Oh runner29, that’s rotten. Hope you’re ok and you can manage to get through to the weekend so you can deal with it when you’re ready. I had thought of getting mine cut short so it was less ‘painful’ when it happens - but haven’t even managed to do that. Sending you big hugs. X
Had my 1st chemo 12th June FEC 75. Used Paxman Cool Cap.
Really impressed with how everyone else is coping. I didn’t fair so well and ended up as an emergency admission in hospital with uncontrollable vomiting. I think I was very unlucky.
Didn’t find Cool cap too bad. Felt very sick throughout whole process though. It may have been the steriods they gave me at the beginning. Will get meds changed for next time. Emend has been mentioned.
Much improved now though and should be back to normal in a couple of days.
Keep you posted on Paxman cool cap results.
Sorry to hear you were so ill swm, glad you are feeling better today and hope you now have good second and third weeks. I did cold cap and have not lost any hair yet but have not lost hair from anywhere else on my body either. Scalp feels very sensitive, using a chemical free shampoo but maybe even that’s too strong. Second chemo is on Friday this week, bit nervous again and hoping it goes better this time…
Thanks Julie, yes I thought of getting mine cut shorter too but I’ve never had short hair and didn’t want to be forced into it now so never did cut it!
Ria, hope you got on ok today.
Swm glad you are starting to feel better and hope you can get meds sorted out so you don’t have to go through that again. I had intense bone pain so was speaking to my doctor today to get strong painkillers that will hopefully help on chemo 2. Xxx
Hi everyone :smileyhappy:
I’m currently on day 14 of my 1st cycle. I also had waist length hair which I had cut into a bob about 4 weeks ago. Last week I shaved it all off on a number 2 but when I got home from work tonight and took my wig off, I’ve got loads of bald patches! I’ve been dreading this since I found out I’d be having chemo, but to be honest, I’m quite relieved that this is now another big hurdle out of the way. My scalp feels really tingly, except where the bald patches are so I’ll be glad when it’s gone now. My 9 year old son keeps rubbing the bald spots as he says they feel so soft!
I hope that everyone is recovering from any side effects and good luck to those of you starting this week.
Big hugs to everyone.
xxxx
I’m all set for round 2 tomorrow. Dreading it now I know what to expect!! After getting my no 2 all over on Sat I am prob about 50% bald… I haven’t bothered with a wig, it’s too hot here and headscarves are the norm so I don’t look out of place…
Hi - I am new…just had my first chemo treatment today - TC - Taxotere and Cytoxan. I am scheduled to have 4 treatments, each 21 days apart. So, one down - three more to go. I feel fine so far, but they warned me that it will take a couple of days to start feeling worse. I dread losing my hair and tried on a few wigs while I was at the clinic. They were so awful - the one with my color hair looked like I was wearing a small, curly animal on my head. I will keep looking.
Morning all
I had my first FEC chemo Monday and have been suffering with heartburn since Tuesday, it got worse yesterday, I am reading through all my leaflets and cannot find it on a side effect list, anybody else had it after their chemo
Well had my first chemo 11 june after been totally petrified then by friday ended up rushed hospital with bad infection pain was unreal had blood in urine was sick and bad the other end aswell. Ive just been disshcarged but this has made my fear even worse im so scared even more for next lot i really dont know how im going to do it feeling bit better just very panicky temp bit low so i panic even more everyone else seems so much stronger and coping far better than i am i hate this disease !
(((((Jinny))))), how many cycles are you due to have?
Hi Jinny just popped over from May forum. Like you I ended up in hospital on my first cycle having IV antibiotics and blood transfusion thinking how am I going to get through 8 cycles of this. I am now day 14 of cycle 2 and have had a completely different experience this time, I have sailed through this cycle with minor side effects and have been able to lead a completely normal life getting out of the house every single day. Hoping this will bring some hope to you that just because the first cycle was bad the second might not be. X
Hi, just popped over from the May 2014 thread and noticed you all mentioning about hairloss, wigs scarves etc and wondered if you had heard of Heathers Hair? (sorry don’t seem to be able to attach link) I have a fringe on a headband and wear a bandana or scarf with it. I have a wig which looks good but is too hot! Anyway I hope this may be of some use to you and all the best for journeys.
