Storm Riders/A Town Called Determination

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Morning All!

Oooh GWWWYYNNEETTTHH! What Eliza says is a good idea. Do it girl. You’ll be fine. Psychic Steel predicts again! Lol!

Must catch up with you on your history interest Eliza. I’ll back track and bring myself up to speed. I developed a sudden interest in the fashion development and history of the late 19th/20th century a couple of years back, and got obsessed with the rationing years of the 40s through to their end in the 50s. I’m now starting into society and politics of the time. I’m the scruffiest so and so out, but I can give you the low down on most of the major couture designers of the 20th century! Strange what suddenly grabs you. Lol!

You’ve probably said, but can I ask again? How have you been on the Tamoxifen overall? I mean, would you rate it as easy enough, annoying but do-able, or horrible?

Talking of chocolate sponge, I’m off to buy some fruit and veg today and will be adding a nice pile of cherries and raspberries, some dark chocolate, cream, and, any guesses what I got a sudden craving for which I totally intend to make and gorge myself on? I can almost taste it. :slight_smile:

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Morning all Storm riders,

That op sounds great Jane. Is that private or NHS? I have enough fat on my belly to create new boobs for everyone on here LOL. I know i read on here about you cant have this if you have scars so was heartened to hear you have a csection as well. I also have an appendix scar though albeit a very neat one.

I am still in grips of sludge gob so all food tasting foul. The annoying thing is i have a constant (real) hunger pain. I am constantly trying to find food that goes in quick. This, at moment, does not include meat, fruit or veg. All things i really need to eat. Eggs, rice and ice cream is what i am living on. I have tried soups and smoothies (yuck!!). so Carole, at moment your lovely fruit and veg which normally i would crave and love are also turning my stomach.

Eliza, i live in Essex so where are you today? on subject of Dina Abrinovitch, cant say i warmed to her in book but i think it was a blog turned into a book and they dont always work. That, and the fact that she had seemed to have access to all the latest treatments that most of us mere mortals are denied. However, found the fact she had died despite all this, distressing. I suppose it brought it home how vulnerable to this we all are. Have you been reading Alright tit, the blog of a twenty something? Type into your search engine. This is funny,poignant and touching, the girl can write.

Oh and by the way everyone, I have sat around the house this week in my pj’s doing diddly squit. My house looks like the wreck of the hespas but i have continued to lie resplendant on my couch. Why? Because i am too tired to do anything. I am not going to feel guilty for it. However, i might run a broom around today as i am feeling very slightly better… We shall see. Will need to look at the ironing pile (i said look dont touch) as it has now almost reached ceiling height (I kid you not).

Enjoy your day.

Linda

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Morning all. Thanks for all your best wishes. Feeling tired this morning, but I’m off to the local church now to help with their flower festival. I’m doing a couple of topiary trees to put by the door. It’ll be nice to do some floristry for a change!

Eliza, words of wisdom indeed for Gwyneth.

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Is that tired, or are you going to own up to hungover? :smiley:

Flower festival sounds like a lovely distraction. Have fun!

Rest up Linda, no point in pushing it now your on the home stretch for chemo. And you can live on eggs, rice, and icecream, who says you can’t. Lol.

I have a great way of dealing with ironing. Wash it, dry it, fold it, put it away. When needing a shirt or something that is all crinkly, always choose another one that isn’t. Never under any circumstances iron OH’s clothes. He wears 'em, he can iron 'em. Only in the direst of emergencies does my iron come out, which is usually about 3 or 4 times a year. Not kidding. :slight_smile:

My vanity is coming out - think I’ll take another photo, that one really is too hard to bear. :slight_smile:

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Hi

Who has a hangover? Alcohol sigh i wished… Havent had a proper drink since January, just doesnt taste the same does it??? Two glasses of bubbly at a wedding reception a few weeks ago had me nearly floored and redder than on steroids!!! (that was wk 3 so i could at least taste it and it was ok)

