Congratulations ladies for crossing the chemo line, if bloods ok mine is next Wednesday, and I can’t wait though I will be sad to leave my unit, as I have to go to another hospital for rads.
Good luck to all being poisoned this week x x x
Elttiks, thank you so much for the advice, much appreciated.
Madmax, sorry to hear you have to go under the knife for a second time … how did you find the first time?
Blue dragonfly, wow you’ve nearly finished, what a milestone
Morning ladies, hope everyone is feels better this morning.Barb hope your mouth is no the mend, I havent suffered with that se, just a horrid taste which is bad enough.My temp is finally under control, feel better this morning, still full of cold & cough, but the chemo se seems better. It seems that everyone has taken longer to come out of the fog this time, I suppose this stuff builds up in our system & knocks us for 6.To anyone having treatment this week lots of hugs Lesley x
Hi Barbwill
my 1st was fine i think the worst for me was waiting to go down i got to ward about 11am my hubby waited with me until 2pm which he then had to go cus of the kids so then i just sat and cryed until about 3.30pm the op itself was wle which i had my nipple off then sewn back on which i have a pale pink line around it then a scar under my armpit from where they took my nodes 23 in total 19 was ok but i healed well i was out within 24hrs and back home with drain pipe which i think is the worst
take take everyone with se and poison
maxine xxx
ps iam ok at the mo with se my pain in the joints will come over the weekend at the mo just the horid taste in my mouth which no matter what i eat all tastes the same
Oh madmax, how awful to have to be on your own for the op … I’ve just discovered that our childminder is on holiday from the day of my op for 10 days but hopefully family will be able to help us because I do want my husband by my side the day of the op.
I am trying to come to terms with the surgery and the 5-year-long hormonal therapy but struggling tonight. I wish someone was responsible for this cancer tonight so that I could punch them in the face. It’s the first time I feel really angry about it all.
Hi Madmax Etliks, hi to everyone, had last tax oh yes!!! rads to go, but Madmax I get the white tongue thing too - use Difflam plus they give me Gelclair aswell, i know is awful mouth feels yuk and thats being politem they also gave me oral antibioctics for this little white and blue tabs, had ulcers on side of tongue and all uneven, it does go between cycles thank god and mine after 24 hrs is starting to come back so by this time tomorrow be "%^^!!!
Hope u get sorted re childcare Madmax re op, my love and hugs to u and everyone on this bloody journey xxxxxxxxxxxxxxShar xxxxxxxx
Silvershar, great news re the last chemo, hope your ses are kind to you, its great that more of us are coming to the end of chemo.Barb, it must to hard to face surgery after going through chemo, I know what you mean about wonting to punch someone, Ive felt like that lots over the last few months. When I have felt like saying enough coming on here has helped me keep going.Sending everyone lots og hugs Lesley xx
My last one is next month, the 11th. I’m getting a bit nervous now. Part of me knows the se’s that i’m struggling with are going to have another tax dumping on me, and part of me feels a bit naked about it. This is my first step, and have the other lovelies to go.
Had my last FEC last week, and the burnt mouth and stinky bum have returned with a vengeance. I had a lovely lunch yesterday but there was loads and loads of garlic in it (it’s got antibiotic properties I reassured myself as I shoved another load in my gob!) so I really smell bad this morning!
Cat’s at the vet, OH’s dog is on her way there with a sore eye, but I’m not back at the hospital (for myself at any rate) until next Friday, for my pre-herceptin post-MUGA-scan onc appointment. Wonder which of the several million oncs I’ll get to see this time? Haven’t seen the same onc twice!
Bit down this morning, just tired I think and realising I am not superwoman!Had good news this week in that I am only having 8 weekly Taxols not 12, so just 7 more to go (first was on Wednesday). Really hoping the SE’s will not be too bad with this as trying to work as close to full-time as possible again at the moment.
Projectwoman, wow, good news on the much shorter taxol journey!!! Also, I am in owe of anyone who works through chemo, you are superwoman to me!
