Hi Everyone, I was diagnosed with high grade DCIS last August. I had a single mastectomy last November, pathology results were ER & PR negative, HER2 positive. I was told I needed to come off my HRT and I completely stopped this in January this year.
Since March this year, I started getting vaginal irritation and now I have bladder problems with extreme discomfort, I have had numerous urine tests however no bacterial growth has been seen but I have high white cell count in my urine. I have now been referred to Gynae. Has anyone experienced this? I have tried different creams and supplements etc. I never had any of these problems before, its only since I stopped my HRT. Its really getting me down x
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My GP offered me vaginal oestrogen the other week. I’ve settled for trying just a moisturiser for now as mine was oestrogen positive and I have radiotherapy next week. I will take her up on it if the moisturiser isn’t enough though as it’s clearly deemed safe and is meant to combat UTIs and vaginal atrophy.
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Hi @mitch2
Its bloody awful isnt it. Youll get there though through trial and error. There’ s lots of info on here re topical estrogens and other therapies.
I suffered with atrophy and tried allsorts. My winners are
Estriol cream
Yes yes gel lubricant
Dilators
Issviva red light therapy rejuvenator
Pelvic floor exercises
Green teas can be a bladder irritatant.
Try what you can, it will take time and alot of patience.
If you dont like the idea of estriol there tablets called Ospemifene which are a SERM that can help. I preferred cream.
Good luck xxx
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Thanks so much, this is really helpful, I am currently trying the oestrogen cream so hopefully see if this works x
Thank you for your response. Good luck next week with your radiotherapy xx
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Thanks
I had this same issue a few months ago, this was before I was diagnosed with breast cancer last month.
Earlier this year, I had urinary issues and was then referred for an ultrasound to check my kidney and bladder, only to find I had a fibroid. Since then, I was having similar issues with itching on the vulva for weeks, had urine tests was showing problems with white platelets, and saw a pelvic floor physiotherapist. Then, a few weeks later was diagnosed with breast cancer, and the consultant told me to stop my HRT and remove my Mirena coil, which I have done, had then had a lumpectomy a few weeks ago. Have noticed that the itching has now improved, and I was given a cream when the itching started. I was thinking it might have been the coil or HRT causing the itching.
Hi, thanks for your reply, I recently saw a Gynaecologist who put me on one month course of antibiotics which have definitely helped. I hope you are doing ok after your recent diagnosis x
I’ve also been refered to see a UroGynae I have an appointment but not till January next year.
I’m currently taking antibiotics as saw the nurse and doctor yesterday, to check on my underarm wound might be infected and go back in few days for an ultrasound to check to see if it’s a seroma.
Hoping the antibiotics will help your symptoms get better x
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Hi @mitch2
Saw your post. How are you getting on with the cream?
Hi, I have not been using the cream for a while as been on 1 month course of nitrofurantoin antibiotics, the symptoms are much better, I will wait until I finish the antibiotics and then probably re start the creams etc, thank you x