Starting chemo in March 2014

Day 6 Fec2 and Weekend in bed for me :frowning:
Not so much sick, just shattered and feeling weak and rubbish.

Donnaandfamily - I agree that the flushes and spots are a real pain and something I didnā€™t think about beforehand! My hair is coming out in handfuls now and Iā€™m in a bit of a dither as to what to do. Think Iā€™ll probably see how this next week goes and make a decision. Itā€™s just not clear cut as to if itā€™ll ease off or keep going and I donā€™t want to jump in too soon. Itā€™s still looking like I have hair, but every time I move or comb (combing is only once a day) lots drops out. Itā€™s the dread and fear of when I shower and wash my hair the amount that drops out. Itā€™s the physical appearance of the handfuls in your hands which hits the hardest and is the only reason I might go and get it chopped.

Ah well, sorry for the droning on - Iā€™m sure the decision will hit me soon!

Missy12 - have you got a PICC line in, or are you having FEC into the vein? My chemo nurses are insisting on me having a PICC when I start FEC because of potential problems with cording, wonā€™t do it into the vein. My scalp also has almost eczema-like red patches at the back and nape of my neck. Nurse has suggested E45 cream, not doing much so far. Face also really red and spotty around my nose, not looking my best!

Donnaandfamily - your yeti legs comment made me laugh! Mine are slowly getting smoother (every cloudā€¦), armpit hair all gone :slight_smile: Alas nose hair seems to have gone too, so nose constantly running :frowning:

Hi ladies, have any of you noticed if your tongue has changed colour. my children said mine is purple and I checked in.the mirror and it was! It was sore but I.did.not bother looking this morning. I have no picc line, my.vein is corded after fec2 so dont know what will happen next.tues when.i go to give blood, can only.use right.arm for everything. I also got flushes on one side of my face.when.had both cycled but this tends to go after a week. Good night ladies xx

Hi ladies,
I also still have leg hair, but armpit hair has gone completely. Trying to only wash hair once this week and itā€™s a struggle already. Iā€™m having dry skin problems on my hands, feet and legs despite moisturising regularly - any ideas?
Having a few dark days at the minute and keep thinking that Iā€™m only 32, but have decided that I need to think of some positives every day. Going to visit some lovely friends this weekend which will be lovely and will lift the blues. I find the end of this first week post chemo the hardest, but remember that Iā€™ll be on the up after this (fingers crossed).
I have a PICC line fitted and it was so much easier on chemo day, but itā€™s a pain when showering, so tend to have a bath unless washing hair now which makes it easier. Only problem now is trying to get clothes over the top of it - does anyone else have this problem?
Hereā€™s hoping that we all have a good day today xxx

I am not friends with my wig either, thought Iā€™d make it bigger to sit better but is at itā€™s largest, I have a covering of hair although getting patchier by the hour perhaps when the hair has gone the wig will sit better. I have to wear for visit to Mum only as she is not aware of my treatment. I prefer bandana type headwear anyway, luckily. :slight_smile:

I donā€™t wear a wig cap at all, just put it straight onto my head. Have a teeny bit of hair left that I brush back to help stop it irritating my scalp. Doing day of wig, day of bandana at the mo.

Morning ladies. Having a bit of a tough time at the minute and guess what?, itā€™s about HAIR!! Iā€™m kind of stuck in limbo at the minute, not knowing what to do for the best. Iā€™ve used the cold cap for the first two sessions, but am losing my hair now. The crown and parting in particular. My hair is so fine that it just kind of sits there lifeless and I canā€™t stand the 40 minutes worth of tidying up after I do wash it. I hate the soreness of the scalp and the fact that I feel I need to constantly tidy up after myself. I went out yesterday and left hair everywhere. My ā€œfringeā€ wafted around in the wind (which nobody tells you is painful!) to only be left with a handful of hairs tickling at my neck which had fallen out. The problem I have is that if I put a hat on and go out it looks like Iā€™ve got hair. All of my friends and family tell me not to shave it yet as itā€™s not noticeable yet and people in the hospital keep telling me that if I stick with the Paxman Iā€™ll see results quicker at the other end. Iā€™m so confused. Move also picked out a wig which is very similar to my original hair, but the hospital wonā€™t give me my prescription for it as Iā€™m trying the CC!! I know this isnā€™t shalt you all need today and youā€™re all going through your own struggles, but Iā€™m fed up of now knowing what to do and people telling me ā€œI donā€™t care about your hair. Itā€™ll grow backā€ or giving me advice without fully understanding what it feels like to unblock your plug hole four times during a shower!!

Sorry ladies - bad day at the office. Rant over.

Oh my goodness, I feel for you all with your hair issues. I was the same, it was everywhere, my daughter was picking it out of her food, it was in my babies nappy, just everywhere. I used cold cap once and I think all it did was delay the process a bit so didnā€™t bother on my second fec and it was great getting out of the hospital 2 hours quicker.
I had super thick hair but it was coming out in handfuls, I kept putting off shaving it while I still had quite a bit left but it looked awful and there was nothing you could do with it.
2 days ago my husband gave me a grade 1 and I feel so much better about myself :slight_smile:
I donā€™t look as odd as I thought I would, my wig fits/feels better and I can cuddle my babies without covering them in hair. I did sob at the time but now I wish Iā€™d done it sooner xxx

Thanks ladies,

I had a it of a cry yesterday and felt better. Reading your posts helps as you all understand what itā€™s like.

