jam123, that made me laff, and also very jealous, i was sooo in love with john taylor.i stalked them regularly in bham centre at central studios. and rogers mom and dad lived 5 mins form me and i used to sit outside his house. lol the best is yet to come., when they regrouped a few years ago they did a signing in bham hmv, i behaved like i was 14 again, and ran passed the security guard, and met them. lol
anyway back to serious stuff, CALLING ALL PINKIES.
im a bit worried and had a melt down today. i have pain in my lower back , a bad pain, but im wondering if its the neuro jabs im hvig daily as i read they cause bone pain. maybe ive just twisted funny and trapped a nerve, but no, not me, i have convinced myself ive secondaries in my spine , i walked the dog , in pain before andy came home and come back in tears, wig was half hanging off, (yeh, it was supposed to have been adjusted again yesterday) snot flowing freely as no nose hair., and andy had come home early… poor him, i come in, throw my wig across the room, and just cry…
been out and about today and just caught up on posts - what a fantastic lot you are - thank you for helping me to realise that what i am feeling is in fact normal. i have been chatting to a couple of friends today and it really is noticeable how differently each person relates to me - as you say, some people are able to talk about the bc and allow me to talk about it if i need to whilst others just seem to want to shut down/be positive. every one of us seems to be finding the effect on our friendships a toughie.
i hear what you sat about work LIF - this experience kind of changes your priorities doesn’t it? I have got to work cos i am on my own with my kids but i really hope that i can in time find a job that gets the balance between work and home right - few jobs seem to allow that these days - we are all running around like mad things (chickens and heads comments avoided for the chicken lovers on here!!)
hope julies husband is on the mend
i would have liked to see duran duran - and still hope that some take that tickets might just appear from somewhere but that isn’t going to happen.
my kids are at their dads tonight and i struggle even more when i am alone without them but i have just settled down with some chocolate and the laptop and eastenders is on soon so all is well.
Hi girls, as usual ive just read all the posts and promptly forgotten who i need to reply to.
Kaz, im sure your back is because of the jabs. Mine is aching too. Had one jab yesterday and the second about an hour ago. Lower back quitwe uncomfortable and i expect it will get worse. I’m more worried about getting the pain that i had under my ribs like last time but so far so good.
Lif it’s a shame you are downsizing but you work so hard you need to concentrate on getting better. In the future its onwards and upwards again if that’s what you want to do. I keep thinking about what i’ll do when all this is over. I don’t think i’ll go back as much as i was. One last Tax. You can do it! x
Sophie and Jo well done in getting another dose down. Hope you both have a comfortable night.
Kaz -the chances are it is going to be the jabs, I get backache after having them, in fact I’ve got it now. Basically we are still at the feeling crap stage that’s been going on for a long time and it’s hard when the end hasn’t been reached and still feels a long time in the future but with each passing day the goal is getting nearer.
Claire have a cozy night with the tv and chocs.
LiF It’s a hard decision to make. This whole business makes us re-evaluate our commitments. I know I’m thinking of seeing if I’ll be able to go back part time. It might not be for the rest of my career but my priorities have altered and I need to take those into account in planning the future.
The TAX has arrived!!! Weird achey feelings, very woozy and wobbly, it started yesterday and really I was fit for little at work but laid low until home time then straight to bed with a nice cup of tea and a cup cake (my Fridays were never quite like this before…!) Have taken pain killers which really help the aching.
Off on hotel break to Melton Mowbray later so hopefully will be sort of functioning…I need my strength for the hunting and gathering of pork pies!
Is there any end to the different ways we feel crap? I was thinking how Inuits are supposed to have so many words for snow and thought how we chemo-girlies need similar numbers of words to describe feeling absolutely b*******cks. My current feeling is sort of ughhhhh.
Any hoo, hope yous are all well and the side effects don’t get you too badly
xxxxx
Have a lovely weekend Sophie. Hope you dont feel too bad.
Kaz how are you today? Hope u arent feeling so down and youre less worried. My back was really achy last nite and couldn’t sleep with it. Took some tabs n managed to get to sleep. Still achy n headachy tho not too bad n I’m sure it’s the jabs. Had promised to take youngest daughter out shopping but luckily she doesn’t fancy it. Amazing she’s turned down the offer.
Little angel I’ve got a friend who lives about 5 doors down from me and she’s not been near me. I only bumped into her once since dx as I was coming out of the house. She’s not a really close friend but I’m still surprised that she hasn’t popped round.
Have a nice Saturday all. Hope no one suffering too much.
The Inuits may have several words for snow but I think b******ks sums up our SE’s Suzy.
Polly xxxx
wow i slept last night , i was in bad pain with my joints so i took two painkillers and was a sleep before corrie finished, my mom came in my room and she said i woke up and said is it the next day and then feel back asleep haha. I needed that big sleep.
Kaz im sorry you are having pains. try and stay positive . big hug for you xxxx
reeb i am sorry you are achig aswell, let me know how you are getting on. big hug for you.
Well it looks cold and frosty out there, think i might stay in yet again, havent got that much energy to go out any way.
hi
just a quickie before back to bed but HURRAHH!! Emend worked it’s wonders & I wasn’t sick at all last night - went to bed at 9.30 and slept til 7.30 - took more drugs & went back to sleep til 9.30 -LOVELY - what a difference - is making me very sleepy & I have a headache but I always do & that’s fine I can cope with that.
