Julie its day 5 for me too,my main se is the tiredness…also everything i eat tastes sooo bland,and i went round a friends house last night for a catch up with a couple of friends,had a large glass of supposedly good Pinot Grigio but it tasted of nothing!!I have awful sleep at night too,cant remember the last time i had a full nights sleep…weeks ago.
hi everyone, second chemo was totally different experience on fec90, no anaphalytic shock thank goodness this time. Felt ok after infusion until about 5pm then nausea kicked in for 3 days. I am eating more now which is good.On days 2/3 i found choclate a great help- bizarre really. Today i am day seven and feeling a bit wobbly, getting used to wearing wig everyday now, even the nurse at hospital couldnt tell it was a wig which boosted my confidence. any tips for this week greatly appreciated, i want to boost my white blood count as much as i can? feeling a bit low as nurse told me not to travel to london this week to see daughter as low immunity week.
Hi all,
Ihad my 1st chemo session 24th jan 6xfec 75 is scheduled, then 20 rads after. Its day 6 and starting to feel anxious, its doing my head in as everyday waking up not knowing what to expect that day. I was nausious the 1st night but been ok since,im having more pchological worries than phisical. Im so worried what will happen. I have hardly ever been really ill in my life now with this its hard to take in what to expect. If anyone else is having the same treatment or has had it all please can you tell me your experiances and side effects. Paula 42. 
Hi All - had my second Fec on Thursday and feel really rough at the minute. So so tired and struggling to eat. Think I am feeling worse than first one, but dont know if this is just me being emotional. Its so hard, I felt really well before my second treatment and have gone downhill, hopefully this will only last a few days.
Sorry to moan on.
Debbie xxx
hi thank you everyone for your comments Hi Scotianne and Denise and yes would be nice to keep in touch Denise xxSylv xx
Day 12 and all’s well. WRONG - it’s only day 11!!! It just feels longer…
Julianna - a bootle of Barolo no less what exceptionally good taste your friend has:). Tried a sip of white last night but still not tasting right - but my t& g was most acceptable!
What a coincidence Mary, we watched Mrs Browns Boys for the first time the other night (recommended by my son) and thought it hilarious - defo recommend it girls! I’ve spent my whole life with long hair as it’s so fine i always worried that having it cut short would make me look like a boy - albeit with sticky out bits! So look at me, i’ll skip the short bit and just do the bald bit lol - albeit without the sticky out bits. Actually, that’s not quite true as i’m not having my mx till after the chemo, but i am seriously considering having a bilateral as i Really do not want to go through this again!
Waking uo through the wee small hours Joyce seems to be common amongst us all. I guess we have so much running around our head it’s no surprise really is it. I find nibbling a few plain biscuits sometimes helps as it raises blood sugar levels.
Sounds like you got a good wig Minty - well done:)
Oh Debbie, sorry to hear your 2nd FEC is bringing you low, but keep focusing on the fact it’s another one down and one nearer the end. Keep up the fluids, and rest if that’s what your body is needing right now.
Wishing everyone a day full of minimum se’s
Sue x
has anyone had their sense of smell go up i swear mine has or did the taste went down but nowhere how i imagined so pretty good but put my fave smelly perfume on was making me feel ill no more perfume for me till treatment done now not the strong ones anyhow also had like morning sickness so just eating the stuff i fancy gone off chocolate which cant be altogether bad sickness stopped couple of days ago so pleased about that not much appetite and thank you scared of chemo wasnt sure if was lazy ill or normal lol and can believe your still tugging your hair still not leave mine so time for wet razor and shiny head wishing all you lovely ladies well and very tiny se at all times xxx
debbie1234… hi sorry to see your feeling not good, can you tell me how you felt after the 1st session, i have just had my 1st im on day 6 
Julianna, i can’t believe you’re still tugging, what you like hehe it’s a habit now, i still rub at my hair line even though it’s doing a vanishing act! lol
i still have a fair coverage although my hair is really thin now. i can just about get away with it. the bald patches are so obvious once pointed out but noone seems to notice until i say. i have to wear something to cover my parting line tho as that has got wider. there’s lots of lovely elasticated headbands around at tho moment. i’m thinking headbands are a good thing to wear to help try keep our wigs in place, especially in the windy weather.
