riversidedawn - one surgeon refused me an immediate recon and the other said she’d do it but said there was a 1 in 3 chance it would fail during rads. I therefore decided not to have recon. I believe I have to have 4 or 5 weeks rads, so the additional worry of ‘will my boob survive’ just wasnt worth it to me. I have an appt for next Sep to look at recon. At the mo I am lucky enough to have a well healed, tidy scar and feel my boob is the least of my worries as I move through my treatment. I stick my prosthesis in and no-one can tell I’m any different. When I’m dressed I myself don’t even feel that there’s much missing. (Ha, perhaps because there wasn’t much to begin with lol). Perhaps you could consider letting everything heal for now and put off recon again until you are recovered from everything else? Though I understand that might be an impossible thing to consider. Everyone is different, and what’s right for one of us isn’t right for another. Do you know yet how many weeks rads you are getting? I guess perhaps your surgeon and your radiologist need to confer to look at risk before they can advise you.
Lainie - good luck for your scan. The NHS just before xmas is 100% geared to discharging people… You’ll be home for xmas for sure. Though I would REALLY like to see the CCTV footage of the posse breaking you out :robothappy:
Everyone else - my fingers are crossed for a lull in side effects and set backs for just a short while over crimbo - kind of like the xmas day football game in France during WWI, we just all need - and deserve - a bit of peace and quiet (or noise and hysteria if that’s your xmas thing) for 24 hours. Here’s hoping…
What a lot of happening … sending y’all huge hugs … this stuff all takes so much psychological oooomf as well as physical energy … it really sucks … so very important to look for All The Good Stuff You Can Possibly Find…
… as well as KeyboardRapidFinger I also got MotorMouth with the High Dose Steroids (and just a wee tad of energy to get some stuff done in the garden that I had been eyeing up for weeks and weeks…) … duff morning yesterday but got along the choir for evensong and then carols at our local pub … GREAT! … and our 19 wedding anniversary … Yay! … (… and what a miracle …!)
TODAY? … ah …
Reassured to hear some of you have been advised Imodium is ok to take … so am starting to rummage in the appropriate collection … have too much to do today to have to be tied to the loo … …. …. LoL … Hugs x
Quick update Went to get boob drained again tonight, implant infected so joy of joys got to have operstion tonight to get implant out and boob cleaned - will be flat but who bloody cares! am sad as sams 11th birthday tomorrow - but hopefully home in the afternoon
Love to all, hope everyone feeling better or at least a bit more with it!
Oh Junash. What a time you’ve had with this. Thinking of you and fingers crossed you get out to see Sam on his birthday. If not the posse is all ready, raiding bags and costumes sorted. If i get out I’ll join them but i want to be the Christmas fairy in a tutu with a bald head. Cant you just picture it lol. Sending love and hugs ???
AM Driver Why not go out on a date good luck to you we haven’t got to let all this treatment rule our lives.
Managed to go out for a couple of pre Christmas meals although taste isn’t back to normal so I can only guess if the food was tasty.
My feet are still sore and skin cracked around the heels but I’m creaming them with E45 which seems to help.
Have an oncology app tomorrow so I’ll take my list of questions with me BettyPoppit I’ll try not to be too long because I think you follow me in.
Hope all ladies are ok today especially if in hospital xx
Just had my scan results. Blood clots in both lungs. Hopefully home tomorrow after they phone the onc to see how long they want me to have blood thinning injections. I’m a bit worried as the nurse said there’s no guarantee that nothing will happen with them so they have to make sure I’m stable before I leave!!! Just want to go home. I have an old lady in the next bed who keeps shouting ‘mammy’ and ‘help’. I feel really sorry for her but it’s stressing me out and I’m getting a headache now. She also has a severe chest infection and I’m terrified I’m going to catch it. That’s all I’d need!! Xx
Lainie G You have been really poorly it’s awfully worring clots in both lungs I hope you heal soon. It’s frustrating being in hospital when I was in the woman opposite shouted all night and rang the bell . In the morning I lost it and said I’m discharging myself if she does that again and they moved her to a side ward I felt really guilty so you’re done well to cope with your hospital neighbour hope you don’t get an infection though.Hope everyone is ok tonight xx
Oh my … take my eye off yous for a second and Everything Happens …
AMDriver - what wonderful news - so glad you had a great evening in Good Company - Go Girl!
LainieG - at long last you have confirmation of the cause of all this so hope you are now well into the necessary treatment … and things looking up for getting home … Yay! So sorry I didn’t visit … there were going to be gaps between loos… LoL…
Junash and Riversidedawn - as if chemo wasn’t enough … the decisions our docs help us take are daunting … chemo first?/operation first?/immediate reconstruction?/ delayed reconstruction?/ how many Chemos?/which drugs for who?/how long till op can be scheduled? … unending … and all with their list of ‘possible complications’ … and so many have landed upon you … I guess we maybe need to add some sort of Magic Powder into the armaments bag for The Posse … and I still cannot find my Shrek outfit…
Murphy - we are all thinking of you - hope you get a Good Night’s sleep…
Bettypoppit - so glad you got out with Lurchergirl - OH has been Bramble’s hero today… Imodium was my hero … and had it not been for SEs today I guess we would probably have been in the midst of the George Square tragedy … thinking of the families … and the rescuers… the witnesses and the hospital staff …
Where there’s Life There Is Hope … more precious than anything…
Hi all. Hopefully going home today. Still waiting to see the doc. I got too stressed out yesterday with the old lady and told the nurse I couldn’t cope with it anymore so they moved me to a nice quiet room. Bliss!
