Polly, not surprised your OH was a bit taken aback… hey ho, with all the hospital time we’re clocking up, might as well add the antenatal dept. onto the list!!!
Nottsgal - blimey, makes my local cancer group sound like playgroup!!!
evening chaps - it has got more quiet on here. perhaps now we are mostly post-chemo we have a bit more energy for getting out & doing stuff rather than sitting at the PC?!?!?!?
I am amazed to hear about the walking, running & general fitness of everyone. most impressive.
I agree how invaluable this forum has been & how unsuitable I found the local support group - mine were very kind & well meaning but def couldn’t relate esp to having a 4 year old child & going through this!
started RADS yeaterday & skin already starting to get a bit dry & sore so think I’m in for bucket loads of aloe vera to survive. my skin has always been sensitive so I am not surprised. at least I have 3 days before next lot. They are treating the upper chest as well as the MX scar area - super clavical I think they called it & that is where it is sore but if it kills any stray cells then it’s fine by me - did others have that treated as well. I didn’t even know there were lymph nodes there as no one mentioned it before???
I seem to hit a wall about an hour after treatment & have to have a rest but once Ihave I am fine tiredness wise sonot too bad as yet. we’ll see after next week though!"!
hoping weather stays fine for bank hol. not doing much - my dad’s for lunch tomorrow - mum for lunch sunday & local fun day monday- very low key but quite enough for the time being.
must book some therapies for after RADS - has anyone doen acupuncture. also the phyto soys stuff seems to be helping with hot flushes as they are deffo less frequent & less severe so more manageable. still acheing but again it is slowly getting better
hi all, just a quick post to say - jacks cast is off and he is going to italy tomorrow!!! - have been sorting/packing around rads appointments - he sooooo deserves this holiday after the yuk of the last few years
have got next weeks appointments and yes they are mid day ish which is good but they didnt seem pleased to have had to make concessions
hugs to all and no, i woudn’t have got thru this wityhout you lot. my friends have got used to me referring to you lot as my internet friends now - i hope we do all get to meet up one day, would hate to loose touch (i am still unsure if i have everyone on facebook - dont think i do) -still not sure if i can do york
hugs
claire x
Not posted for a while but have been catching up on posts.
Kaz - sorry to hear about your mum. I hope the emend helps - it didfor me.
Lif - wedding sounds great.
Exercise - you are all sounding really fit. I have only managed to do 1 and a half miles a day and I thought this was good
Claire - glad that Jack has had his plaster off and he is going to Italy.
I hope you all enjoy PB next week. I really enjoyed my time there and my keyworker phones on a regular basis to ask if there is more they can do to help.
I have to go for a bone scan on Wednesday. Scared. Had back ache for a couple of months but Onc said she “wanted to finish poisoning me first and would check later”. Trying to think this will be OK but not sure I trust my body anymore and I am, deep down, expecting bad news. Has anyone had a bone scan and if so - how long does it take to get the results back.
Janvis
Hi all.
Claire. Really glad for Jack. Hope has a great time.
Janvis I really feel for you. I have a back ache too and am convinced it’s something sinister. I had a urinary infection diagnosed at the pre assessment last week. The nurse asked if I had ant symptoms but I didn’t really tho i had a sore back on one side and was just starting to get a pain in my side. Thought then that the pain was my kidney as it eased off for a few days. Came back again tho soni thought the antibiotics werent working and got stronger ones. Still have the back pain tho so it can’t be kidneys.
I’m worried cos my chemo didn’t shrink the tumour as much as they hoped and also by the time I have the mx it’ll be 8 weeks since my last chemo. Anyway I think we’re bound to worry about every pain. Hopefully it’s all fine. I had a bone scan about 6 months ago and it’s ok. From what I remember the results don’t take long. Wishing you good luck.
Polly xxxxx
Ps my Mx is Wednesday so I’ll be holding your hand. Xx
Hi all:)
Claire - yay for jack:)))))
Janvis - i have had a bone scan, before chemo started. I had to go for an injection, then went to meet my friend for pots of tea. Went back for the bone scan, took about half an hour ish, just laid flat with a machine over me, the machine moves along your body so your face/head is under the machine for the least time. Hope this helps. I didnt mind it, too be fair, would rather have it than an mri:)
Polly - i have had back pain from around chemo 2, onc reckoned it was kidney stones. I worry too about my lack of chemo, surgeon said it stays in the body for a long time, but getting the pains in my boob like i did before, just want it chopped off!!! Good luck for wednesday, will be thinking of you:))) xx
This morning we have been doing a collection for will’s rugby team, 18 6 year olds in a busy shopping centre. Wine needed…lol:)))
Whilst we were in town i bought a few bits for my holiday, maxi dresses and stappy tops. Felt nice and normal to be buying pretty girly things, will worry about the underwear/big boob/little boob situation later. Never, ever thought i would need chicken fillets!!
