hi sparklers been a very busy day, not stopped shopping, gonna chill now and wait for christmas, merry christmas everyone. keep smiling. xx
Hi all, Good day today, back to eating and drinking, making up for yesterday. Went for a walk with dogs and OH bit sore afterwards with lower back pain due to giving myself injection to boost immune for next fec. Painkillers and the hit shops after tea for some xmas prezzies. Awake again, hope it doesn’t become a habit lol.
Shazzaboro I was a bit down when I was being sick but it soon passed. My head is getting patchy so think it will be getting cut inbetween xmas and new year if I can get my friend (busy social life and work).
Hugs to all xx
Hi all
clarebare
sorry you’re struggling. it’s tough isn’t it? you can try the helpline on herehere if you feel you’d like to talk to someone. Hope you feel abut better today. xxxx
shazza again hope you’re ok today. keeping busy is a good plan. my little boy keeping mind off it all but I can imagine it’s hard if you’re on your own. chin up xxx
mags glad you got out with the dogs but back pain isn’t good! take it easy.
Hi sml Hope you’re ok after fec.
not much but a couple of new ones - I apologise in advance…Love Col xxx
My tits, tits, tits,
Have got me in all in bits,
They used to be pert,
Now they’re going, that’s a cert,
But then I’ll treat myself to tea at the Ritz.
Drink plenty of water they say,
Please don’t let me be sick I pray,
So they poison my veins,
And I get horrible pains,
And Christ knows how much I now weigh!
If I’m not thinking about my tits,
Then I’m thinking about my lady bits,
I used to have a nice muff,
But now it looks like it needs a buff,
Do they do brunette merkin kits?
hi sparklers
i have been a bit quite on here as i have found a facebook site for younger women under 45 i assume a few of us are on there , its a bit busyier and always some one around , but i do pop back and to to support ,
so im day one after 3rd fec looks like im getting a 4th fec as responding very well , doc could not even find one of the lumps ,
i have blogged if any one interesed
sarahmartin1970.blogspot.com/2012/12/an-up-and-down-day.html
my se’s are really minimal at the mo , as im on strike for the next 2 poss 3 days and sleeping and drinking , so im good by day 4 xmas day yeh ,
sorry some of yoou are struggling , but as we know its only the first week then as lond as you look after your self , its 2 weeks grace again , we all know its hard but i keep saying its a vey short time in your life , to battle this crap and have a life after and there is a fab life after his
dont know about you but its taking me longer and longer to type stuff that makes sence lol thank god for spell check but it remembering to use it hahahaha
ok spell check will not work today so sorry if there is a few type o’s lol sudhfiwhhkBDFGdukdd
morning sparklers
hope everyone ok and not suffering too much from SE’s.
Just want to wish everyone a Merry Christmas, and hope you all have the best time you can.
Dee xxxx 
Morning Sparklers
Washed wig for first time last night
Had a dream/nightmare about it that it went all curly and stuck up in clumps. Glad to report that by morning it was fine, still straight, not stuck up anywhere and just needed a quick brush through -phew!
All set for Christmas now, just waiting for the big day to arrive. Watching lots of christmas tv and films to get in the mood.
Hope everyone is doing well and looking forward to a good christmas, merry christmas, keep strong and carry on christmas sparkling!
Shazza xx
evening!
3rd FEC for me tomorrow - doubt I’ll be eating sprouts Xmas day. Got some family staying and also on network SLM mentioned so probably won’t be on here much over Xmas so just wanted to wish you all the very best for Xmas and hope you all have minimal se’ s.
lots of love, Col xxxxx
Evening Sparklers,
This time last year I was 8 days after 3rd Tax with Herceptin and I felt, and looked, well on Christmas Day - just a bit tired later on in the evening but still managed to stay up quite late. I only finished Herceptin on 10th December this year and would have been discharged from oncology nurse if I had not been on a trial. So, this Christmas, I feel as if I have just got off a roundabout and have my life back at last.
