Who wants a 17year old, an 11year old, a 5year old and a 9week old cuz I feel like **bleep**e x
I hope you don’t mind me gate crashing.
I finished 6 x fec-t on Xmas Eve.
I have been reading that a lot of you have suffered with nausea & sickness, I was lucky and was given the wonder drug Emend from the get go, as well as cyclizine & Granesetron but I did still feel rough for 10 days after my first fec. One of the girls in my group (September 2013) swore by drinking water, drink at least 2 litres day before, day of & day after, I tried this and omg it was like a miracle sooo much better.
As for me now, the aches of the devil tax are beginning to leave my body, I’m now back at work full time, started back at the gym 2 weeks ago, need to get rid of the 2.5 stone I put on during chemo, hair is beginning to come back albeit mostly bum fluff lol
Best wishes
Hi all you ladies and particularly, Sue. You sound like you are having an awful day. I too have just startled my chemo so it feels like a very long road ahead when you feel so poorly but must be worse with this kidney complication tou have. I hope your friend manages to pop in later and you can have a good gossip. I’m lucky that I have so many people around me and feel awful that I haven’t been able to be bothered with them as I have felt so sick. Had first EC chemo wed, admitted to hosp wed night with extreme nausea and no sickness IV they gave me helped at all. I really don’t know how I’m going to face the next one!
Are your daughters coming back again later, Sue? It must be difficult dealing with the kidney issue as well as this chemo. I hope you feel better as the days go on and manage to enjoy some of this lovely bright weather. I’m determined to get out of bed this afternoon as I have been too dizzy, sick and exhausted till this point. Onward and upward ladies xxx
I had my first Fec yesterday, Nausea is pretty bad but the worse of it is the metal taste in my mouth finding it really hard to eat or drink at the moment. I am sure it will be a learning curve and i hope things get better
Hey up me ducks
Hows everyone doing
Ive put 4lb on cuz of the bleeding steroids, its official im now a heffa! Andys new nickname for me is baldy so for the foreseeable future he is not being called andrew or andy, his name is now andrea ?
Jaffacakes, hope your mum looked after you for the day and the kids helped
Sue, im glad you were able to get yourself out to see your mum and dad
(I havent seen or spoken to my mum and dad since I was 16)
Marie, you can bottle me if you like but im not sure I would fit now ive put 4lb on
Im off to have a soak in the bath cuz ive been involved in some hot steamy action today…thats right ladies, ive been cleaning ?
Love and hugs
Hayley
Xxx
Good morning ladies 
I just wanted to say - hats off and huge respect to any of you who actually manage to work or even function semi normally through this!!! I am 6 days after EC 1 and feel bleep awful. I’m clearly not as buff as I ever thought. I need to man up for my next, otherwise I’ll be sticking my head in the sand and ‘forgetting’ the next appointment 
xxx
Caz, im on maternity leave at the mo (some maternity leave hey) was due to go back to work in 3 weeks but cant cuz I work in a school, hope your ok!!!
Jaffacakes, the weight thing is definitely weird, ive only ever been 7stone 4 when ive been pregnant with the kids so its a bit strange, its just me, ellis, rocky and fluffy for a while today, mum in law coming round in a bit to go shopping, I need new jeans cuz the last pair I brought freya has taken the tags off this morning and gone college in them
Xxx
Hi all
Marie thanks for your suggestions re anti sickness meds. So far the Nozinan is working well for me but don’t know how long that will last since the ondansetron worked and then stopped working!!
Alice I too am moulting! It’s driving me nuts. I was in the shower on Saturday and loads of my hair came out. I had a good cry at the time. It’s steadily came out since then though I still look like I’ve got a lot of hair left. I’m toying with getting it all shaved off because its so itchy.
Has anyone else done this? It would be good to hear how it went if you have. Got my ‘new hair’ on a stand in the bedroom!
Re your meds, I live in Scotland and the way I have been getting my meds changed is to call the BCN who in turn organises a prescription to be collected from my GP. The meds from the hospital wouldn’t last long enough to really help because they only give 3 days worth. Not sure how it works where you are.
I really admire all you ladies coping with this as well as working and looking after family. We don’t have any kids and now I’m 40 and facing 5-10 years on Tamoxifen it’s not going to happen now. My employers have been really understanding and supportive and my manager is lovely. I haven’t been well enough to even think about work but hoping that will change as time goes on (or I may still be in denial…).
Hazel x
Hope your PICC settles down Jonsi. Thanks for letting me know about shaving your head. My wig looks pretty much like my own hair so doubt many people will notice the difference when I wear it. Sound like its definitely the way to go. Sue, the shaking of your clothes made me laugh because that’s exactly what I’ve been like the past few days! The hairdresser my husband goes to has offered to shave it. I don’t know her and somehow that seems right rather than going to my usual hairdresser. I shall remind her not to make me look like Matt Lucas ?
Hazel x
TAC 2 day 5…what a dreadful few days! I have struggled with nausea, writhed around with bone pain and grieved all over again for the loss of my hair 
I’ve watched my family silently cry feeling helpless…I hate this, I really do x
Big hugs Marie. I wish I could take this horrible disease and its treatments away for all of us, I really do. Sending you my love.
