Happy birthday Murphy. Nice to hear you’re being spoiled. Xx
Peta it’s great to hear your daughter is getting a lovely new flat. You have such a positive attitude and it’s so true that worrying about how long we’re going to live means that we’re not living for now. It’s great to hear your daughter’s story. She’s shown that docs don’t know everything and it’s possible to beat the odds. Xxx
Peta, what a trouper you are and i guess your daughter Mollie got a huge slice too…how utterly fantastic that she continues to defy the drs and is getting on with her life. Thank you for sharing. xx
I do hope that those posse that are struggling soon get some respite from any pain, soreness, discomfort and black thoughts xx
I forgot to say Happy Birthday Murphy!
Happy Birthday, I hope you had a really lovely day.
Thanks Linzz, I’m really fretting about what to wear. Knowing to wear something warm helps! I get cold really easily too. I’ll dress snug.
I’m glad your feet seem to be improving Debtex.
Have a good day tomorrow everyone. X
Thanks very much for the birthday wishes. I’ve had a lovely day even though I’ve been at work. Had loads of nice messages, cards and presents. Very lucky lady!!!
Linzz, I’ve read joint pain in your hands and feet is a se from zoladex. Like you say, if it’s only for a couple of days it’s bearable. I don’t know if taking letrozole also, which affects the joints too, is why I’m so sore. Who knows!!! Even wriggling my toes is painful 
PETA, happy new flat to your daughter. You must be very proud of her, especially defying all the odds stacked against her. We all want our kids to be happy and healthy, it certainly puts things into perspective xxxx. I hope you have a lovely time north of the border. I would agree with linzz though, if I were you I’d be opting for something cosy!!! I love the Borders, I use to live quite near Selkirk, use to go there to get my hair done many moons ago.
AM Driver, I also get weird pains in my boob. It’s really hard to explain what it feels like but it definitely feels different to the inside of my other boob. It’s like it doesn’t have the same elesticity inside as the good boob when I stretch. I hope your skin is getting better. It must be very painful. I don’t think there’s any rhyme or reason who gets the broken skin and who doesn’t during rads, poor you xxxx
Hope everything goes ok tomorrow jingo, will be thinking about you xxxx
Jingo I’m glad your wee boys condition should be manageable. What a relief for you. But what a shock to find another cancer! I know you don’t feel like it just now but it is a good thing that you had the second breast removed. How different things could’ve been if it had been found at your screening. I don’t know what else to say. I know you’re probably feeling down just now. I hope this is the end of it for you now and hiking of you for your results tomorrow ?
Ruddy nora Jingo! Fingers crossed for your further results tomorrow and for any additional treatment to be minimal - or not needed at all xxx
Jingo firstly a relief about your little mans heart condition thats it can be well managed - brilliant.
Terrible shock for you - four cancers BUT they’re gone, you listened to your gut feeling so well done, must have taken some strength to persuade the powers that be to carry out a double mastectomy.
My mastectomy boob had three seperate tumours of differing grade and size. My ‘healthy’ boob had some DCIS which they removed with clear margins - I wanted them to perform a double mastectomy but they said it wasn’t necessary - so at mo have my implant perky and my naturally saggy - huge size difference. A double would have been psychologically better for me but ho hum.
Sitting in hosp at mo for hormonal blood tests and then onto rads - no 15 out of 25.
Peta I’m having rads at Maidstone hosp as its nearer to home and I’m still signed off work. Think you for sharing about Mollie - certainly puts things in perspective - I’ve been wallowing a bit recently but think coming out the otherside. Hope Mollie is enjoying her new flat and is nice and settled
Madam hope today goes ok.
Love to the posse xx
Jingo, fantastic news for you today, both about your little man and yourself. You must’ve been beside yourself but hopefully you’ll be able to relax a wee bit now that things are under control Xxx
Madam, sorry to hear of your problems after your mastectomy. Great that you’re able to meet up with an old friend though, although the circumstances are pants.
I had appointment with my GP yesterday to go over points from my oncology appointment a couple of weeks ago. The oncologist had wrote to him to say if I couldn’t tolerate letrozole at the 6 month mark I was to be changed to another AI. I told him my thinking was that letrozole must surely be the better drug else why is this the one we all hear about, so I would prefer to persevere as long as possible. Anyway I told him I had been researching and have found one of the branded ones seem to have a good write up - femara. So he’s prescribed this specific one and hopefully, sore fingers and toes crossed, it turns out to be the right one for me. Linzz, the nurse is off on hols this week so my GP was giving me my zoladex injection. I lay on the bed and he was just about to stab me and I shot off the bed, woooo what about the lidocaine spray to numb my tummy!!! I’ve not moved so quick in a long time, he nearly had a heart attack with the fright. He said he’s use to giving men this injection for prostate cancer and he doesn’t usually use the spray, obviously us women aren’t as brave!!
