Madam so sorry you’re having such a hard time. It must be so hard to gave to go through that after getting through chemo. My mastectomy was before chemo and I think it was definitely better that way. Sending loads of hugs and good wishes. I hope you start to feel better soon but I’m with Bettypoppit. If you feel upset or angry let people know. Don’t try to pretend you’re coping. I did that with chemo and now feel like everyone thinks I should be over it when I’m really not. Lots of Iove madam ???
Murphy I know someone whose hair was curly after chemo but it eventually went back to normal so try not to worry too much about it. I was out with friends last night and I’m struggling to even walk today. Definitely overdid it so I know how you feel. ??
I don’t think I’ll be watching this bc drama. I think I’ve had enough of bc for a lifetime xxx
Oh Junash. What a shame. Did the chemo cause the wobbly teeth? Sending hugs to you too xxx
Can I pile in with the group hug please? I’m off to final onc appt today and have questions about some symptoms that are scaring me. I’m hoping they’re se’s of the tam, but of course my mind is taking me to dark places. Can’t help but think nothing short of a set of investigations is going to convince me its OK, but having tests is in itself stressful. Struggling a bit this morning to keep myself under control.
Group hug ! Group hug ! I was at a horse show with my daughter yesterday . It involved a lot of walking back and forth . God did I pay for it later . My left foot felt like it had a hedgehog in my shoe ! I did cry but managed to sleep thank god . I’m sorry others are still having a rough time , madam hope this passes quickly and that you heal well . I sense my friends and family are getting compassion fatigue , my illness and symptoms just roll on and on . Linzz thinking of you , one of my friends is going back for a scan as she has concerns , it’s normal to worry and as our bodies are in post chemo uproar there are plenty of things to set us off . Junash sorry about your teeth and thanks for mentioning an se that I haven’t actually got ! Xx
Thanks everyone. I saw a lovely registrar today who was very sympathetic. She told me she wasn’t worried about any of things I was telling her but she has ordered a CT scan “just for completeness”. So, whether she was trying to keep me calm, or whether she really thinks there’s nothing to worry about I don’t know, but at least if the scan shows nothing wrong I can start to work out how to live with the SEs I’m having. And if it does show something… well, I’m not going to go there for now. WIll take a few weeks though for the appt to come through by the sound of it. But at least I feel something is being done.
Good luck for getting home tomorrow Madam :robothappy: And virtual hugs to everyone else who has worries and pains (that’s probably all of us!) x
I think group hugs will be needed for a long time to come, and this is defo the place to come for them. Linzz, I’m glad you got a scan sorted out and hopefully it will put your mind at rest. I think we’ll all have wobblies from time to time, mine was a few months back when I was totally convinced I had mouth cancer. I was inconsolable at my GPs, even after he told me breast cancer doesn’t spread to your mouth. I go in on Wednesday to get the lumps cut out (3 of them) and they’ll be biopsied, and then I will relax!!! Hopefully you will too xxxxxx
Junash, sorry to hear about your unusual se. Are your teeth coming out or are they just wobbly? It amazes me the number of se we are all dealing with. I’ve just been out for a walk with my boys and the soles of my feet are gowping. I had some reiki today which was lovely, think ill book a foot massage at the hospital for next week when I’m off.
Madam, glad you’re a bit more positive today. Fingers and toes crossed you get back home to your family tomorrow xxxxx
Debtex, you have certainly had your fair share of se. I very rarely talk about how I’m feeling etc to my family and friends now, it’s become very boring, there’s only so many times i can say how old I feel these days with all my aches and pains xxxx
Linzz good luck with your scan. It sounds like you have a very caring onc who’s listened to your concerns and taken them seriously. Xxxx
Murphy hope all goes well with your surgery and you have a painless recovery xxxxx
Madam I’m so glad you got to talk to someone who put your mind at ease and i hope you get home tomorrow xxxxx
I agree with others who’ve said it’s great to have this forum to moan and share our problems. There is definitely a limit to how much friends and family can listen to. I’ve been complaining about my aches and pains for the last few days and I think my family are getting sick of it. I am in pain from my neck to my toes and everywhere in between. I’ve had to bump downstairs on my bum at times because my ankles were killing me! I’m not sure whether this is purely pain from the chemo or whether the chemo has aggravated my Fibromyalgia. I’m worried that if it has I might be like this permanently it’s really getting me down now. I’m taking all 9f my usual pain meds but they don’t seem to be having any effect at all. Rant over lol. I’m definitely joining in the group hug and I’m hugging all of you and hoping any SEs you’re having are as minimal as possible xxxxx
On a brighter note I have eyebrows and eyelashes yay!! I didn’t realise how much I’d miss them xxx
Good luck for your wee op tomorrow Murphy. I hope the biopsy results come back quickly so you can put this scare behind you. Lainie I’m so sorry to hear you are in such pain. I am crap at dealing with pain and when my back hurts I always wonder if this is what the rest of my life will be like. It has always got better (touch wood) and I think yours will too. It’s very hard to see beyond the now isn’t it?
