time but was told I had done the right thing & was actively encouraged to contact them again . I left it too long when I got cellulitis & was a hard lesson learned !
Welcome to another two Valentines it sounds like you’ve both had a rough ride already x
i like the silver lining comments , mine has definately been off work has meant spending much more time at home with my daughter
good luck Elaine for round 2 & anyone else starting this week
Karen x
Evening Valentines,
Welcome to Inshock and Penguin - you have both had a tough ride so far, but now have a wonderful group of Valentines to talk to.
Alison - take care of that leg, and fingers crossed you can have your chemo on time.
Kim - are you still imprisoned?
Funki - what an absolute nightmare for you, and so frightening. Lucky though that your A&E is only 5 minutes away. My treatment hospital doesn’t have an A&E so I have no idea where they will send me if needs be. Don’t ever worry about anything being a nuisance or irrelevant - on this journey we have to take all unexpected pains seriously and call the emergency number. You weren’t over reacting at all. It is also useful to the rest of us in case we experience something similar.
Jen - was it your line that caused your embolism last time round?
Kath and Alison - I also have a low base temperature and would like to know what a high temperature is for me and at what stage I should report it.
Mandy - congratulations on crossing off number 1, and well done for carrying on with your day as normal. I do hope it continues well for you.
Good luck to everyone having chemo, tests, appointments tomorrow. May all your side effects be little ones.
Linda, still waiting, xxxx
Thanks Jen - I have everything crossed it doesn’t happen to you again.
Did you manage OK without a line - and how are you coping this time without one? I still can’t make my mind up what to do.
Linda, I didn’t have a line on FEC or on this treatment - The 2 hospital visits re. the PE happened towards the end of FEC and I had a high temp. at the same time. The cancer itself can cause PE, as well as the chemo.
Have just spent 10 mins writing a post on my iPad. When I tried to add a smiley the whole thing vanished. There’s a thread about rebuilding the whole site due to issues. I wonder if there is a problem re iPads in particular.
Kath , I didn’t realise we were exactly a cycle behind. Glad it went ok and you’ve got another one under your belt.
I feel very queasy now but still thinking it might be the fruit cake. OH has put a big orange bucket by my side just in case. I’ve only been given enough anti-sick pills to last 'til Sunday. Ondansetron - one twice a day.
District nurse coming in tomorrow to do Neulasta (pegfilgrastim) for neuts. Was going to do my own after this but think I’ll leave it to her as I’ve just found out how much it costs so am paranoid about getting it wrong and wasting it!
BTW, there’s an interesting thread re Forum rebuilding/name which some of you might have thoughts on.
Take care all,
M x
Bloody gremlins again - I posted my previous post after yours, and now it’s above yours.
I’ll repeat what I said because it has completely disappeared now.
Thanks Jen - I have everything crossed it doesn’t happen to you again.
Did you manage OK without a line - and how are you coping this time without one? I still can’t make my mind up what to do.
FEC 1 day 2
I just have to flag up what a star my OH has been today x He has sorted all my tablets into logical order so that I take them at right time. PLUS he has given his first ever injection - he s doing all my Lenogratin injections ( one aday for five days)
Feelling less nauseous thank goodness . Thanks Kath for tip about radio for tinnitus - will give it go tonight.
keeping all Valentines in mind and prayer in all your twists and turns on this journey.
Love Tup
(FEC1 Day1)
Big up to my OH too. He’s done the same. Bless them all.
Ive just realised I’ve repeated myself in my last post re forum. Sorry, brain foggy!
Linda , I was worried about my veins but they reassured me saying give it a go but if we struggle we’pit a Hickman line in before next cycle. Had no problems - they said all was fine.
M x
FEC-T, FEC cycle 1, day 15
(Kent Oncology Centre - treatment at both Maidstone and Tunbridge Wells hospitals)
Well done Mandy for getting off the starting blocks. You obviously have a lovely BF. Mrs Tingley is a great gift, even if you’d rather not have had the occasion to go with it.
And to those Valentines already on round two. It’s scary how the last weeks have flown past. Hope the SEs remain well in check and munchies well served ( Kath )!