A lovely lady who lives along the road, (retired i think) just knocked at the door and insisted on taking away two bags of ironing to do for me. Who says community spirit is dead…

Ironing, problem two boys, shirts and trousers dirtied every day.OH who goes to gym every day so 2 lots of clothes although he insists i shouldnt iron them, but i hate looking at creased clothes. I have got a bit smarter lately and try to buy wash and hang stuff - bought a lovely crinkly top that covers up bullet hole boob and doesnt need ironing in Bon Marche. Not height of fashion but bullet hole dictates what i wear now. Dont know about you but the dent the surgeons left definitely looks like i’ve taken one.

Gonna read the papers now.

Linda

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Wakey wakey campers!!..what! …everyone up already…blimey is that the time!!!Done it again…but feel quite chirpy having a good lie in. So that means that as you are having a doze Di…I was just waking up! heheehehe

Methinks a hangover may have a hand in your tiredness…as well as the rads recovery Sal, what say you!! And keeping your hand in with the flowers…nice!

Hey Lynda…the op was on the NHS, but they have only just started offering it to us mere mortals this last 12months or so. The plastic surgeon just extended the c.section scar!!

The doctors have just rang…I run out of arimidex today, but they won’t give me any because the hospital has not sent them a letter saying I’m on it. Thing is the tabs are supposed to be continuous. The secretary is going to ring the hospital now…hope I get them! Never thought I’d say that!! communication, communication, communictaion…sigh

Eliza you get 6monthly checks, thats good, wonder for how long they go on!

{{gentle hugs }}} to all recovering
catcha ya later
Helenxx

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When i got married I told my Oh that I don’t mind doing the usual cooking etc but there was no way I was doing his ironing, he had lived on his own before we got together and did his own so that wasn’t going to change…Im sure the mother in law still thinks Im a dreadful wife ! Lol, in fact Im a baaaaaaaaaad woman as having been told to lay off the ironing since my op I have taken that to mean that I wont ever be able to iron again ! Had my op Feb and still havn’t gone near the iron…hmm just wondering how long I can string it out…doing alright so far…

Lovely day here,am just going to potter in the greenhouse and sort out my tomatoes which are growing like big fast growing things…

Sandra x

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Helen - i had a similar problem when i got to the end of my first pack of tamoxifen… my gp had not recieved a letter off the hospital saying i was going on it… eventually they very grudingly agreed to give me another week’s worth… (i took along my pack which had the hospital pharmacy sticker on it…) My bcn said the gp surgery were being very difficult as all their letters to them had said I was highly er+ and would be having tamoxifen following surgery…

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omg I’ve gone mad…could have sworn I posted on here - well I posted somewhere…been away again, same hospt just different ward…monday night I had the trots, tummy ache in morning with high temp of 38.2 so off I went for blood test - neuts were fine but white cells up so they kept me in for i/v a/biotics and got let home at 6 last night - oh what fun - old man reckons its cause I mentioned camping this weekend again…
Sal…sooooooooooo glad you whooped the rads and won…go girl!! Theresa - glad to hear about the chin(s) I too have a few spare and Linda I too could supply the blubber to make a few sets of boobies…
this morning off I went for rads planning and have to go back next week as I need to go on a machine for the well endowed!! Gawd they’re not that big!!! But apparently its a common flaw - whether its cause we have older machines here or what but its a simulator I need, no not a stimulator…but there again…;o) mary x

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Oh Mary not again!!! Glad you are out and ok now…roll on the end of chemo eh!
Thats a good tip Theresa…I’ll go fish the tablet boxes out of the bin, just in case the doctors need more proof. They haven’t got back to me yet so still waiting!
Did I say I was feeling chirpy…2hrs up and I feel tired again…going backwards, ha!! Think I’ll go for a walk…catch ya later
helenxx

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Mary - sorry to hear you’ve been back in hospital again… {{{hugs}}}

Helen - hope that you get it sorted…

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Carole, I’d rate the tamoxifen as annoying but do-able. I think it makes me tired and sometimes a bit spaced out, and I suspect a bit moody! I get some joint pain, some cramp and, of course, hot flushes and night sweats, but at the moment I feel it is all very do-able. The difficult part is knowing that it will all go on for so long.

