Starting Epi-CMF 9th October buddies needed

ps whereabouts do you all live - we ought to meet up

Hi,
glad to hear you all stomping through the appointments now. I always think the second half seems to speed up, except on cmf when it positively chugs along like a Morris Minor. Carol enjoy the week off and hope you are ok when you go back. How are you finding cmf? Hope it is kinder than epi to you.BTW I live near Chelmsford in Essex.
Carmel, hope you had a nice holiday and fab to be on your last cycle. Work will be looming before you know it!Good for you, for enjoying the ski trip and sure the mountain air was a real tonic too.
Depends where the aches and pains are and if they continue to whether they are just routine. You can always phone and check if worried.I am stiff in the mornings but that is a side effect of the tamoxifen apparently. Lalala half way through rads, well done. I know what you mean about going every day, it was the journey that got me and having to permanently have change for the car park each day.I found returning to school exciting, enjoyable but surprised how tired it made me. I went back just before the holiday so I didn’t have to do a big 7 week run. I started on a Thursday so just 2 days before the weekend. Do what is right for you.
Hi everyone else, hope things are ok with you
Lily x

lilly your posts are always so encouraging. Thanks for that. its late now so im off to bed. Just wanted to pop in and say hi. I live up north in yorkshire.
xx carmel

Hi everyone - meeting may be tricky as I’m in Hampshire - cyber meetings are good!! Good luck to everyone this week - I’ve been catching up on sleep after hectic 2 weeks - so it worked well having a week off chemo. We’ll see how my bloods are today! I’ve been trying to find out what my boss thinks about a 3 day week after rads - no reply!!
xx

Hope you’re all quiet as you’re beginning to move on and get on with the next step/end of treatment. Yippee cmf 3a done today - only 3 more to go. Feel rubbish now so I’m off to pop some more pills
x

Hi,
well done Carol, you are really getting on now and good luck for the blood counts and another one hopefully out of the way. Well it is tough luck on your boss because once you have a cancer dx, you are covered by the disability act so that tends to make them back down and be more reasonable. Hope you feel a bit brighter when you read this x. Carmel it is much easier to be jolly once the last chemo is out of your system,and you are getting closer every day. Chin up. The strange thing is you forget the worst bits quite quickly afterwards. Oh no that must be the chemo brain again!!!LOL.
Love
Lily (still a bit foggy) x

hang in there carol!!! Im going to the younger womens forum tomorrow so really looking forward to that. Night away and hopefully a chance to get some info on reconstuction. let you know how i get on.
xx to all
carmel

Good luck carmel - let us know how it goes
xx

Hi everyone,

Sorry not been on for a while but life seemed to get hectic for a while when I was going to hospital for rads every day. I had my last one on Tuesday so am at the end of treatment … at last! I just have to take care of skin on boob for a couple more weeks - but it isn’t too bad, just a bit red and itchy/sore, but not raw - thanks to Lily with advice about making sure skin didn’t rub together :slight_smile:

I hope all is ok with everyone - Carol you must be near to finishing cmf now? and Carmel have you finished?? Radiotherapy is so much easier than chemo. It took a while for chemo drugs to wear off, but now am feeling stronger every day and am even beginning to look forward to return to work after Easter. I have to have a meeting with occupational health soon to sort out details of phased return.

Big hugs all round! S x

Hi everyone i having been on for a while so going have to catch up as everyone moving along quick.
Just had my day 1 of 3rd cmf as had to take aweek off for a infection made me alittle bit sad as my last one now hits on easter and they told me i will be delayed a week than also, never mind my bloods were good a part from i need to eat more greens.

Just seen i note today that they recomended me going on femera homones has anyone else had these?

Well going try eat something and strip off as the hot flushes are really bad and thats before i take the hormones.

All take care
poppet x

Hi ladies
Sheelagh such good news that you have finished - yippee!! Thought we were getting a bit thin on the ground!! Poppet - looks like it’s just you and me left - I’ve 2 more cmf and counting the days till they’re done - 12 chemo in total. The beautiful weather helps - glad we’re not heading into winter. Still struggle with the rest of the world carrying on while I feel in a vacuum. Not long to go - hope we’ll all catch up on another thread when we’re out of chemo.
Hugs xx

hello to poppet and carol particularly as you are still on chemo. Im getting better now but feet are still sore after last cycle, which i completed this week!!! Can’t believe iv done it. what an ordeal. Iv joined a slim club that im not very good at attending to loose my chemo weight and get into better shape for rads which start in a month. I feel i have a bit of respite now so intend to make most of it.

