well done suzyb, odd how we both had hurting hand and vain.
fab u got the emend, i dont think theyll give me that i havent been sick. just feel it. had domperidone, re named for us don perion, !!! lol. and its gone off a bit.
got a headahce and sore throat though. bring on day 8 please, heres my magic button.
thriph, haha u make me laff, prob the jellybabies, i love jelly tots, thanx for the sympathy se xxx
Whatever, Sophie!
You believe whatever you want to, Jelly Babies and ice cream! Says SJ tucking into a family sized bag of peanut M & M’s (whoops caught me!)
Cat, can’t watch progs like Phil and Kirstie, never have been able to - I struggle to make a a reasonable fist of Christmas at the best of times, let alone this year…they and Nigella et al, make me feel totally inadequate.
To everyone else, hugs - we deserve them!!
SJ xx
Poppy as LIF told us DEMAND Eemend - crikey tell em you want it don’t suffer when there is something else they can do to make things a little easier… x x x
Yes, Kaz, tell them you were sick, the difference is amazing - last time I had five days of nausea and hopefully this week I will stay as OK as I feel now. Go girl, get that Emend because…you’re worth it (have you vommed now??)
xx
Hi everyone, think I’ve just about caught up with whats been happening. Hello to the newcomers. Kaz and Sophine - hope you feel better very soon.
I felt very sorry for myself this morning as woke up with a completely seized up neck and shoulder. I’m not sure what caused it and don’t think it was connected to cording I’ve got down my arm but I just felt ‘what else can go wrong’. At 4am it is easy to become over emotional. It might have been the stress of ever-nearing chemo appointment on wed. Took some ibruprofen and paracetamol and was then able to get out of bed and then a lovely friend of mine came round for a coffee but ended up giving me a massage which really helped. I also had physio appointment booked today for cording so she managed to sort it out a bit more.
I’ve been preparing today for what’s to come by making the carrot and ginger soup and the ‘Go cake’. The house smells lovely. My son’s were hoping to have some of the cake but I thought they’d better not as they don’t have any problem in that area!!
Have got ONC appointment tomorrow. I didn’t realise I was going to have to see her again before wednesday as all bloods and tests have been done. Did everyone else have this? What is she going to do? Just wondering how long I’m likely to be. ALso just thinking what to do on Wednesday. Does my OH stay with me for FEC 1 or take me and pick me up later? I was going to try the cold cap so it’s going to take some time and just think it’s going to be so tedious for him!
I’d like to say my character in our blockBUSTer film would be someone who is very glamourous and beautiful but realistically I would probably be Miranda!
Big hugs to everyone
Angie
I’ve been told that I’ll see the onc the day before each chemo appointment - when they’ll also do my bloods. I’m hoping I will see her on my chemo date as I don’t have an appt. with her beforehand, and bloods have already been done - but only because I need another sick note! Think it’s a good thing to see onc. frequently - it’s a chance for you to ask any last questions you’ve thought of, and for the onc. to keep a close eye on how you’re doing.
My OH is going to stay with me - you’ll be sitting around for a while, and then a good hour while you have the chemo, so you’ll prob. be glad of the company. ~But, if he’s likely to wind you up by getting bored and wandering off (hmm… another reason why my OH reminds me of a toddler sometimes), then maybe you’d be better off with a good book!
I LOVE Miranda!!!
Sophie x
Hi Angie my oh stayed FEC1 but not sure for what i will do for FEC2. I liked the safety of him there but he will struggle with work nxt time and also I know that i am pefectly safe with the nurses. may take friend or myself yikes not really sure x x Big hug for 1st one I was glad to tick my box and to say it is done. hope all goes well and worry before hand was and is still the worse bit.
x x x
Thanks for that Sophie and Summer. Perhaps I’ll wait until have seen ONC tomorrow before OH makes his decision what to do. He has got a business to run but on the other hand perhaps selfishly I would like him there. Or maybe a good book would be a good idea as a bit of escapism!
xx
Hi all, and welcome to the new pinkies. You will have absolutely no time to worry about BC now that you’ve joined this thread as it takes all your time just keeping up reading it!!
Well done Kaz n Kimme for getting the next one over. Even if you feel like shit it’s over. Day 8 is spot-on Kaz as the day you wake up feeling great. Bring it on. Your day 8 will be my 2nd EC.
Meanwhile this is supposed to be my good week but my son wrapped his dad’s car round a tree in black ice and freezing fog last night, so my role is referee at the moment. Thankfully no-one is hurt and frankly I couldnt give a FEC about the car. Stuff like that just SO doesnt matter any more. Ah well - happy families eh?
