Thanks Yvonne… Just hit a real low which is not like me. I phoned my mum and she said all the right things. I will persevere … Was just shocked at how much is coming out. I have relatively thick hair in a bob which the hairdresser cut into layers so it shouldn’t be that noticeable. I will def ask them to make it tighter next week.
Xxx
Hi All,
Back from second chemo (been there all day). Feeling exhausted and quite strange. Have taken all the anti sickness tablets and they have given me something to make me sleep… I can hardly string a sentence together let alone write coherently.
Hannabanana - I had the cold cap but very nearly gave up half way through. I seem to be able to cope with it less, this time round. Hair is coming out in large tufts above just above the neck line but is hanging on in there at the top. Onc. was pleased and said that I might keep it and it would just thin. I persevered in the end so will see what happens. Hubbie has told me to ‘LEAVE IT ALONE’…which is true, but very difficult.
All - re: juices - ABC juice - Apple,beetroot and one carrot make one glass from the juicer. I have been doing this and felt pretty good. It fills you up and because its slightly sweet, I find I am not heading for the biscuit tin afterwards. It does taste a bit earthy…
take care everyone
Lx
My hair started shedding around day 14… It’s quite amazing the amount you can lose without being bald… It got to the point about week after 2nd chemo I got my friend to shave it. I had a bald patch at the back where head sits on the headboard. Now I am heading for 3rd session next week and I don’t think there is much difference to my head. I have a number 1 cut, but the hair is still there, except where it had already went bald. It’s lifted more around the front but that is definately the wig line. I’m not sure if I’ve let much this time… Or if it’s just because it’s short… I don’t think it’s grown, some people say it grows between therapies. I don’t use the cold cap. So altho I’ve shaved my head… I would say I’m thinned and patchy bad…not bald…
Bandanas… There are a lot of services to help you with tying bandanas etc… Ask your breast nurse. Also if you go on you tube you will get vides showing you. I’m a wig girl. I don’t suit the bandanas at all… I think my head is too small and egg shaped… I get chemo with a girl who wears beautiful bandanas, and looks stunning. I wish I suited them but I’ve given up that idea. You can get ones to tie and ones that you slip on… A recommended site is hannabanana…
I’ve been really tired this week, which should be my good week… I have no
Plans this weekend so intend to just relax and take it easy. My sleeping has went a bit off kilter but that could be the afternoon naps… I only get 3 days steroids and ave had no meds at all in over about 10 days. I think it must be to do with my bloods being low… I worry a bit they are not building back up. Not much you can do I suppose except eat as best you can and rest.
Just saw your post Elli… Think you meant Annabandana …oops! Well hair is still falling out but as you mentioned Lilly, it’s just at the top of the neck and you can’t see anything… Yet!
Hubby also telling me to leave it alone. It’s really hard not to just run your fingers through it and think if loads come out today less will come out tomorrow?!
Have a good day peeps xx
Hi
Hair is shedding badly again today. I am worried about washing it cos I know a whole load more will fall out! It seems to be everywhere round the house butI am not noticeably bald at all yet so I shall just wait and see how long it looks reasonable. I am worried about going out for the first time in my wig. I think I will feel really self conscious.
I think I should buy a bandana as I do wonder whether the wig will feel uncomfortable if I wear it all the time. Not sure what I will look like though.
Karenx
my hair started to shed on tuesday, day 15 after first chemo no big chunks yet but hair all over the house and my clothes, i get a panicky feeling everytime i run my hand through it, i think after my second chemo on Monday i am definately going to shave my head, every time i leave the house i cant stop touching it to check theres no bald patches! i have got a couple of headscarves etc and a wig for when i go out i just want it over with now
I think that after the first chemo when i felt ok after 5 days and i didnt have any terrible side effects just the tiredness and nausea that i felt really chuffed last week that i could get on with things i was buzzing all week and probablydid to much, this week feels like a bit of a come down feel really tired, no energy and cant stop eating junk, i suppose i will have to get used to this!
