Hazel that is such a wonderful message - what fabulous news.
I am sat here plumbed to to the chemo machine having my first (of 4) Paclitaxil. Very scared of the side effects.
I am so happy to hear your good news Hazel. I am having some real bad days at the moment with the side effects of Tax and your news has really lifted my spirits . I had potted rose plants for Mothers Day and have already passed them on to my Mothering Law for rescue !!
Hope everyone is ok, also any advice on bone/joint pain , would be much appreciated and Im almost frightened to ask how long does it usually last.
Cath xxx
I was terrified of the se’s too but have found the reality to be better than what my imagination conjured up. Well so far at least. I’m on docetaxol so a different chemo to yours but wish I could reassure you more. The main ones for me have been bone and joint pain and the horrible mouth. Absolutely no sickness or nausea and that’s been a great thing. Hope the rest of the session today goes ok.
Cath, I had bone pain Fri, Sat and Sun and a wee bit on Monday. I took co-codomol every 4 hours and that helped. I also had a long hot bath every day too. I think I was lucky compared to the pain some ladies endure. I hope you get some relief soon.
Lots of love.
Hazel x
I dont like posting on here how im feeling (although I do alot) I just want make you lovely ladies who are going through this horrible disease the same time as me smile (if I can) so heres another one, I was 14 and andy was 18 when we first met, he was sat in his car (he had an ace car at the time, escort xr3i) and asked if I wanted go for a spin, I looked at him and said id tell you to kiss my ass but im pretty sure youd fall in love then id never get rid of you…19 years and 4 kids later…why the hell did I say that?!
Keep going dudes
We can do this
Love and hugs
Hayley
Xxx
That’s a lovely story Hayley. I am completely awake and thrashing about trying to sleep. So far, this is the only side effect of the paclitaxol. I have first Herceptin tomorrow which entails a sub-cutaneous injection and then staying at chemo unit for 6 hours to be monitored. I will be pooped. Jillyx
Good luck to everyone having their chemo today. Jaffacakes I hope you get some sleep!
Alice I am so pleased you are getting some relief from the nausea. Make sure you have lots of treats while you’ve got your appetite. You deserve it.
Hazel x
Grrrrrrrrrr!!! Had it with people tonight, why do they feel the need to tell me that its weird that i havent slept with anyone apart from andy?! People baffle me! Xxx
Thanks jaffacakes, people wind me up, I mean who should be bothered about how many people ive slept with, people keep telling me ‘I look well’…if I look well now with half a boob and no hair what the hell did I look like before ?, ellis is doing great, thank you for asking, cant believe hes 18 weeks old, my babys grow up too fast!
Hope everyones ok
Love and hugs
Hayley
Xxx
The taxol has hit hard. My legs, bum and groin are so painful and I can’t stop thrashing about. My poor partner has been banished to uncomfortable spare bed so I can kick about freely. I had a swim, then a lavender oil bath, used a wheat bag, 600mg inbruprofen (3 times) and some homeopathic concoction. Now wide awake and fidgeting about the bed in pain.
Hope you start to feel better soon Jilly, its day 10 post Tax for me and I feel Im getting there, its , I know it must be dreadful but hang on in there , and you will start to pick up xxx
Oh Hayley you do make me laugh you know ! My manager came to visit me during the week and told me that I looked better than another colleague when she was having the same treatment - it was a compliment I think lol Xx and yes I think that its wonderful that you and Andy have been sweethearts and are blessed with such a lovely family- good for you xx
Love to everyone, hope you are all doing well xx had a lovely day today, we took little pumpkin for a walk in the woods to see if any teddybears were having a picnic. Worn out now but happy x
Love Cath
I didn’t get much sleep and am still horribly achey. But it’s day 1 of the Brighton festival - my favourite time of the year. So I am determined to go to the Dome and see some dance. I hope I don’t fidget too much. Life needs to go on. Thanks for all your support.
Cath, why the bloody hell do I make you laugh?! We were all out shopping today and some girl behind the till in topshop said ‘as if you and your daughter are the same size in clothes, must be weird being so little’ to which andy replied ’ shes not little, shes compact and ridiculously adorable’ hahaha gotta love him (sometimes) xxx
Hope you are feeling better today Jilly and get to enjoy some time doing the things you love, we all need that don’t we xx
Aw Andy sounds like he’s your rock Hayley , love the fact he goes shopping too, my hubby always stands outside with a grumpy look on his face lol!!