Alison – Pleased to hear that they are letting you out and hope that any further night in is not too frustrating (if it proves necessary). Kim – are you still locked up?
Funki – don’t like the sound of your pain. It’s inevitable that we will worry about unknown stuff (given the literature we have been encouraged to read) and as others have already said, don’t hesitate to go back to them if it returns. Better safe than sorry (I was told by the once nurse). I also heeded Alison’s words from yesterday and rang the onco unit this morning regarding my nosebleeds. They confirmed that as long as it’s only when I blow my nose, then it’s OK – and then advised against blowing of said nose! I will sniff my way through the runny nose period…. delightful…
Welcome to new Valentines InShock and Penguin68. Sorry you have both had to join us. The Valentines are all very supportive and I find that reading alone, if not posting, is reassuring.
Take care, stay well,
Gill
Good evening ladies,
Haven’t read through all the posts in a while so I hope you are all doing ok and forgive me if I have missed anything but have only just felt up to opening up the computer and writing anything on here.
Ist FEC Day 3:
Well I am just starting to feel better but I was soooo sick after I got home on Tuesday, it started about an hour after I got in and went on all night. I had to call the emergency number and a Dr came out at 5am to give me an anti-sickness jab and pain relief. That seemed to do the job and I am slowly feeling better, just very tired and a bit groggy. Managed to eat some soup and a piece of toast today so that’s something…
Tried the cold cap and it was ok, nurse didn’t seem to have much experience of it but got it on in the end. Was freezing first few mins then ok, going to get hair cut to chin length tomorrow and send off the rest to the Little Princess Trust where they use the hair to make wigs for ill children. I’ll give the cold cap another go but if it doesn’t work then I’ll be embracing the shaved look too.
Love to you all, hope any of you feeling bad are feeling better,
Big hugs,
BlueRose
Day 14 cycle 1 FEC
This didnt post correctly and I cant remember what I had typed but quick brief…losing hair this evening… got a bit emotional but held back the tears…had a huge cuddle off the OH instead 
Thank you Ladies. I have taken on board everything you have said about my pain and if it gets worse or I develop other symptoms I will go straight back to the hospital. At the moment it is still there but just a dull ache. I will also mention it to them when I go to the Chemo suite next week.
Funki x
Ps I was going to post a picture of my new short number2 hair do, but most of its fallen out now. I think the grey ones haven’t though - bloody typical. Leg and armpit hair seems firmly attached too!!! hospital is the best place to be whilst shedding - it makes such a mess and I don’t have to clean it up. Going go zero grade tomorrow so it makes less mess so will have to post either that or my new hat!! Xxx
Morning Valentines - I’ve escaped!! Got out yesterday afternoon - my lovely sister & Mum picked me up and then we came home, had a bite of lunch and then did what I’d been wanting to do since the weekend but due to being in Hosp couldn’t - shave my hair off! Sis gave me a number 2 buzz cut all over - weird weird feeling to have very little hair - head very sore to touch - so sore in fact I couldn’t have the wig on cause it was hurting my head so much. So sis played about with a couple of bandanas that I had and we ended up choosing a lovely lilac multi one - might put it up as my profile pic. OH said it was lovely when he got home from work - I really didn’t want to take it off to go to bed - didn’t want him to see me with no hair (or very little!) just yet - but at bed time I took it off and promptly burst into tears! I really didn’t think I would feel this way - but I felt having no hair aged me terribly! 
Anyway enough of my moaning - how are we all this morning - Jo I see your treatment has been postponed for a week due to your Hosp stay - I am HOPING mine is too - just want a week of feeling ‘good’ before it all kicks off again!
Linda you are so good with keeping up with everyone’s situation - unfortunately I am either on my ipad or phone - both of which aren’t great for looking back thru posts - must go back to the Stone Age times and make notes on everyones posts with pen & paper!! Lol 
But I am following everyone and taking on board tips etc for when I go back for round 2 - NOW I know what to ask!
Hope everyone has a good Friday and SE are minimal - I am gonna get up, shower and wash my non existent hair!! Lol
Kim xxoo