hello chicks. Hope you are all doing ok. Not felt well at all this time after 2nd chemo, the sick feeling is still there 6 days later, spent yesterday with my head over the sink! Don’t know quite why I feel worse this time but I suppose the poison just builds up in your system maybe. Feeling very down about having to go through this another six times, but just hope I will be better in a day or two. Must try and cheer up and not be such a wimp! Anyway, you all enjoy the rest of the weekend and sending you big hugs. XX
sending huggs kathbury .i thought they stay sameish .well i hoping they do im day 9 now after 1st fec and feel fine i so wish it was my last to hope the sun is shining were eva you are my spots (teenager spots ) are starting to calm down now .i felt horrible yesterday .i hope it dont happen every cycle but if thats more or less the se i get bring it on lol .well have good day chicks xx
Hi Kath you need to talk to your Breast Care Nurse or chemo nurse as you shouldn’t be suffering with sickness like that;they should adjust your anti sickness medication; there are lots of different drugs available so it’s about getting a selection that suits you better
Hugs
Yvonne x
Hi folks, can someone guide me as to where the Diamonds go. Do we stay on this forum or what? I have been in bed all weekend with a horrible cold. Have to go for breast MRI tomorrow. Are you allowed to wear your wig? Also,I am post menopausal for the last 3 years but have been getting period like cramp past week and feeling weepy. Any advise out there. Love Pauline. xxxxx
Hi Pauline, I’ve felt rubbish most of the week. Not sick or anything but so lethargic, I also had very occasional twinges in my tummy that may suggest period coming. I haven’t had one since before first chemo… Kinda thought that was it… But this morning it’s here… But not quite same. I feel better tho. Much more normal, if that’s the right description. I have been sleeping for Britain at night… Great deep sleep but waking likeca half shut knife. Hopefully that’s me over it now… Just in time for my 3rd on Wed.
I have heard everyone has a weepy one, maybe this is yours. I wasca little needy emotional after my first one, hence all the ex talk… I never experienced that this time.
Hannah… Laughing at my error… I did indeed mean Anabandanna hahaha.
Hi Kath, you should speak to someone at the hospital. My second one was different… Slightly. A lot of the side effects were less, but I was sicker on the night of the infusion… Like you I think it’s because there’s stuff already in there. 1st time I felt queezy for 10 days roughly and found it very hard to drink… This time I was better but I also bought an anti sickness band. It really helped… My daughter thinks it’s a placebo lol…
Morning lovelies,
I hope you all had a good if not wet weekend. I see some of you have been having some down time…hopefully that will change very soon.
Can’t believe your on your 3rd session already Elli, that’s gone really fast. We’ll be having our sessions at the same time!
Have shed enough hair to stuff a wee pillow and it’s driving me mad! My poor 19th month daughter dropped her toothbrush on the bathroom floor this morning and ended up with a mouthful of hair, poor thing.
Am wondering when it will stop…
Right off to buy some new shampoo, new school trousers, followed by tea and cake is afternoon!
Have a good one
Love Hannah x
morning folks. Thanks for all the advice, will def speak to BCC nurse about sickness. Feeling a lot better today though, so fingers crossed. Pauline, don’t see any reason why you shouldn’t wear your wig for MRI, good luck with it, I had one a few months ago and it was fine. Hope your cold gets better soon, I think we are all a bit vulnerable to infections now, but other than keeping away from people we know are sick there’s not much we can do about it. Going to make some nice healthy veg soup today, feel like eating today so might as well make it something good.
Donna, glad you are doing ok, hope the rest of your chemo goes as well. Eli - why won’t my keyboard put another L in your name? - m ight try the anti-sickness bands next time, can’t do any harm. Good luck to anyone having treatment this week, love Kath. XX
Hi Ladies,
I got my 3rd chemo last Thu. I got a syringe driver in start after the chemo to combat my sickness. Needless to say, it didnt work and I am still really ill. I can honstly say that this has been the worst so they may change my chemo next time to dex? Although I am able to type this today, i cant do much more than that as I am soo weak. I am also really emtional as I keep thinking that i need to get another 3 chemos and I dont know if I can take them anymore. On a positive note I do believe my tumor is getting smaller. Hope I feel well soon.x Monica
Hi Ladies, Thanks for advice. Elli ur prob. right, feeling a bit poorly so hence the tears. However, watched a wee man from my bedroom window, doubled up with arthritis he is, but there he was out weeding his garden. Made me shift my lazy bones out of bed to potter about. Hanna had a wee giggle at the toothbrush story . Kath, read somewhere product called ‘emend’ is really good for sickness. Ask ur bcn about it. Probably expensive, thats why they probably dont give it out as a matter of course. Take care. love, Pauline. xxx
Hi everyone
My hair is shedding everywhere and I hate looking in the mirror cos my hair is so thin and it makes me look so old! I think I will be glad when it has all gone but I am not brave enough to let anyone shave my head.
