Hi!
Had 2nd weekly tax today. Took a friend as OH had to work and she really took my mind off it as talked to me the whole time (OH and I tend to run out of conversation after a while!) Was a lot easier as well as I have dispensed with the cold cap (just too painful cos of the thinning hair) and therefore I wasn’t there as long. Went a nice hot choc. and big slab of cake after!
Kaz - just wanted to mention that the nurse had a bit of trouble getting any blood for my blood tests first thing and did say that if you are not well hydrated that can make a difference, so make sure you drink plenty of water in the morning. may also apply to Janette for tomorrow?
Kimmie - only one left - FAB! Feeling very envious as still got 10 weeks. Ang - well done, another one off the list! LIF - glad you’re feeling better today.
Trish - I had flu jab five days before last treatment and no se’s at all, so I’d go for it if I were you. Just check on the best time to have it.
Am feeling better…except for my poor mouth! No ulcers but feels like I have used acid as a mouthwash. I looked up what could be done and its called mucositis…so have started a thread on it coz I think its a serious issue that the oncs, nurses and docs just don’t take seriously!
Take a look at what I have put there and contribute if you know more!
Hi
Haven’t been around for a few days and although reading through posts, haven’t had anything much to say. Christmas has never been my favourite time of year, and although had a good time with the family and many laughs, am really glad it is over - sorry to be a bit bah humbug.
To all having treatment - hope it goes ok xx
To all those feeling less than tickety boo - hugs xx
Will be looking at the thread for sore mouths cos although I don’t have ulcers either, they sound almost preferable to the soreness that I have!
Have flu jab booked for tomorrow, as my chemo nurse was surprised I hadn’t been told to have one before I started…ideally it should be given 7 days before next chemo (FEC) I was told. Soff I go, hope I don’t get any se’s because my last week three was ruined by a heavy cold!!
Hopefully back into “normal” life now, DS’s bd day after FEC3, so going out for dinner the night before, because although the anti-nausea meds were brilliant last time, don’t want to have to cancel on him at the last moment, as he has been absolutely brilliant the past few weeks.
Hi
had a foul cold last time, but bloods ok enough to have it done, I was relieved because although don’t want it done, don’t want it postponed either as it drags it out!
Water and veins = very good - as I found out when I donated blood with crappy veins, make a huge difference.
Ang-1969- I had the flu jab with no adverse reaction after a GP friend of mine suggested it. My onc nurse told me to time it so that it was not just before another chemo, because otherwise the chemo can kill the vaccine.
By the way, is that your birth year? Mine too if so!
Poppy333- have had awful phlebitis - with horrid hard veins. Onc told me to take ibuprofen, and apply ice-packs. I was a bit sceptical, but actually the cool packs have really helped. Good luck,
Tracey
good luck kaz, kimmie and little angel for your fec and tax today…big hugs little angel you can do it, you’ll be one step closer to the end.
Kaz - hope your veins feel better soon, I’ve got a bruise that follows my vein halfway up my arm and was told the ‘E’ does it.
I know what you mean about the be positive comments, I do believe in positivity but I also believe that in order to be positive you have to talk about and let go of your negative feelings…I had a good cry for nearly an hour on Xmas eve but I was so happy on Xmas day I’m glad I got it out…so feel however you want to fell and big hugs however your are feeling. Rant over
Great idea for the tattoo…get pink ribbons like a chain around your arm…my BCN said lots of people do it to stop things happening in an emergency.
my dad decided to send me what can only be described as a eulogy for Christmas, am guessing he isn’t dealing with this well, but given we’ve been pretty much estranged, other than the annual phone call for Xmas which I usually make and he grumbles at, for the past 15 years since the parents did the split I really don’t know how to take it. Is this his way of showing he cares or that he wants to think of me as not existing? Step mum and brother have got wind of it and have given him a right kick in the butt for sending it bless them, I haven’t heard from him since so I’m thinking the latter is how he wants it.
Hi cat
Where have you been its been a while. Glad your ok and seem in good spirits.
Glad you enjoyed your xmas. I had a wobble xmas morning couldnt be helped just wanted to feel normal again.
Had my 5th treatment yesterday so 1 left just hope the tax se’s are kinder this time round.
Im lucky i think my family know me so wont be besieged with positivity messages they drive me crackers i have recieved a lot of health and happiness messages which i dont mind so much i know people mean well.
Hair is falling, all around me, children playing, having fun…
Actually, bit of an overstatement - but hair is starting to come away now when I run my hands through it - particularly on right hand side of my head, for some strange reason. It is a bit of a shocker, isn’t it? Though the hair loss really hasn’t worried me, it’s still a bit of a kick in the stomach when you can actually remove a fistfull of hair without it hurting… hmmmm.
