There are a few ladies over on Facebook, and the benefit over this is that it posts like a conversation and is more instant. So it’s nice to chat… But I don’t think anyone has left here… The facebook thing is very recent.
I think like madmax said sometimes you just don’t feel like joining in but read the comments. I know I read and try to comment and as not everyone has Facebook, I will still jump between the two. We have been through too much together.
If anyone is interested in the Facebook group pm me and I’ll give you info to find me x
Hi sparkly ones,
Yvonne, 2 weeks after Tax I too am completely drained. Decided to go for a short walk yesterday. On the way back I was completely out of breath and my legs were so heavy it was a job to lift them. I ended up leaning on a lamp post for a while. Thank goodness no one was about as I would have been very embarrassed if anyone had asked me if I was OK. It does sound sensible to go with your oncologists advice. Take everything you can get. As my surgeon said, this is our one chance at a cure.
My daughter in Hong Kong is now out of hospital after having pneumonia. I just wanted to fly out to her but knew I couldn’t.
My step mother phoned and said that her marriage to my Dad is over after 24 years. She is a paranoid schizonphrenic and I expect that she hasn’t been taking her tablets. At 84, it is something he could do without. She has decided to stay in the bungalow they share. My Dad does everything for her. She doesn’t even know how to turn the gas hob on. I have been trying to phone him but he is always out or busy, chiropdist, gardener, cleaner are there. Wish I wasn’t so fatigued and could drive to visit. Although I know I would get abuse from Doreen his wife. She hates me.
Well that’s my little share of a moan.
Hope your lives are less complicated.
hugs Lynn xx
Hi all,
Well, I had my final FEC yesterday and with the help of the wonder drug larazepam, I had no sickness and slept really well. Felt a wee bit icky but have my mum up with me that seemed to make it easier. Have a complete day of rest and movie watching planned.
I hope you are all well and the SE bearable. We are all so nearly at the end. Am going to start planning a FEC off party next week.
Found out I now need rads which made me really upset. ( silly I know as the chemo is for worse) I just thought I was nearly done as I only need herceptin and them tamoxifen.
I start rads next month for 5 weeks. I had a complete mx and recon so my rads need to be over a longer period. Bummer is I have to go to sodding Oxford for it which is an hour away… Oh well, onwards and upwards.
Try and have a good day chicks
X Hannah
Hi chicks
sorry I haven’t been on here for so long. I have been reading all the posts and empathising with all the highs and lows. i haven’t been able to log on as we moved house (Iost certainly DO NOT recommend doing this while on chemo!!). They disconnected us earlier than we asked and now can’t hook us up at the new house grrrrr!!!
SE on tax have been pretty awful for the last month or so for me but I guess the stress of moving hasn’t helped. Had my 7th juicing day before yesterday and already feel like a wet lettuce leaf. Usual gross taste in the mouth. During the move I slipped my shoes off and 2 toe nails came off! Ouch!
Still don’t know when I’ll be having surgery or rads but onc has confirmed tamoxifen and told me to insist to have an extra 5 yrs on it as its an insurance policy! 10yrs in total! Am having horrendous hot flushes and insomnia due to chemical menopause.
Enough of me whinging!!! I’d love to join up with you all on FB. I can’t seem to pm from my phone and this is the first it’s let me log on! Please add me Josie Cane I have a pic of me and oh under the Vegas sign when we got married.
lots of love
Josie xxxxxx
Hi gang, went to docs today to get glucose checked and ended uo getting flu jab. Had to make sure it wasn’t the ‘live’ strain I got. Came yp road feeling a bit wobbly as I had to have a ‘fasting’ blood. Came in and had two bacon rolls and mug of tea and was sorted. Had a bottle of cider (I know… not good idea) going for a snooze now…zzzzz. xxx. Pauline.
Hi Josie, so sorry you have not been feeling well, hope you will be happy in your new home. If you pm Elli to get on Diamond chicks face book. I have also been suffering really bad with hot flushes due to being forsed menapause due to chemo. Two things i have found to help, have you seen the jell pads people use for headachs i cut them up and fasten to the back of my neck, as the are cool it helps the hot flush. For night time I have brought a chillow, its a pillow with jell in and water you put it in your pillow and it keeps cool. Since useing the hot flush are not waking me up so much in the night.
Pauline well done on getting a flu jab, can any one get these? the bacon roll sounds good.
Hannah congratulations on finishing your chemo and the fec party sounds like a great idea, we had a bottle of champagne given us which we are going to open the day I finish my rads.Make the most of your mom being there to look after you.