Peta I have to wait until a week on Friday for T1 so another 2 weeks delay. That’s 4 weeks altogether so far. I’ll get to the end eventually xx
Hope everyone is coping with SEs, complications etc. and we all manage to have a reasonably good Christmas. Xx
GeeG the accident in Glasgow was terrible wasn’t it. It really puts things in perspective. As you say where there’s life there’s hope. My son came out of Queen St station exactly where the lorry ended up about 20 mins before it happened. I’ve had nightmares about it so God help the families of the injured and dead. It must have been horrendous to witness that,whether as a passerby or emergency services. Thinking of them all xxx
Well as always hugs to all you lovely ladies and I too wish Murphy would get in touch. Worried about you Murphy xxx
Lainie I hope you get home soon . As everyone is , I’m worried about murphy and fingers crossed she is ok . Hope everyone finds some joy and fun this Christmas despite everything x
Hiya peeps, sorry I’ve not been on. Been in hospital for a few days and couldn’t get internet access in the room I was in. I’ve had a quick squint over your posts but will go back and have a better look once I’ve written this. I too have a blood clot on my right lung and fluid in both. I am on self injecting into tummy blood thinning injections daily for 6 months!! Nice!!
My other wee surprise for the day was being told I was to stop the tamoxifen because there was a chance they had given me the blood clot. Only the doc on the ward telling me this. I was beside myself, I was taken off the chemo and told my best benefit was the tamoxifen and now they were stopping that. Luckily the oncol dept is just beneath the ward I was in so I went in to see if I could have a word with BCN. The oncologist came along to see me too and tel me the new plan. I’ve to start on monthly tummy injections (huge blinking needle, really thick) to shut down my ovaries (I’m still peri menopause) and I’ve to start on letrozole in 3 weeks time. Injections are once monthly for 2 years!!
So that’s been my little adventure. Was terrified they would keep me in but badgered them, they knew I needed to get home for my boy.
Right need to read up now on what my posse pals have been up to. Hugs xxxxxx
Phew murphy glad you’re back online - we were stressing - give me a mo while i catch up on latest posts and I’ll be back in a while with chat abs update
Murphy what a saga ! You will come through fine I know you will . Sometimes things have a way of working out for the best . I was upset about having to have 9 weekly chemos rather than just the 2 3 weekly ones I had left , but I actually feel quite well on this regime and i think I can cope with it . I hope you can have some quality time with your family now . Love Deb x
Hiya, just read through your posts. Lots going on as usually is with us ladies. Ready and able to take it all on the cuff.
Linzz, I had to laugh at the thought of the CCTV coverage of the breakout posse for lainie I too wish we could have 24 hours at crimbo with no se’s, hospital stays, and worry.
Junash - I am so sorry to hear you’ve had to go in for another op. I have everything crossed you got out today for sam’s birthday.
AMdriver - you go girl!!! Bit of good news for us all for a change. So glad you had a lovely night with your date.
Lainie - I hope you got out of hospital today too. I’ve to have the blood thinning injections for 6 months. Luckily I was in a side room on my own again so didn’t have to put up with noisy neighbours!!
Betty - great you are managing out walking with your girl. I’ve not been out for just over 4 weeks with my boys, missing it so much.
Debtex, hope you are coping on your new weekly regime. And hope your daughter is ok after her fall off her horse, awcha!!
Lah, how are you getting on with your tamoxifen? Hope you are keeping ok x
I’m glad to be back, missed all my friends on here so much xxxx
Hi Murphy, soooo good to hear from you…we were all so worried and your home - fabulous:) You must be sick and tired of the goal posts being moved again, but they have come up with another plan of attack - so embrace and soldier on my girl :). Not liking the sound of huge needles, but I’ve come a long way with my needle issues, so fingers crossed for you finding them acceptable once they get underway. It was my first outing in 2 weeks with lurcher girl yesterday and today pretty tired, but it was soo worth it. Hope you can get out with your boys really soon. Xx
Just got back from my review and being delayed for one week and dose being dropped by 20%, which I’m totally comfortable with. Onc said that although all se’s I’d had were common, i had clearly been at the exteme end of the scale, so that’s why change to plan. Hopefully, I’ll cope better with #5 and will therefore be able to have #6 too. It is a relief that I’ve now got an extra week to recover my strength. Skin has started itching today, which may (or may not) be a sign that my body is reacting to it - even now!
Hi LainieG, fingers and toes crossed that you are home or on your wsy home…really hope so. Also, so glad you got moved to a side room so you could rest and relax properly.
It is difficult to imagine how dreadful yesterday’s tragedy in Glasgow was, thoughts and prayers to all affected.
I’m home yay!!! I’ve to have the injections daily for 6 months but I’m a woos with needles and can’t do it myself so hubby is being shown how to do it. Don’t know whether that’s better or worse. I’ll have to make sure we don’t fall out lol! I’m still getting breathless really quickly but doc says I’ll gradually be able to do a wee bit more as my body starts to absorb the clots. So I won’t be walking Judy for a while.
Murphy it’s so good to hear from you. So glad you’re ok and home. So glad my injections aren’t big thick needles. They would’ve had to hold me down lol. Xxx
Bettypoppit my needle phobia is getting worse and yours is getting better! I was always scared but now terrified. I’ll probably run away when my hubby tries to stick a needle in me. Glad your getting the lower dose. Mine was reduced last time and it made a massive difference to how I felt and how quickly I recovered. Hope its much better for you too xxx
Hope everyone is as relaxed and happy as possible this Christmas xxx
I too wish we could have 24 hours at crimbo with no se’s, hospital stays, and worry.