i have bloods working day before cemo, ie frday and cemo on monday.
this time will be bloods thur 29th cemo 30th
litle angel, your walsall, im bromsgrove, so we are not far from each other, how about a meet when the snow has gone huuny xxx
hugs to all else.
wrapping is done, only took 5 hours, thats the girls things off santa too. and i loved it. i thought this is what my mom and dad did for me years ago. . not having my own kids i think its ace that andy is sharing all this with me, however i think it wasnt hard for him to let me take over the wrapping, lol i had a glass of wine, mince pie and put on a xmas cd. i love being me at the moment. im really happpy. and at times i forget all about bc
Poppy, Little Angel…coffee/lunch in Brum when the sales are over? Big hugs LA.
Lou, I asked about 3/4 weekly tax as SEs are less…but my onc said that’s for paclitaxel as the results are better with that drug on that regime. I think the standard docetaxel is the one most are on?
If mega dex is the norm and there is no alternative then tax is going to be a non-starter for me as I was really unwell on 12mg. Need to decide soon.
Morning…yawn.
Big hugs to sophie and little angel.
Kaz - glad u are in a goof place:)
Big hugs to everyone else :)))))))
I have a cold:( runny nose keeps waking me up-yak! Mind you at least i dont get snot in my hair, every cloud, lol!
Went for an ultrasound on monday, the lady doing it was very uncommittal when i asked if my ‘lump’ was shrinking, i was hoping that i would be a miracle, and cured. Laughable, really, how unrealsitic i was being!!! The clinical director came in to have a feel too, she asked how i was getting on with my chemo-told her it was the crapest thing ever-my bad!!! Didnt have my brave face with me. Am sure she will write ‘awkward customer’ on my notes!
Need to brave tesco’s today, ew!!!
Scared the window cleaner with baldness-he nearly fell off his ladder, last time he saw me i had hair!!!
Massive hugs to all you wonderful ladies, inspiring, encouraging, poetic and just a lttle bit mad!!!
kerry xxxx
Morning girls. You’re up early Mrs B. Good luck in tescos. I’ve got to pop in later to change something bur will have to psyche myself up first.
I too thought my lump would miraculously disappear but doesn’t seem much different. Hoping that after 3 Fec it will be smaller and they’ll keep me in that. Dont like t sound of Tax.
Hope everyone is feeling a bit better today.
Little angel how are you today? Thinking of you.
Good luck Lif. Xx
Polly xx
Morning girls. You’re up early Mrs B. Good luck in Tesco. I’ve got to pop in later to change something but have to psyche myself up first. Think we should have a pink priority pass for t shops. IRS only fair.
I too thought my lump would have miraculously shrunk but doesn’t seem much diff yet. Hoping to stay on Fec n not change to Tax.
Hope everyone is feeling a bit better today.
Little angel how are you today? Thinking of you.
Good luck Lif. And everyone else having things done today.
Polly xxx
morning all -I feel a bit better this AM but not sure how long it will last - I wake up seeming OK then by about 10am I am flaked again. Think I am like yoiu SOphie with the no energy thing - Have a lovely CT scan to look forward to today - what christmasssy fun!!! & yesterday found out daughter has to have patching to try to correct slightly lazy eye so am very upset - I had this as a child- 2 ops & life in glasses until I had mine zapped 2 years ago -HATED it so am very anxious she will end up in glasses. got very upset last night - what a F****** legacy I am passing on- breast cancer to scare her & now my squint! & yes I am feeling sorry for myself & being self indulgent but I am FED UP with all of this CRAP we just don’tneed that on top of everything else rightnow.
Little angel - so sorry your daughter is behaving as she is - no excuse unless it is fear???
my unit still does a 10 day bloods to check your nutrophil levels to warn if they are low in the middle but apparently most have stopped doing it??? I have normal ones 2 days before next dose (can’t bring myself to think about that Yeuch!!! - & as for TAX - god knows what that will be like- betterr, worse, different - again we are all a bit varied in our effects so will wait & see but will be stocking up on my GP’s laissaiz fair attitude & getting buckets of tramadol
This is dancingirl’s son, she asked me to write a message on here as she has been in hospital (oncology ward) since monday with what seems to be an infection in the abdomen. She had stomach pain on Sunday and thought she was bloated but woke up on Monday it was much worse. They are looking after her and treating with antibiotics and her immune system seems to be fighting it well. She was due to have first TAX today but it will be postponed. I think she is missing you all.
To dancing girl’s son - thank you so much for taking the time to post on here and let us know about your mum. If you check back, please, please pass on my love to her, my hopes that she gets rapidly better with the antibiotics, and that she is back home safely very soon. Saying ‘have a lovely Christmas’ seems silly - but I do hope you all do - and here’s to a much, much better celebration this time next year.
Yes, thanks so much for posting dancing girl’s son. So hope she feels better really soon and thanks for letting us know. And here’s to a proper Christmas for all of us next year xxx
(shhhhhhhhhh, whisper it quietly… I think I’m turning the corner… feeling just a smidgeon better at mo, so going to sneak off and get some stuff done!!)
Sophie - glad to hear you’re feeling a bit better. Make sure you have a nap after getting something done.
Dancing Girl’s son - hope your mum continues to improve and can be home by Christmas. Delaying the TAX might mean she has a better Christmas.
Little Angel - I hope things are improving. Teenagers can be very self-centered and very selfish. At some time when things are calm can you point out that you didn’t ask for or want this cr*ppy disease and their help in fighting it would be good. The 3 of you against BC should get it sorted. Maybe they feel you are fighting it alone and they have no part in it. As one who posts the silly poems and carols, they’re only a diversion. The real purpose of the forums is that you have friends here, so do post whenever you’re down. You have to tell someone how you feel, and we care.
