Morning ladies, hope everyone is well and good luck to those having chemo this week.
Day 4 after FEC 2 on Friday. SE’s over the weekend pretty much as before - felt hungover Friday evening/Saturday and couldn’t stop eating yesterday. Some hair loss now so not sure if the cold cap has worked. Trying not to touch it much but couldn’t resist a quick wash in the shower this morning, first time since Thursday. Funnily enough LG still all there.
Feeling well so far today, am working from home this week.
SOC - Snowpatrol go for it!
Clare x
Thanks girls! Snowpatrol it is then. I’ve seen them before and they are really good live.
Bored and it is only 10 o’clock!
I think I am going to get some books and start learning Spanish - an ambition of mine lately. I miss work. But I don’t want to work during chemo - I would feel such pressure to perform, it is best I leave it alone, I think.
Good to see all of us doing rather well!
Julianna
Goodmorning Ladies,Not been on for a while!but I do read posts and they all help as with everyone else I have been up and down,Hair loss started on thursday and that was sad for me,I thought I was prepared for it but no.
No2 for me tomorrow and then I’ll be joining the one third ladies (quite sad now how we live our lives now counting the days and weeks)but it does keep us all going.
Julianna go for your gig and enjoy.
I live in Scotland and surprise! surprise! no snow (yet).It’s a beautiful sunny day and I think I’ll have to be going for a walk
.Hope you all have a lovely day and take care.
Maggie x
ps I feel my post are a wee bit boring compared to you guys.
Maggie, no posts are boring. I find great strength from reading how everyone is getting on. It is only us that truly understand how we are feeling.
The hair loss was a big thing for me and I was really sad when more handfuls came out. It was a big dissuasion to have it buzzed but I did feel back in control and it definitely looked better than the combover I was sporting.
Anne xx
Afternoon everyone
Soc- I’m still here but Christ I’ve been suffering this time and still not really feeling ok. It’s the nausea- it won’t bugger off! So been quiet and feeling v sorry for myself. I am also waking up with monster headaches every morning that also don’t want to go! Arrgggghhhhhhh
Other than that I’m fine, pmsl
Pretty bald- in a patchy unattractive kind of way, it’s horrid and I hate it.
Miserable. Fed up. Low self esteem. Tired… Need I go on as I’m sure you all know exactly how it feels! Lol
Right well now I’ve put a dampner on the thread I think
I might go have a snooze xxxx
Spk soon x
WOC, sending you a big ((((cyber hug)))).
WOC - hugs! I hope you’ve called the onc unit? If not, you should. Lot of the crap they can’t control - like the Gollum look - but by God they CAN manage nausea! I always feel bad about calling them 'cose I don’t want to be a ‘moaner’ but lately I thought f*ck that. I don’t feel well, they can do something about it, let’s call. It is bad enough to keep up the ‘I am fine, thank you’ to everyone else, don’t need to do it for your oncology team too!
WOC - call your unit! they will be able to sort out your SE’s!
Sending big hugs(XXX)
Feeling bit wobbly today (day 12) feel as if anemic a bit, but taking antibiotics just incase an infection developed as i had a bit of an allergic reaction from my internal pelvic scan!!
Haven’t been able to wear jeans or sit properly!!! not nice!!
Got my jeans on today, but haven’t been out of house for 3 days and feel a bit hemmed in!! LO fast asleep on sofa, i was just dropping off and someone rang - typical - i am now wide awake!!!
round 2 on the 17th, but got scan results on 15th first, oh joy!
Had a horrible time last night regarding my hair falling out and what my BCN nurse would say. I have just come back from giving blood ready for round two of juicing tomorrow. Got a big telling off from the BCN as I was really desperate to shave my head due to the hair falling out, but she advised it was thinning out and to still use the cold cap tomorrow and wait and see. When should you give in and shave it? Perhaps I need to post a photo of me. Also had to pick up daughter from college today looks like she has flu I hope I don’t get it, may have to banish her to her bedroom!
Good luck to everyone this week hope chemo’s go well and SE not to bad.
totally with you WOC ![]()
i’ve tried to stay away over the weekend as it’s been nothing short of horrendous and i didn’t want to drag you all down with me.
i’ve hardly been able to drag myself out of bed until this afternoon. finally feel i’m coming back into the real world and attempted a walk to the shop for some air half an hour ago. took me a while and it was very much an effort but i’m glad i did it.
chemo #2 has most certainly been worse this time for me and i really hate how i’m bad over the weekend. why can’t it be during the week whilst my friends and family are at work. GRR!!!
xxxx
Day 1 FEC 2 - yipee I’ve joined the ‘one third club’![]()
Angel, I’m having my treatment at Christies - Manchester.
