Starting Chemo in February 2013: February Valentines

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1861

Morning ladies

Well back from visit to oncologist this morning… she is reluctant to decrease the chemo but is going to up the injections from 5 to 10 instead cos her words " we cant keep having you in hospital with neutropenia as it wil become serious" I told her Im getting paranoid after each session now that I will end up back there… Im not usually an anxious person but this BLOODY journey us ladies are having to go through has certainly brought my levels to the MAX !!!
Mentioned sore arm as it burnt last time, all she suggested was that they administer it very slowly but if doesnt improve will talk about a line going in… well 3rd round tomorrow ladies… halfway through … then next journey is 21 days of rads… fun… NOT !!
Hope all valentines have a easy Monday… xx

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Jennifer - Rant as much as you like. What a catastrophe with the cannula, and then being sick in your tea! I hope they brought you another one. Brilliant though that they allowed you to go home, and good luck with chemo tomorrow.

Sandra - I have my fingers, toes and everything else crossed that you don’t end up in hospital again, and that the extra injections work for you. They do seem reluctant to give you lines at some hospitals. Good luck tomorrow.

Linda xxx

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Hi Lola
I had already drank my tea - it was the only thing I could get to quick enough - came on so suddenly! LOL!

1864

LOL and Phew!!

1865

Just been for my bloods and despite having to wait 2 hours (there was nobody there qualified to take blood from my PICC) they are fine and I can go ahead with number 3 on Wednesday. Yaaaaaaaaaaaaaaaaaaay

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Fantastic news Funki.

Could they not just have taken some from your arm? I can go to my local health centre to have my bloods checked if I want (hospital is 15 miles away). There won’t be anyone there able to take blood from a portacath.

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They wont let me have bloods taken from my arm nor will they let me go to my local Dr’s or Hospital to have bloods either. I have to go to my Chemo unit and have bloods which is a 36 mile round trip :frowning:

1868

FEC 2 day 5
Hello all you lovely supportive super valentines.
I’ve hardly been able to read the posts over the weekend (although I know I wrote a long one I had to read it back today to see what I was jabbering about). The last few days have been horrible and I’m sad but interested to hear so many of you saying how you fear for round 3. My biggest upset this weekend has been ‘how can I possibly get through the next 4 sessions if they’re going to get worse each time’. Yesterday I was up for jacking the whole thing in and just letting the cancer do its worst. How selfish and ungrateful is that? Not like me to be so defeatist but in my defence I did get notice of redundancy from work on Friday. Although it wasn’t unexpected, on top of feeling cr*p, I suddenly felt very unwanted and lost. Indeed Kath…‘where did I go?’
I think this morning however the fog is beginning to lift. I’ve shortened a pair of jeans, taken overgrown weed out of my fish tank so my poor little fellas can see out again and discovered that ice cold Schwepps sugar free Indian tonic tastes good and makes me burp! Ohh! and I’ve been! (too much information)
Linda , you are a hero. You get us all back on the straight and narrow when we wander. Thank you. I too have everything crossed for those of you going on to the next round this week.
Tup have PM’d you hope you’re OK
Chin up Karen from my part of the world, snow’s stopped again!
Hugs to all,
Mandy xx

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Very worried about you girls from Northern Ireland. Hope you have heating and hot water. Sending you lots of love to help keep you warm.

BIG HUGS

Kath xxxxxxxxxxxxxxxx

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Dearest Mandy – sending you the biggest cyber hug possible XXXXXXX Louise

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Wrong time of year for this one really, but with all this bloody snow about, you wouldn’t know it !!!

The Disgruntled Fairy
Well - here I am,
look at me;
the fairy on top of the Christmas tree.
Dress all torn,
wings all tattered -
and a magic wand that’s bent and battered.
My rosy cheeks are a little bit faded
and my smile is looking decidedly jaded.
I wish that Christmas was over and done
as these pine needles stick in my bum,
but I’ll just sit tight,
even though
I suffer from serious vertigo!
For two whole weeks I’m perched up here
then it’s back in the box for another year,
squashed between a bauble and a bell
no wonder I end up looking like hell.
I suppose one day they’ll throw me out
with the left over turkey and brussel sprouts
'til then they gaze at me from afar -
but I wish they’d swap me for a bloomin’ star!

Love, Kath xxxx

1872

OOOps, Think I messed up the system! :frowning:

1873

OK, now I’ve confused myself. I tried to post a picture that seemed to jam things up, now I’ve lost the post all toghther, weird. Back to the sofa for a rest I think!
Loved the poem Kath and thank you so much Louise. Hugs gratefully accepted.
x

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Fec T
Fec 3, day 5

No real news today, still feeling ok, but tired. Trying to find a new poem to write for you, but finding it a bit difficult for the moment.

Had to give two of my neighbours get well cards today. One for a lady who is recovering from hysterectomy operation, and the other for a 14 year old boy who was attacked by a dog (bitten on the face and ear).

My lovely daughter Helen, who took me to my last chemo session bought some raffle tickets from Macmillan while we were at hospital. She only went and won, I’m so pleased for her.

AAAh Dyane, you are very thoughtful. Repeat last message, how are things in Antrim, been watching the news and it sounds like many there are suffering with the weather, no electricity etc. Hope you are ok.

Tup, hope you are starting to feel a bit better.

Sandra, be brave my darling, we are all with you on this and although it is hard sometimes, it is absolutely VITAL that we continue. Sending specially big hugs to you.

Funki, you too, WE WILL BEAT THIS!!! Fingers, toes etc crossed.

Karen, I want a photo of you with Peppa Pig hand warmer on. Sounds lovely.

Everyone is talking about poo, and lovely Linda speaks words of wisdom to us all - thank you for being you Linda.

I feel very guilty when reading all of your posts, I seem to have had the easiest time of all. Wonder what Tax will do to me?

I’d better go, I’m starting to feel maudlin!! Love to you all,
Kath xxx

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Seems like a bad patch for lots of us. Can’t think of anything to say that doesn’t sound trite or is just a pathetic chliched platitude. I’m sure we all have days when the dark thoughts overtake the lighter ones … we are only human after all. We’re going through one of the crappiest possible experiences in life … but somehow I’m sure we can all find a reason for it (need to dig very deep sometimes though). Hugs to all.

Gill

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Thank you Kath x x x

1877

I have just had a big chunk of Galaxy caramel chocolate. I may now be hooked. Help!
Angie xx

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Evening ladies,same sh***y weekend as you Mandy,sorry about your job loss some one from head office is also trying to visit me about a cut in hours but ive told them im away till after bank holiday,they can bloody wait…!! Had a crappy few days,weepy,fuzzy head,everyone saying the wrong thing,grrr OH called at Asda and bought some fish for dinner bloody tasteless but made me poo so he got a pat on the back…Im sat with nuts and lemonade cant face chocolate yet Angie but you enjoy,Going back to bed while the sleep faries are visiting,hope everyones SEs stay mimimal…xxx

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Thank you Kath… I remember saying a couple of weeks ago I was waiting to hit the floor…well I think Im just about there…but… will be standing again very soon.xxxxx

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Wonderful Valentines, so many of you in a dark place today. May the sleep fairy come to you all, and may tomorrow be bright and sunny.

Kath - I am still laughing at your Christmas Fairy poem. I know just how she feels!!

Sleep tight everyone xxx