Hazel x
Hello everyone, hope that you dont mind me joining the group. I await my 2’nd FEC this Friday and am hoping it will be a better experience regarding the sickness this time round. I have read all your very helpful advice already and will be prepared when I see the Oncologist tomorrow. I am using the cold cap and have been lucky so far with hair loss but I have a feeling it gets worse second time round. Anyway just wanted to say hello and send everyone a big hug xx
Oh Marie my heart goes out to you. Big hug. Is horrible to think we are all suffering with this alone in different areas of the country. Same issues, same worries. We all need to get through this and start living again but it seems such a long time off and an impossible task. We will get there, and Kevin’s lovely reassurance about Marg’s hair loss is good to hear. I really hope you start to feel better very soon xxx
Thank you Alice, I hope that you will feel better very soon. I await Friday with dread but I keep telling myself that the Chemo is doing its job. Tomorrow will be my second visit to see the Oncologist but I have also spoken with the Oncology Nurse who has promised me different meds this time, so maybe its just a case of which Hospital you are under and if you have results pending ( I had a CT scan last week) I didnt mention anything about myself or ask a question earlier. So I was just wondering when does everyone generally lose other body hair ? I still have all mine and that cant be down to the cold cap. By the way Im 46 have 3 boys, aged 26,21 and my little pumpkin is just 3. My two older boys are very supportive but my little one has no idea. I just cannot find the courage to say anything. Anyhow it is a lovely day today and I send all good wishes x x stay strong x
Hi big pumpkin and welcome Sorry I can’t give you any advice on hair loss as I’m a couple of weeks behind you. I hope you get less se with the next treatment. Like you I am dreading it too.
I am 42 with 3 gorgeous children (17, 7 and 2) and my heart goes out to them all every single day for having to deal with this. All of mine know but it was so hard to tell them. I used the book mummy’s lump for my 2 yr old and now she joyously tells anyone who will listen in the most crowded of public places that “mummy only has one booby!” and laughs uproariously! She’s now waiting with baited breath for my hair to fall out.
Are you awaiting ct scan results?
I’ve had a pretty bad day today - too much time to think. I rang thevhelpline and cried on the poor lady but she was so lovely and just talking to someone dragged me out of the spot I’d found myself in again.
Hugs to you all ladies xxx
Oh Caz your little one has made me laugh, they say the funniest things dont they? Yes, I am expecting CT results tomorrow and am very familiar with that bad place you have been in, so much so I rang the Oncology Nurse yesterday leaving a garbled message on her voicemail regarding the results. She very kindly rang me back assuring me the scan was fine. This journey is such a rollercoaster ride. I try to stay strong and I try to be brave, some days are easier than others. For me, there is no greater strength than at the end of the day, my little one hugging me and saying I love you. Sending love and kisses x
Hey up me ducks
Welcome to the other ladies who have found themselves here!
Im sorry some of you arent feeling so good, im fairly ok, just get tired very easily but thanks to emend no sickness!
Regarding the hair I have none anywhere, although I wax my legs, undearms and down below every 2weeks so wouldnt know if id lost that anyway, eyebows and eyelashes have thinned abit but I have individual lashes put in so they look pretty much normal.
Interesting school run this afternoon, me and a friend went to pick noah and her son up, everyone was staring and whispering to each other ‘thats the 1 with cancer’ so I whipped my cap and scarf off and just said ‘not got cancer, that was removed, having chemo and as much as we dont like each other i pray to god it never happens to you’ (they dont like me cuz ive got a gob on me)
Hope the se’s get better for everyone very very soon
Love and hugs
Hayley
Xxx
In crappy hospital again ? xxx
Hi everyone, especially the new ladies x
Cycle 2 day 7 of TAC
Really sorry for my depressing post a few days ago, I hit rock bottom and I’m sorry I plonked that on your already very heavy shoulders!
I’m pleased to say though as of yesterday things started to get better and I’m really starting to feel like me again, apart from the slight nausea that’s seems to just want to take residence!
Jaffacakes…are you sure were not on the same chemo? We seem to be following the exact same reactions at the same sort of times! I read your posts and feel like your talking about me! Although I really don’t like hearing about another human being struggling, it really does help to to read your posts as I don’t feel as alone and isolated.
With regards to hair, I shaved mine day 15 after the first cycle due to 2 very large and noticeable bald patches! I felt so much better when I’d done it too as it was awful watching it shed and waiting…yes the waiting for it to go was horrid!
I shaved my legs and underarms 3 weeks ago and still nothing my pubic hair I’m sure will be gone within the next week or so
I get to see my oncologist before each cycle of chemo…on my last visit to the breast clinic my BCN in so many words told me not to bother her as chemo is not her field of expertise so instead speak to the chemo unit! To be fair, I’ve had 2 BCN (due to last minute change of surgical team) and I found them both to be pretty useless. I’ve only phoned them 4 times for bits of advice and each time have gone through to answer phone…however I did get a call back from ONE of my messages, wasn’t my BCN though lol so if I’ve needed advice I’ve always used the BCC helpline.
Hailey…aka lowfatlovatt, I hope your ok. You are forbidden to stay in there too long as we require your services here to keep us laughing with your stories. Wishing you a very speedy recovery.
Right I’m off to check out this huge spot that seems to have taken over my chin! Does chemo make you regress to your teenage years? I so hope so
Marie x
I forgot…I wanted to share this with you to give you a bit of a giggle. My 13yr old sons friend came round the other day and walked in the room and said “hi Marie, how are you feeling? I see you’ve now lost all your hair” with the best face of panic I could muster (given how crappy I felt that day) I looked at my other half and said “what? What’s he saying? I’ve lost all my hair? Have I really, please tell me he’s lying” my other half turned from me looked at him with stern eyes and said “cheers for that joe, we’ve covered all the mirrors so she couldn’t see, but seems that was a pointless task now”
Obviously the boy looked horrified and my son rolled his eyes and said “joe, ignore them, there idiots!”
Just to show that no harm came to any child during this process of our amusement we were all in fits of laughter afterwards!