had a tiny loss yesterday compared to the previous days but i think that was a conscious effort on my part as i just wet it and tried not to run my fingers through too much, just did as little as possible in order to get it looking decent. suppose i’m just putting it off in the hope i can keep it. i’m gonna wash it tomorrow after my blood test ready for my 2nd chemo on Tuesday so we shall see what happens then. if i still have a covering i’ll use the cold cap again, if not then i won’t bother.
LG still has a covering too although very thin and yes that is probably a bit too much information but the way i’m thinking/hoping is if there is still a covering there then surly with my head having the cold cap on then maybe that gives me a bit of hope for some hair staying on my head?? as LG obviously didn’t get the same treatment and some is surviving this round. i hope that makes sense.
arm pit hair doesn’t seem to be growing back, I’ve never been able to get them so smooth. i’m well impressed hehe legs are pretty much the same…that’s certainly a plus 
been really emotional past 2 days. had a lil cry this morning in bed with OH. he asked what was wrong as he’s noticed I’ve not been myself. ‘talk to me’ he says. it’s just everything catching up with me, i hardly ever cry about what’s happened. i suppose my hair is a big part of the upset. another huge hurt for me is kids, i really wanted to start trying before all this happened. it’s a good job we didn’t, OH wasn’t ready which is a good thing looking back as i could have been half way through when this was all discovered but knowing i may not be able to after all this breaks my heart. i just have to hope and pray my periods come back and i can start trying once everything has settled down. i’m 27 and very maternal/broody i can’t imagine my life without kids.
also been thinking silly things like how is life ever supposed to get back to normal. at the moment we are constantly waiting for something to happen…next blood test, next chemo, next side effect, next appointment, next phone call, next scan etc etc etc but when it’s all over i can imagine being sat there waiting for it to come back…how are we supposed to just get on with life after all this. go back to work and just you know, live your life again. i don’t think life can ever be the same again.
hmmmmmmm suppose i’m just on a downer at the moment so thoughts are negative. this isn’t like me i’m usually so positive, happy and smiley.
xxx
angelfish65 - my smell is incredible at the moment. i can smell everything, been out and got some of those febreeze plug ins, loving them but yeah smell has certainly improved some what.
xx
Minty, Debbie - congratulations! You are now 1/3 through chemo! I think it is inevitable that we will feel worst with each cycle - I will report back tomorrow, as I am getting my second juicing.
Paula, welcome to the group! I am having 3 EC and 3 Tax so not exactly the same as yours. I have been remarkably well through the first cycle, no sickness, tired and fuzzy around the ages and on the second week some terrible wind, but that was it. They can manage sickness and nausea quite effectively these days, so I am not expecting anyone to be sick. If you are, you need to tell your onc so they can give you something that would control it. I was like you; expecting something each day, 'cose I couldn’t believe this was it!
Samos: I’ve trained them well, didn’t I?
Lynzi darling! I did not realize you are so young. 27! Did you have a chat with the doctors about fertility options before you started chemo? I have read some stories on here (good stories!) on how girls got pregnant and had beautiful babies after chemo therapy.
Julianna
Sorry to read some of ‘the gang’ have been feeling low – I do empathise with you – I’ve also had a few wobbles this past week. I understand what you mean Lynzi regarding life returning to normal – things will never be the same as they were before this thing hit us but as unlikely as it is to imagine right now, I believe that in time we will all find our ‘new normal’ to which we will adjust.
I have to say I am rather jealous of those of you whose LGs are rapidly thinning – mine seems to be growing!!! – what’s going on there? Head hair is also remaining firmly attached (for now). Would prefer to see a few more physical signs that things are being destroyed by the evil juice.
