Thank you for your reply Jaffacakes. No, they said it would be completely unrelated. Fingers crossed its nothing x
Caz I’m sorry to hear that. As if you’ve not got enough on your plate! The GP is probably just being cautious so try not to worry. My periods have been all over the place since this all started so I’m putting it down to stress and hoping its the same for you.
Fingers crossed everything is ok. Sending you big hugs.
Hazel x
Mariecay Tax plays havoc with your nose and eyes. Most of the November newbies have had issues with their eyes streaming and sore. I think it’s because T takes more eyelashes than FEC. Also as the hairs up your nose go this does tend to run a lot. You can get eye drops from the chemo ward or your GP to help with the eyes but I don’t think there’s much you can do with the nose. My eyes have started running but nothing too bad, they look more pinky now I’ve lost some lashes but I still have a few ‘die hards’ hanging in there along with my eyebrows.
Caz stay positive, your GP is airing on the side of caution.
Well done rowan44, you’re half way through ??
Good luck to you all
Tracy
Hi all, Fec 2 day 9
Well done Rowan, halfway there !! I was thinking about you and your purple kick ass boots !! Hope the side effects go easy on you, and your bloke spoils you when he gets home xx
Caz, try not to worry, I have had problems with spotting way before I found my lump, I just assumed it was my age (46) my GP was also aware but I think taking every precaution is very sensible.
As for me nausea wearing off but its really wearing me down. Turns out I didnt even get the Emend !! Someting called Enaprimil?? Was so shocked I didnt take what the nurse was saying in properly. Clearly I am not being pushy enough at my appointments/ I am not really a pushy person, but come hell or high water I shall be before Fec 3 xxxx take care all
Hey up me ducks
Hope everyone is doing well
Just to let you all know that I wont be around for the foreseeable future, as of tomorrow I’ll be at Birmingham childrens hospital with my baby
Stay strong dudes, you are all amazing
Love and hugs
Hayley
Xxx
Love to you and your little one Lowefatt, I hope all will be well and you will both be home soon xx
Rowan I hope you are managing without your daughter. Poor you (and her of course ) its a very tricky situation to be in but you just cant afford to take the risk . Crikey if you only could see me sometimes in Tescos, one unknowing shopper had me pinned up against Tesco Finest one day she was coughing away , How I stopped myself from just getting on my hands and knees and just crawling under her trolly to escape- I still dont know !! Lol.
For me its Fec 2 day 11and I feel grrreat !! Sickness has finally gone !!! But I was just wondering does anyone sometimes get a sore Chemo arm ? When I try to straighten my arm it sort of hurts in the crook of my arm. I have a slight bruise there from my last pre- chemo bloods, but its sore further along too. Not sure if I should rest it or try to exercise it? Any advice appreciated xxx
Another question, hopefully I will have the all elusive Emend for my last Fec in 2 weeks but how many tabs should I expect to get ? I am also hoping to get Ondansetron too, usually I only get 3 and I have to arrange more when they run out. Does anyone get more than 3 ? Sorry for lots of questions but I really want to be prepared next time xxx
Cheers all x
Hi all
I’m amazed at the difference in the amount iof meds we all get for essentially the same thing! After reading the posts, I feel very lucky to be getting anything I need. I left the hospital on Thursday after FEC 2 with 60 domperidone, 14 nozinan, 28 omeprazole, 9 steroids, 2 corsodyl mouthwash and 2 difflam mouthwash!!! When I saw the onc in the Tuesday, we went through my first horrible experience and he wrote a prescription for all of that just in case. I’m on day 5 and apart from being sick on Friday I’ve been not too bad since. Felt a bit seedy tonight but two domperidone and a nozinan later and I feel ok. I was severely nauseous last time and the nozinan has been a god send. That said, the nausea didn’t kick in til day 7 so I may still have that to come.
A special cheer to Rowan for being half way through but sorry you’re missing your daughter and your other half.
Love to you all and hope you all feel good soon.
Hazel x
Wow Hazel, you sure did come up trumps at your Hospital xx perhaps its an area issue. I live in South Wales ? Last week when I eventually got a prescription for 10 Ondansetron I felt like I had won the lottery lol !!! I do receive 1difflam and 1 Corsodyl.
I have not had Domperidone- are they better than Metoclopramide ?, as they seem to have no effect on me 
?
Rowan and Alice, hope you are both feeling good today x Alice keep asking those questions at Chemo !! And good luck for next week x
Jaffacakes, thank you for the advice. I really need to sort out a good exercise regime, at the moment I think I literally am turning into a big pumpkin!! I never lost my Christmas weight- what with a WLE before Christmas and then ANC early Jan, I havnt done an ounce of exercise. Im going to visit my work colleagues next week, where we have a weighing scales, I bet I’m going to be gutted !!!
Good luck to anyone. Who may be having Chemo this week xx
I should be having fec 3 now, instead im pacing a room counting the seconds waiting for my 11 week old baby to come out of theatre, id rather be having chemo ??? xxx
Thinking of you and your little one Hayley. Im sure he is in very good hands. I hope all goes well xxxx
Hayley I’m thinking of you and your family. Hope your wee one is ok.
Bigpumpkin, I stay in Scotland so it might just be an area thing. Even across Scotland you get different service so it’s definitely a postcode lottery. I had metroclopramide for my first FEC and it didn’t work at all. I moved into cyclizine and ondansetron and they worked for a while and then stopped. That’s why I’ve ended up on the nozinan and touch wood all is well so far. The domperidone is as and when I need them but have been taking them the past couple of days because last time the nausea and sickness got really bad on day 7 and that’s tomorrow. Last time I ended up at A&E because I couldn’t even keep down water. Praying the same thing doesn’t happen again.
