RAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHH. Shouting and screaming in sympathy for you, because sometimes a yell is better than a hug. It is all totally unfair, and bl*ody horrible and it shouldn’t be happening, but it is and that sucks.
And your daughter will cope with being an only child, and if you’d had another one she prob. would have been hideously jealous and kicked the baby every time you turned your back and then run away from home because she thought you loved the baby more than her and then the baby would be an only child too. So there.
I’ve tried the ‘magical’ Emend with on EC#2 Tuesday and now I just want to rant at someone as it hasn’t worked…I’m still becoming one with my blue sick bowl, just like the first time. And now I just can’t stop crying, am all over the place! I hope there is something else.
Emma - I’m in Reigate (near Redhill), Millykins in Horsham and Minny is in Sutton I think…I feel a South England catchup on the cards!
I would add one more the essentials list, baby oil, my head got terribly sore when the hair was coming out and gets a bit itchy with hats, so after I trimmed it to a #4, rubbed the baby oil in and it was pure relief…although word of warning you only need a 5p bit, 50p made me look like John Travolta in Grease…just without the hair!
Thanks for making me laugh again SOphie - & yes she’d hate it really cos she just loves being the centre of attention - She no doubt saw a programme with a baby on it & just thought Oh yes that would be nice - No idea of the reality of it of course.
Thanks your yell helped me no end - and am sure my hormones are about 75% responsible for how I’m feeling too!!! LOL
Oh Cat now you’ve made me laugh too - How can I possibly focus on being upset when you keep making me laugh - Just the idea of your slopping greasy head singing “you’re the one that I want!!” LOL
We just got the dance west end prog for the Wii and it’s just soooo funny watching my OH. He thinks he’s some sort of “mover” on the floor & was well miffed when I got double his score and with a dodgy arm/boob LOL
Yes a southern belles meet sounds good as well as a total party too - the more fun the better I say!!! (as long as we remnember our bowls too LOL
XXXXXXXXXXXXXXXjoXXXXXXXXXXX (have stoppped crying now & replaced with laughing)
FEC 1 Day 2…typed reply and nearly submitted it as a “report this message”. Aaargghh…sorry Jo…
(((Jo)))…too much :///. Lucky you’re not a bloodophobe or whatever. Did my period last week…and felt angry with myself for wondering if it would be my last ever. I like things natural so all this op and chemo and stuff…let alone the SEs and pills…aaarggh again.
Emma…are you eating before and after chemo, boring plainish stuff? And when did you take the first Emend? It won’t work if taken too late as it works on the brain and not on the stomach.
Hi all - a South meet-up sounds just fine - I’m in Gillingham, Kent. Start my first FEC at 2.30pm today - feel sick & haven’t had anything yet! Was in a right strop yesterday as my friend popped round and spent 5 mins. telling me how nice my hair looked, had I had it cut and coloured, ph it really suits you…etc! I wouldn’t mind usually but I hadn’t had anythin done and I snapped at her for telling me it looked so good when it’s going to be gone soon! Felt really guilty for rest of day and ended up snapping at OH for everything from losing my hot water bottle to breathing too loud! Think my sensitivity levels are being tested at the mo - must be the nerves. Good luck to Reeb and everyone else starting today (can never remember names, sorry). Big hugs to you all xx
thanks for the well wishes. best start to get ready now - it’s like army manoevueres getting my bra on at the moment, OH helps but he doesn’t want to see the ‘wound’ so is trying to do the hooks up with his eyes closed! Last time he nearly hooked me to the clothes horse I was standing next to! Will sign in later to let you know how I got on x
Greetings! Big grrrrrrrrrsss to hormones and moodiness and OH’s breathing (or snoring in my case)!!! I’m joining the feeling angry bandwagon as oncolgist and BCN just p****ed me off-not really for any good reason just I asked a question, they answer in a “urgh isn’t it obvious way” and then sit there staring at me in silence like they’re waiting for something-they’re the professionals-they can do the bl***dy talking! Completely irrational bug I must be overwhelmed with hormones by now as havent had a period since the artificial one when I had my dx and told to come off the pill! Kinda wanted a natural one before chemo but it’s had 3 months to no avail grrrrrrrr!!!
Bacca-dont know about the eating before and after-I didn’t really think about it-my first Fec is 2pm Friday so just after lunchtime! What would the general recommendation be?
Also got my oncotype report back which gave 12% chance of reoccurance with Tamoxifen alone so no get out of jail free card for the chemo as with it the chance should reduce to 5% ish! Also had my borderline negative herceptin result confirmed as negative so that’s good to know for certain!
Sitting in pathology at the mo with my poor mum who is bearing brunt other mood! Think I may treat myself to some junk for lunch and the bucket and supply shopping tomorrow
Girls what a mixed up bunch we are today! Can’t believe Dima’s chemo was cancelled. That’s outrageous.
Nothing much to report today. Not feeling sick but no appetite. Don’t mind really as I put on loads of weight after t diagnosis. Could do with a few pounds off before t munchies set in.
Can’t face the thought of the mouthwash they’ve given me. Will wait till u absolutely need it.
Keep strong girls.
Trish. Xx
Good luck barneypaws hope all goes well, i wish i could get nervous bout starting on friday but wont know til i get there if its gonna happen or not, wound still red so i got my doubts!!! hate being in limbo ;( of out for a meal and rod stewart tribute night tonight so gonna swing my pants hugs to all pinkies julie xx
Hi pinks,
Finally got my first EC this morning. So far so good. Nothing! Yet.