Golly - Iā€™m on FEC at the minute and this may change to T as theyā€™re not seeing much change in my tumour. Iā€™m going to stick with it for a little while longer and make sure Iā€™m 100% before I take the plunge!! Iā€™ll see how the Easter goes and then decide I think.
Iā€™ve just had to face a few self-esteem things this week and have a glam party on Saturday to go to and donā€™t feel like I can face it. I have no issues with going out but when youā€™re all dressed up and nobody knows, itā€™s tricky to feel comfy. I just donā€™t feel like me without product and styling and a bit of body to it! Ridiculous, I know!!
The good thing is that I am not stressing as much today and feel more accepting of it ( if thatā€™s the right word).
Letā€™s hope we all have a good weekend and thanks for your comments.xx

Dear all havenā€™t been on the site for a while signs of getting better. I started chemo last March after a total mastectomy and recon plus node clearance at the end of January 2013, see spring into chemo in March thread, and just wanted to give all those who started this March some encouragement. It can be done, you will win through keep supporting each other. This site is such a support. Some of us from the march 2013 thread met up for lunch recently. Try to hold on through the dark moments, let those who want to help do so it will help them to feel better. There will be light at the end of that very long tunnel. Donā€™t give up good luck on your journeyā€¦

Thanks, Woolfie. Itā€™s very much appreciated. Itā€™s nice to hear from someone who is a year on from us and give us some perspective as sometimes I think we feel that this is going to go on forever!!

Hi ladies. How are you getting on this week? Saw my doc today, and confirmed Iā€™m having 8 rounds of chemo - had been booked in for 6, but 8 it is. Boooo but if thatā€™s what it takes, then there you go. Going to put off having my PICC line now until just before round 5 when I switch to FEC.

Hi all,

Been a bit quiet on here for the past week as I went away to visit some friends for a few days which is exactly what I needed and am back to feeling positive again. Does anyone turn into a loon about 6/7 days post-chemo?? Both times I start crying whenever my OH walks in from work!! I suppose itā€™s the drugs they pour into our systems - itā€™s bound to impact on our moods.
On a Different note- my underarm hair seems to be growing back!?! Also hair ā€˜elsewhereā€™ is growing back - anyone else had this? This was actually one of the ā€˜perksā€™ of chemo!!
Off to see onc on Tuesday and will see if need to change to Taxotere as tumour not changed in size.
Until then, I hope all of you have a peaceful and restful Easter and eat as many eggs as you possibly can?

Hi Mel51, Iā€™ve been a loon too but days 1-5. I spoke to onc yesterday the dexamethasone was blamed for the anxiety, tearfulness, insomnia, paranoia and restlessness. I took 8mg days 1,2&3 for FEC100 1&2 but will reduce for FEC3. I asked if FEC doses were incresed for no 2 and they were. She admitted that if she started high patients may not return. I doubt that as we all know how vital treatment is. Onc also said dexamethasone is used prior to and during Taxotere, great, there was mention of a plan B.
Appetite - I have eaten for fibre than usual but otherwise still 4+ stone overweight me, I hoped to lose if only for being booze free. Pete (hubster) has been a chef in the past but ovoids the kitchen now so I eat whateverā€™s offered when not cooking myself. Typical me not gone off anything foodie.

Hair - I have a bald left side strangely and a hairdresser coming tommorow, will buzz then probably. How is your scalp ? Eyes and nose stream now and lip balm is a must.

Dreading FEC3 but focusing on changing the dread to ā€œBring it onā€.

Best wishes and happy Easter all. Lisa x

( Facebook group up and running private message me for details how to join )

Hi All. Well itā€™s FEC3 today ? letā€™s get it done and then Iā€™m half way there!
My eyes & nose have been streaming also, I thought it was hayfever? Itā€™s the chemo is it??
I get emotional from day 3 through to 6, Iā€™ve accepted that now and if I want to cry I just do it! My boyfriend thinks Iā€™m a loon and doesnā€™t know what to do with me on times but I do feel better after a cry!
Best wishes all and happy Easter xxx ?

FEC3 completed yesterday, not too bad today but I know itā€™s gonna hit tomoz and last for 5 days ? my mouth is becoming drier by the min and I was having weird frantic dreams last night (prob the steroids).
I was also given the steroids to take before the T and was told I have to take them to prevent an allergic reaction, if I donā€™t take the steroids then they wonā€™t do the T, it sounds a nasty reaction!

Oh dear thatā€™s bad! Do u know what caused it? Did u have a temp etc? xx

Oh poor u! R u home now? I canā€™t see that theyā€™ll give u FEC3 on tues, surely youā€™ll need your levels back up!