Just wanted to send you a positive message and hope you all manage to have a very Happy Christmas. If any of you want info on anything please feel free to PM me or ask on this thread. and I’ll do my best to answer you.
Take care all, Liz.
Col 123 thank you cheerede me up!!
Hoping everyone has a good christmas also all of us that may be having xmas chemo hope it goes well and not many side effets.
Stay strong and live every day at one at a time
yvonne xxxx
Hi Everyone, thanks to all who replied and pleased to report feeling ok at mo! i can basically rule 10 days out after chemo, just fee lso crap. I dread next chemo knowing how im gonna feel. Havent lost all my hair yet,anyone else still got some,. My 15 year old son shaved my head about 2 and a half weeks ago. Piles easing slowly with ointment from docs and germoloid suppositries!! In case anyone else suffering and want to know what helps. Had headache yesterday and felt rough, think its my hormones as have had 2 periods in 3 and half weeks. I’m 47 so maybe ill go into the menopause. Hormones all over the place. Had a terrible pregmnancy with my son and wondered if anyone out there suffered constant nausea and vomitting , apparently there could be link with chemo side effects! Who knows!!Next chemo new years eve so will start new year half way through . Tying to be positive! Happy Christmas to all and i really hope you all have agood time with few side effects Take Care
Love to you all
Clarebarexxxxxxxxxxxxx
Merry Christmas Eve sparklers,
I want to send you all all a big hug for Christmas, I am in bed at the moment suffering chemo SE I had my 3rd chemo from last Thursday. Keep strong sparklers & enjoy your celebrations with your families tomorrow.
Good luck to all who are suffering SE and going to have treatment in the next couple of days I am thinking of you and hope they pass quickly.
love
mummybear x x
Hi Everbody,
Sorry haven’t checked in for a while, not been in a good place. Working on it and hopefully coming out the other side!
Hope you all have a Merry Christmas without too many SEs. Take care, big hugs CK
Morning sparklers and a happy christmas to everyone!
Clarebare, I’ve had my head shaved too, also a couple of weeks ago. I still have some short stubbly patches, as well as some bald bits. I also still have hair on my arms and am still having to shave legs and armpit. So cruel! Was hoping I could stop worrying sbout some hairy bits
I think I may be heading the same way as you hormonally as my periods are all over the place too. Looking forward to them stopping but not sure about the rest of the menopause. At least I now have a couple of good excuses for being grumpy, either bc or menopause
Mummybear, hope your se’s clear up for tomorrow. My third cycle is Thursday so tomorrow is looking promising for me, not sure I’ll be able to say the same about new years eve lol
CK, hope you are feeling better soon and enjoy Christmas with your family and friends. The emotional ups and downs can be the hardest to handle and the most unpredictable, but we will get through this.
Merry christmas, keep strong and carry on christmas sparkling!
Shazza xx
Merry Christmas everyone x
Chemo number 3 on Thursday so a good Christmas and not so good New Year. Am making sure I drink loads this time as I don’t think I drank enough last time and ended up feeling rough for a few days. This is the last of FEC for me, then 3 sessions of T and Herceptin. Does anyone know what the SE’s of they are? Half way through chemo after Thursday, gone much quicker than expected and with all your help and support it hasn’t been too bad - thank you, hope you all have a lovely Christmas despite what we are all going through xxx
Good luck for Thursday Pascal, hope all goes well. Thats my third one too, I’m having 6 EC so don’t know about the side effects of T. Onc did say it was rougher on the bowel, which is why I’m not getting it. There is a section on Macmillan site that might help a bit, it gives details of all types of chemo. Here is the link if you haven’t looked already: macmillan.org.uk/Cancerinformation/Cancertreatment/Treatmenttypes/Chemotherapy/Individualdrugs/Individualdrugs.aspx
Shazza x
merry Xmas sparklers!!Hope you’re enjoying your Xmas day as best you can. I felt very rough after chemo last night but nit sick and managed a small Xmas dinner too! enjoying my day even if knackered.
Festive best wishes to all!
Love, Col xxxxxxxxx
Hi all fellow sparklers,
Hope you have all had a good xmas day, and for those of you suffering SE’s i hope you managed to enjoy some part of the day.
