Sorry to hear some of you are on a downer today. Also feeling sorry for myself today.
Mega bad hair day and got a bit obsessed this morning pulling it out that I filled my cereal bowl! then had to put the hood of my dressing gown up to get past kids and their friends in the kitchen. Even more came out in the shower and so now I’m sporting an impressive comb over.
I now feel like a cancer victim and struggled to stop tears flowing and sobbed on ES shoulder. Waiting for OH to come home from work; maybe time for the clippers.
Itchy scalp so soon??? its either nits or the start of the inevitable…
Hope everyones day has improved in mood and SE’s
We are all have different therapies mine are 4 x EC and 4 x TAX so completion date is 20th June…count down already.
I am finding writing a diary is helping with moods and getting my head round diagnosis etc…have been doing this since MX on 9th December. Getting nervous already re central line to be fitted on 14th Feb (no romantic meal for me) followed by 2nd juicing. Eating lots but seem to be grazing, little chunks of chocolate etc…Got a real thing for Ice lollies too…the colder the drinks the better also
Still got a little sickly feeling but nothing I have not dealt with before
As for life not being the same again I hope not…If this has taught me one thing when I am out of the Dark Woods I will live my NEW life to the full and will learn to prioritise what is important to me and not others!!
soctiann just read your post tears pouring down my face im not there yet starting chemo thurs but i could have wrote your post you hang in there u have always been strong u have a down dayxxxxxxxxxxxx
hahaha Julie,your comment about itchy scalp…made me want to scratch!Its not even been a week since 1st chemo but my hair feels awful,even though i wash it it feels and looks awful…
So glad it’s not just me having a bad hair day!! Can’t stop itching and does feel greasy although i wash everyday!!!
Getting really sick of bread and cheese as that’s all i fancy at the mo, on the plus i did have a gorgoeus beef dinner for lunch at our local!X
Anne - soo sorry you are having a down day - we all have one - moan away! shave off and get yourself back in control over it and you will hopefully feel heaps better!!XX So says she who hasn’t got to that stage yet!X
Off to bed and hopefully will get a reasonable nite sleepX
Hugs and peacefull FULL nite sleep to all X
Day 16 here - LG slowing shedding away but not head yet! cold cap may have worked - fingers crossed!!
My head was really itchy first week or two but didn’t mean hair loss - itching has pretty much gone away but hair still intact! I keep running my hands through it but so far still good! My hair was terribly greasy too tankgirl and i keep washing it every 2 or 3 day! much less greasy now!
Cold almost gone - highest temp got was 37.2 but that was Friday so seem to have got through without infection! despite both lo’s having temp over 38 for most of week!
I didn’t play it safe during low week and was fine - but then my onc told me not to worry - we went to playgroup, church, dancing, etc as normal and lots of lo’s have had bugs but i am ok so seems onc was right!
Hope everyone is feeling ok - i think the worst thing is knowing that the 2nd special meds as we call them here are going to make me feel unwell - although hoping they get the balance better this time and it might not be as bad as last time!
My 38th bday is thurs - day before no2 at least! Could be worse!
Awww Anne, sorry you are feeling down, this bloomin chemo has a lot to answer for! Yeh, yeh, we know we have to have it, we know we have no choice. But boy does it kick a girl when she is already down. I think losing our hair is a blow below the belt (and that bit too), and shouldn’t be allowed. Hope your hubby is home now and taking care of you. I guess we know it will happen, we wait for it to happen, but then when it happens it’s a real smack in the face.
Big hugs for everyone, especially those who are feeling low.
Hi everyone hope you’re all ok. I’m having an extremely down day today hair has fallen loads today I’m just so upset. I still have masses attached but feel by morning Will lose it all?!
Day 18 today and i really thought i wouldn’t be faced with this. Silly i guess but thought cc was working.
I’m not guna put more of a downer on you all so I’ll stop right here.
Lynzi really feel for you hun sounds like you have a pretty amazing OH who Will help you thru this.
Julie writing a diary sounds good i may just try that too. I just find everything too hard to talk about so i guess writing it down is next best thing.
Debbie Anne Jane Joyce hope you’re feelin abit better. Big hugs to each and everyone of the gang.
Julianna best of luck for tomorrow keep us posted on how you get on.
Love to you all Mary C x
well my little man had me up at 6am, but at least i slept through!!!
Then my OH work rang at 6.30am, but he was already up farm doing work for his mum…
still bit wobbly and i rammed my toothbrush into my gum - ow!!
hope that is not how the day will pan out…
Morning to all, would like to say im so glad i found and joined this forum…seeing others in my situation is/will help.xx
Now, yesterday i started getting a few small bumps on my head which feel like insect bites or heat bumps and a sore to touch…its day 7 of my 1st session of FEC, does anyone know if this is normal or have anything to do with my hair loss being imminent, nothing has come out as yet though…confused…!!!
Happy Monday morning!!!well my tastebuds deserted me last week after 1st chemo,and now my appetite has gone too…still not getting full nights sleep…am just sooo tired…i know it could be worse though…
BCN has told me to expect hair loss from day 10 onwards my scalp is also itchy and reading on here at other posts i am sure I am using an unsuitable shampoo…we should be using a low perfume/ sensitive shampoo…am sure this is normal but if you are worried i would speak to your BCN or ring the helpline x x
No help there whatsoever lol x x
think we are at the same stage when is your next juicing?
morning angel x x
I am coming out of the fuzziness today and not needed an anti sickness WE CAN DO THIS!!!
Firstly thank you to those of you who posted and made me feel better when I was down the other day. Mary C your post made me feel more positive about the here and now.
Lynzi, I know exactly how you feel re the fertility things. We have spoken before but if you want to chat over pm or even on the phone then that would be good. It feels so unfair that at this age (I am 30) we have that to consider too. There really is just so much to take on board that it is totally overwhelming.
I am on a two weekly cycle so am having my second cocktail this Friday hopefully. I am trying hard to exercise and get out each day and to eat well, as well as drink two litres a day (non alcohol- gutted, last night I had a glass of wine and it was like acid!) and am having manuka honey daily too. Any more tips and hints that you girls are following to help? I just need to feel that I have some control over this alien!
hello all,ive had 3 sessions of chemo got 3 to go but the drug changes to taxotose next…whats peoples opinions and views on this? worse side effects,the same etc so far ive got off lightly,with sore mouth and ulcers being my biggest curse !! and everything tasting metallic for the week or so after chemo !! had no sickness or any of the other nasties mentioned on here,so apart from losing hair 2 weeks after first chemo im not that bad !! x
Jules, re relaxation tips did you look up anything? I am wanting to put some bits on my ipod for relaxation, calming, possibly meditation and wondered if you found anything or had any suggestions?
my local cancer centre does relaxation classes also reflexology, Raiki healing etc…It may be worth searching in your local area and failing that i am sure there will be an app for relaxation i.e. yoga, meditation…
Maybe the BCC has some info on relaxation techniques in their many varied publications etc…
Good Morning All,Im not on here very often but i do read all threads and get so much help from that. After feeling bad I got passed that on day 8,9 and since have been feeling good,annoying thing is I have a real spotty face (ANY IDEAS)no hair loss as yet,Scotianne and Soc just noticed you guys are same as me HER2+.i have started my hercepton due to joining trials.Anyone from Scotland? Take it easy all you guys who are feeling unwell at moment (it will pass).
Maggie x
