Zax, thank-you.
I start tomorrow and was feeling a bit nervous, but feel a better having read your post.
i too have bought the cream and simple soap. I have been using Aloe Vera cream since my op but will switch to the aqueous stuff while rads are going on.
Lynda
Hello Februaries,
I am actually a Januarier (started today) but thought I would just let you know what happened. I was really nervous and very wobbly and hate to say it burst into tears when I had a little prezap chat. This I think was total nerves and fear of the unknown. The zap itself actually went really well and the lining up of tattoes and getting me into position was fine - so don’t worry. I have no 2 tomorrow and feel much more settled about things. Best of luck to everyone xx
You’re welcome LakesLover and Cosmic makes a really good point. The treatment is relatively ok but my emotional elastic went TWANG on my first day too. Caught me by surprise as I thought I was on top of things but nope, had a little meltdown but not just any meltdown of course…it was an M&S meltdown…in the underwear department! I really do know how to make an idiot of myself…
Anyway long story short be prepared for the old emotional Wobblies! Be thinking of you…Zax
4 down
14 to go
To Zax, Thank you for your post. Due to start Rads tomorrow. Been today to get machine set up and for skin care advice. Been advised may get some tiredness but hope ok as just gone back to work. Feeling ok about tomorrow from other posts. Staff in radiotherapy unit lovely which helps. Pleased you said ok using SANEX 0% as I have been using that but hospital said to use only simple soap or baby soap.
Hi,
Just to say first appointment today was fine. I have managed not to meltdown yet…well not for the last 2 weeks anyway 
Lynda
Room for a little one? Start my rads on 7th, got my little dot tattoos at the ready!! Little bit nervy and I’m wishing you and myself minimal se’s!! Simone xx
I’ve noticed that some ladies are buying aqueous cream when usually your hospital/clinic should be giving it to you free of charge, if not then get it on prescription, as when you are having treatment for breast cancer you are entitled to free prescriptions. I know it’s not very expensive but over a matter of time for some people this can mount up.
First rads done - and guess what they’ve drawn all over me again - I think so they can find the tattoos - and asked me not to wash the marks off… some of which are visible with clothes on (and trust me, it’s not a low neck-line).
Oh well, it’s only so they zap me in the right place I know.
An OK experience, even found a parking space without trauma.
Its hard not to be paranoid and think is my skin hot? Am I feeling tired? all the time - I’ll have to distract myself as it is stupid worrying about something that might not happen.
Hope everyone is OK today - lovely blue sky today here so hope you have all had a lift.
Sue
Hi Sue,
I think I am as paranoid as you I kept feeling myself yesterday trying to decide if it was hot!!
Second zap today was a quick as the first, and they were running to time again. So far so good.
Lynda
Hi Everyone
I got measured up today ready for treatment. I don’t start until 23rd so just have to turn up on the day now I guess.
Not sure how many tattoos I have 4 I think.
Hospital again tomorrow to get the falsey fitted, should be fun.
All the best
Anne x
Morning Ladies, it’s the Paranoia Police here with the latest update;-) Session No 6 today and pleased to report after much groping and checking no hot boob yet and skin feels OK. On the whole feeling well although did feel a little drained yesterday afternoon which am told is quite normal as the treatment has a cumulative effect. I’ve self-prescribed more sofa and PJ time!
Thx Simone for the reminder about free prescriptions, I forgot about that. Good luck for the 7th, I think there are a few of you starting that day.
Hope you all have a good day today…Zax
Hi ladies, I too was measured up yesterday and have my 4 tatoos and treatment starting 28th as wound not fully healed. I was just wondering do you prepare a few days beforehand with the acqueous cream and has anyone used the 99% aloe vera gel?
Glad to hear no bad side effects for your guys and hoping I will be the same.
Take care
Lisa
Hi,
I used an Aloe Vera cream for the four weeks before rads started, and have switched to the aqueous cream now until they finish. Then I plan to switch back to Aloe Vera.
Lynda
Hi folks,
Excuse me joining the happy band. Had scan etc today - rads to start 20th Feb. So glad to finally get it date - feels like Ive been waiting for ever, even though its only been a few weeks. Am going to do lots of moisturising cream over the next 2 weeks as she has said I can only use acqueos cream once rads start.
kaj
xxx
Hi All
Managed to get the right falsey for me today, it was like being in Ollianders Wand shop and waiting for that flash of light that said yes that is the one.
It is all tucked up for the night now but am impressed how real it feels. Have decided to name it Peony or Sweet P as a term of endearment LOL
Have been feeling tired recently must take it easy over the week-end
Take care
Anne x
Thanks so much Lynda, will be getting some AV at the weekend and get started over the next few weeks.
Lisa x
Hiya,
I firstly must apologize for jumping on this thread as I dont have a date for rads yet - I am new to this site so please bear with me!
What I really really need to know is what is it like ? Do you feel drained ? Do they usually just give you a time for your appointments and what if you have to work ? So sorry lots of questions I am so scared and keep having complete snot inducing braekdowns as this is all unknown to me.
I had a wide lumpectomy last week and thank godness it hasnt spead so I know I am a very very lucky girl but my life seems to have been taken over by a lump now !
Gentle hugs to all of you.
Hi emintrude
Everyone is different. At my hospital I was given my appt schedule when I had my first treatment. I didn’t feel tired until I had done about ten sessions, and that’s when my skin started to go pink. Some people work through the treatment.
Hope that helps a bit. By the way treatment doesn’t take long and is painless
X sarah
Hi,
I was given my appointment schedule when I had the planning session. I’m on sick leave at the moment so I didn’t ask if there was any flexibility.
I have had 3 sessions so far. I feel a little tired but I think that is more because I haven’t slept very well since my diagnosis in December rather than the rads.
As Sarah says the actual treatment takes about a minute and you can’t feel a thing.
Lynda
Thankyou so much - I keep reading horror stories about fatigue and not being able to work ! Hence the reason I have joined on here so basically when I see the oncologist and get sent off to St Thomas’s they will give me my times dates etc ? I know I am being a bit dense but its all happened so quick !
Sara x
Hi Sara, I stayed off work while I was having chemo but I’m intending to continue working through rads from next Tues, fingers crossed, and the hospital have been fab, I just asked if I could have them in the afternoon so that I can work in the morning have rads in afternoon and then go home and hopefully have a good rest in the evening before returning to work the next day. I think if you just ask then your onc team will probably try to accommodate your request. When I went for scan, measured up and tattoo dots, I was given my times and aqueous cream to start using 2 weeks before my rad sessions begin. Try not to second guess everything, you’ll drive yourself mad!!! good luck, Simone xx