Looks I’ll be getting my (temporary) mohican for New Year!!! Have to do it, and take a pic to send my mum, who nearly died when I shaved my head at 17…lmao.
good lucj janvis, and little angel for today, mrs bird, wasn’t you the same time as us too?
my friend is comming with me today as andys working, id love not to go and get it all over with. but to be honest, its number 3 already. xx
just dreading the pain that i had last time from the red drug.
been drinking loads of water and have had a lot to eat today. got period from hell too, but im glad im having one as its a good sign.
triph, sorry yoru hair is comming out ,r u going to shave it
hey cookie, where u been xx
ive been thinking of a tatoo for a while, and having it on the wrist of bad side is good idea. im going to design my own x
Tattoos…if I have to have ones that look like blackheads I’m going to have a real one to join the dots…
Thinking of having the words ‘yes there are two’ or ‘seen by a thousand so what you looking at’ or ‘and yes they are odd sizes’ put on…
Hey kimmie
yay your almost done! Well done. Have been under drs lock and key after last treatment, finally let loose for christmas (freeedom !) and feeling better. Glad to be starting Tax next week with hopefully an easier ride.
Cross fingers the s/es better for you this time!
Big hugs
cat xx
kaz - good luck today, can you ask for a whole nag of fluid after the E, it may help. Hehe know what you mean about the period, think it is only time I have ever actually wanted one, such a relief! Xx
lif - LOL, i was thnking of hands off, a lot of work has gone into these!
Kaz - hope today goes easier for you, with no more vein pain!
Re: tattoo - think I’ll have to have tat done on ‘good’ arm, as if can’t take bloods from left arm due to lymph. risk, don’t think tattoo would be very good idea! But can have it on right wrist with warnings relating to left… just have to work out the shorthand for the warnings!!! F*** BC in chinese sounds appealing, too LiF!
Re critical illness - was in seeing a very nice man from the bank today and what I thought was an interesting fact is that the average length of a critical illness policy is 5 years before a claim is made. Just shows there’s a lot of nasty things out there. However the money was put into a different bank and I wanted to double check I could draw on it but could have punched the girl in the mouth as she kept going on about winning the lottery and how lovely it must be to have such a wind fall etc etc. Like **** it is, thinks I. I’d much prefer to continue paying the mortage than having BC you ******.
Kaz - hope it’s gone ok today and they didn’t have too much trouble with your veins.
LiF - love the tattoo statements. Reminds of the first time I saw the onc pre-chemo and was put in a room and automatically took my top off to bare all and when he walked in he said “you can get dressed I don’t need to see the operations sites”. Felt a right wally but just shows I’ll bare all for anyone unasked for these days although if bored you could have a game of noughts and crosses on my chest.
Sophie sounds like the do it yourself mohican is on its way. Hugs
Little Angel - hope the kids are behaving and giving you a little less grief
Hugs to everyone and I hope those who’ve had another dose this week are doing ok.
Have been trying very hard to feel well but actully feel crap. Ache all over still, feel like I have drunk acid all down my digestive system with stomach and intestinal cramps. mouth is the worst…no ulcers but severe mucositis which means my mouth feels terribly burnt, including my lips. Nose streaming and painful inside and keeps bleeding.
Cannot function, go out, do anything except lay around, cannot eat anything other than cold liqueds Phoned chemo unit in tears this morning and the sister there confirmed my feeling that I should not be like this and has put on my notes that my dose must be reduced as I am tolerating this v badly. They know I’m not a person to feel sorry for myself …and I’m not but feel worse than i have ever felt in my whole life today. She could not give me anything but suggested difflam from chemist. I asked re the mouthwash on the mouth thread i started…never heard of it. So DH bought difflam and it has made no difference to the pain at all…
Phoned Boots…yes they could get the mouthwash I need…no I don’t need a prescription…but if I want to try my GP to see if its on the list of stuff they can precribe I can try!..or they can get it by next week for about £50…I could sob…and probably will…
Oh LiF I’m so sorry you are feeling so crap. It’s good you phoned the unit and they’ll reduce your dose next time but that’s not much help in the short term. I hope you get the mouth wash you need soon. Mega hugs
You poor thing I know its hard but it does get better, i’m day 10 post tax2 and my mouth definitely is better today, so you will improve… Hang on in there xxx
lif, sorry to hear your having bad time. hugs and good u rang the unit. xxxxxx
back home after fec 3, half way, yehhhh didnt have the pain like last time so was really pleased. next one 20th.
have been home an hour and have gone really anxious, like scared of whats in me, and what the se’s are gona be. got a feeling im gonna be sick. and i relaly could cry and then that would bring on a panic attack, so im trying to stay calm, hands are shaky
