LIF your day sounds wonderful & how fantastic to have such an event where everyone is onvolved in the prep so hands on & it is all part of the experience. wonderful & you so deserved a fabulous time. You don’t mention her who shall not be named so I assume you applied your own slap (or not as you felt inclined) & just enjoyed the champagne XXXXX
hi all - got back from France tonight. had a really lovely time. forgive me for not mentioning everyone etc cos ive read posts and cant remember eveything.
but LIF your wedding sounds fab i’m so pleased for you
Kaz - best wishes to your mom
The wedding in france was soooo beautiful and relaxed and just lovely all round. oh and it was soooo nice to see the sun and relax a bit ( but not in the sun sadly) and literally get away from things - i truly did feel that i pushed some of the cr*p to one side for a few days. i was with people who i didn’t know very well for the most part so they did not know about bc and just chatted to me about anything and everything. (well those who spoke english chatted , the rest tried to chat to me but my french is limited i’m afraid)
back to cold, windy birmigham which is a far cry from marseille. oh well.
…and to rads starting thursday - good job volcanic ash cloud didnt close in , would have had to drive back to make rads appt.
hope you lot all ok
claire xx
Glad you had a lovely break Claire, you needed it.
Went to see GP yesterday and am signed off til 20th June. My boss isn’t too happy. I could tell he was trying to be nice on the phone. I mentioned phased return to him and he said ‘oh yes, well we had that covered, giving you two appointments (meetings) with a 40 mile radius each day, rather than 3 appointments further afield’. Great, so that means a 7 or 8 hour day instead of 11 or 12 hour day. My GP had mentioned going back 2 days a week initially, so we’ll see what the occupational health unit doc says.
I have my heart scan appt from the nuclear medicine department on 9th June, so very glad I’m now not going to be working that day.
Trip, thanks for advice re sauce for seafood pasta. I went with a white creme fraiche based sauce in the end as I thought tomatoes might overpower the scallops. Middle stepdaughter who came to dinner had seconds so it must have been alright.
pasta sauce sounds yummy!! and i can taste things now as taste buds getting back to normal at last.
lots going on as ever.
my son going to hospital today to see if his plaster can come off his leg - if so, and with letter from doctor, he should be going to italy on school trip on saturday - fingers crossed, the lad deserves a holiday but not holding out much hope of him being able to go.
the alternative is a week with me going backwards and forwards to my rads appoinmtemts that start tomorrow. bit nervous but just want to get it over with now.
6 weeks post last chemo and hair growing back on most of body but eyelashes and eyebrows not yet coming back. taste on the mend and digestive system seems to be mine again but still ache from top to toe- anyone else?
hope you all ok. Claire x
Hi all
lif- wedding sounds fab:-)
claire- glad u enjoyed france. Hope your son gets to go on his trip.
Havnt been on for a while, t’internet not working. Realised i can use my phone!!
Escaped from hospital today, went in yesterday for my snb, they wanted to keep me in today too, just waiting for my blood test results. Totally frustrating, just sitting about waiting, they looked shocked when i told them that blood results dont take all day to come through!! Aneathestic lady took 4 goes to get cannula in:-(
Got to go back to the ward later today, just want to go to bed. Chemo seems so straightforward to this:-(((( Want my body back and for what i want to be taken into consideration. Had enough, dont have the energy to carry on.
K xx
Chin up Kerry. You’ve come a long way already. What’s your date for Mx again. I’m next Wednesday. Discovered I had Urinary infection at pre-assessment. Don’t know if i mentioned it before. Been on antibiotics for a week but don’t think it’s clear. Got another course of stronger abs starting. Will be devastated if they put the op off. Just want to get rid of it.
Claire-hope your son gets his plaster off and gets to Italy. And hope you get on ok with your rads.
Hope all else ok.