Mary, Glad to hear you are well and that lo is improved - it’s always a worry when lo’s are poorly at the best of times, but right now it is a much bigger worry as you have to take such good care of yourself. I’m so glad mine are all grown up now - I guess they are bo’s (big ones lol) - and I’ve been avoiding my grandsons like the plague!
Julianna, peeps in earlier threads recommend Waitrose Baby’s Bottom Butter as being good for heads - I doubt you will get it in Copenhagen, but if you would like I can pick one up and send it to you - pm me if you want to. Snowpatrol? Not going is NOT an option - I am so jealous - I can’t believe I missed them here in Manchester!!! We both will be beautiful on Valentines Day - as I’m being LGFB’d too.
Anne - Jealous of your Beef! We keep threatening to use our slowcookers more - yes, slowcookers plural. We experimented with yesterdays chicken, cooking it a la Heston Blumenthal. Not sure it was a total success - he soaks it in salted water and then ‘roasts’ it at very low heat to keep moist - I’m thinking a slowcooker would achieve the same result (not sure the brining adds anything!).
Julie - hope your pampering went well - and there I was being juiced up whilst you were having fun lol - so jealous:)
Clare - Sounds like you are coping well with no2. Chemo nurse told me today that hair loss is mostly after two weeks, but not sure about the cold cap. I didn’t go for it, but mines held on pretty well, although it’s going now - it’s day 19, but it’s also day 1 today of FEC2.
Maggie - Good look for tomorrow, we’ll make space for you on the ‘one third’ bench x
Woc - Big hug coming your way, this is a cr4p time. We have good days (moments?) and we have bad days, but hold on to the thought that each and every day is one day nearer the end. You listen to Julianna - she is so right!
Tankgirl - Who’d be a lady!!! Hopefully you will enter the ‘golden week’ soon!
Summer - this hair business is a real bummer isn’t it. Mine is leaving now, but strangely it’s only the grey and long ones! Can’t comment on the cold cap, but can sympathise with the dilemma of when to cut/shave etc. Think my big day will be tomorrow:( Quarantine that daughter!!! And defo post a picci so we can help:)
Lynzi, another hug coming your way! It’s rotten when you lose out on quality weekend time with family and friends - fingers crossed you pick up!
So, had my FEC2 today, and feeling spaced, good, but spaced. Busy trying to down my 3ltrs of water.
Highlight of the day has to be chosing ‘Samy’ - my wig! She is rather nice - in a ‘Toasted Brown’ kind of way. I also picked up a nice soft beanie hat so I well prepared for the clippers now.
Sorry if I’ve missed anyone’s updates and also for writing an epic post!
Have a lovely evening everyone:)
Sue x
Hi Ladies,Thank you Anne for your reply,I,ve been for a nice walk today with OH and our two dogs (kim and jodie). The ducks and swans were walking on iced over Loch.Got away with no hat today but it is thinning quickly,bought two MORE hats ha!ha! be prepared is the motto. My hairdresser is coming on Wed. All set for tomorrow early rise,app 9am.
Take care everyone.
Maggie x
PS SUE, That was a marathon post you put on.WELL DONE and you seem like a very kind person.
Maggie x
Samos, how do you do it? I read the posts, I register the content but unless it is ‘scrollable’ when I post, I can’t remember who, when, what… Glad FEC2 is going well!
Maggie, it is your hair, so you CAN shave it off whenever you feel like it, however, we see the handfuls of hair falling out and think we are bald when in fact, we still have plenty of hair. Not me personally (even though there is still a lot of stubbly hair on my head!), but perhaps you should persevere with the cold cap. You can always zip it off if it gets too much. It was doing my head in to have that hair trail where ever I went and honestly, it was more about control, such as it is, than anything else.
Changed my profile pic (wish there was a space where you can post pictures!) - in my ‘Beautifully shaped head’ crown… ![]()
Evening ladies,
2nd chemo seem to be knocking the stuffing out of some of us. I managed a decent walk today but sat down for rest of day. Steroid high wearing off so sleep olympics for next 2-3 days.
Sue that was an epic post well done. We use our slowcooker all the time. Chicken is very good in it. Just stick the meat in and forget about it. Also good for curries and stew.
Julianna, loving the new photo.
Maggie, I agree with Julianna. I didn’t use cold cap(my choice) but you will know when the time is ready to cut it or shave it. Mine was an absolute mess (big time) but I have to be ready to do it in my own mind.
OH just bought some lovely hand cream from Lush and a head scarf to go with it. Feeling loved.