Armpit not hurting as much as i expected, doing the exercises and using it as before, it just pulls a bit every now and again. Desperate for a shower though, dressing can come off on tuesday.
Hope everyone has a nice weekend
Kerry xxxx
Thanks Polly and Kerry
I will be there with you Polly and thinking of you on Wednesday.
I dont think this is an infection as I have it since FEC4 which was in January. I think this is why I am worried. If it was nothing serious - I would have expected it to go by now. But you are right we will always think every pain is something sinister.
It is the waiting game again - going for tests and waiting for results - just when I thought I was getting some sort of life back again!!
Janette
Hi Jan
Just wanted to say I know how that worry feels - horrid & difficult to put out of you mind when you have to wait. I had a bone scan before my chemo as I said to my ONC that I had an achey back & hips but it was all clear. In every liklihood it will turn out fine & be nothing sinister just another annoying thing to deal with. My bones ache now from the TAX & it is hard not to let your imagination run away but we have to try to keep going until the tests & results & then enojy the feeling of relief when it is all clear!!!
big hugs to you
Jo XXXXXXX
hi folks - how are you all doing?? it is wet n yuk here and i am feeling a bit bank hols blues ish - no kids around and not a lot to do, my mind takes me in daft places when i have time to think as i’m sure you will relate to. think i had better get myself up and out and find some company to perk myself up
Hi all
Off for a few days in Scotland so will be out of touch (forecast is terrible!) but good luck Polly for Wednesday, will be thinking of you.
Jan - hope your scan will be ok but it is a worry. Hopefully they’ll tell you the results at the time.
Claire glad your lad has gone to Italy, he’ll really enjoy himself but in the meantime do get yourself out and about.
Kerry - hope things are going ok
Hugs to all
Take care of yourselves
Reeb x
Hi all
Missed you all, we’re all not posting so much these days but xxxxx to all
Good to hear you’re all a-running and a-dogwalking and the like! I’m still super creaky and old-biddy-like but need to start the fitness before I stop moving altogether!
Millykins - I’m also having super clavical RADS, I had 9 lymph nodes infected and I think that the collar bone area would be the next port of call for the cancer cells if they were going walkabout so this is why they zap us there. Finally start June 6th, like everything else with me I’ve had to wait longer than the advised time 
I’ve had a real down time post mx, I suppose the realisation that I’ll never be the same hit me again. I had a look at recons on the internet and they all look pretty awful - stupidly I hadn’t realised that there will be the huge mx scar running through it so it’ll look ugly whatever. (Yes, I’ve always been vain!!!)
Good Bank Holiday Monday to all
xxxx
Suzy, it’s not vain to want to look normal. But if you wanted to look like a supermodel, then yeah, you’re vain ;0)
Polly, best of luck for Weds. Poppy and I will be at Penny Brohn so we’ll raise a carrot juice to you on the day.
Kerry, hope everything is healing up nicely. My advice is keep doing the exercises for several months afterwards.
Reeb, have fun in Scotland. Claire, hope your son has a great time in Italy.
Milly, hope your skin settles. I used aqueous cream as rads unit didn’t recommend aloe vera gel (even though I had some at the ready). I didn’t have problems with my skin but then that could just have been luck.
Hugs to everyone and have a nice, wet Bank Holiday.
xx
Afternoon 
Suzy - it’s not vain, at all. Think that it’s only natural to worry about how it’s going to look.
Polly - good luck for wednesday, will be thinking of you:-))
My dressing for my snb is coming off, they said to leave it for seven days, its day 6 now, it should be ok to remove it, shouldn’t it? Frightened I catch it and pull the scar.
My eyebrows have fallen off:-((((((((. I used to go make up free most of the time, now it’s all eyebrow pencils, eyeliner and mascara to look even vaguely normal:-))
Kerry xxxxx
Hey my lovely pinks, , xxxx
Polly, good luck for wednesday hunny be thinking of u. . xxx
Mrs bird, no way about your eyebrows my finger tips have been splitting again, suppose it just goes to show h much the cemo is Still in our system. . .
