Storm Riders/A Town Called Determination

I’m feeling ok, friend is taking me camping this weekend - nice lazy reading weekend I think…mary x

Great news, Jane!

Good to hear you’re okay, Mary. I too will be camping this weekend - in my “medieval house”.

Off to bed now, goodnight all.

Eliza xx

Evenin’ all
Fifth chemo now in and doing its thing, only one more to go thank goodness. Because of allergic reaction to Tax last time, they gave me IV Piriton beforehand today, and that stuff used to zonk me out when I had it for hayfever.

So - no surprise that all I wanted to do was go straight to bed when I got home - and then slept flat out for 4 hours! Trouble is, as I didn’t expect to sleep for quite that long, I hadn’t texted sister or two best friends first - thus causing a minor panic!

Mary - have PM’d you.
Re GP’s shenanigans - I hope this isn’t an outbreak of cost-cutting going on, be interested to see what mine say as I’m due to start Tamoxifen as soon as the chemo finishes.

Right, off to beddie byes again now.
Big hugs all round
Rx

Morning everyone…:smiley:

looks like a sunny day here at the moment…:smiley:

Theresa

Morning all…Hi Theresa…yep its me up early this am. Woke up and can’t stop thinking about these flipping tabs. Doctor didn’t ring me last night…so I’m going to ring the bcn up at the hospital at 7.30 before they start their clinics so they can’t put me on answer phone!It’s also lovely weather here too at the moment!

Hi Rosie…Only one more to go now, think Mary has only one as well. Thats just brilliant…now you can begin to see the light at the end of the tunnel…hope se aren’t too bad this time.

Have a good day…will keep you posted with the rivetting saga of the tablets!!!

Enjoy your camping Mary and Eliza…think you may have picked the right weekend.
Helenxx

Morning! Sun shining outside, lovely start to the day. Nell so sorry you worried about something that you shouldn’t have to worry about. Hope you get sorted.

I am finishing at work so going to stop at supermarket to buy cakes for everyone. x

Hi Rose…are you finishing for good…or just till September?

Morning Nell, No, no chance of finishing for good! Just till I am all done and dusted, September I should think, depending on what is found next week… x

Morning all :slight_smile:

Oh Helen, what a pain with your tablets, I hope you get through to your BCN straight away.

Enjoy your last day Rose, and the cakes!

Great to hear you can get back to work proper Jane - you’ll be just like Casey Jones waving your hat out of the window on your first day back ( or is it a high speed train??!!)

Thanks Sal, I could have over or under watered Mr Cucumber lol! I keep trying to get it right so poor thing is probably confused.

Have a good day all, hope the SE are okay this time Rosie, Di xx

At flipping last!!..finally got through to the bcn manager…who basically said that a letter will have been sent to the doctors, they will have filed it, but not admit to not knowing where it is!!
So she is going to get the secretary to fax another and she has left a message at the doctors. She also said it didn’t matter if I missed a few days…doesn’t bother me…thank goodness thats finished with.
Ta…raaa!!
Morning Di…try again with a different cucumber! Rose as Di says enjoy your last day !!! cakes…mmmmmmmmm yummy!!

I’m going for an early walk while the sun is still shining…
See ya
Helenxx

Helen - glad to hear that it is getting sorted…

Morning all. Hoo Rha Helen. Thank goodness your bcn has sorted your tablets out. AT LAST. What a nightmare.

The sun is trying to come out here, so think it might be a nice day. We are off out tonight, for a chianese with my step mother and her new husband. so not really related anymore but she has been a good friend to me all my life and fantastic since dx.

Huh hadn’t finished and all of a sudden my comp has a mind of its own and posts for me.

Di, top speed of my train is 100mph so don’t think I will be flying any flags lol. I will be tooting my horn though, for each and everyone of us riders. On the Sarah Heath front, I’m a bit cynical. Cost 450 squid for a three hr visit, just to be told she’s a very frightened dog (Hello, that’s why I called you) and to give her treats when she is distressed. We have to do it in a certain way though, so I will just see how it goes.

Nearly there Rosie. Good to see you posting. Love to all the chemo chicks and anyone feeling out of sorts. Off to the hosp now.

Catch you later. xx

Morning all,

Woke up at 5.30 this morning and couldnt sleep so got up and have been going through my boxes of papers. I have a terrible habit of just reading letters and putting them in boxes so have been sorting them out to shred. Paper everywhere at moment. Should be finished mid morning. I have a facial booked for lunch today. My skin is so dry now. It was great after FEC but tax has made it really horrible to the touch. i am hoping beautician can put some moisture back.
I am also hoping she can do something with the dead caterpillars that are my eyebrows.

Had a mad impulse this morning and acted on it. I say mad, i have wanted a second wig for a while. Fed up with this one and I have long figured how much money i am saving on hairdresser bills so went online, browsed some clearance sales in wig sites and bought one. A bit longer than the one I have now but roughly same colour. It was 48 quid so lets hope i did the right thing.