Bacca - still buddies of course - watching your every move to see how I’ll be tomorrow! After all We’re All In This Together (to quote David Cameron) WAITT. What an appropriate acronym for BC!
Red pee, otherwise nil. Drinking tonic water til out of ears and taking antiemetics even though prescribed as ‘if needed’ - thanks Julie. Hope you’re right about not needing vomit bowl - for some reason there’s a crack in mine lol.
Hope general mood is better today and everyone feeling better.
Hugs and xxxxxxxx to all. Thanks for being best friends.
Bacca - Eat before and after, just a potato with cream cheese and ginger nuts seem to help. I took the Emend an hour before chemo and same time today, as per nurses instructions. Also on dexamethazone, dom peridone and ondandestron…think my stomach is just saying noooooo more cocktails! Off to hospital tomorrow if not better, they want to put in some IV fluids…yuk. Feeling a bit better this afternoon so maybe its working…probably the thought of another needle is telling body to behave…haha.
Barneypaws - good luck with the treatment, it will be over all too soon and cross fingers SE free! I guess OHs are only used to undoing rather than doing up the clasps
Pollypocket - shame on that nurse for laughing, glad you’re feeling a bit better. Sounds like the Emend is the way to go!
Jo - well done on getting the higher score in the dance comp…should have mentioned I would be John Travolta without the hair, good looks or funky dancy moves…haha. Hope you’re feeling better, nothing like a good scream!
Emma - GRRRRAAAAAAGGGHHHH followed by a big hug for you.
South Girls - will send a PM and sort out a catchup somewhere down here…and we also have the BIG one with Poppy to look forward to!
Thought maybe a Top 10 Positives to come out of this would be good to pick us up (some other ladies had a Top reasons you don’t need hair…very funny, will have to link to the post)
The back door, dining room door, gas fire, plus loads of other little jobs in our new 1905 house ‘project’ have finally been sorted after 6 months
I’ve finally convinced OH to try skiing next year (well maybe year after…it’s only taken 6 years…hehe)
My waist has dropped a size due to the LD reconstruction…good for squeezing into a wedding dress next year.
Lots of GRRRs and BIG HUGS to those who want either or both!
Cat xx
aaaaah Dima bless you will you stop making tears well up in my eyes im very emotional still you know xx as for the cracked vomit bowl well i wonder why ???glad you finally got 1st one over with and you will be sitting BRACING yourself for it all to happen ha ha from now on everything gets blamed on the chemo,From snapping at OH to FARTING loudly ,not doing the housework,to going mad with the retail therapy it’s ALL chemos fault ha ha xxx
PS bacca 75 mgs daily is the normal dose to prevent heart probs and blood clots ( my dads on it after his bypass op)plus IM also a nurse but didnt want to take one every day as aspirin can cause its own problems(especially if you have gastric problems or ulcers (dont take it) so I just take 1 alternate days.xx Julie
Glad to see senses of humour being maintained!! Friend popped over this morning and for some unknown reason(?) I got a bit tearful…ended up doing a bit of retail therapy this afternoon (again…oh dear…better stash it away before OH gets in!) He’s been banished to spare bed…snoring just got too much!)
I’m in Hertfordshire, so in for southern meet-up too?
Viv x
I don’t know how you lot cope with general messages…the Eat question was @Cat who’s cursing Emend. Sorry Emma.
I was told to take the Emend an hour before (in the packet it says 30 mins so an hour’s good)…2 and 3 same time following two days.
I didn’t get the IV dex I had 6 tabs which have caused more hassle than anything else so far (early days I know)…but made my eyes move constantly (took only four of the six today so rebelling already…same problem but the hyper/exhausted 20 minute cycle’s eased a bit).
Also told to have breakfast (my treatment was 10.30) and lunch as soon as it was over (13.00). That was with scalp cooling and drinks throughout and ice chips when the C went in. Advantage of being a minute from our own kitchen.
Mix up over the Odensetron solved by having my laptop so had one with the dex yesterday and another in the evening. No nausea or sickness at all…small regular boring nibbles and drinks, nothing very warm. Low alc beer to look forward to tonight…glass of wine tomorrow…yay
Lou…I spoiled myself Mon in Manc…he hasn’t noticed yet, been on my wrist ever since ;). One of the worst bits of all this op/chemo is we haven’t been able to sleep the way we always have since the core biopsies in late Sept…now it’s back to being the implant tube and port. Sigh…
GGGGGGGGGRRRRRRRRRRRRR can you believe my un supporting manager who has rang once in the 9 months ive been off ( although i have kept in contact with occ health etc and they have rang every 2 weeks to see how treatment doing)she rang tis pm and said she has made appt with HR for a sickness meeting ( fair enough i know they have to see you) I told her my sicknote from gp today is for 6 weeks so my plan is to come back after new year week ( new year new start) and asked about phased return to which she snapped well it’s up to your ward ( her)manager and i could use my holidays up and work 1/2 my hours like that. The incompassionate COW i really hope she never has to go through this shit cos she seems to put complete obstacles in your way Sorry Rant over
Julieb I can’t believe that woman at work speaking to u like that . What a moo. I wonder how she would cope with all that you’ve been through. ! Just ignore her and rise above it.
Dima glad you’ve got the first one done. Hope u r ok. Can’t understand why your bowl is cracked! I’d get a refund if I were u!
Trish x
I’m s southern girl too by the way.
grrrrrrrr!!!
hugs to all pinkies julie xx