Love to everyone, hope you are all well and enjoying the Bank Holiday.
Cath xx
Soooooo watching goodness knows what on telly earlier about a woman whose donating a kidney to a man she hardly knows
Noah ‘can you live with 1 kidney?’
Me and andy ‘yes son’
Noah ‘so why does he need 3’
Bless him, didnt know what say for laughing
Xxx
Sorry you’re having such a crap time ladies. I think I’ve been pretty lucky (touch wood) in terms of side effects compared to you all. Sore hands and feet and a greasy feeling mouth is all I’m facing at the minute so not too terrible. I’m on day 14 after my first tax. Not noticing any change in my lump so that’s getting me down a bit.
Jilly I had co-codomol for my pain but guessing that won’t be suitable because of the codeine. Hope you get better pain meds soon. It’s not good you’re in so much pain.
Sue I had my first session with a counsellor on Monday. Wasn’t really sure how it would go because I’d has a pretty good week but ended up in tears from the start and had lots of thoughts swirling about my head since then. Think I’ve been burying my thoughts a bit and that’s brought them to the surface again. I’m hoping over the coming weeks he will help me organise them into manageable chunks! Sorry the anti depressants didn’t help.
Jaffacakes, hope your visit wasn’t too stressful! It’s hard when you know people mean well but sometimes it’s just too tiring.
Good luck on Friday Kess.
Hope you all feel better soon. Lots of love.
Hazel x
Hi everyone. Sorry I haven’t been here for a while. I got myself a bit stressed for the next treatment.
So sorry you are all struggling for different reasons at the minute. Jilly, is is worth discussing a reduced dose? They had to reduce mine due to unbearable side effects and it has helped. Only reduced by 15% and onc said it would make no difference to outcome. As you know they base dose on height and weight but my nurses sad its a guess and not always right.
I hope your mood is better sue, kess and hazel. I think this is the worst part to deal with. It’s not just you that gets like that sue. I had a major high post scan and was like my old self. Having the worry lifted was the best feeling in the world. But sure enough it crept back in. I have something on my thyroid they want to biopsy post treatment and I too need another scan to check the ‘hopefully’ cyst on my liver. I agree Rowan and jaffacakes about the not knowing.
Thank you for sharing your plans post treatment. I’m itching to book a holiday but nurse thought yesterday I wouldn’t be finished till end of September as they give you a break post chemo before rads for a month! I was a bit gutted.
I’ve booked tickets for Capitals summertime ball as my eldest wants to go with her friend but I’m worried about them going to London from newcastle themselves so my partner and I will ‘suffer’ that lol. I went out at weekend and had a drink too many. Probably not clever but it was good to feel vaguely normal for a while all dressed up.
Love and hugs
Caroline xxx
Sorry, also meant to ask is anyone’s hair growing back? I have a layer of blonde fluff about 3mm long on the top of my head ?xxx
Good morning everyone,
Im glad the reduced dose worked better for you Caz, they reduced my first Tax by 15 percent, as going on my past record with Fec, the Oncologist thought the Tax would be too strong for me. I have still had some nasty side effects, joint pain, worsened indigestion, thrush in mouth so I think she made the right decision. I had a visit yesterday from an ex-colleague who has had Breast Cancer. She said there was no reduction in her lump until she was well into her Tax’s, her nodes were involved too but by the end of treatment the Chemo had destroyed all the Cancer in her nodes and when removed they were all clear. She is 7 years post Masectomy and I have to say she (and both boobs lol) looked amazing. Though I would share this for anyone who hasnt had their operation yet xx
Good luck for tomorrow Kess and love and hugs to everyone, think we are all having difficulties at the moment. Alice I hope you made it to your session and
are ok xxx love Cath
Hi ladies from February. I started chemo in April. I will be 3 fec and 3 tax. My last fec is next week. I wanted to know if anyone has done this treatment as I am worried re tax side effects. Especially on nails. Any advice appreciated
Thanks big pumpkin for sharing that about your ex colleague. It’s really perked me up because I’m checking my lump every day and not noticing changes but I’ve still two tax’s to go so hopefully I’ll see a change after those. 3/4 nodes were affected too after my slnb so hopefully the chemo is clearing those too just like your friend.
Caz I’ve still got a layer of blonde fluff on my head. It never fully fell out. All my dark, thicker hair fell out. My eyelashes are very, very thin now and my eyebrows are thinning rapidly!
Sue thank you for telling us about the poem. I’m going to print it and read it every time I start to feel down.
Hazel x