Lots of love
Hazel x
Hi ladies. Poor you Hayley. I can’t imagine how you must be feeling. I hope the little fella is doing well. I’ll be thinking about you. Hope your arm is ok jaffacakes. It’s a pain having to go in to see about anything. I sometimes think this whole thing is turning into a full time occupation! Hope you stay nausea free Hazel. I have everything crossed for you x
Thank you for all the reassurance re spotting. I have an appointment for a couple of weeks time. It’s one thing after another with me! I’ve been very nauseous, headaches on one side of head and a numb arm and leg. I had a clear brain scan 4 weeks ago and consultant has assured me nothing that would give any side effects would have grown in that time. Still worried though as these syptoms are there all the time 
Round 2 of EC tomorrow and dreading it. So much going around my head and ended up in hospital within a few hours of the first. Just don’t feel mentally ready. Sorry for the moan, I’m struggling to actually see myself come out of the other end of this. Fingers crossed the emend helps this time. Keep well all of you. I’m thinking of you all xxx
Hi. Back from the treatment. My poor partner had to literally drag me there! Thank you for your thoughts jaffacakes and Alice. I saw a different oncologist today who reiterated what consultant had said. He said we need to keep an eye on symptoms but it was too early for another scan as they can do more harm than good. He said however that he really didn’t think it was related to anything in my brain as it wouldn’t have had time to develop in 4 weeks. I’m praying he’s right. He thought my arm may be because of mastectomy and leg he said would normally be more related to nerve in lower spine. headaches like I described - stress (no surprise there!) stiff neck the same. So sick of worrying! Hope you are all doing ok and hope the sickness has stayed away Hazel. I’m hoping this emend is a miracle worker 
xxx
Hi all
Glad you got through today ok Caz and hope you feel a bit more reassured after seeing the oncologist. Every ache and pain that we would normally think innocent suddenly becomes sinister doesn’t it? I am keeping all my fingers and toes crossed that it’s all ok for you and that the emend does the trick. I’ve had a really sore back for a week and in my head I’ve thought it was bone mets even though I had a clear bone scan only 7 weeks ago. Probably just the lack of activity has caused it to seize up.
Sue I hope you feel better soon. It’s probably better to have delayed the chemo to try and sort the other problems. My week delay did me the world of good.
Jaffacakes hope the clot goes away soon and your tummy feels better. Just think of all the lovely cake you can have at the end of this as a reward. ?
I’m doing ok and the nausea has stayed away so far. I am eating loads more than last time though not really enjoying it because of the yucky metallic taste. My brother in law is a great cook and he makes the most amazing pasta sauce. I’ve just tucked into a big bowl of it and couldn’t really taste it. I just kept closing my eyes and imagining what it should’ve tasted like!! I should have frozen it to eat when my taste buds are back and stuck with the rice crispies that have pretty much become my main source of food!! Good job I love them though I’ll probably never eat them again at the end of this!
Love and hugs to you all ?
Hazel x
It’s totally understandable to be dreading tomorrow Jaffacakes but that will be 3 done so you’re doing really well. One more chemo bites the dust!
You’re right to save your soup until your taste buds are back. There’s a few things I’ll probably never eat again after this is over so I’m trying to avoid my favourite things (mostly Cadburys chocolate if I’m honest?) I’m a terrible cook so my husband has been left to fend for himself. My sis and bro-in-law only live 100 yards away so they’ve been feeding him a lot and bringing me food when I’ve been able to eat. More meals on legs than meals on wheels!!
Good luck tomorrow. I’ll be thinking about you.
Hazel x
I know its not bc or chemo related but dont know where else to rant or cry, feel so alone and useless, andy cant be with me in birmingham cuz he needs look after the other kids (his mum and dad have said theyll come home from their hol in spain but its not fair on them, I just want to take my baby boy home but they still keeping him asleep ? xxx
Hayley sending you big hugs. It doesn’t have to be bc related, we’re here to give you support no matter what. You must be so worried about your little one but he’s in good hands. If the docs are keeping him asleep its so his wee body gets a chance to recover. You’re trying to cope with so much at the minute, it’s no wonder it’s getting too much.
I hope your boy gets better soon. Sending you lots of love.
Hazel x
Good luck today Jaffacakes.
Hx
hi new to the forums today and thought I would post here.
I started my chemo on Fri 14th (joy!). 8 cycles of chemo and then surgery to follow later in the year (which I am trying not to think about yet). It’s all been a bit of a haze since Januray when I first found something wrong, but I am doing ok. Supportive family, friends and work help a lot. Just trying to keep doing what I can.
Side effects so far (I am on EC for first 4 cycles - 2 done) have been bearable. Had a port fitted now as they were unahppy with my veins. It’s still a bit uncomfortable but hoping it will be worth it in the long run.
I decided against the cold cap although they really pushed it - it was freaking me out. I think it was one thing too many. I was really upset at the thought of losing my hair, but when I actually gave in and got my poor husband to shave it off last week I didnt feel too bad. I have a wig and have worn it to work, but not sure I will keep doing so - I quite like how I look with a hat now and it’s a lot cooler!
Good luck today Jaffacakes, I will be sending you good vibes !!!My 3rd Fec is a week tomorrow abd my knees are already knocking lol xx
Lowfattlovatt, we are here for you whatever and whenever, especially when a little one is poorly. I am thinking of you and sending all my love. I know from experience that this is a terrible time for you, he is in the best hands, stay strong, I hope you will have good news soon x
C x