Hi all
Just been looking at suburban turban on line. Their stuff looks really nice. I may just have to place an order. Hope everyone is ok.Debx
Hi all
Just been looking at suburban turban on line. Their stuff looks really nice. I may just have to place an order. Hope everyone is ok.Debx
So sorry you’ve been sick so long, Julie. Its great you’re feeling a bit better. From looking on here it does sound like they will tweak the meds to get something that suits you - so complain loudly!
I’m sure they wont be to everyones taste but I love the suburban turban hats and they are just as good in real life. I’ve bought 4 already and I havent even started chemo yet! I just dont fancy wearing a wig.
Gearing up for a big dose of steroids tomorrow - my mum says they make you feel great. Is this true?
Hello,
Well I’m moving into this thread as I’ve got my chemo date to start next Friday (18th June), going in the afternoon before for blood tests and “clerking”, then it will start 8am next morning. I’ll be having 3xFEC and then 3xTax.
Nem, I totally understand your point about giving up responsibility for a while, we don’t have kids but I’ve just backed away from stuff (amateur dramatics, work) and they’re letting me do that until it’s all over and I’m back to myself (well, as much of myself that is left!).
I’m not planning on having the cold cap treatment as I already have some nifty headscarfs and a work colleague was telling me about Trevor Sorbie’s MyNewHair charity (errrm, or something like that, brain not entirely back after general anaesthetic from the surgery two months ago!)so I’m thinking of going blonde with a wig!
Big hugs out to everyone else on here.
Evelyn x
Hello, NEM-welcome aboard!
I also had full left mastecomy back in April, ha dfirst session of Chemo 27th May. ha the constipation but ate lots of fruit and I also have linseeds with my porridge every morning so they kicked in after 5 days. I felt fine after day 4. I, too am totally confused about supplements. when I gave my Onc. a list of what I take he he just waived it away-I suppose he only deals with chemicals! All I take at the moment is Aloe Vera juice which I have used for years.
I only felt nauseus for the first couple of days so the anti-sickness tabs worked.
Take care
Carol
Great to hear the nausea finally went Juile! Had had the opposite to constipation! Guess there had to be one! Bought hats&bits from hats4heads. Bought my wig from hairware, they are online or you can book an appointment, they have a big choice. Good luck to all starting chemo and hope everyone else is recovering! X Tina
There’s so many of us…! Good to see a crowd, somehow makes all of this more normal.
just thought I’d post on supplements. My Onc said she actively advises against adding anything new to your diet before/ for chemo, as anything new can irritate and make SE worse. Kind of makes sense to me. She advised just eating as well as you can and drinking lots of fluids to keep the body hydrated.
Tina really hope your body has calmed down by now. Bit grim to have to keep near a bathroom all the time. Thanks for hat tips, I will look at hat options tomorrow. Am quite looking forward to it.
hi mrs sloth
i got my nhs wig at the place where the nhs prescription was for, but then went to a trevor sorbie salon and a lovely lady cut it to totally suit my face shape and it made a huge difference to what i already thought was a good wig. They do it in a private room and it was a positive experience, so i would highly recommend it!
Good luck to all the ladies on this thread, i have my third fec tomorrow, yuk, its rubbish but doable.
Vickie
HI all,
Hope you’re 3rd FEC goes well Vicky and hello to many new recruits who i haven’t ‘met’ yet. Was feeling a bit gloomy yesterday eve as I wasn’t bouncing back as quickly as I did after 1st chemo (had second last Weds) and I seem to be having more indigestion/horrid mouth issues this time. Was really hungry yesterday lunch so I think I ate too much and then couldn’t eat at all last night. But after much better night sleep am back to feeling more positive. Am going to go into school today and help one of my poor abandonned Upper 6 pupils with some revision, so will feel more like a normal person.
The actual chemo and SEs aren’t really that bad, it’s just the thought that the whole thing’s going to stetch out over SO MANY MONTHS (years with Tam + Herceptin) before we actually feel as good as we did when we had dx.BORING!!! Must get brain better trained to think only of the immediate stage, not the big picture!
Sue
Hi Vickie (and everyone else), thanks for the NHS wig tip! I was just overawed by how good the wig I saw yesterday was, so I want one! I haven’t even had first chemo yet and I’m already deciding between going flame red, staying brunette or becoming a fabulous blonde!
Also got a call from the hospital yesterday afternoon - seems by starting chemo next Friday I will be breaching their targets so they wanted to bring it forward. I said no, it’s the ideal date to get the Race for Life done, stuff finished at work, etc. etc. so I want to keep it as the 18th. Seemed OK with that. Guess I’ll be the trouble maker…
Tee hee…!