XXXXXXXXXXXXX hugs to you all XXXXXXXXXXXXXXXXXXXXXXXX
Kaz - big hugs your way - it does sound from what the other say that it could well be the jabs making your back ache. I know my chemo nurse told me that the growth hormone jabs can cause awful bone aches and pains - but if you continue to be concerned, then call the chemo ward… that is why we have emergency contact numbers, even over the weekends - and I know they would far rather see someone and be able to put their mind at rest, than have you at home upset and panicking. Pick up that phone …
Jo - fab that the Emend worked - about bloomin time!! Are you on 6FEC, or have they just managed to sort the emend out before you switch to TAX anyhow?!! Think my FEC got rushed through yesterday, as felt dreadful when I got home, and I’ve been lucky really with FEC - certainly on the nausea side. Felt sick all evening, but not enough to actually think I might be sick, splitting headache and just wiped out. Fortunately, horrible woozy head from FEC1 has not put in an appearance again, and that was the part I hated most, so hopefully the first time was the only time…
Am def. having hot flushes. I’ve been determined that they’re not flushes, they are just vaguely warm feelings, but have been intensifying over last couple of days, and I can feel how hot my face gets. OH told me kindly that I was ‘a bit red’… so it’s starting to show too… Have only managed to sleep last couple of nights with window wide open and duvet off… and that’s how I cope in JANUARY??? I’ll have to invest in a decent size chest freezer for the summer nights…hehehe. Yup, curled up in a chest freezer with a big tub of Haagen Daz…
So glad the Emend worked for you Sophie. Magic stuff!
Had FEC 4 yesterday and, she says while touching wood, i feel ok. Nothing like last time. A vague fuzzy head but thats all. Long may it last. I did have to sort out district nurse for this afternoon to give me a jab, such a woosy i cant do it myself.
Also, i’ve got a LGFB appt for 23 march, which happens to be my birthday, so a treat for me. I didn’t know that they did it at the marsden, so don’t even have to travel !! All good stuff.
Glad all going well so far Gill, and good news on your birthday ‘treat’! Who’d have thought last year that a great birthday pressie would be a lesson in drawing eyebrows on?!!
It was Jo (Millykins) who finally got the emend. I’ve been lucky in that I’ve had no probs with the anti-nausea I’ve had from the start, but then I have been prescribed onadestron from day one, which is only one step down from emend, and that’s been enough. So glad that millykins finally got it though, it’s so unnecessary to be so ill with the chemo these days, when they do have effective meds for so many se’s.
Just lost my post. see if i can remember what I wrote.
Good day for your LGFB Minny. Must book mine.
Sophie, sorry you feel a bit rough. You definitely know when a hot flush hits. I’m post menopausal, so have been having them for years - not too many at night though. Must be horrible to get a chemo induced early onset.
Millykins, glad you had such a good night’s sleep - hope we all get lots of those.
Reeb, sorry the TAX pains have hit, I’m a day behind you so not got those yet. I feel a little odd and digestive system is a bit sensitive, but not too bad at all at mo.
Best wishes all.
Lol sophie - that’s a great idea, might have to get a chest freezer too.
Jo - great the emend worked it’s magic…just in time for switching to tax…what feccers.
Suzyb - have a great weekend away with your pork pies! Hope the tax truck leaves soon! I found a nice walk eased the pain.
Reeb - tell the tax truck to come back another day!
Kaz - big hugs hun. I had bone aches a few days after the jabs, mainly lower back and legs. Hope it eases off and keep taking painkillers.
Minny - is that the Sutton branch you are at? that hospital confuses me, I got stuck in nuclear medicine for half an hour after taking a wrong turn lol, the chemo nurses are lovely. Was going to go to the 23/3 session but managed to get in at Kingston on 15/2 so I can have some eyebrows a bit earlier. Hope you enjoy it.
Trust me to get the names wrong. It’s never been one of my strong points and not likely to get any better with fuzzy head!!!
Cat, (i hope) i am at the sutton Marsden and know what you mean, a bit of a rabbit warren. Sadly i know my way around too well now. Sad your not on the same LGFB session, would have been good to meet up . (If you could find your way!!) I have to try the eyebrow thing now and it’s not to great. Sometimes the surprised look and others an angry one. practice needed, depending on the mood. Havent had a quizical one yet.
I’m post meno, and don’t get hot during the day. A few at night but they dont seem to be as bad now the hair has gone. Like the freezer idea sophie, take the lid off!!!
Been on the radio this morning discussing sheep, bc and all sorts…including naked postmen…don’t go there <grin> </grin>
My son in law to be and friends are currently at Liskeard on the epic bike ride…and have got nearly £2000 for cancer research with the promise of another £900 from one of thems employers if they finish in 24 hours…and they are on time! Will be heading for the torpoint ferry about 2pm!
Jo - hurrah…at last! You really deserve to feel ok! xx
All the taxers out there…do take care of your digestive system as it gets a sudden hit at about day 5-6…and can be nasty…and keep an eye on ur mouth…please don’t get hospitalised like I did…its horrid!
LGFB…you will all love it! I can draw evebrows, line lips, mascara my 6 remaining eyelashes and do all sorts of stuff I couldn’t before!!
Cheryl it was the programme on BBC Somerset (thats radio) called Saturday breakfast with Simon Parkin and it runs from 7am - 10am I am on the bit from 9-10am called ‘any other business’ just google BBC Somerset and click listen again