I’m hopeless with 21st century fashion but can be the height of fashion and vanity in the 14th/15th centuries!

Linda, I’m working today but at the weekend will be at Cressing Temple Barns. Private show for the a group who have booked the site on Saturday and a public event on Sunday. I’ll look out for the blog.

Helen, hope your walk helps with the tiredness. I know that is something that helps me. At my post treatment check I asked about follow-up from here and he said it will be for 5 years with an annual mammogram and checks, and that provided he was happy after examining me I would go onto 6 monthly checks (otherwise back in 3 months) but if worried in between to ring up and get an appointment. At some point I may get switched from tamoxifen to arimidex. Hope you get your prescription sorted today.

Sorry to hear you’ve been back in hospital, Mary, and what a nuisance having to go back for another planning appointment.

Incidently, I definitely subscribe to the Carole Theory of Ironing!

Right, back to work!

Eliza xx

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What a b*gger Mary! What you doing to yourself? :slight_smile: Totally lost the plot on where you are with the chemo. One to go? If so when?
Wonder what the endowment cut off is the for humungous machine? I might be on for that too.

Got to get myself a greenhouse. I love growing tomatoes but can’t get them away at the windows here, and 'cos we live high up we haven’t got enough heat for long enough to do it outside. I’m going to set up a cold frame this year for next season, so I might think about a wee greenhouse as a Christmas present to myself. Oooh, home grown peppers, tomatoes, chillies. I think aubergines go in the greenhouse too don’t they?

How’s your veg plot coming on Sal. I’m going to have to focus on autumn plantings for next year I think. The potatoes are coming and the garlic and onions are giving it their best shot but I planted them way too late. I’m going to get spinach and salad in this month, but I think I’m past anything else. Damn this chemo! Next year though will be fabulouso!

Your docs are being less than helpful Helen. A creek dunking for them I think! You’d have thought they could apply a little independent decision making seeing as it’s pretty obvious what’s been going on. In fact old man Silas has a pig pen out back - that’s where we’ll drag 'em. Heh heh heh…

That’s what I was thinking Eliza - the time. Pooooeeey!

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Well…the doctors have tried to get in touch with the bcn at the hospital…but can’t and won’t give me tablets. So I’ve rung the bcn up and been diverted to an answer phone. I have asked them to ring me as soon as poss…If they don’t I will do what Theresa suggested and take my empty packets down…what a diy job!!! The pig pen it is Carole heheheeh

Well OH took the empty boxes down…and the receptionist is going to show one of the doctors…She said they hadn’t heard of them…so now waiting for a call from the doctors…hey blooming ho!

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Oh dear Helen, what are these people like…as if after all you have been through you are making up the need for you to have these tablets…

Oh and oh dear Mary too, hope you are recovering well and not even thinking about camping !

Yup go for a greenhouse Carole, I got mine as a birthday pressie last year and I love it ! It’s full to bursting this year as have a glut of pepper plants but also got tomatoes, cucumber, chillies,courgettes and a growbag full of mixed salad leaves,and I’ve grown a load of bedding plants from seeds so saved money there too.