Hugs to all Anne xx
Evening all
Sorry to read that some of you have been feeling down over the past few days. It will indeed pass. Hope you are all feeling fine and dandy (or as best as we can do) very soon. Overall, I’ve had a good few days - despite the snow went along to B-I-L’s birthday celebrations on Saturday night, had lunch out yesterday and have been for my LGFB session today (wow, can’t remember when I last got out and about so much).
Just to add support, LGFB session was great - feeling much more confident now that I will be able to draw on my eyebrows to look quite natural when they go, rather than achieving the Danny La Rue (remember him?) look I imagined I’d get. Going to practise loads whilst my real brows are still there for me to follow. Products given to use are all useable - the contents of the bags given out today varied but were matched to each participant’s skin tone with nice neutral colours and best thing of all - the exact Lancome eye pencil I was going to buy next week was in my bag! Can you believe it? What are the chances of that? In amongst my goodies were some Clarins foundation and concealer, some Lancome, Clinique and Elizabeth Arden products and some Stella McCartney perfume - lovely! 20 products in all. Definitely, go along if you have the chance - it is nice to chat with the other ladies and to pick up some really useful tips. Also, realy nice to visit the hospital for a positive experience.
Had bloods done whilst I was there in preparation for jucing tomorrow.
Empathise with those of you with rapidly thinning hair - I still have a full covering but is thinning ever so rapidly - have been waking up to find a disconnected ‘bird’s nest’ of hair every morning for the past few days and am leaving very annoying trails everywhere. Will see what the advice is re cold cap tomorrow.
Good luck Summer20 and Maggie50 for tomorrow and everyone else due for juice this week.
Take care - hugs to all x
Hello, well day 6 of chemo 2, FEC seems to be suiting me much better than TAC. Not been suffering from nausea so much this time thanks to to much better anti- sickness drugs. However, just when I thought I got away with it today it came back with a vengeance. I hope tomorrow will be better! Finally got a profile photo (that’s my Lo Frankie btw) I hope everyone who was down is on the up, and good luck to any one having thier next chemo this week. Kim x
Ladies I know its my hair!!! I think it was summer20 that got row re cold cap,im not doing cold cap.my hairdresser coming wed and will probably shave head im getting fed up with hair around my house,its bad enough with my dogs hair.(border collies)
Take care all
maggie x
Maggie, apologies! Can I claim the chemo brain excuse here? See what I mean about not knowing who, when and where? Obviously, now I can’t even do when the posts are scrollable… Good luck with the haircut! And Summer? What I said to Maggie… ![]()
Julianna
evening all. Wat a S**t weekend I’ve had. Lo seemed to have got better then from 11pm Sunday night cried all night til 7am. I had no sleep felt crap and hair thinning made it all the more traumatic. She seems ok at min but in my bed and keeps kicking off the duvet. Grrr.
Took me ages to read everyone’s post and i honestly feel so lucky to have found each and every one of you to share my ups and downs. Seems like more downs recently tho. Sorry!
Kim you and your lo look great in your pic. X
needahug yes i too find the hair most distressing wen waking up but try to sleep on a satin pillowcase I’ve noticed much less since i did.
Hi Anne I’m glad you’re feeling all loved up we bloody deserve it. Strangely fec 2 has been ok just terrible fatigue but that may have sumat to do with lo keeping me up. Bone ache had eased over weekend too.
Julianna loving your pic with your gorgeous shaped head and crown! And i say good for you and get to the gig.
Sue Thanks for that i no it’s been a horrid few days but things can only get better! Looking forward to my day of peace tomorrow! It’s easy to keep visitors away if they aren’t well but when it’s your own you don’t have a choice. Mine are 4 and 1 so can’t even banish them to their rooms! I’m really scared this week of catching any bugs after last time so being ever so cautious fingers crossed. Hope you and Samy become good friends. I need to wear mine but head is so itchy i thought I’d wait till i go out. Not really in mood to be out looking like i do!
Tankgirl hope you’re not in too much discomfort i Also felt anaemic round same time. Do you take a multi vitamin? This has helped me immensely i do recommend. Also are you taking manuka honey? I try to have it everyday before eating.
Julie wat Pamper session did you choose? Hope it went well?
WOC and Lynzi big hugs to you both to be honest i think if i hadn’t been so focused on the LO i too would have been just like you. But totally agree self confidence is 0 feel ugly and sick of wtg for good weeks and dreading bad weeks but it’s not forever. X
summer 20 and Maggie best of luck for tomorrow hope juicing goes ok and se’s are small. Nyt all x x x