On a positive note I met some work friends for lunch today. I am on my third week (2nd chemo due on Friday) so was feeling well and it was great to seem them and we had a good laugh. One of my colleagues has also been diagnosed with bc and is having surgery later this week followed by radiotherapy and it was great catching up with her. I wore my wig and did feel a bit self conscious but it was fine and by the end of lunch I felt quite confident wearing it.
I am getting more and more worried about the 2nd chemo as I feel well now and the thought of going through it all again (and again and again…) is horrible. I am worried that the side effects will get worse too and I have only just started getting my energy back after last time.
take care all
Karenx
Hi ladies. Well bloods were ok on Friday so I was able to go ahead with my 3rd session today. Must say, feel much worse this time. Was sick when I got home. Not nice. Maybe cus I’ve not eaten much today. Or that I had different meds - they gave me domperidone to take and not convinced they’re working so have reverted back to my others. Hope this doesn’t carry on. Also, now have to have daily injections for 7 days starting on Friday because I was neutropenic and admitted to hospital with a temperature, indicating infection. The injections are to stimulate neutrophil production to prevent the reoccurrence. May get bone ache as a SE. So that looks like one of my two good weeks will be potentially affected… Pooey.
Cold cap seems to be doing its job - hair has thinned hugely but can hide it so you can’t tell. The thought of treatment and using the cold cap is making me feel sick right now so will keep this short.
Hope you’re all ok
Emma xx
Hello Diamond Chicks.
Emmsie - I hope you are feeling better. I am also on Domperidone and do seem to have bouts o nausea. I also had terrible back ache after taking injections but the Onc. said make sure you take paracetamol beforehand.
I had my second chemo last Thursday and still feel a bit rough, but mainly absolutely shattered. I still have hair but think it might be sticking to my head as I am trying not to wash it…You are right. Treatment and thinking of cold cap does make you feel sick.
Pauline - hope you are feeling better.
Hannabanana - so glad you have your hair still as well.
Elli - well done on third. Time is going so quickly. I cant wait til this is over.
Lx
Had my second session yesterday.
Had low neutrophils middle of last week so wasn’t sure how much they’d recovered. They did blood work again yesterday before the session and count had gotten up from 0.35 to 3.42!
Everything went smoothly and now it’s waiting and seeing how things go this time round.
Hair started thinning slightly around day 16, on Friday (day 18) I started shedding. Had is cut quite short. Discovered bald patches on Sunday morning and the itching was driving me crazy. In the shower handfuls started coming off and that was just enough! There was no way I’d walk around like that or leave the house so took matters into my own hands, cut off the tufts and shaved it all. What a relief!
All the best for you ladies out there! 
xx
Hi all
My last two posts didn’t appear so I may be talking to myself again but that is probably therapy in itself! I have emailed the moderators but no luck so far.
Emmsie – I have the injections and found with the first two I had achey legs and feet as if I was coming down with flu but after that I seemed ok. Presumably when I have them again next time it will start again.
My hair is shedding badly. I wasn’t brave enough to cut it short or shave it so I am finding hair everywhere and when I brush or wash it loads come out. It looks so thin and makes me look so old – I don’t like looking in the mirror anymore. From today onwards I am wearing a hat/bandana round the house and my wig when I am out!
Actually having not a bad week. 3<sup>rd</sup> week after first chemo so this is probably as good as it gets. Went to lunch with work friends yesterday and we had a good laugh. I felt nearly normal and had so much energy (well compared to recently anyway!) I wore my wig and felt self conscious but my friends were really kind and I am getting a little more confident with the wig.
Take care all
Karenx