Re the tamoxifen , think it’s luck of the draw, one extreme to the other, you got poor Sal that had a terrible time at one end then you’ve got me at the other,with absolutely no side effects ,not even a hot flush,however… I’m only coming up to 3 months on it and have been told that the side effects could kick in anytime up til 4months…so there is time yet…

Think the side effect that I’m suffering at the mo is the need to be baking different things on a daily basis…am like a dog with a bone at the mo,am slowly working through my list much to the delight of the family,going to get it down to say half a dozen items and see how that goes I think. Hey, if any of you have tried and tested recipes that you think may be suitable drop me a line,am always on the lookout for new things,(likewise if you wanting any recipes just holler) so as well as a book exchange we could have a recipe exchange too !
Am away to make some of my grannys “melting moments” see how they do in mass production mode…

Sandra x

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Just saying hello. It is amazing how my habits have changed since my dx and finding this forum. It has become so important in my life. It is the first thing I do when I get in from work, I was even reading it before work this morning whilst eating my alpen (other brands are available…). I am sitting in my little conservatory with my glass of wine (is it too early?) I feel I am beginning to get to know people’s characters , sense of humour, habits, skills, abilities… and everyone drawn together by an “accident” of nature. It is becoming clear that there is such a bond between sufferers of this awful thing. And what amazing people. I am in awe.

I have my op next wed and go to nuclear medicine for an injection on Tues so I have decided to finish at school tomorrow. I will spend Monday organising myself. I have had my house decorated so it is all clean and fresh for when I am at home after the op. I have spent the last 2 weekends doing my pots in the garden and hanging baskets. Normally not overly bothered about plants but these have taken on an importance I have never known before, I am out encouraging them and checking for buds, moving positions for optimal sun/shade. I have even planted lettuce!

I am going to see my doc tomorrow to ask for a sick note. I wonder what my chances are!!! Love xxxx

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Ah it’s never too early for a glass of wine…and anyway,it’s medicinal innit !

It is like being a member of an exclusive club being on here and I’m just glad that I found these forums, certainly wouldn’t have coped so well without all the help,info, support and laughs that we have, hurrah for us ! Whoop whoop !

Great having your house decorated,wish I’d done that ! Just make sure you got a full freezer too and you will be ready to roll for next week.

Sandra x

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Oh good luck Rose…er it is Rose isn’t it…good luck with your op next week. You say its a wle with reduction…not heard about the reduction bit thats new! are you stopping onvernight, day surgery or longer? You sound to be in the right ‘frame’ of mind…I bet you can’t wait to get it over with now…will be thinking of you then.

Sandra I can just imagine you as a tv cookery person…not like fanny cradock…but with your own tv show…‘Sandras scintillating scones’…a storm riders treat!!!;-)heheehe

Hope all are well…

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OK, I admit it. I probably was a bit hung over. I only had a pint and a half, but that’s the most I’ve drunk for months. Good job the pub’s only about 200 yards away:)

Linda, are you telling us that you iron clothes your OH wears for the gym? That’s madness girl, give it up! There are too many other things you should be saving your energy for. Like coming on the forum, eating ice cream, seeing friends, reading a book, anything but ironing gym clothes!

Helen, hope you got your pills. Why do they have to make this so difficult? My GP had received a letter from the onc, but she omitted to say what dose I was on. They just rang me and I told them what was on the box. Easy.

Mary, so sorry you’ve been in hospital again, but glad your up and about again now.

Carole, the veggies are doing well, except my broad beans are covered in blackfly. Runner beans are shooting up and my potatoes are huge. I’ve also got mangetout, sweetcorn, beetroot, courgettes, kale, pak choi, lettuce, 3 different varieties of tomatoes, cucumbers, chillies. I grew aubergines in the greenhouse about 5 or 6 years ago and they were great (we had a hot summer). The next year I tried again and they were a waste of time (average summer). So I think they are very dependent on the weather, even in the greenhouse.

Rose, what are they doing to you in nuclear medicine? I’m intrigued. What do you teach?

Hope you got your report written Carole, I didn’t realize we’d been chatting for so long!

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Thanks Nell and Sandra. Yes, Nell, do feel in a good frame of mind all though had first really bad experience and poor sleep 2 nights ago. I just want to be well prepared and thanks Sandra for advice about freezer, will get cracking this w.e. My procedure is called therapeutic mammoplasty, not sure how new/widely used it is. I read about when googling wle. I asked the surgeon who was happy to do it. I will be able to feed back nest week! x