Still have sludge gob so still on sludge gob diet. I think it is getting slightly better as i have drunk a whole cup of tea this morning. We shall see as day progresses.

Lets hope the sun shines all day and next week, my youngest son is off on field trip for five days.

All the best
Linda

Way to go Linda…go pamper yourself…what colour is the wig, a nice pink, red, gold maybe heheehehe

Doctors rung…they haven’t heard from the bcn, was surprised when I told her the bcn had left her a message… who is telling what lies I ask myself…couldn’t care less…can now collect my prescription…OMG what a boring saga!!!

Jane I remember Casey Jones fondly…can picture you leaning out the engine, waving to all, waving a flag and tooting whatever it is you toot! Thing is the engine I visualise is from a different era…not a modern day one…so go Casey go!!

My walk was an hour and a quarter…yes I timed it. Thing is should have timed it one way, then turned around and come back and it would have been a shorter walk! Still good excercise.

sun still shining…it really does make you feel better!
Helenxx

Jane I am gobsmacked at how much Sarah Heath charged you!! I know a few Behaviourists, all registered and well respected and none of them charge those sorts of fees. Is she a member of the APBT? I’ve been a dog trainer at our club for 15 years and I could have given that advice…wow. Let’s hope you get some results anyway.

Helen you must have stolen our sunshine up North :wink: sounds like a good walk you had there, rest up this afternoon now. I too had a paper clear out recently Linda but still have a huge carrier bag to be shredded. I haven’t been wearing my wig as I feel very self conscious in it but I put it on this morning for a friend who came round for coffe and she reassured me a bit, I just feel like it’s gonna pop off any minute! She bought me a lovely new top as a present which I was thrilled with, I know I’m very lucky having some wonderful friends.

How’s your arm now Theresa, I’m going to make an appointment to see the Lymphodema nurse as mine’s still painful. I would love to be able to sleep on that side, I still wake up if I accidentally turn over.

Hope all you other gals are doing okay, enjoy your weekend away Eliza, it sounds great fun. Di xxx

Hey all

Lovely sunny day here today. Went shopping and for lunch with a friend then went to see my Onc. She’s reducing my dose of CMF slightly to hopefully avoid the awful mouth ulcers, and also giving me folinic acid. Apparently the folinic is an antidote to the M bit of the CMF, but if the ulcers are being caused by the F bit there’s not much I can do except deal with it. She did say I was on elephant doses so reducing them a little bit won’t be detrimental. Why make them so high in the first place I ask myself, but anyway - this round of CMF has been no fun so maybe the next will be a bit more tolerable.

She also said they like to wait 4 weeks from last dose of chemo before starting rads, so earliest mine will start will be Monday 14th September. Seems like a long way away. She did say I should be well clear by the end of October, so might book a half term holiday for then. I’ll need it!!

Right, I’m off outside for a cup of tea and a read of the paper.

P.S. £450 for somebody to state the bleeding obvious?! You could buy a whole new dog for that lol. A friend of a friend has black lab pups for sale - I might see if I can wheedle DH into getting one. Don’t fancy my chances, I’m not sure if it would upset our old Monty dog having a puppy annoying him or if it would give him a new lease of life. He’s getting very old and grumpy. And the dog’s no better. Ba da boom. :smiley:

Thanks, Helen & Di. Mary, let’s hope the weather is good to us - have fun! Enjoy your evening, Jane.
Helen, have you got your prescription sorted?

Hopefully the reduced dose and the folinic acid will do the trick, Gennie.

Hope everyone has a good weekend.

Eliza xx

Di - I think i am getting used to my arm being like this more than anything… I can’t lie on my side either…:frowning:

Gen - hope the chemo reduction helps your mouth… Good luck with the puppy talks…

Theresa

Gen, getting another dog for our J.J was the best thing we ever did. When we just had her she demanded lots of attention but since getting our Charlie, she’s been great. It also gave her a new lease of life because she was quite a lazy dog but now they spend hours chasing each other round the garden. How many more chemo do you have to have, Gen? I hope the reduction in the dose makes things easier for you next time. Still can’t get over how well your doing, what with going to work and the family to look after. I think a half term holiday in October is a great idea.

Di, Sarah Heath was recommended by our vet. We were told she travels the world giving lectures in dog behaviour and is one of the top behaviourist. To be honest, we actually just wanted to give J.J some medication to settle her nerves and the vet said she could only do this if we had the behaviorist first. Hence sarah Heath. When J.J gets nervous she ends up in a right state and is going to give herself heart attack. Its very upsetting to see.

Well, got the all clear on my heart this morning but the doc wasn’t impressed that I could only manage 4 mins on the tread mill. He said I should have been able to do at least eight mins without asking for a rest. So now I have to go for more chest x rays, blood tests and breathing test. God I am so fed up with bloody hospitals.