To the rest of you chicks I hope you are all well and coping with your se, we are all getting there slowly.
Hugs and best wishes Carol.
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I have flu jab booked for Monday - My Onc has warned me I may receive flu symptoms from it - I wonder could it be any worse than what we already have? Pauline can you please let me know if you feel anything?
Sorry to hear your family problems Lynn - Its probably as well for the state of your health you cant fly to Hong Kong - Pneumonia is not something you want to be contracting right now (well full stop really!)
Hannah I like the FEC off party - sounds good
Ok off for an early night
Take care all
Max xx
Hi gang, slept like,a log last night after flu jag. Feel fine this morning. Just make sure you dont get the live strain which can make you feel fluey. Also yiu are not allergic to eggs or chickens.aa this seemingly is used in the caccine. xx
Grr! Windows decided to update itself without warning and I lost my message.
I’m so pleased that you have finished Fec, Hannah and that they managed to sort out the sicknes for you. A Fec off party sounds great. The best part of finishing chemo is 3 weeks on when you don’t have to have it again. It is so liberating. Can you get hospital transport for your visits to Oxford? Would save a fortune! Also if you drive yourself you have to check your insurance as some companies will not insure you to drive home from rads.
Josie, hope you will be very happy in your new home. Josie you winge away. That’s what we are here for. Tax is awful. And to lose toe nails, ouch. As if the fatigue and other SE’s aren’t enough. I am hoping to keep my toe nails because the onc lowered by dose after the first poisoning, but I have a lot of finger nails with dead patches under them. Hoping they won’t fall off. My friend who went through chemo last year, used to use superglue to keep her nails on for as long as she could. If you try this be careful as one time she stuck one of her other fingers to her nail and they had to be soaked and carefully cut apart. Funny now!
Well at the moment I resemble a snake as I lose an outer layer of skin. I have 2 eye lashes left. But my hair has noticeably started to grow. How did it know there was no more Tax?
I had my flu jab yesterday. They do recommend it for cancer patients. I checked with my onc. but as flu is a dead vaccine there is no problem. It shouldn’t give any flu symptoms. I am fine. Can’t even tell where I was jabbed. I was lucky to get a cancellation as the first app. was 27th Oct and I would have started rads by then.
Max ty for the sympathy. My daughter is still shaky but on the mend. Had short phone call to my Dad. He is upset. But it looks as if Doreen has had her medicine changed so fingers crossed for a happier outcome soon.
Hugs to all Diamond Chicks. Have a good weekend. I am off to a school reunion on Saturday. Risking the 1 3/4 hour drive there and back. Will be the furthest I have driven on Tax.
Lynn xx
Yesterday I cancelled my Complementary therapy massage from the NHS - apparently i am allowed 6 sessions so it made no sense to have the massage when I wasnt feeling well enough to feel much (if any) benefit from it so I have deferred the rest of them until after Chemo.
Does anybody else get the therapy from the NHS? if they havent volunteered the information, you should ask!!
Morning chicks. Hope you are all well. Hannah, well done on finishing chemo. A FEC party sounds a great idea to me - I’ve got a bottle of bubbly just waiting for when I finish next month, just hope I will be able to taste it! Josie, I hope you settle in your new house, it must have been very difficult moving in the middle of chemo. Know just what you mean about se from tax, feels like they last longer each time. Lynn, sorry you are having such family problems, it must be very hard being so far away from your daughter when she is sick, but I’m glad she is on the mend. Max, there is a local cancer centre quite near where I live which offers all sorts of free therapies - massage, healing etc. Not been yet but keep meaning to pop in and see what it’s like. Well, going to attempt a little walk now. Hope I don’t end up leaning on a lamppost like you Lynn, but I do tend to walk where I know there are benches to sit on now. Talk about feeling 90 years old! Take care everyone. XX
hello chicks. Not heard a chirpy chirpy cheep cheep out of anyone for a while. Have you all flown the coop? Hope it’s just that most of you have finished chemo now and don’t feel the need to post as much. Can’t wait to be in that position myself, but another two to go yet. Just off today to do a bit of Christmas shopping - better make a start as won’t have much time when having radiotherapy every day. Think my trip will involve quite a bit of sitting down in coffee shops though! XX
Hi all,
I didn’t make the reunion. Caught the sore throat germ from husband and didn’t feel up to going. Was so disappointed had to have a cry.
Don’t know where everyone has gone. I start my rads on monday and wondered if anyone else was. Or has anyone started already.