Kaz - great that you’re getting into the Christmas mood. My lovely mum and dad are here for Christmas but I am not feeling very Christmassy. I think my hair is going to fall out after Monday’s FEC, despite cold cap and I can feel my mouth getting sorer. I also shouted at my lovely husband last night for no reason. He was OK about it though.
Summer - I have my bloods done Friday before Monday FEC. Had to have them re-done this time as they were too low on Friday. They were OK Monday though.
Hi all! Hugs to littleangel and Sophie-extra festive ones with bells on too!
Am now Day 6 post FEC 2 and feeling good except for the pain in my blinking PICC arm-it’s very ouchy but if thats the most I can complain about it can’t be bad! Emend has made a real difference and aside from succumbing to the overwhelming tiredness no sickness to mention and worked really hard keeping the fluids up this time even though I seem to go off tea (weird) and no chemo headaches either (the wine last night definitely helped!!) Having a bit of a nightmare keeping my PICC dry and got some shoddy thing from Boots which wasn’t good enough even when using clingfilm too! Spoke to PICC nurse and she has recommended limboproducts.co.uk as they do a fully submersible cover which her patients rave about-so there’s a little tip for any fellow PICCers!
Hope all FECcers and TAXers from last week and this week are coming through the fog for Christmas Day! Xxx
thansk for keeping us posted for dancing girl & hope she feels much better soon
em - I meant to post about the limbo arm cover - sorry - limboproducts.co.uk/
I got one & it does exactly what it says on the tin - about £15 inc postage but well worth it - the boots one was rubbish & really uncomfortable. - this is mainly for showering but does for the bath too - stays completely dry & much less cumbersome - can’t believe we don’t get issued one as part of the treatment!!!
sophie - I too am in the cloud lifting phase - feel so much more alive today - CT scan fine but was FREEZING at hosp - they thought it was anxiety & didn’t believe me when I said it wasn’t - BUT IT WASN’T. I sat outside the room looking like a homeless person with gown, socks, shoes, dressing gown - then cardi, 2 coats, scarf, hat & gloves on - amazing how much I don’t give a damn what I look like now - as long as I’m comfortable I really don’t care a hoot.
now OH has to take daughter to docs this PM cos she woke in the night saying her ear hurt so we are in precautionary mode before christmas & not taking chances - OH being brilliant self & sorting everything for her - he went in with her last night & ended up staying!!!
actually starting to believe I will have a nice christmas now - KAZ you sounded very jolly it so cheered me up & the poems are fab
XXXXXXXXXXXXXXXXXX
Thinking of you dancing girl - hope you’re on the mend.
Hugs to all who feel like a bag of crap, well done to those seeing some light at the end of yet another tunnel.
Kaz - a lovely post. We will all have a few of those days hopefully.
Took my head accessory for its first public performance last night - my works Christmas party. It behaved very well. I had butterflies beforehand and nearly bottled it but forced myself to go - and had a great time. Everyone loved the ‘new look’. In all honesty the ‘w’ is better than my real hair was.
Anyway - this morning I have a cold sore. No big deal - but I’m day 9 so may need antiviral tabs. All such a drag.
Must do something constructive about Christmas now, but just to procrastinate further, here is a little ditty to the tune of Away in a Manger. Sing along pinkies…
A dog-in-a-manger
I just want my bed.
So tired I just need
to lay down my bald head
My OH says ‘night-cap?’
But I shake my head.
Those days are well gone I
just wear one instead
Now OH is snoring
And I’m still awake
Its 4 in the morn and
feel sick for FECs sake.
Be near me dear sick bowl
I ask thee to stay.
And stay by my side
until night becomes day.
hope you are well as could be big hug for those feeling a bit crap. Ive been out today and done the food shopping for christmas. Glad thats all sorted now.
Dancing girl son
Sorry to hear that your mum is in hospital, i hope she gets better soon x
Woo woo christmas eve 2mora I am getting excited!
Take care everyone
Love the peom Dima - very good and cheered me up!!!
Im day 2 post Tax2 and just beginning to feel tired. We had friends pop by and although they mean well, if i hear “oh you look really well” or “its so good to hear you’re so positive” i will scream. I know they only mean well, and i would be saying that same thing if i was them its just hard to hear it at the moment,…
Dancing girl - hope you feel better soon and you get home for Christmas. Thanks to you and your son for letting us know what’s happening.
Little Angel - so sorry you are having such a rough time with your daughters. They must be scared and it’s been a tough couple of years for your family but she is 18 and should be more supportive.
Sophie /Jo - glad you’re starting to feel better.
Emma - hope your line gets to be a bit more comfy soon. How’s that puppy of yours behaving?
Dima - love the poem although OH is complaining about the raucous noise each time I try to sing one of these poems.
LiF - hope the Tax has gone ok. Thinking of you.
Everyone else - big hugs. It’s been a few days with too many pages to catch up on hampered by a brain that can no longer hold more than half a thought at a time.
Bloods - I have mine checked the Monday before chemo on the Wednesday.
Well I went for a wig fitting today and ended up feeling so sorry for the poor girl whose job it was to fix me up. Turns out I have a small head and everything just looked like enormous hair with space in the back for a small party. We must have tried 30+ wigs and she was starting to get desperate and I was coming to the conclusion that I’d definately be spending the next few months wearing buffs. Anyway I came away with something, which sadly looks pretty similar to my old hair (I was hoping for a whole new look, apart from the billard ball look). I’m going to have to go back and have the fringe cut but I’m not too sure about it and the dogs are taking far too much interest in it.