Still getting my head round all this

Diagnosed with breast cancer Recently diagnosed with breast cancer
1

Hello

 

i had just under 3 weeks of hell trying to get to accept the news that I have BC. This has been a hell of a ride and thinking it’s just the beginning makes me dizzy! I have never been one for rollercoaster … 

anyway here I am 18 days later from being told my lump was U5 with 2 suspicious nodes. Since then, blood test, CT scan, Bone Scan and MRI. I am meeting the oncologist Friday. 

So far I know that my CT Scan did not show evidence of distant metastasis, blood results are good. I am oestrogen negative (bummer) and my HER 2 is borderline (so it’s been retested) but conscious i have a good chance to be TNBC.  I will start with chemo I imagine very soon.  Waiting for results for MRI and bone scan so quite worried.

i have started sleeping a bit more but have a 3:30 wake up time and have tried to keep going to work (but my productivity has been limited) and I have a ridiculous lower back pain and pain in a rib (since diagnostic).

I don’t know why I am writing or what to ask but I guess I am trying to adjust to this.

i have read people say things gets better when treatment is in place and gets started - I hope it’s true but that brings its own worries. 

I am worried that I will have to give up work as I work in a big open plan and bugs go round (the more I think about it the more I think it does not make sense to be in such an environment). 

I hope the oncologist will support an integrative approach or at least will be open to it. I hope I will be strong enough to question and challenge if necessary. 

I have thousands questions in my head that can’t be answered … 

Thanks for reading 

 

Aurore 

 

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Aurore2000.

I have never been keen on roller coasters, but they kind of go with the territory. Personally I felt the term “waiting for treatment is the hardest” was a bit of a platitude which doesn’t really give justice to what goes through your head. 

You are covered by Disability Discrimination Act as regards work - maybe time to put work behind other things on your mind, or start a dialogue with your manager so they can work with you.

Best of luck; you seem very ‘held together’, but be kind to yourself. 

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Hi Aurore, glad to hear your CT scan is clear and I hope the bone scan is too.  If your lower back and rib pain is new since diagnosis then it’s probably caused by anxiety as you be holding yourself much more tense.  I had chest pains from anxiety when I was diagnosed.  It’s no fun at all.   Can you give a few examples of the “thousands of questions” you have?  Maybe if we just tease a couple out we can put them to rest!?  Sending hugs. Xx

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Hi Aurore, feel like I am in your same boat…recently diagnosed with IDC, waiting for oncology visit tomorrow…have had breast MRI, ct scans and bone scans but no results yet.  Diagnosed 11/22 and I feel like since then I have had extreme lower back pain and shoulder pain…hoping and praying this is related to stress and anxiety but so much unknown!!