starting my pink road of cemo, 15th nov

Yes julie rise above it she obviously doesnt understand what youve been through. Dont feel pressured to rush back hun
Big hug x

hey ;adies

julieb, what a bitch she is then, dont u do anythink unless u want. somepople havent a clue how to be with people.
emma, no nice when people have a tone. ive noticed some people that should realy llok at their job roles, !! good you got yoru resutls confirmed

jo, sorry your suffering with the stoma, you have had a few probs with the wound, i hope it sorted now.

southern crew, can i come?? i dont wana miss out :frowning:

dima/bacca your doing good xx
barney paws, hope today went well.

hey to everyone else.
im watching midsomer murders, i find that ill watch tb in the day if im chilin and ill drp off, im glad we have itv2!! as i never find out who was the murderer or how the recepies turn out

had wig fitting checked today, and its a good fit apperently, its just me, i dont think i can get used to it. for me having a wig on means im trying to look normal and hide whats going on, and its more to stop other people not knowing what to say , im obv looking at it all wrong. like loads of ladies i was horrified at the thought if loosing my hair, but after the clippers sat, i really am ok with it. any thoughts ladies, a beaney hat isnt going to look nice at the xmas dinner table!!!
kazxx

Julie - your boss is a cow and deserves slicing up into steaks… or at the very least being shut in a barn and made to stand in her own poo. Let’s hope her manager is more intelligent and compassionate. I’m sure she (he?) will be. I don’t get this attitude with an illness as obviously serious as cancer, as if it’s not enough stress dealing with treatment, having to put up with snotty work colleagues is abysmal.

Saying that…lol… I rang one of my bosses (eve. job) today to let her know the cheerful news that I have to have chemo and poss rads afterwards, so my return in the New Year was wishful thinking! I have said I’d like to pop in and out when poss. just to keep up with what’s going on, help with the paperwork when I’m able - but that’s more because I’m a control freak than out of a sense of duty!!! Also, I really like the girl who is covering for me, and I’d like to help her out when I can. They’ll leave me on SSP, which I asked, so I don’t have an actual commitment to work any hours - it will be more as and when I can… and that way I’m in a stronger position to go after the pay rise I so evidently deserve (!!) when I go back…

Day job boss doesn’t know the glad tidings yet… I’ve got to go and see her in the next few days because she needs to fill in an insurance form for me (credit card protection thing), so I’ve asked the doc. to fill in his section first… because it gives an estimated return to work date…hehehehe. Day work will be fine, I know, but it doesn’t hurt to have it in black and white from gp that it’ll be a few months longer off than I had (naively) anticipated. So much for two weeks then! Looking more like April, and even longer if it’s rads afterwards.

Take care everybody - keep on smiling, even if it’s with gritted teeth.

Sophie xxx

Kaz (can’t get used to that after thinking of you as Poppy for so long!) - I have a feeling I’m going to have the same problem with a wig - it will feel too false, and I’ll be worrying about it slipping! However, one of my friends at work has a daughter who is training to be a hairdresser, so if I go for a long one, she can practise on me if I don’t actually get around to wearing it!

I’m going to look for a christmas themed bandana, something to look nicely festive with! I had a dream last night that I went on the work’s christmas meal in a posh restaraunt, and they refused to serve me unless I removed my headwear… so I whipped off the scarf and was as bald as a coot underneath… at which point all the other diners were sick… I don’t think anything that is really going to happen would be as extreme as that!!!

Sophie xx

Oh… and for the xmas dinner table - for once you might actually want to wear one of the christmas cracker paper hats!!!

And second oh… I’m down South too (daaahhhn Saaf) - though across a bit in Wiltshire… so count me in on any meet up!!! Especially if I can catch a train there… OH is a train driver so lovely free/nearly free travel for me… might as well use it!

I don’t think anyone should be rushing back to work - we need time to get over all this. Julie, can’t GP recommend phased return to work and then they have to go with that?

Kaz - re. the wig, I’ve felt a bit like you and have really struggled with my wig. However, have persevered and it has got easier wearing it. There were a couple of days last week when I was out with my sister and had it on until early evening and I think it really helped to have it on for that long and get used to it. I am sure you will get used to it - it does feel strange but do persevere, it may take a few weeks. When I’m at home I’m not wearing it so that seems to be working for me at the moment…not ideal, but hey ho! At the end of the day if you give it a good go but decide it’s really not for you at least you know you’ve tried and hats are the order of the day! X

Hi Kaz
Im watching midsomer murders too, what an exciting life we lead :slight_smile:
I dont fall asleep so can tell you who done it.lol. Tried to find you on face book but couldn’t.
You could always get a nice red head scarf for santa coming.