Hugs everyonexxxxxxxxxxx
well done Kaz and jo ( was it yours today aswell ?) for getting over no.2 next one can you believe will be 1/2 way through.Kaz you can still ask for Emend with nausea i actually think that feeling is actually worse than being sick (at least i got relief when i was actually sick)so ask before next one(infact demand)I love Meet the Feccers millykins and finding chemo weena ssssssssssoooooo funny/I would like Olivia Newton -john to play me cos i want to be thin enough to be stitched into those trousers she wore in grease ha ha.
Reeb -mooning to lorry drivers really hope you didnt pee a rainbow I mean yellow snow we know to avoid but pink … the children will be making fancy snowballs with it.Well ive been xmas shopping today and left you for a day and couldnt find my last post there is pages and pages to catch up.took me ages.I think OH was trying to be complimentary tonight but it didnt come out right he said " you can tell youre hair has definately grown julie cos its starting to look messy"!!!I think he means its starting to curl and stick up aaaagggghhhxxxxHugs to all Julie
try and have a good night sleep pinkies
PS welcome to new Pinkies glad youve found us you’ll need about a week to read through all this lots blabberings ha ha we’re all here for you any advice just ask xx
Angie glad youre trying the GO cake are you doing the one with EXTRA GO ? or mild one ha ha.you’ll have to becarefull you dont get caught short like Reeb …could be messy x
Question…why do they give us steroids? I always associate steroids with athletes…is it so we can run to the sick bowl super quick or is there a more scientific and medical reason??
Also, was lying in bed with stuff whooshing through my head and thinking of our film and how I said I thought Caroline Ahern could play me as she’s a Manc when I thought actually if I’m doing the Manc thing then I should have a Corrie Street actress…naturally I’d like to be the sexy siren character (don’t watch it these days so don’t know who that would be) but then reality struck…I’m Hilda Ogden!!! (or actress Jean Alexander to be precise)
It all fits, the scarf on the head, the dressing gown and I even have three fridge magnet dolphins a la flying ducks on Hilda’s wall (fridge dolphins strictly ironic I thought but maybe not!) It’s come to this, I’ll never get to sleep now, ah well, kitten training time
Hope you all safe and sound in the land of nod
xxx
SuzyB
Although not Mancunian, I suspect that I would be an Hilda Ogden type…mind you I would like Dawn French to play me, methinks!
The taking of steroids has made me realise if I was ever drug tested, I would be banned from representing England at anything - damn. I would be interested in what part they play, I just accepted that they needed to be taken.
My OH stayed for FEC1, but as we had to wait for a while and then during, my chemo nurse (the lovely Rebecca) wanted to chat about various things, I would be quite happy to be left there…with my iPod/book.
Does Emend only work if you are actually being sick, I was very nauseous, but not actually sick…is it worth asking for in that case?
Hugs to all this Tuesday morning, keep warm and safe out there
SJ xx
Blimey just taken me half an hour to catch up with this thread - you lot can talk! Re film it’s got to be Meet The Feckers! What’s Emend?
Love it pinkrose - meet the Feckers - how appropriate
SJ xx
Emend is the crown prince, or possibly even the King of anti sickness/anti nausea medication… and has a price tag to match (I’m sure I read on another thread that each prescription of it is about £85). Now, the NHS also use cheaper anti-nausea meds, and it seems that most health authorities will automatically use these… unless a) you are exceptionally fortunate or b)you throw a tantrum and demand the best. If you are really, really good at tantrums, you might achieve this before your first chemo… but for most, the oncs cave in after a miserable bout of sickness after the first FECing one.
Emend is a prime example of why you should be a very, very squeaky wheel during bc…
Sophie xxx
OOOh I will turn on the tears at FEC1 then, I can do a very good tantrum when needed … will take lessons from my 15 year old who had a massive one last night when I said she couldn’t go away for new year with a group of friends! Thanks for the info.
Hi all!
Sorry I have been away for a while I have missed so much by the looks of it and will make a concerted effort to catch up with it today! I am doing ok and hope everyone else is! I’m Day 10 now and feeling fine! Went to Trendco in Hove and got a lovely wig from a lovely lady! I have been wearing my wig over my hair already as I love it and it’s helped to get used to it!!! Anyways, going to have a reading session now but hugs to all pinkies xxxxx
Morning pinkies, it’s freeezibg…brrrrr.
Steroids I think are for the sickness and give us some energy…
macmillan.org.uk/Cancerinformation/Cancertreatment/Treatmenttypes/Supportivetherapies/Steroids.aspx
not sure I’ll be competing in the 2012 olympics as a steroid popping bodybuilder…haha.
Hi emma - glad you’re feeling good, I went to trendco in London and they too have fab wigs and a gorgeous hairdresser too 
when is your Brighton coppafeel event?
cat xx
They’ve postponed it to the New Year unfortunately but kinda helpful as my first FEC was when they were intending to do the training so at least I shouldn’t miss it now! Trendco are amazing I really genuinely prefer my wig to my hair so just waiting for it to fall out now! Haha! Xxx