Polly xx
kerry and polly, , i wish u both luck for your up and comming ops, you have both already come so far. xxxxxxhugs
claire, so glad u enjoyed france, did u loads of good
val, love the pics, lovely
pam, we are off to penny b, next tuesday, yehhhhhhhhhhhhhh be nice.
well whats news, went to Edinburgh with andy and he ran the marathon for breastcancer care. did really well and it was all very emotional, for ages it was the focus for us both, , cemo and rads would be over. over, hair comming back, ect ect,
moms been awful on cemo, really sick and in pain, she had another lot today, and they are giving her emend yehhhhhhhhhh
had hair trimmed today as it was uneven, but i hated it when the lady and i was talking about hair dye, she said the c word!! she said cause you have had cancer, , , , i wanted to run so far away and shout i havent, , , but i have and i dont like it. i had a nasty lump removed and then nasty medicine, , an im ok now, , , its simple. no need for the c word
effects of cemo are still here. fingers are cracking. and are really sore, and the heals of my feet look shameful, cracked and bled today.not sure what to do with them. .
popped into work today, and all i got was when u coming back u look fab. . . like id been on my holidays!!! im not going back till end of the year.
went to pilites tonight , however you spell it. lol and im off to haven Hereford tommorow for few hours.
hugs to all. xxx
ps ive received 7 deposits for york, anymore to come??? as i have booked 12 spaces and need to let the bnb know if its changing.
Morning:)
Polly - hope the infection clears up.
Kaz - glad your mum is getting emend:) hopefully it will make her less sick. I put compeed cracked heel cream on my feet, before i go to bed and during the day when i remember! I use foot file too, but onky the smoother side. The cream works really well if you smoother it on your feet and then put socks on, i have an ongoing battle with my trotters!!! My hairdresser said that she would use a semi permanent colour on my 3 months after chemo, she deals with a lot of cancer ladies so i trust her:)
Feeling a bit better about stuff today, feel very messed about by the hospital, no one seems to be responsible or willing to make a decison with consulting some higher force. A bit peed off with being treated like a numbnut as well, and if one more nursey type person tells me i am very young to be going through this then i will scream!!! Wasnt one person who didnt comment on it, even the cleaner, with that sympathetic tilt of the head…
I need to go the day before my op ‘incase’ i need a blood transfusion, because i am still aneamic and my wbc is still low. hohum,
Arm feels fine, not painful, i just know its there.
Hugs to all
kerry xxxx
Hi ladies
Touching base, been at my sisters for a few days which was great even though her oh told me he’d never seem me so fat. Thanks a bunch!
LiF sounds like a fantastkc wedding, I’m so glad you had such a fantastic time
Polly good luck for Wednesday, I’ll be thinking of you. It’s been such a long haul. Same for you Kerry, I’m not surprised you feel fed up, don’t think I ever want to see another canula but I’m having a lump removed from my neck at the beginning of July so needle phobia will continue unabated.
Claire - glad you had such a super time in France.
Was having a chat with someone about phased return to work and was told that you are still officially off sick so shouldn’t be relied upon as you are entitled to not go in if you feel like it or go home.
Been trying to get fit, so have started walking 8 miles a day, poor dogs are starting to look a bit fed up but am feeling a bit better and lost a few pounds. I’m taking part in a fell marathon in a few weeks that involves over 5000 feet of climbing. I’ve done it for the past 18 years so didn’t want to pull out even though I know I can’t run yet. Anyway been in touch with the organisers who have kindly agreed that I can walk the whole thing and they’ll keep the marshalls in place for 10 hours by which time I hope to finish. Thought it was really good of them. Walked up one of the hills yesterday just to see if I could do it needed lots of rests but did get there in the end.
Saw my bcn on Tuesday and found myself in tears. I think it’s because bevore all this I was fit and well, ok I had cancer but I wasn’t aware of it, I felt fine. Now everyone is telling me how well I am and I feel like a wreck. It’s hard to have the faith that all this has worked when you feel worse than you did before especially when they tell you it will take a long time (and by that they mean a couple of years or so) to feel ok again.