Warning, milestone news! I have just done my last filgrastim injection ! 42 injections of that stuff over the 6 cycles ! I know it’s nothing but I didn’t love stabbing myself. and there will be more space in my fridge for strawberry trifle now.
Hmmm I’ve been told I’ve got to have 5 days worth of injections as my neutrowotsit count is so
low I need some help! Not good 5 days crippled me last time and I ended up on morphine and tramadol. Yep really looking forward to that one. Still as everyone else keeps telling me I “only” have 3 more to go!
Jo C sending you a hug you sound like you need one,
((((HUGS))))
Jean.xx
Thank you Jean, hugs are really appreciated at the moment.
Jo C, hugs from me too. I hope that the injections will not give you the same side effects this time. I have to say I always start to feel better the day after finishing the injections, not sure if it’s a coincidence. I’ve had them at every cycle so I can’t tell which nasty pains are due to the injections and which ones are due to the chemo.
silvershar, I am so glad that you’ve finished and that the TAX is not being bad for you. Do you have rads to come and have you finished?
Hi all, I’ve been away and off the computer for the last week as i found myself in the long stay ward at the churchill for the last five days…not fun!
I was admitted with temp at 38.5 which rose to 39.8, white cells were 0.5 and platelets down to 60 :o( I had constant fever till last night but lucky for me it broke, so now at home, weak as a kitten completely washed out and thats on 75% FEC number 4
They also found a broken rib, of which i was unaware and a young doctor said it could always be a new met in a throw away comment but my oncologist said she would get the radiologist to check it out as it worried me a bit.
So very down but not out completely but they are reviewing what to do on my next chemo which was supposed to be on wednesday but they doubt all my bloods would have recovered, so another delay, not a happy bunny as i was hoping to be well enough to go away in august with my kids.
sorry for the moan but you are the only ones who understand
Good luck to you all
Clare x
Thanks Barbwill, any hugs are much appreciated.
Pot maid you poor thing, I hope you are feeling better, now put your feet up and rest, and I will go and slap the young doctor for you.
Oh Potmaid what an awful thing for that dr to say without even ordering a scan, I wonder why some dr and nurses go into the profession when they have no idea how to deal with people , I’m sure they should be pathologist or something. My dil is 33 weeks pregnant and is having no end of problems ended up on hospital last week midwife told her if she has babe now it will die. Total c**p, and frightened her to pieces, now the consultant has agreed to see her every week with a different midwife just to keep her calm. I think we should give all the insensitive people a shot of poisonous chemo or a ray of rads on their bits and bobs every time they forget that we are human and scared .
Oh Clare what a horrid time you’ve had … so glad the fever eventually left your body … did they discover what caused it ? And is the broken rib painful ? Are they going to help your blood to recover, perhaps with another transfusion ? Just want to say that platelets at 60 is low but mine were 70 on the day of my C-section and the consultant at the time said that it becomes a problem for major surgery only when they reach 30. So they are low but hopefully they won’t give you a problem.
Also I want to add I live about 30 min by car from the Churchill and would be happy to come and see you and help in any way I can.
I really hope you can still go to the seaside with your family in august, all this treatment takes away so much precious time from us as it is without additional delays. Fingers crossed for you and keep us posted on your recovery at home. I wish I could send you some physical strength.
Clare, that sounds horrible, but glad you’re finally back home. I prescribe at least three sofa days, accompanied by back of hand on forehead, a la silent film heroine, at every opportunity. Demand frequent cups of tea in a trembling voice and issue instructions on use of vaccuum cleaner, washing machine and bottle of Fairy liquid (not all in a single action, that could get messy). Insist on frequent hugs and kisses from small people, and big people too if they are around. The order of the day is for you to do NOTHING other than rest, adequate food and fluids, sleep, telly, DVDs, more rest, and doing more nothing. For several days.
There, you’ve been told!