Am going out today to order a new wig. I love my wig. Feel very confident in it and get lots of compliments. But it was second hand and is going a bit ragged so I want to keep it for best. Will try to be brave enough to ask about therapies while I am there.
I am down to one eyelash! But I can feel new ones growing even though I cant see them. Had to cut nails reallly short as I was in danger of pulling them off!
Kath, best wishes for the 2 more tax you still have to go. Hope people stay with us. This site has been such a boon.
Josie. hope you haven’t lost any more nails. How are you coping with them? Do you need to wear plasters?
Bye for now. Must flap my wings and take myself to the kitchen for another cup of tea.
Lynn xx
Hi Kath, Lynn, everyone else… Hope ur ok… Kath I still have twoTAX to go …boo… Lynn my eyebrows have started to really desert me gutted to say the least my hair on my head is making a slow appearance I hope that it keeps on growing…Would be great if anyone in the June thread would like to join us on facebook private page if you email Eli she will send you the link …Michelle xx
Morning Chicks, just wanted you all to know I have started my rads. I had the first one yesterday and again today, it was not painful in any way just a lot of measuring and moving table and machine about. The first one took about 40min as they tell all the side effects again and ask if you have any questions. Was told to use only simple soap and aquase cream and no deodorant the side I had my mx. The side effects I was told was that it has a slight risk of damaging the lung there is a chance of the site become red and inflamed, may become itchy also will make you tired. They suggest you put some cream in the fridge so it will be cooler and to put it on three to four times a day. When I went today it took only 20 min if you don’t count the 20 min weight before I went in.
So hope all you chicks are doing well and that you are all near the end of your chemo, The ladies who are have Surgery, do you have that before rads or after?
Like Michelle said a lot of us are talking on face book and everyone is welcome to join just pm Elli and she will link you in, it was set up for the June thread by revcat, for just another way we could all chat. Hope to see you on there soon.
Please take care. Love and Hugs Carol.
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Hi Lynne, shame about reunion you must be dissapointed. Carol is leading the way on rads, then you… I don’t start till 30th. Got my planning session tomorrow.
I’ve been getting quite a bit of pain in my implant since last tax. Dont know if it related… I sleep a lot on my front so it could be that… I’m sleeping a lot more. I’m tired almost all the time. At least I am sleeping… I know a lot of you ladies are struggling with sleep. X
Hi chicks
Hope everyone is ok. Still haven’t got broadband grrrr! Am struggling with my latest tax (no 3) feel shocking. Moving last cycle probably hasnt helped. Can barely get off the sofa. Has anyone else had problems with vision? Everything is fuzzy… I had glasses for reading but they make it all worse! Have my last tax on the 30th. Each one seems to get worse! But at least the end is in sight. Thanks for the advice about dealing with hot flushes, am awaiting delivery of my chillow.
Havent had any info about surgery yet, I guess I’ll see the surgeon after I’ve had another MRI after last chemo.
Well done all of you that are now on rads!! Nearly at the end of treatment… Very jealous! Feel like I still have such a long way to go!
Lots of love xxxxx
Evening Chicks
i’m back at work but have over done it! Worked full days Monday and Tuesday and then had to stay at home at Wednesday as I was knackered! Had my 3rd Herceptin today but difficulty with accessing a vein. Took 8 attempts by 3 people before it was in! Biggest problem is that it delayed everything. I am considering having a portacath as I have another 14 Herceptin treatments to have. Surgery to remove axilla glands planned for 7th November then rads after that - that’s me!
Kath hope the Christmas shopping was successful; Lynn sorry you didn’t make your reunion- hope you’ve recovered from throat infection
Carolann sounds like your rads are going ok
I found the Tax very difficult and like others found each one worse than the last - the accumative effect. I am 3 weeks post last Tax but can’t say I am recovered - still without energy, and legs feel like lead! I hope now I’m past the day when I would have had a chemo treatment that I will start to really improve
Hope everyone else is doing ok
Hi snoodlefish, tax is really hard on you. You won’t be long till your finished with this awful stage. I have blurry vision… I too have reading glasses but sometimes can’t see very well to read the tv guide and at other times is ok… So it seems a bit erratic. I will go and get my eyes rechecked but I thought I’d wait till nearer Xmas, just to give eyelashes a chance to return and maybe let my system resume a little normality.
Hope your ok, is a hard time. I only ha 3 tax… And that was tough.
I’m off to the beatson for my rads planning. Not starting till 30th oct.
Hope everyone else s gearing up for a good weekend. Xx