Anyway going to try some more cake baking this afternoon. After all these months of trying this is a skill that has shown no sign of improvement. I’m in the process of losing another finger nail (b****y tax) just hope it doesn’t come off in the cake mix!
Anyway, take care everyone. Kaz, hope the emend works for your mum. Hope children are all ok and get to go to Italy etc.
Reeb xx
Big hugs Kerry and Claire ur doing this all back to front…crap but you will get there…you have got sooooo far its nearly over xxx
Reeb, I know exactly how you feel! I think those of us who are on the go and felt fab before being told that actually no…you have cancer and now are being told you must be fab because you look it yet feel crap at times because its not like ‘before’ find it quite tough in a weird sort of way!
Its hard to explain but if you were used to running or hard physical work just being ok and fit in a normal person sort of way which feels unfit and tired to you is frustrating!
Walking really is the key and my dogs also look at me in a resigned sort of here we go again AND its peeing with rain sort of way…but keep going Reeb You will get around that course…I just know you will xx
Reeb, you’re amazing to be considering a marathon walk with climbs. I was quite proud that I did 40 mins on the Wii Fit this morning (Wii Fit age now 41), which is feeble in comparison to 8 mile walks. Your sister’s OH is an insensitive git (that’s the polite version).
As for return to work, the psychologist at the hospital told me that after you’ve had any type of cancer you are covered by the disability discrimination act and work has to adapt for you. I was a bit shocked and although I want a phased return and not to be doing such long hours as before, I don’t think I need to be quoting any disability acts.
Kerry and Polly, all the very best for your ops.
Kaz, looking forward to meeting you at Penny B. Don’t worry about work people saying you look really well etc. I’ve started saying ‘yes but no-one sees me when I’m not well’ just to make the point that I’m bound to go out when I’m looking and feeling well.
Kaz - hope your mom feels betta soon. well done to andy on marathon
nottsgal -i agree quoting acts does seem like a big thing to do/accept
LIF- think i’d best start walking too
Reeb - i don’t know about get fit, you sound as if you are fit already with eveything you are doing. well done
Kerry/Polly - the ops will soon be done and dusted.
polly -hope infection goes
well , back from first rads - dont want to be playing this game any more!!
i was scrutinised by the male nurse who booked me in and checked name/details etc. he said (wait for it kerry) - “you are a young lady??” yes, said i (why as you say do they have to remind me that i am young to get this) and “are you pregnant?” "you are young?? "
so upsetting for me on both levels, yes i am young to get bc and no chance of being pregnant - did i have to yell from the roof tops, i am young to have bc and my other half dumped me so no i am not pregnant.??
then he offered me tomorrows appointment- seems they only give appointments a day at a time - not good when relying on friends to take you on hour each way trip, and be home for jack - and offered me 4pm on friday - so i would have to go through birmingham in rush hour!! this is despite “late morning” app preference being plastered all over my notes.
i cried - he must have wondered what on earth he was dealing with - sobbing woman. anyway got slot mid morning but no apps for next week as yet - hope i dont have to go through this every day for 5 weeks. it was worse than the actual treatment.
on the jack front, no cast off - my stupid ex messed up on the appointmenty and took him a day too early - its not as if he has a lot to think about at the moment either apart from himself. jack going again this evening so still fingers crossed for italy trip.
hey all xxx
claire, well done on rads, , x thats naff about appointments, , explain to them u need advanced app times. .
reeb, , oh my gosh, , look at you climbing mountains, , good luck n good on ya gal
lif, good re the walking, poor dogs, lol
pam, be ace to see ya next week. .
mmmm we all look well, thats not hard after how we looked when on cemo!!
thanx for kind wishes for mom.