I’ve got to go for blood test tomorrow and like a few of you should be having my 3rd FEC on thursday.
Despite isolating myself for most of last week and missing out on seeing some good friends and my grandkids because they were not well i have still managed to get a cold which i have had for last three days (luckily my temp hasnt been up so not had to contact hospital), now starting to cough though so thinking my treatment might have to be put off.
PASCAL:- i saw onc last friday and she told me the main side effect of T is like having a bad dose of flu - fatigue and aches and pains - said to take paracetomol or co-codamol but to keep a close watch on temp as obviously they can disguise a high temp. Also said have to take a high dose of steroids day before treatment, day of treatment, and day after and will probably have trouble sleeping
. Sorry if that sounds bad but forewarned is forearmed as they say. I know im not looking forward to it!!! i agree with you though about being half way through on Thursday (hopefully) and how quick the time has gone - doesnt seem 5 minutes since i got diagnosed and cant quite believe what ive been through since - it makes you understand why the say its a fight!!!
On a brighter note, i finally got to see my grandchildren today for the 1st time in nearly 4 weeks (they have been poorly) and i was so excited to see them and watch them open their presents, made my self imposed isolation worth it because i would have been heartbroken if i hadnt been able to see them today.
Hope you all got lovely pressies today and got all you wished for. I got a lovely snuggly onesie off my mom in law, and a new dressing gown off my bessie mate, so im all ready for the next round of SE’s!!
To everyone having treatment this week, good luck, and to those suffering SE’s hope you feel better soon and manage to enjoy some of the festivities.
Love to all xxxx
Hi Ladies,
Not been online for a while as been under the weather since FEC3 - nothing major just the usual horse kick it seems to give one! I have also been on the younger FB forum… worth checking out if you are intersted. Missing my sparklers though and hope you are all doing OK… and having the best time you can in circumstances. Feeling pretty low today, just want to feel my high, it cant come soon enough!
I managed xmas dinner etc yesterday which was good and had an OK day, all the family so excited i was eating but they seem disappointed i am not as well today, i feel like in a way my dad is actaully a bit annoyed with me. He is telling me to tell everyone on-line that i had a great day and that i am better but that is not how i feel. grrggh… head in sand syndrome. he thinks if you eat that means you are fine… and back to normal…rant over!!
my brothers friend has just arrived who i only see once a year, so hiding in bedroom as i dont want to face him or him to see me bald and rank. Husband has gone to his parents and to see his family today. I have retreated to bed wsith Classic FM and my dads laptop…(my ipad doesnt seem to connect here in the country side!).
i had the ‘c’ drug of fec this treatment for the first time… omg constipation!!! i have my 1st tac and herceptin on 8th and then 9th jan… they are doing these seperate days for first treatment… 6 hours obs for herceptin and then back next day for tac. My onc said that they were going to give me the ‘c’ drugs i missed in first 2 treatments with my tac but she said that the next 3 treatments will be really tough on me as it is so they will ommit it again. onc mentioned that usually they give 75mg tac but they are giving me 100mg… anyone else know these measurements? i am not sure why i am having more or what is common.
whilst i do not want to face another treatment again and i feel they are getting harder, i would like to think that i can see a slight flicker of light at the end of the tunnel knowing that we are now half way.
keep you your strenght fellow sparklers.
xxxx
i should have put tax not tac xx
Hi fellow Sparkles, I should have had my 3rd chemo 20th but it got postponed til 27th as my veins kept collapsing. Had to go to Christies on 24th to get a Hickman line fitted but Monday morning I woke up with a cold. I’m now full of a cold and started with a cough today. At least I got to enjoy my Xmas dinner, every cloud and that but I’ve been so exhausted I’ve not been able to shower in my surgical scrub and also my dressing is not fully stuck down keeping it waterproof… I’ve not been able to talk to my nurse with it being Xmas, so if there’s any words of wisdom or advice on offer out there I’d be more then happy to hear from you, thanks RavenDexter