Blood check to investigate dizzy spells revealed neutrophils a little lower than ideal, so confined to house for a few days and given antibiotics and antifungals as a precaution. Onc had no explanation for my dizzy feeling – said perhaps it’s a defence mechanism and my body thinks if it makes me fall over, I might not poison it again! Made me laugh.
Julianna, i was 26 when diagnosed last year. everyone was so shocked.
yes there was a chat about fertility, resulting in me ending up in tears. i’d held it together well until that point. she said she had thought long and hard about which chemo regime she was to put me on. she decided on TAC minus the C as that really affects your fertility. my BCN seems to think i’ll be fine but noone can give you an definite answer you just have to wait and see what happens.
ONC mentioned freezing eggs but i’m on the pill and they’d need me to be off that for months to regulate everything on that front before they could even think of starting the process extracting eggs for freezing. she didn’t think it was wise to put off chemo for such a long time and with my age and the chemo she decided on she reckons it’s worth it risk. she said on average there’s a 20% i’ll be left infertile but she said that percentage isn’t based on my personal case, it’s come from a general study of women much older than me and that i have the big adantage of age on my side and that i’m generally fit and healthy.
see it’s so easy with men, it’s a simple as sending them into a room with a ‘magazine’ … not so easy for us women. bloody typical eh!!!
ONC advised me to continue taking my pill throughout all treatment and BCN says that will act as ‘a bit of added protection’ for my ovaries.
Zoladex had been mentioned to me, i think that basically shuts down your ovaries down during treatment but my ONC doesn’t think there is enough positive feedback from recent studies so didn’t think it would be of benefit for me. also there is the risk of stray naughty cells in the ovaries getting missed.
just got to keep positive and hope for the best
best of luck for tomorrow xxx
needahug - yeah i deffo agree we will find out new normal eventually just having a down day so can’t see it at the moment but the happy positive me knows that will happen.
xxx
Lynzi i think you hit the nail on the head with the whole…how is life supposed to go on after all this,i dont think it will be the same for any of us.It is comforting to know that we are all going through the same emotions though,its a bit of a shit really but i know it helps so much to hear how everyone else is coping.We cant be strong and positive all the time.
You must be the youngest out of us too Lynzi,I am just turned 38.
would quite like my taste buds to come back!!
Hi Everyone
I’m feeling rough today like you Debbie - energy zero,etc. I wish I had the energy to get outside for some fresh air. Roll on the spring - I can’t wait! I’m fed up of being stuck in the house in the winter. I felt not too bad on Thursday and Friday, but SEs worse yesterday and today.
Paula - welcome to the Jan forum. I’m on 5 day of 2nd chemo (6 FEC T). Last time I found I needed a week to get over the worst, then gradually got better from then and I made a good recovery. I went back to work after a week, and felt back to normal by 3rd week. Just concentrate on looking after yourself.
Had a reasonable night sleep last night helped by sleeping tablets - 6 hours which is good for me. I normally have problems sleeping, but chemo has made it far worse.
Wearing my wig today to get used to it, but it feels strange and not really comfortable yet.
It’s great to feel I’m not alone - the forum really helps and keeps me positive. Chemo is really hard, but we’re lucky that there is treatment available.
I agree, life will never be the same again.
Best wishes
Jane
Angel18 – it is really interesting to read that your tastebuds have gone AWOL as we are on the same treatment regimen. Thankfully so far, mine have been unaffected and sorry to say this – but hubby cooked a delicious roast dinner today. It just goes to show how we all have completely different responses to these drugs.
SOC I think it will be difficult to take your ‘crown’ for the loveliest-shaped head – great photo.
All the best for the forthcoming week everyone. x
you are so lucky wish i could taste food!! lol,am also using lots of lip balm on my lips,skin very very dry on lips and just inside mouth.
Angel18 I also had a very dry and sore-feeling mouth until this week, but for now it seems to have returned to feeling normal - hope this happens for you too during the next week. Take care x