i went to the haven, hereford today, counselling session, tears most of it, mad really as i felt great when i got there. . seems like tamoxfen n finishing treatment mean sort of the end, , still got to re balance health again. .then i saw bc nurse. . very good chat, no tears. then nutrition lady , then massage. . had very nice day
then walked dog then andy come in nd took me on a training run, , , lol, ive never ran before, , i walked then jogged then stopted n cried then ran ect ect. lol
nite ladies xxxx
Where have all the pinkies gone
Kaz. I am here:-))))
Claire - stomp your feet and demand your appointments be booked, it’s the ‘system’ failing to realise that us younger ladies actually have a life and responsibilities outside of breast cancer. The surprise that’s shown at the youngness is evidence of this, would these people be able to comment on our size or colour? Nope? It’s ageist, lol! Makes me so cross…
Kaz - yesterday sounded like very full day.
Reeb - admire you hugely, marathons and mountains! Wow!
Ooo, got good news:-) I have been wanting a French bulldog for ages, been saving my £2 coins for years, because they are pretty expensive, and to get a good one the waiting lists are long. Well, got rang last night and a lady has a litter due in June, and I can have one…sqquuuuueeeeeeeeeeeeeeeeee. So excited:-) just need to work the logistics of 4 dogs, kids, holidays and more surgery, lol!
Feeling very washed out today, was supposed to be meeting a friend for lunch, can’t be bothered. Kids are off next week so will need energy for them. Armpit and boob are are bruising nicely, nipple still could star in avatar, surgeon looked at me as if I was a fool when I said it didn’t matter what colour it was because it was getting chopped off soon! Think she was a bit flustered to be honest, she dropped her bag, then some notes, then her mobile, hope she sorted her handling skills out before she got a scapel in her hand!!!
Have waffled lots, sorry.
Kerry xxxxx
Just a quick one.
Wondering if there is anything available to the support on this site, local to yourselves? The support and advice on this forum has been invaluable to me, I honestly don’t think that I could have done it without you lovelies… The medical stuff is explained but you guys reassure me I am not going mad. Madder:-)) we are all so encouraging, it really feels as if I’m not doing it on my own.
Got a bee in my bonnet about trying to set something up, local to me, to help people in this situation. Someone that has been through this is much better placed to help and advise or just listen. Even just a nice text was a boost on a bad day.
Will have a word with bcn.
Kerry xxx
mrsbird that’s a fantastic idea. The only thing local in Salisbury is a generic ‘cancer support group’… where they have lectures once a month on such fascinating subjects as flower arranging and architecture, so I’m guessing it’s not really aimed at younger people…lmao. Good luck with it.
Lol Trip, the Derby breast cancer support group can’t even manage flower arranging, one of their talks was wild flowers. Think a lot of them are too old to pick the flowers.
Have to say I took one look at my local group and ran away fast (well in a fashion). Kerry sounds a fantastic idea. My gp phoned last night to see how things were going and I mentioned how naive I was about all this even though I thought I was pretty clued up and he agreed that this is probably something that you don’t really understand until you have to go through it all so having someone to support who has been through it would be great. Almost like a cancer buddy system.
Lost two finger nails yesterday so that’s 7 in total, at least not many more to go!
Kerry - new puppy in the house will be great. If it’s not due for a while gives you plenty of time to puppy proof everything.
Kaz - a busy day, well done on the run
Hi girls. Am impressed with all the fitness going on. I managed to walk the dog round the block. Am feeling a million times better than I did after the tax though so can’t complain.
Reeb well done on your training and Kaz too. Notts well done on Wii fit. I keep thinking about it but haven’t done it for a long time.
Kerry 4 dogs n 4 children. Wow.
Had to go back to hosp for another urine test and blood test before op. Had a bit of a surprise as the blood test request was from the ante natal dept!! OH wonders if I’ve been having an affair. If only I had the energy.
Feeling a bit out of sorts today don’t know why. Prob because op is looming. No friends around today either.
Claire any news. Did your son get the cast off and get to Italy ?
I’m quite pleased to be considered’young’ at the moment cos have felt like I’m 100.
Lif the wedding photos are fabulous. Thanks for showing them.
Keep well everyone.
Polly xx