Hi Mrs Sloth
Good for you standing your ground. It is realy useful to know that they have targets. I have been hanging around for ever waiting for my chemo to start. Wish I could steal your app on the 18th lol. Good luck with the race for life. debx
I delayed my chemo for 2 weeks as it was going to be half term. I then had a huge panic thet I’d been reckless. I rang the breast nurse and she was great. She said “what do you thinks going to happen-will it move to your toes.” I said yes actually. So anyway it was fine with them.
My surgeon said the targets were destroying his private practice! as everyone was being seen more quickly now. (I didnt feel that sorry for him).
Good luck with the 3rd fec today Vickie! Had my wig cut yesterday at BCC open day, the hairdresser kept mentioning she was trained by Trevor Sorbet (I tried so hard not to giggle) instead of Trevor Sorbie!! It made my day really! I think the key points that struck me during the presentation were the surgeon saying that BC is now a common illness and survivorship starts at the point of diagnosis, as the outlook is so favourable with all the new treatments. There was a lady who had 4 recurrences and another who had three different cancers. Very eyeopening. Good talk on bone health, especially for all of us premenopausal women! Will be eating lots of calcium and vitamin D.
Vickie, hope the third one has gone okay. How are your veins? Still good I hope!
Sue, someone told me that lots of women have a downer on second chemo, as there still seems to be a way to go. Seems logical really. Hope going into work helped to keep you positive.
Evelyn, good on you for delaying. We have to have some control after all! You too Nem.
Tina, that talk sounds optimistic. My Onc said they’re rolling out new programmes on diet and fitness for women who are through treatment. She said it’s beginning to be seen as a key line in defence against recurrence. She told me they’ll expect 40 mins of exercise per day, which seems a bit intense. I forgot to ask if walking counts!
Interesting feedback from the BCC open day Tina. I’m in a dilemma about calcium, as I’ve pretty much given up dairy due to its possible link with hormone-related BC. My onc said there’s no clinical evidence that’s the case and clearly felt semi irritated by the non-scientific link between diet and BC. But I feel I should change my (already v healthy) diet or else what’s to stop me getting BC again. However, I am aware that we need to think about bone strength and therefore maybe I should be eating dairy. Dilemma! And I like cheese… I know Calcium’s in plenty of other stuff too, but harder to get enough I guess, unless they think supplements are the way to go?
What are you guys doing re diet? Can of worms I know…
Sue
You posted at the same time as me Julie. I think I’ll go for a brisk walk now to check the allotment and pick some spinach!
Sue
20 mins brisk walking apparently is the minimum to get benefit, the dairy question was asked but all experts agreed there was no evidence, however having a healthy weight, ie no obesity is seen as very important, calcium can be supplements but also bread, sardines etc or soya milk fortified. They also mentioned a bone scan before start of hormone therapy for a baseline measurement. I wonder if we are really aware of all the facts of treatment?
Isn’t the no dairy theory based on China where they have low BC rates? Am sure I read that somewhere and much has been made of it. I thought about cutting it out too Sue, but then I’m veggie, so to lose my dairy would have been a wrench and then my other half started listing all the other dietary reasons why the Chinese women don’t seem to suffer, for example they tend to eat lots more fish than us. I wish someone could tell us the truth of all of this. Spinach sounds non contentious though and great for iron levels, so go munch!
Tina, is the bone scan standard then or do we have to ask for it? Am on Tamoxifen after chemo and rads (am sure lots of us are!), but haven’t got my head that far yet in terms of questions to ask.
Hi ladies (and nice to 'meet the new crowd members)
Hope everyone is doing ok at whatever stage you are at.
Vickie hope all went well today…thought I was going to get to pop in and visit you as my bcnurse wanted to see me after a digy night with terrible burning heartburn/indigestion but ended up at the gp’s instead with a list of new meds that dr misra wants me to have :-(( shake rattle and roll!!
Sandra…good good luck for tomorrow and hope all goes well for you
Scoobs Sue hope you had a good day revising :-))
Tina hope you are well and thank you for your info on calcium, you are a mine of information girl…where would we be without your posts xx
Travelling to Southampton this weekend to visit my daughter and Grandson…not sure I feel up to it but am going anyway, despite the indigestion etc. I don’t have diar… or constipation but am pooping for England (sorry just had to add my info!))
Packing for southampton consists of half a table of drinks and snacks and half a table of medications !! won’t have room in my bag for clothes!!!
ok back to packing before i run out of energy
Hugs Suze xxx
good luck tomorrow, Sandra.