Hope everyone is bearing up ok
big hugs kim x

Hi ladies

First one out the way - only five more to go. Took three goes to find a suitable vein and my blood pressure dropped like a stone as usual so ended up with my feet in the air. The room is really cramped so you can’t have anyone with you which was a shame. My hand is really stinging and sore but otherwise feeling ok so far just waiting for the grots to set in. It was lunchtime when I was there and I got offered a soup, chicken sandwich and ice-cream. Hesitantly took the sandwich but am expecting to see it again later. I’ve got to go back tomorrow for an injection (can’t read the writing so don’t know what it’s called) but it’s to help boost the white cell count.

Julie - she’s a cow get your union involved you shouldn’t have to put up with d***heads like that.

Dima - hope it went ahead today, I was a right wreck today so to have it cancelled!!! well I think only one vomit bowl was rather controlled.

Going to have to sort out some sort of data base but lol and hugs to all.

Reeb xx

Reeb - well done on getting through the first one, hope the sick bowl is surplus to requirements! There is another thread on here about the pros and cons of having a PICC line inserted, rather than a cannula each time - it might be worth reading if your veins are already difficult? I’m considering it, simply because cannulas bloody HURT in my experience - and it’s going to be bad enough having to sit there and let them drip the chemo in, without being a complete wuss about the cannula…

Do any of you guys already going through it have any thoughts on this one?

What regimen are you on, Reeb? My onc. said that with the second half (3TAX) I will prob. have to have daily injections, oh joy. It all gets better and better, doesn’t it? I shall be so envious of all of you coming to the end of it before me!! I’m going to be at least a fortnight behind…

Hope you avoid every single one of the SEs, and have a good night tonight. Take care.

Sophie xx

Bacca - the names thing is quite confusing, especially as login vs real name …don’t think even chemo brain is the reason LOL enjoy your wine!

julie - def get Occ Health involved. HR also gave me rehab consultant who has put together plan and keeps in touch on weely basis to see how it is going and helps manage work expectations better than Occ Health. Maybe can ask for one?

Reeb - well done and big hugs for the first one down!

Poppy - of course everyone welcome to the south catch up, can we still come north…Leeds is quite good too as quick train from London or York so we can have Betty’s Tea Room, I love that place. Glad you’re doing well too.

I’m watching confessions of a shopaholic and just bought a stack of new hats/scarves online…bit of a similarity, may need a new hatstand LOL

HUGS and GGGRRRS and happy thoughts to all. Thanks to all you pinkies for your thoughts.
Cat xxx

Reeb-I started the PICC line thread and have been convinced by all that it’s a good idea-plus it speeds treatment up as nothing has to be diluted! The majority of people further down the line to us have said if they could go back and have one they would! Glad it was otherwise ok today but think it’s rubbish you can’t take anyone with you! You would think they would make space as it’s prob one of the most likely things people would want support from friends and family during!

Writing on my iPhone and can’t type on this thing do will get laptop out later for longer natter!

Hugs!

Em xxx

P.S I’m quite excited your OH is an actual real life train driver-thought that only happened it Thomas the Tank Engine teehee!

Emma - forgot that it was you who started that thread, and I can’t even blame chemo-brain yet! Maybe I have pre-chemo dementia… but can laugh at you too cos it’s MY OH who is the train driver! (Though maybe Reeb’s is too…lol).

It gets better… before he was a train driver he was a firefighter…hehehehe. I told him if he ever has thoughts of being a fighter pilot or stuntman he can just forget it, it’s all quite Boys Own enough!!!

Sophie xx

Whoops! I meant to put Sophie on the P.S - I’m rubbish-it’s typing on this blinking phone-I just shortcut everything lol!!! And OMG a firefighter too-my OH is paling in comparison and I’m very jealous haha! I tend to get quite giddy when a fire engine drives past :smiley: xxx

No train driver or fire fighter for me - mines a researcher at Durham University (certainly doesn’t have the physique but I love him to bits). Poor love, the room he had to wait is was freezing and he never got the offer of a sandwich.

Midsummer murders is ok but I’ll get worried if you become addicted to Jeremy Kyle

Reeb xx

Hi Sophie

I had 5 attempts first time as was so nervous veins kept collapsing but no 2 was in first time. Also sat in car with water bottle on arm, so by the time got to the hospital veins were popping out. Was keen to keep going on cannulas as thought having something there permanently would remind me every day. Sounds like there are a lot of positives though no more blood tests, dilutions, quicker appointments, etc. Am definitely borderline putting one in if it goes haywire again. There is also the hickman line and implanted port.

Cat xx

Well i do watch jeremy kyle aswell, sad i know lol there has to be more to life :slight_smile:

Well Kimmie I could be joining you in due course

Reeb xx

Its hilarious, then its this morning and dinner date sad really sad ha ha

Haha Kimmie-I’m watching my RECORDING (that’s sad) of dinner date right now haha! X

Oh my god your worse than me ha ha
I think she made the right choice x

Ooooh I’m not at the end yet-on the last date! Hope it’s the first one! Gosh what has my life become teehee! X