Suzyb was wondering where u was x ur normal Hun for wonder how ur gonna luck xx
reeb Enjoy scotland xxx
Janvis, try not to worry, , we are all here wishing u well xxx
It’s freezing, , where’s our vitamin d supply!!!
Off to penny b tomorrow, , see u there Notts x x
Had w week at andys, loved it, , got on really we’ll, he really is my number1
Moms been really bad, pain in her back, , just hope the cemo has started to shrink the c.
Jo, keep on with the cream, n alo Vera gel. Mine blistered n pealed the week after my rads finished. ,
York, , , any others??? Need to confirm numbers, , had deposits for 9 people. .
Hugs to all, , , have good few days, I’ll be back, ,
Kaz, Notts - I am sure you will enjoy PB - it is so peaceful and you will meet lots of people.
The good weather is due to come back tomorrow for your vitamin D levels.
Kaz - I hope your mum starts to feel a bit better soon.
Jo - my skin peeled 3 weeks after RADs finished and I am still using aqueous cream (over 8 weeks now)
Millikins/Reeb - I am trying not to worry but I think this is easier said than done for me.
I hope you have all had a good bank holiday even though it has been really wet and windy.
Janvis xxxx
Sorry, not been posting much lately but been keeping up reading.
Had last tax on Friday YESS!! (3 fec & 3 Tax)and can’t believe that parts finished. Radiotherapy should be finished by end of July.
Hope everyone else gets on OK.
Polly, good luck for Wednesday, will be thinking about you.
Janvis - sorry you’re having all the tests and waiting again doesn’t bear thinking about- hope all is well.
Reeb- Hope you enjoy your trip up here. Weather very changeable- few sunny spells but rain and winds badthink it’s to be better tomorrow.
Mrs Bird - Think my dressing for SNB came off early in the shower but they had given me extra dressings. If it feels comfortable and not rubing should be OK. My eyebrows have gone as well, although I’ve now got some stubble on my head. I draw in the eyebrows then they get itchy and I rub them off by mistake!
Poppy - best wishes for your mum and hope her pain gets better.
Glad you enjoyed your week
Margaret
Morning:)
Mary - yay - youve finished the chemo:))))) i rub my eyebrows off too, their was a thread on here about someone getting their eyebrows tattoed on and then they grew back either higher up of lower down than the tattoo…eeek, will stick with my pencil.
Kaz - hope your mum feels better soon. enjoy the pb centre. and you get too meet nottsgal too:))))
Took the rest of my dressing off my snb, it looks ok, except for one small bit. Excited to be able to get a shower, small things, lol:))))
Polly - thinking off you and wishing you well for tomorrow. big hugs x.
Trying to get organised for my op next week, with the kids been off and me trying to fill my time so that i dont think about op, its not really working:)) WIll have to take everything i ‘think’ i might need with me, husband is crap. when i had scarlett i asked him to bring me clothes to come home in, he brought me a squash tshirt, nothing else!!! Will have to catch the bus to hospital, husband given that week off to one of the staff, he ‘didnt realise’ so he wont be able to visit during the day, and they dont let kids on the ward. Hohum…
Positive thought for the day…the path without obstacles probably leads no where…
kerry xxxx
polly - all the best for tomorrows op…
Kaz -n nottsgal - enjoy penny brohn - look forward to hearing about your experience there and kaz hope your mom feels betta soon. glad u had nice time at andys
jan - hang on in there, test will soon be over
margaret - yippee you finished chemo - great
Kerry - keeping busy re op is good idea. i have never been one for make up but i do like the eyebrow pencil i had from the LGFB session- not sure im very good at it though- i can make myself look very surprised by using the pencil!!
suzyB - sorry you been low - chin up - you can do it
Jo - yes lots of aches and pains post chemo and yes they make us worry lots dont they
reeb - hope scotland is lovely
well you can tell it is no longer a bank holiday, the sun is shining - it is a beautiful day!! what a shame the bank hol weather was yukky for all the things people had put on.
just logged on to say “hello” pre rads appointment. i am so confused re creams now - was told by hospital NOT to use aloe vera during rads and that aqueous cream will not help stop burning.???
have a good day all
claire x
Hi all from inside PB. Phone signal cr*p but the place and grounds are lovely. I have room next to Kaz. She is as amazing as you’d think