Hi I’m a newbie. Started chemo 5th Sept. Having TCH. Tried the cold cap, the pain was so intense I cried, what a wuss! I persevered with the cap but still not sure if I will use again as I shook the whole two hours wearing it. Felt okay couple of days after but then had upset stomach, few days later a fever developed and had to go into hospital for 3 days for antibiotics. Still got sore throat and feeling frustrated with all this after one lot of treatment.
Start date 25th. Pre appointment day before…what will they do to me then? Still got CT to get thru tomorrow and then mri and ecg thursday.
YAY more needles xx
Hi Stars
I see we have some new members, welcome aboard ladies. You’ll get loads of support here, and on the Facebook site. The other girls are so funny and witty.
I’m still sapped out, just tired all the time, but white blood cell getting low now. Went to hairdressers to get hair cut bit shorter. No hair loss yet, but ready as I’ll ever be i suppose. Got wig, hats and scarves, will do some modeling for the Facebook page later. Let you meet Mia lol x Doesn’t seem bad trying them on in the house, it the going out in them i’m getting bothered about . X
My pre appointment was to go over what would happen on dunking day. Went over treatment and side effects. Also had blood test and given wig voucher and free parking permit. Got shown the unit, and they also booked me in for Reika session. Got that this Fri, looking forward to it, although i don’t need any help going to sleep, this chemo doing it for me at the mo 
xx
Hello to kraftireader x
Glad Im not alone although the fact any of us are here is pretty crap.
I was told Ill be getting the Docetaxal one day this time round followed by the herceptin and perjeta a couple of days later incase of allergic reactions but #2 onwards will be altogether if Im OK. The BCN mentioned comlimentary therapies, Im not into stuff like that normally but may see what they offer. I clench my teeth when Im stressed and my whole neck and head hurt with that at the minute so maybe its what I need! Ive only had 1 day sick in 5 years so to be told Im off for the next 6 months plus is rather sureal, work in a school with reception kids mainly so little germ machines, going to be rather bored!! I have two boys aged 9 and 11 and work full time so my time is never my own so having a bit of “me” time is also rather odd, not quite sure what to do with myself!! General moping around whilst my stomach does sommersaults with the CT scan hanging over my head seems to be the main thing at the minute!
Need to make a shopping list for things Ill be needing, someone posted a huge long list possibly on another forum. Dreading the sickness part, didnt flinch during 4 biopsies last week but Im truly rubbish with vomit, Ive been known to leave a small child standing in a pool of vomit at work whilst I ran to get someone to deal with it and I cant even cope with my own boys vomit so Ill be taking as many anti sickness tablets as I can!
This forum has been great though, Im sure it will be a lifesaver when it comes to keeping sane 
Also meant to say the team at North Tyneside Hospital in Newcastle (and the staff at the Bobby Robson Cancer Care Centre - how odd is it to walk into a nuclear medicine department eh) have been amazing, cant fault how they have been with us so far. Even though its felt like an eternity its not yet been 2 weeks since diagnosis so I take my hat off to them, they do a fab job!!
FEC1day 14
Hi Superstars
Great big welcome to Kraftireader. Hope the Stars can help you through this the way they help me, with sound advice and brilliant humour, something you will definitely need. x
Hawkie, I am up for my second session on the 25th so you definitely won’t be alone. There will be a lot of virtual hand holding going on I assure you.
Hope everyone is ok today and that you haven’t got the foul weather that has been lurking over north Wales all day.
Love and hugs to all xxx
Oh dear what a trauma. I was supposed to have surgery first but the perjeta is only available prior to surgery and not after…its supposed to work well with herceptin so chemo first. Age (39) and size/grade have pushed me thru I think. Ill do whatever they tell me though as they know best. Surgery hopefully soon after chemo. Thanks for the tips re chemo…I have quite a shopping list dont I. Emailed BCN re wig as want to get that sorted. My boys want me to get a “Hit Girl” wig from the film Kick Ass…I googled it and am really not sure lol.
Pots14 how you doing girl???
Hi all
FEC1, day13
Went to Headstrong which was good and sound advise given. I came away with a free very large and a smaller scarf which I did not expect. Also purchased a hat - although I’ve plenty of hats not sure they will be ideal for this winter given what may lie ahead. Well worth the visit and volunteers time.
Elma 55 - good luck for 24th. My 2nd cycle is on 25th with blood tests, etc previous day.
Naturalgirl - welcome. sorry to read of your sickness and hope you are feeling a little better with the tablets.
Barbarella63 - hair okay. I’m trying the cold cap. Despite being -5 it was not at all bad for the three hours once I’d got used to the cold and my cancer hospital provided towels for my neck, heat blanket and blankets so I was snug. Hating recommendation of only washing hair once a week using Simple shampoo - managed 5 days so far - and only combing once per day with a wide tooth comb. I’ve hidden my brushes as it was a natural re-action to grab one. Ordered silk pillowcases, as recommended, which arrived today. Looking to trying them. Just hoping it is worth it.
Kraftireader - re cold cap read what I’ve written above.
Thankfully I’ve had another reasonable day so hoping the next 7 days prior to cycle 2 will remain good and I can put behind me the very bad first days. Good luck to all starting tomorrow - hope you do not suffer too many side effects. Stay positive. Hugs to all. xx
FEC1day14
Good evening Stars
Hope you have all had the best day possible.
Just like to say welcome to Lisabeth. Good to hear you have your date to start. We are all here to help you through this. The Stars are fantastic and the support they will give will be brilliant. Unfortunately it is difficult for just one of us to give advice on chemo because it affects us all in different ways but if you read back through the postings you will get some idea of what to expect and how it might affect you. There is lots more on Facebook if you decide to join us over there. Love and hugs for your onward journey. Keep strong and shine bright. You’re a Star now. x
Welcome back Pots. God to hear you are feeling ok so far. Hope the SE’s stay away. Rest up and drink plenty of water. x
Good luck to Avonlady and Seaview for tomorrow. Let us know how you get on. We will only worry if we don’t hear from you.
Love and hugs to all the beautiful shining stars. xxxxx
Good luck for tomorrow Seaview and Avonlady , keep us posted, your both going to be fine. You will know doubt have lots of questions to ask afterward, one of our stars will know the answers xx
Glad evething went ok Pots, hopefully side effects are minimal. Help is at hand if you need it xx
Glad yourself it first one is under you belt pots… I hope SEs stay minimal. welcome Lisa . X
FEC1day15
Goodmorning Stars,
Great to hear you are doing ok Pots, hope it continues. I swear by the water too. I drank loads in the first couple of days eventhough on the first day it tasted foul because of metallic mouth! x
Love and best wishes to everyone doing something today that they’d rather not be doing. Just remember its one step closer to the finish line. xxx
Good for you Pots and as the others have said, drink loads of water…you will be peeing all the time but its worth it as it flushes the drugs through your system. Take the anti-sickness as prescribed even if you don’t feel sick as prevention is better than cure. Not a lot to take away the metallic taste but it does disappear after a couple of days.
Onwards & upwards Hun xxx
Hope everyone is well. CTscan done…bit disconcerting when you get the “I’ve wet myself” feeling thou! ECG and MRI tomorrow. Chemo now taking 3 full days next week so they can give each drug separately to check for allergic reactions 
Hi Stars,
Blimey Hakie that isn’t great. On the plus side if there are no SEs you could have it all in one next time.
Look at you Pots with just a little nausea- long may it continue only being that.
Been to the cinema today to see About Time- good film. xx