I would agree about complaint-fatigue setting in. My OH hasn’t even asked how I got on at my appt yesterday and so I haven’t mentioned it. I can see him tune out sometimes when I’ve got started. He’s been marvellous, but he’s like everyone else - thinks now that I’m back at work it’s all over. Wish that was true.
Work is whole other issue. Chemo laid such waste to my digestive system that I am finding it physically impossible to get out the house at a decent time in the morning. Sore back and flushes are keeping me awake at nights too. I am meant to be back up to full time hours within the next couple of weeks. Not sure how I’m going to manage it.
But, as Lainie says - there is a bright side - eyebrows and lashes. Mine are getting really long now and I am loving them. Going to try to get to the hairdresser this week too. It’s still thin and overly short on top but the sides and neck need attention so I’ll get her to tidy it up. She can take off a quarter inch round my ears and it’ll feel like the best haircut ever :robothappy:
Murphy , hope ur procedure is really quick and easy , x
I have found a bit of respite for my bad foot .? The answer is to move it constantly ! This stops the nerves from going into a spasm . … Just don’t sit near my at the Cinema … Fidget !
Yes compassion fatigue well and truly taking hold now , but there are always new people to bore ! Only kidding I’m going to rein my moaning in from now on. Years ago my mum and mum in law used to try to top trump each other with their ailments and it used to drive me crazy , I don’t want to end up like that ? X
Hi ladies. I’m just back from having my nipples tattooed lol. I didn’t feel it as my breasts are mostly numb. I just had a quick look at them before they put dressings on them and it’s nice to feel a bit more normal. ??
Hope everyone is feeling ok xxxx
Good news lainie g . Great it didn’t hurt x
Excellent LainiG - must have been a bit surreal!
It felt very surreal Linzz. It was very strange discussing size and colour with the doc lol xxx
Happy birthday AMDriver and welcome to the Podium :robothappy: People really have no idea do they? So far I have managed not to thump anyone. Given a few hard stares though LOL
Happy birthday AMDriver and congratulations on joining us on the podium. I think i would have found it difficult to keep myself from thumping your acquaintance. Some people have no clue!!
Madam hope you’re feeling better soon. It sounds so sore!! It’s a hard road but it will be worth it. Just keep thinking of the end result. Xxxx
Happy birthday am driver and welcome to the podium . I had to laugh at the comment your acquitance made omg !! One of my dad’s interfering neighbours in the sheltered accommodation (who seems to disapprove of my lack of visits over the last few months )told him that 'chemo is easy these days , it’s not like it used to be ’ just to hammer the point home !
Wow not been on for a while lots been happening by the sounds of it, happy birthday AMdriver and well done on finishing rads and joining the podium.
Hope your ok jingo and not in too much pain i wish u a speedy recovery. So glad your boy is ok what a worry xx
Great news lainieG on your new tattoos and feeling abit more normal pleased it didnt hurt.
Bettypoppit know what you mean about eyebrows im so pleased mine are back to they seemed to grow all of a sudden and stopped pencilling them on now lashes are coming on too.
Im back at work now and some days i feel like ive not been through the last 10 months and then other days it hits me just had my appoontment through for next mri scan and in a way dreading it and the results even though my onc said the cancer is out. Still struggling with night sweats and numb toes but tamoxifen seems to be going ok up to now.
Im having my post treatment party on sat night at home really looking forward to having all my friends round to celebrate xxxx hugs to everyone xxx
Jingo I’ve just read your post . I’m gob smacked . You must have been beside yourself . Sending all best wishes and love to you and your family xxxx
Jingo hope you’re not in too much pain and what a nightmare it must have been to see your son go through something like that! I hope you’re both ok. Thinking of you and sending hugs xxx