Good luck today Flutte and glad they managed to fit a Picc line for you. I am going in for round 2 today. Will give cold cap another go although yesterday at work little hairs were raining down on my desk all day. I had very long hair before I started but had it all cut off into a short crop and glad I did now I’m starting to lose it.
Jinny, so sorry to hear you had such a tough time. Are there any support groups at your hospital? Your chemo nurse should know or may know of other local support that is available in your area.
Hi Athens
I have found wearing the wigs okay up to now but when I noticed the bald patches I shaved all my hair completely off. This has meant that my scalp has stayed pretty cool underneath and when I get home from work, I just wip it off and leave my head uncovered. My children haven’t really batted an eyelid and I like feeling the fresh air on my head. Also, when I’ve been feeling a bit rough, standing in the shower and letting the water run over my scalp feels really refreshing.
I had my portacath fitted yesterday under general anaesthetic ready for my next FEC chemo on Wednesday. All went well (touch wood) and apart from a little discomfort and a strange pulling sensation in my neck, all is fine today (touch wood again) My veins are so bad, they had to use a cannular that they use on babies to put me to sleep!
I hope that everyone who had their treatment this week is doing okay and that everyone who is due to have round 2 is ready and feeling okay.
Sorry for not replying to ladies individually, I really must start remembering names, think chemo brain may have struck already!
Big hugs to everyone 
Rach xxx
Hi everyone thought I would join the June thread as had my first chemo on 4th June this year following a mascetomy then lymph clearance. Side effects fortunately so far have been minimal, a little sickness on the afternoon after chemo and lethargy. I have my second chemo next Wednesday. I thought I might be lucky and not lose any hair as thought it would start to go within the first 2 weeks, then it starts coming out yesterday. I have my 2nd wig fitting the morning of my second chemo but was so hoping I had escaped that effect, have tried to be strong and make a joke out of it with the family but to be honest - not to happy, I am happy to explain to strangers about my pic line when asked - but the hair loss! Im just wondering if more will come out after the 2nd chemo to a point where I will need to shave and does anyone know when it starts to grow back - ive booked to have 6 x FEC, followed by radiotherapy and hormone treatment.
Hi all.i am.having my 2nd dose.of chemo TC-H on 2nd july but since ny first dose i have had a cold has anyone had this ? Or maybe it isnt a.side affect but a proper cold. I hope they still.give me my 2nd dose x
Had my first chemo at Christies in Manchester yesterday. Not feeling too bad by now but been warned that weekend I might be feeling a big groggy!!typical!!
Hi Everyone,
I had my 1st chemo - TC - last Wednesday and I didn’t crash until Friday - then I could hardly get out of bed - I ached all over, even my ears. I didn’t vomit, just felt like I had the flu. I feel slowly better - this is day 5 of feeling bad and while I am certainly a lot better than day 1, I don’t feel really good yet. I am so tired and I have a low grade headache that will not go away and the body aches are still with me. Does anyone have a good drug for the pain and headaches? The problem is that I am allergic to codine. I still have my hair, but I know it won’t be with me much longer - maybe another week and I just haven’t had the energy to go look for a wig. I have 3 more chemo treatments to go…I do not know how any of you could do this and manage a regular job or small children - you have my sympathy.
Hi all, hope everyone is doing ok. I’m sat in hospital today with a low temperature, was in hospital this time last week with the same thing, getting pretty fed up of it!
Last tues when I was in hospital my hair was really starting to speed up on the loss so when I got out on Wednesday I had my head shaved. I’ve gone between wearing wigs to going out bareheaded when the weather has been too hot. And it’s ok so far.
So tired but can’t sleep more than 4 hours a night, currently my OH is asleep in the hospital chair next to me, wish I could do that! Anyone else got any sleep recommendations?
Xxx
Hope you managed to get back to sleep Runner29. I woke last night at 02.30 and dozed off again at 05.30… The alarm foes off at 06.00… What are they doing about your low temperature? Do you feel ill with it?