I went to the young womens forum which was a lovely opportunity to meet others in our position. At times it was a bit lecturey, which was difficult as my concentration isn’t what it was - to say the least. But i met some superstars!
I found a talk given by a female onco-plastic surgeon about recon options particuarly valuable. She was so approachable and knowledgeable. The forum was worth it even just for her.
All might go a bit quiet on here i guess as we get to the end so I must try and come on to encourage you two for the last bit!!!
not long now
xx carmel

Hi all
Well everybody seems like they are moving along nicely well done.

I been in the garden today as it be really lovely in sunny Durham
had a ordeal with a toad which has been in the garden for years but now it has decide it quite liked my foot may be its attracted to me as i have the short hair the fatty look and my skin is so dry or may be its prince charming.lol

Off for bloods tommorrow to have day8 of 3rd chemo but tonight have aburning when going to toilet i can not beleive it (oh i sound like victor meldrew)its all seems to be on last few chemos.

Hope that your last one goes well Carol I never thought i would be able to go on at xmas because i felt so ill but here we arenearing the finishing line.

Take Care all

Poppet x

Hi girls

Sorry I haven’t been on for so long. I think I’m trying to come to terms with the finish of treatment and moving back to a normal life. Every little ache or pain has seemed so threatening now that I’m not seeing the onc or chemo nurses every couple of weeks. Anyway I must learn to trust my body more. I’ve been back to work for my return interview, and will be starting a phased return the week after Easter. Not long now. I started on the Tamoxifen just over a week ago and seem to be suffering from water retention. I went to the drs on Monday and she asked for a blood test to be done. The nurses at the surgery had three attempts and then told me to go back again on Friday. Nothing changes, perhaps they’ll manage to persuade my veins to cooperate on Friday.

Glad that you’re all nearly at the end of the long road now. Pity about your delay Poppet but at least it will give you more time to recover. Take care everyone

Jackie

Hi,
just popped on to cheer on the late runners and say you are doing really well and before you know it, you will be on the next delight, rads. Poppet unfortunately it sounds like cystitis and you might need antibiotics. Not sure whether they would let you have a dose with an infection, so good luck.
Jackie I know whta you mean. I felt like I lost my comfort blanket and still do some days. My mammos are set for a year after surgery so this April and that will make me have a bit of a wobble I know. I get checked every 12 weeks currently, alternating between the surgeon and the onc but in between I check myself constantly. Hope after the mammos I will chill out a bit too. Don’t you just hate needles now it should all be finished? Hoep they sort your fluid out
Lily x

Hi all
Well managed to get my 3rd chemo they dont know why i have blood and high protein in my urine onc said thought it was the c reacting on bladder, i find my onc not very reasurring at all i have a swelling been under my arm for a couple of months and it get tender after chemo and not one person has examined me since surgery in sept.

I get 4 weeks before my last one as i have a weeks delay for Easter so i am going make the most of it as OH on holiday so if alls ok might go away for a weekend to cheer me up.

Well chemo brain setting in and bubbly tummy so it sickness tablet a big drink and of to bed for a hopefully nice sleep.

Well done to everyone making the move back to doing normal everyday stuff.

Take care all
Poppet x

Hi,
Poppet, feel for you and hope this latest dose passes soon and you feel brighter. If you are concerned about the swelling, phone the Bc nurse or speak to someone when you are feeling better. It might be lymphoedema.
take care and ask when you will be checked just in case you got missed out accidentally. good luck
Lily x

hi
Thanks lily you always pull through with a reassuring comment.
I am going mentioned it again at my next chemo as i get my referrl then for rads and i want to know all is ok for that and it won’t cause me any problems.
Take care poppet x

Hi everyone
Have just had LAST chemo yey!!! Cannot believe I’ve done 12 - what a long road it’s been. Not sure if there’s anyone around still - if there is hope you’re ok & good luck with the rest of chemo - see you on the rads thread??
xx

Well done for getting to the end of chemo Carol! - shame you still have one left Poppet. Mine were strung out because of infection problems towards the end and it seemed to go on forever.

I’m feeling fit and ‘normal’. Boob has healed after radiotherapy and have started exercising again - yea! Starting back to work part time after Easter, but my timetable is very gentle so not much planning needed, for which I am very grateful.

Take care all and best wishes for a Happy Easter.

S x