I was at glasgow today having my bone density scan. Results in a couple of weeks.
Hope everyone else is doing ok. I’m loving seeing everyone’s new hair pics on our facebook page xxxxx
Great news on all fronts Jingo!
Murphy, that really did make me laugh. I don’t see why we should put up with pain if we don’t have to. I’ve got emla cream on my repeat script and last time I put it on 2 hours ahead of time and didn’t feel a thing. The CT I’m getting next month is with contrast which I think will include a cannula. Tempted to put some cream on ahead of that too!
I’m agog jingo , thank god the bloody thing is
’ in the bin ’ as my surgeon once said . Best wishes to you and I do hope your son is doing well . Madam fingers xd you heal quickly and that the horrid haematoma is quick to resolve . Peta loved hearing about Molly , hope she loves her shiny new place ! Murphy happy belated Birthday x . Me ? Feet sloooooowly improving but still drugged up in the mornings due to the amytriptylline . Oh at my recent meeting with work to discuss my return , I was asked by my manager … Are they sure they have zapped everything that needs zapping ? … Words fail me ! I just said … You would hope so wouldn’t you ! God what a bloody laugh ! Love to all xx
Bettypoppit, I expect fatigue is like other side effects, in that affects some more than others, for no apparent reason. I wouldn’t describe myself as fatigued but I fall asleep every night on the sofa and then go to bed really early. My poor OH is a bit fed up as I never manage to see the end of anything we’re watching on TV and am always asking “what happened?”. Yet here I am up at 5 am today (stressed about moving offices today - great timing).
I know you will be asking your onc about it today, but I’ve read about people who were struggling with fatigue in the months after treatment and eventually found they were anaemic (or had low levels of other things I’m afraid I can’t recall) and after getting that minor condition sorted they felt so much better. If your onc tries to reassure you it’s “just” fatigue you could at least explore whether there is anything they can check for? (For instance I later found out that during treatment I had been mildly anaemic but they did nothing about it as I wasn’t bad enough to need a transfusion. I’d have appreciated some efforts to make me feel better, or even an explanation of why I was so darn tired all the time would have helped!).
Good luck today x
Hi Codiesue, thanks for your post. I have to say I was aghast when he said yes to it (without me having to plead!!!). I don’t think he knows that it costs so much, he wasn’t aware of this particular brand, and his drop down menu on his computer for prescribing meds didn’t mention it, he had to look up his MIMS!!! I knew it was expensive but didn’t realise how much. I’m just off to the pharmacy to pick it up so will let you know how I get on with it xxxx
Codiesue, your GP was spot on. Just been to pharmacist and £4.20 per month for generic letrozole and £84.86 per month for femara!!! Aaaaaaggghhh, I know he’ll stop them when he finds out xx
Codiesue, I started letrozole middle of January (so 17 weeks), and for me the symptoms from se have got progressively worse. We’re all different though so hopefully yours will settle down xx
Re the eye problems I mentioned earlier. I went to the opticians today and she made me an emergency appointment at the eye hospital for this afternoon. I have optic neuritis which is inflammation of the optic nerve. My field of vision is seriously compromised in one eye. The doctor isn’t sure what’s causing it and is going to speak to the consultant tomorrow and then contact me. I’m also being referred to a neuro opthalmologist. They also took blood!! Bloody needles!! Thought I was finished with hospitals and needles for a while. ??
Oh cr*p LainieG! I hope they work out what’s going on and start treatment to fix it for you asap 
I’m having a brain MRI to try to find out what’s going on with my eye!! Not looking forward to that. Can’t believe this is happening after the last couple of years. Thought I’d had my share of hospitals and illness.
Lainie its completely c••p, hang in there, we’re all with you. Whrn is the MRI? xxx
Oh crap lainie . I wonder if that is like the peripheral neuropathy type thing only in your eye ? I hope it’s one of those things that rectify on it’s own . Bloody needles , I’ve gone quite needle phobic too now .
I am bidding for the ’ most bizarre se now ! ’ … I get songs lodged in my head for weeks and weeks , it’s so bizarre and quite annoying ! When I was very poorly on docetaxel and in a and e I had Rage against the machines 'killing in the name of ’ going round and round in my head . I’m not sure if anyone is familiar with their work , it’s good but combative rappy anti everything ! Not very soothing . The inner song has changed now but I almost dread listening to anything in case it gets stuck on repeat play in my head again .
I don’t have a date yet Junash. They’re going to contact me to arrange it. Xx
Debtex that’s def the strangest side effect lol. Must be very annoying xx