Still in the dark...

Hi girls.

I’m new here, 41, and a little scared, and I’m hoping someone can shed light on my situation. I found a single prominent lump 3 weeks ago in my left breast that felt quite sore, so I had it checked out by the GP the next day. She did a physical examination of both breasts and referred me to the breast clinic for a thorough checkup.

I had the usual mammogram and ultrasound and the left breast showed up as having not one but three benign cysts in the end, much to my relief as you can imagine. I then had a brief physical examination followed by my oncologist leaving the room to check the mammogram results again and calling me through for a quick chat. She had a magnifying glass against the x-ray and pointed out a cluster of fine microcalcification in the upper outer quadrant of my right UNaffected breast; I had no idea what this was, and non-plussed, took her up on her offer to immediately do a biopsy, I figured it was better than making another appointment and waiting. The biopsy was horrendous. I only have small breasts and it was tricky trying to get samples of the tissue whilst being clamped lying down on my left side (it was impossible for them to do it with me sitting). My oncologist checked all 6 samples via x-ray and was satisfied she’d got enough microcalcs to get checked out. 4 hours later, on my way out and feeling a bit worried, I asked to be copied in on all letters of communication between my oncologist to my GP then went home, sore but not too bruised.

The week wait was the worst thing ever. 2 days in I received the oncologist’s copy letter to my GP’s surgery informing them that ‘physical examination confirmed dense breast tissue in the upper, outer quadrant with a slightly denser area more inferolaterally. Mammography showed a dense parenchymal pattern with low density rounded opacities in the inner left breast which were found to be cysts on ultrasound and a small cluster of very fine microcalcification in the upper, outer quadrant of the right breast which was indeterminate in nature and was biopsied’. I did a lot of research on the Internet after that.

Results day finally came round and this morning I was seen by a surgeon. She informed me that they had found ‘evidence of abnormal cell activity but needed to do a wire-localisation surgery in 3 weeks’ time and I’d get the results in 5!'. She assured me I do not have cancer but that it may be pre-invasive cancer. I am to have a small 6mm area removed under general and it’ll take a day to do. From there she thinks they’ll be able to determine what I have, if anything. I left there more nervous and confused than when I went in. My questions are:

  1. How come after 6 biopsies they couldn’t determine whether there is any cancer (pre or whatever) when the microcalcs were caught up in the sample tissue?
  2. Why not just repeat the original biopsy procedure as opposed to doing the larger tissue removal in 3 weeks’ time?
  3. How can they be sure they’ll get better info from a tiny 6mm lump removal if they couldn’t via 6 samples, what’s the difference?
  4. Is it possible the right UO breast tissue is so dense that it’s hiding something like a lesion and that’s why the biopsy results proved to be indeterminate and they need to dig deeper so to speak?

I know everyone’s unique, and that I should just sit back, be patient and wait 5 weeks, but can anyone tell me if their experience was similar and what the outcome was. I know what could possible be in store as I’ve read up on all the potential outcomes, I’d just like to make sense of all this and prepare myself a bit better, mentally speaking. I wanted a definitive yes or no result today and it’s so frustrating, 5 weeks seems like lightyears away…

Thanks.

i know where i work they would normally do a further biopsy… and if you would prefer the to do that rather than the surgery you can request this.

unfortuantely surgeons arent always so good at offering you optios just what they think you should do.

however perhaps if the calcs come back inconclusive again its only delaying the inevitable…

but if you would rather have another biopsy or just watch and wait then you can do this.

occassionaly when they see something like calcs showing on mammo they expect the pathology to come back showing some kind of abnormal tissue… if it comes back as normal tissue this could mean they have missed their target… at my unit they would normally try again and if it was still looking abnormal but coming back normal they would then offer the excision biopsy and look at the whole area under the microscope.

6mm in terms of looking under a microscope is a reasonable size compared to perhaps trying to pick up a tiny 1/2mm calcification by needle biopsy.

even if you breast is dense on mammogram, an ultrasound shows up better for denser breast… they wont just remove tissue because it is dense.

good luck hope its all good news

Lxx

Thanks for your message, much appreciated…can’t help thinking it could be DCIS they’re possibly looking for, the calcs looked like a cluster of lines on the mammo…so maybe that could explain why they want to operate? I don’t know, just speculating but a little nervous anyway… X

Hi all. My initial abnormality (in addition to the cluster) was finally confirmed as ADH, so after some research I now understand more why I had to have an excision biopsy done last Tuesday - the wire insertion was horrendous and took an hour to complete but other than that it went ok. I have virtually another nerve-wracking week to wait for the results. Is there anyone else out there with a similar story? What was your outcome? Please share as I keep expecting the worst and am in need of a little support. Thanks.

Results day tomorrow…will post when I have them - just as a follow-up for any readers who find themselves in a similar situation.

Hi bigwig,

If you need a little extra support, do give the helpline here a ring, they’re here to support you through this.

Take care,
Jo, Facilitator

Thank you Jo I just may do that as I’m struggling to stay upbeat today…x

Good luck and thinking of you, bigwig.

Ann xxx

Thanks so much everyone…

Well it’s the best news I could have expected really, I was told today that they have removed all the ADH with clear margins, only DH in the margins, and was told they have no idea why the ADH/microcalcs cluster were there in the first place, but all is gone now. So I will get checked again in 12 months to be sure there is no recurrence. The floodgates opened when I left as 4 weeks’ tension had to go somewhere but I am so relieved, I feel slightly silly for over-worrying now…Just one concern is left for me right now: can ADH or microcalcs just randomly pop up again around or near to the excision site or even in the other breast? If so (similar to if ER+ DCIS had been found and Tamoxifen would be advised) is there any way to temper that possibility? Does anyone know? I just want to be as vigilant as possible. Thanks for all the hugs and kind words, you ladies are all wonderful! xxxxx