Thank you lovely friends for cheering me on. Yes two down, next one I’ll be halfway there!! Thanks for the eating tips, bananas have been good, gives me a wee bit of energy. I can’t believe I’m not enjoying my food, I normally love it
Going to venture out to shops tomorrow, see what’s coming in for Christmas, your beanies have out me in the mood xxxx
Murphy sorry you’re having a hard time. When I couldn’t eat I found some tomato soup went down well. I’ve been left with an aversion to sweet foods and it’s still with me in week 3. Not necessarily a bad thing lol. I normally have a very sweet tooth.
Debtex that’s rotten that your hair is coming out after using the cc but you’re dealing with it so well. I’m liking the scarves too. Someone asked about makeup. If you can, get along to a look good feel better session. They teach you how to apply your makeup and we were given a lovely gift bag full of makeup, skincare products and even perfume. All good brands and not sample sizes and matched to your complexion. I was amazed and I’m doing my makeup every day now. It makes me feel so.much better.
About these injections everyone is having, I didn’t get them. Glad I don’t have to inject myself but a bit worried that I’m missing out on something that I should be having!
Love and hugs xxx
Junash don’t know how you managed to listen to that ‘kind’ soul without walking away. Some people are so insensitive aren’t they!! Did she really think you wanted to hear that?? You must have wanted to slap her. ?? Everyone’s experiences are different as you know from all of our responses to chemo, and radiotherapy has advanced unbelievably over the last few years so its highly unlikely that you’ll have those problems. Xxx
So first FEC done and dusted! Got fingers and toes crossed the SE are minimal! Cold cap wasn’t too bad, the first half hour was hard and I briefly thought about giving up, just thinking it was going to be like that the whole time, but as soon as I thought that it stopped hurting and I kinda forgot about it then!
Linzz, you did make me chuckle about your hubby trying on Hilda!
Well done everyone else on your 1st and 2nd rounds and I hope you all don’t suffer with side effects xxx
Hi Junash…cannot believe that you have been ambushed by some doom monger…avoid, avoid, avoid…oh and ignore everything coming from her silly ignorant mouth!!! Count to 10 xx
Peta I’ve had the dreaded mouth ulcers. My mouth was sooo sore. I got some mouthwashes and gel from the hospital and they helped tho so I’m going home after chemo on Friday with a supply of them in case it happens again. The nurse suggested cutting the dose of chemo to prevent them but I really didn’t want to do that. On the plus side tho I had no nausea. I was really dreading that. And well done you going out bald. I’m a coward. Don’t think I could do that. Good luck for Friday. Second cycle for both of us. We’ll hopefully … my white cell count was a bit low today so have to have it checked again before chemo on Friday xxxx
Someone said she had spots after treatment like me. Was it you Betty? My memory is terrible! Anyway I mentioned it to the nurse yesterday and she said it’s steroid induced acne. They’ll give you antibiotics for it and they work. Hopefully this has got to the lady who had them.
Junash glad you’re doing well and managing to avoid that poisonous kind soul. Stay away from her and the rubbish she’s spouting. Stay well xxx
Junash you sound so ‘in control’ and grounded - it’s uplifting to read…thanks.
i hadn’t mentioned the spots (muphy has claimed that :)), but it is something that happened to me - only a couple so not worth antibiotics - will keep this in mind tho going forwards. Also thanks for posting tips for mouth ulcers…i was touch and go with them too. I have now developed a runny nose - thanks to whoever (sorry don’t remember who) regarding nose hair…never entered my head before i read that! Oh, and my eyes are a little itchy!
《《BIG sigh 》》 I’m coming to the rapid conclusion that it is all the ‘minor’ irritations that will be wearing me down thro this process…as soon as you start to feel like you’re winning - bam, something else bites your backside! Just as well mine is sooooo huge lololol
Good luck and hugs to you both Peta & Junash with #2 tomorrow - fingers & toes crossed your wbc improves Junash. Have they given you anything to boost you up?. (Jingox are you on #2 as well or past that - again apologies as i cannot keep track) …just think, that will be a 3rd done by tomorrow evening xxxx
I think Bettypoppitt is right, the cumulative effect of all the minor things will add up and p*ss us off as we go along. Yuck. My forehead is pure teenager right now, if it gets any worse I will certainly ask about antibiotics now I know that’s a possibility.
My mouth was dry to start with because of something else I was taking. I had to stop that (thankfully that problem had mostly resolved) but not before I started geting oral thrush. The GP gave me stuff for it and its clearing, and will hopefully go without being painful. I had ordered Biotene toothpaste on the internet so have been using that with a soft toothbrush and sodium bicarb mouthwash as recommended by my unit. Fingers crossed it all keeps away ulcers, as this was one of my main fears. I also read somewhere that changing your toothbrush every cycle can help keep everything healhier, so I’m going to do that.
I like how everyone would like to come down like a ton of bricks on the awful playground woman. We wil organise a flash mob of retribution if she strikes again!
My worst encounter so far was when I told my colleague what was going on. She is the one who is holding down the fort whilst I’m off so I couldn’t tell her what I really wanted to! She immediately started relating all the BigC related stories in her repertoire. At that point I was always just a fraction away from bursting into tears all the time and so in a daze I let her drone on. After hearing of the FOURTH death, however, I managed to say “well, I’m only interested in positive and uplifting stories so lets talk about work now” and went on to dump far more stuff onto her than I had meant to :robotlol:
My other “jaw drops open are you really saying that?” moment came from a good friend. Obviously your friends relate to what’s happening to you by tying it to things they’ve experienced over the years. This friend has plainly never known anyone with cancer or hair loss but I didn’t reliase that until I’d been listening to her talk at length about someone’s experience of treatment etc. Eventually I twigged she was talking about Samantha from Sex and the City. Really ???
