hello all
as title says im still feeling rubbish a lot of the time
im sure the recent hot weather isnt helping.
last rads was end of march,chemo finished in feb
i was hospitalized 3 times due to low bloods
so i should be bouncing round by now, right??
im on tamox and thought the sweats had settled a bit but they seem worse than ever accompanied by racing heart sometimnes
i should thing 3 out of 7 days i still feel nausious
dont get me wrong i am much better, i can walk dog every day and have started going out for days with my son,though it is a big effort and i dont do much
should i be a lot better by now?
i still avoid shopping trips(too hot in shops)
dread school functions incase i get hot and dizzy
and frequently take to my bed exhausted
im just fed up lol
Hi lincs lady, I am sorry to heaR you are feeling so bad at the moment. I had my treatment two years ago and still get tired days. The most severe symtoms you are feeling DO calm down. You have only just finished treatment so its early days still. I do find the tamoxifen side effects hard to tolerate though and hot weather certainly doesn’t help.Your body and mind have been through a hell of alot so it will take time to feel better but it does improve with time.
Take care
Rachy xxx
thanks rachey
i think with other people thinking that im all done now and look not too bad , they think i should be doing more
they have no idea do they
its now the 4th month and i just want to get on with things, instead of never planning anything and waiting to see how i feel every day i wake
i was going to go moan at the dr bit i dont think there is much point
To put a more positive spin on it…you feel ok nearly half the time-so that’s not bad? Forward planning may have to wait for a while yet, as it’s best to take a day at a time, for another little while. But you’re making progress, so that has to be the most important thing? I agree there’s probably not a lot of point seeing your g.p-there’s little he could do, although possibly prescribe anti depressants if it’s getting to you too much. Don’t underestimate the effect of the warm weather-that could make an extra 10% difference!At least! I have secondaries, and so am on chemo for life-and the hot weather for me is as bad as some of the drug side effects-and yet lots of people love hot weather-eeeek!
Hi Lincs Lady, I am 8 months after chemo, I am on Arimidex and Herceptin but I just know how your feeling. I spend half my time in bed. I get up and after about an hour I am exhausted, and its a tiredness I cant explain. I just have to lie down when it comes over me, I am sure I would sleep with a marching band in the bedroom lol I did speak to my GP about it this week, I had gone about something else but I thought I would just mention it. And he said you have to realise Heather your body has gone through a big emotional and physical thing and it takes a long time to get right. That did make me feel better, and also coming on this site and read that other people are feeling the same. It is a nuisance though when you cant plan anything, at the moment I am struggling for 2 weeks after my herceptin, then I have an ok week then its herceptin again lol I don’t want to stop it
though I would rather put up with the side effects. The hot flushes are a pain as well, I never had many hot flushes when I went through the menopause, but since I have been taking Arimidex I get them all the time. This weather is not helping me at the moment though, I am not a sun worshipper but I do like to see the sunshine. Here at the moment though its not the sun the air is just so tiring, my daughter is a teacher and she said her and her teaching assistant are feeling tired all the time. Well ive just read my post back and I thought what a moaning b**ger I am lol
Anyway Lincs lady we have to be happy we are still here to moan lol
Hope your feeling better soon
Heather
thankyou everyone
though im sorry you are feeling this way too, its nice to know its not just me!! if you know what i mean
im going away next sunday for a 3 day break with my son and our cousin and i so hope i can manage,
this is our treat after all the s##t, in a nice hotel
looking forward to winter lol
i will try not to be so hard on myself
i also need to start somesort of diet, i cant do any more exercise at the moment.
but i am putting on weight, too much laying around and snacking i know,but what else is there to do lol
thankyou for listening xx
I had the same as you in the first three months of taking Tamoxifen. Since then I no longer take the valoids for nausea and the sweats have gone. The only thing I have left is the weight gain and joint pain.
I was told the first three months are worst and then what SE your left with shouldnt be so bad.
Daisy