Sorry for the long post. I think daytime telly is finally starting to bore me!
Well done kf791 on your first fec and the cold cap i had my first one mon and i also managed cold cap i too found first half hour hard but managed the whole 3 hours. Time will tell if its worked hope so. Finished all my steroids and anti sickness tabs today start the injections tomorrow eek. Luckily my best friend is a nurse so shes offered to do it for me.
As for feeling of sickness its still with me since monday any ideas im struggling with most foods.
Debtex sorry to hear bout your hair im sort of preparing myself to in case it doesnt work.
Keep going ladies we all seem to be coping with everything being thrown at us. Xxxx
Hi PETA, I had to ask for emend, I think most places don’t offer it as it’s so expensive, but if you have suffered I’m sure they will give it to you xxx
Hi Peta. I’m on metachlopramide and steroids for sickness and they seem to be working for me. If that changes I’ll definitely ask for emend (thanks for the tip)
I’m still really impressed with you going out bald. I know we should be able to do that and not care but I am so self conscious even with the wig and hats. I think maybe I need to get used to it myself before showing it to others. I’m even wearing a hat in the house! I’m even scaring myself when I look in the mirror! ?? Ridiculous isn’t it lol. I’ll get there in the end.
Good luck with your blood tests and with tomorrow. I’m hoping my white cell count doesn’t drop any more and delay things.
Love the idea of the flash mob descending on the 'kind ’ soul. That made me laugh.??
It’s so lovely to read how everyone is getting on. I too will have no real hope of remembering names and where people are but it’s just nice to know I’m not alone by any means!
I am day 4 as I had my first FEC on Monday - sickness wise I don’t feel too bad - I’m wondering if the anti-sickness drugs are just doing their thing. Last steroids are today too.
I have to say that yesterday and today I feel completely knackered. I went out for some fresh air yesterday and it was like a battery running flat! I have never experienced that before! Very strange! Does anyone have any tips regarding how to boost your energy a little? I was thinking smoothies or juices but I don’t really know where to start!
On that note - is everyone finding eating at the moment? My sweet tooth has completely disappeared and I can’t stomach the thought of anything cake or biscuit orientated!? I literally gag at the thought - which is so unusual for me - I admit pre-chemo I was a cake and ice cream monster!
I have been eating little and often - savoury things mainly. I am quite carb focused but I’m wondering if that is the steroids playing up? Mashed potato and steamed vegetables seem to be my thing at the moment which I guess is not so bad! On a smoothie note I am thinking that as my tolerance for sweet things is quite low at the moment maybe something kind of sharp/clean tasting like Granny Smiths would be best… But I feel like I need some extra energy from somewhere or maybe I need to just accept that fatigue might be the one thing that I suffer worst with throughout this whole journey…
I guess only time will tell! Xx
Hi all re hair just wanted to stress that I do have some but it’s thin will bald bits after the cold cap I haven’t lost it all - I didn’t want to dishearten other cold cappers . Prob is it looks a bugger and I have to wear hat / scarf otherwise it’s all over the floor . Today I had no choice but to walk the dog - ok going down the lane but it’s a steep hill and I had difficulty getting home - was literally staggering ! Then did dishwasher , washed floors and generally knackered myself in ! So not back to full strength yet . Re food . I have gone from vegetarian to craving meat . Hospital told me this is my body telling me to eat protein which is what I need . I also have gone off sweet stuff and can’t drink tea or coffee . When I go out its vimto or hot choc like a 5 yr old . One positive - prob won’t last - is my skin is really radiant looking and seems less lined and my eyes look larger - … Or maybe I’m hallucinating . I also 'got my pills wrong ’ ( like an old nan) and took one instead of 2 steroids each dose ! Didn’t seem to effect me - they give me nightmares anyway . Hope everyone doing gd x
Re food, i did 5 days of fruit smoothies (tbsp oats, tbsp milled linseed, 1 pear, 1 apple, 1 can coconut water,1 avocado…splash of lemon =about 3 servings), shortbread, crackers, veggie soup (carrots, pulses, sweet potatoe, onion, chicken stock) and little and often as and when i felt like it. Turned into the honey monster end of week1 for 3 days…just couldn’t stop eating. Went off tea & coffee also. Somebody mentioned tomato soup which sounds good.
Blood test for me first thing in the morning as #2 for me 9.15 monday morning. Going to be listening to my hypnotherapy cd before i head off to hospital, in the hope that it can help me deal with the needles. Fingers crossed.
I would also agree that a little fresh air and light exercise helps to boost energy. I felt quire revved up after and by about day 7 & 8 i was walking more and doing more around the house. I have to say, i have no idea how anyone can work week 1 or 2… i certainly couldn’t.
Good luck lovely ladies having treatment tomorrow …hope it all goes well. Xxx
Good to find you all - when anti-nausea meds finished I needed to get more from GP - now Day 8 of first cycle so hoping nausea will fade soon - anyone else struggling to drink water? Nausea jumps from 3 to 10 in a flash! HUGE THANKS to Whoever It Was that said ginger ale is good - I hate (and loathe!) ginger - but see Canada Dry Ginger Ale? - breakfast / noon / supper!!! (How can I drink THAT?!)
2 full days working done this week - hoping for much(most) of tomorrow too - FANTASTIC DISTRACTION THERAPY! Hoping to catch up wig y’all over the w/e… hugs n all best wishes … x