Storm Riders/A Town Called Determination

Good morning SRs,

It is wet and wild in London. We were going to Oxford Street as I wanted another trip to Selfridges food hall which I only got a glimpse of at Christmas due to the crowds but the weather has put that idea off. When I am trying to follow a calorie controlled diet I have a peculiar fascination for looking at foodstuffs that are out of bounds. The cheese section is wonderful for example. We will probably go out more locally instead now possibly to Clapham Common which is just up the road.

I know just what you mean Jane about mammogram anxiety - and like many of you mine is scheduled soon - February 1st in fact. And I am terrified. If it helps Carole, I’m like you and think it will be me for sure who will be the first one to develop secondaries/recurrances. The fact I had five infected lymph nodes and my breast surgeon delivered my pathology report with such a glum expression haunts me still, and I think the worst. But on the positive side at least we are all still here and it is around a year on. The relaxation CDs you mention Jane - yes I’ve used them. I was given one by a hypnotherapist I went to about a year ago. A half day’s intensive session of NLP. I do listen to it, and find it helpful.

Jacq - my scheduled, or not so scheduled op seems to be the same situation as yours, need to drop everything at practically a day’s notice to go in. Although there are other plastic surgeons who could carry out the procedure, the fact I had complications last time means the senior consultant wants to operate himself. And he has the longest waiting list…

I would be very keen on the London meet - at the moment I could manage those late feb dates but of course may not be able to at the last minute because of impending surgery. For me to be sure I’d not be able to give a firm committment until early May which is a long way off - so if others want to fix a date I’ll be there if I can. Anywhere in London is fine for me. On the hair loss strand we made the venue most convenient for the person who had furthest to travel - which was Oxford and we made it the Grosvenor hotel next to Victoria Station which is lovely for afternoon tea.

Uncle Jack is still here and on Thursday we went off to an exhibition on the Aztecs at the British Museum. It was specifically about Moctezuma the second who was the last elected leader. He didn’t seem to do much of any great interest except make lots human sacrifices and create lots of wars. What was quite striking though that considering he died in 1520 there are so many artifcats remaining that had been his personal belongings including stone boxes and tablets. They definitely belonged to him as they bore his gylph: each of the Aztec rulers had their own design. Moctezuma or Montezuma as he’s better known in English died under mysterious circumstances - possibly at the hands of the Spanish who had entered Mexica in order to convert the population to Christianity.

Uncle J really wanted to have a traditional fish and chip shop meal on Thursday so I had to break the diet for one meal. I’d not been for fish, chips and mushy peas for ages and hadn’t realised what I was missing! My latest diet strategy by the way is to buy the ready meals in the Sainsburys basic range. For some reason they taste better than most calorie controlled meals but have very few calories themselves. On average around 250. So what I’m doing is having Oats so simple for breakfast, one of the Sainsburys’ meals for lunch and dinner, and then a small tin of fruit salad and dried apricots for snacks. I am managing to stick to it and don’t feel hungry but so far not showing too much difference on the scales!

The last thing we did on Thursday was to go to the Atlantis bookshop which specialises in spiritual/occult books. I go there for historical interest more than anything else (it has been trading since the 1930s) and read recently that an infamous mysticist who was once under suspicion in connection with a number of people who had disappeared - allegedly (very allegedly!) was meant to have turned the police officer sent out to interview him about the cases into a camel to avoid being charged…

Well it has stopped raining so wishing everyone the best day possible.

Victoria xx

Hello all,lol Eliza wanting a return of the snow… that sounds like me Victoria,I’m on a dreaded diet too but just can’t stay away from all things foodie.Have been sorting out all my recipes and old food mags etc this week and trying out new recipes.Still managed to lose 4lb last week but I’m ok for a couple of weeks then just think I can go back to eating what I want and end up puting it all back on…ooh willpower! Am a bit more determined to do something bout it this time as my lymphodema is giving me gyp and being overweight isn’t the best thing for it. Like wise,even though I did’t have spread and didn’t need chemo I know that is no indication of not getting a new primary or secondaries so I’m in that club too of thinking " it will be me !" I do try and not get too stressed about it as at the end of the day there nowt you can do about it,but it is something that lurks at the back of my head.Just don’t want to spend my life saying ā€œwhat if ā€¦ā€ So am trying hard to just getting on with things the best I can,roll on the Spring so can get growing things in my garden again,very therapeutic.

Hope you are all going to have a great weekend,hope you aren’t too knackered Gennie after your first week back at work. Big hugs to all.

Sandra x

Hello to everyone,

LOL Linda, you are so right about men and their thoughts. Spent a lot of time, trying to make sense of my reaction last night and I suppose its like having a bad experience at the dentist, you never want to go back but always find a better one. Last time I had a mammogram, I received bad news, hence I don’t want to go back.

And that makes 4 of us LOL… I’m also in the it’s going to be me club, even though I had low grade. My own fault really, for reading Karen Keaton’s story. I WON’T DO THAR AGAIN!!!

Welcome Monica, great to see you on the Storm Rider thread. You’ll soon get used to us and I’ll always join you in a drop of whiskey. Well… got to have some vice’s.

If it wasn’t for my NAFF uniform, I could of met you all for a quick coffee as I’ll be up in Edinburgh that day. Unfortunately, I am not allowed to enter any premises that sell alcohol while wearing it. Hope you all have a good time though.

Sandra, Victoria, I will be starting my diet Monday, so any tips gratefully accepted. It doesn’t help, that I spend up to 10 hrs a day, sat on my back side at work. And most of the time its food on the move, so difficult to sit down and have a salad or something. Please don’t suggest raisins instead of crisps…LOL

Clare, how are things going for you back at work? Gennie, hope things are getting easier for you. Carole, so pleased your coming out of that black canyon.

Val(sl) Please excuse my ignorance but what is boiling beef and if its a joint do I put the whole thing in pot, or cut into small pieces. Going to make some in the week, as its got to be good for you and have very few calories.

Nicky, I am so jealous of your vacation. Next meet up you’ll have to bring pic’s. I bet its amazing.

Hi to all those I have missed. Hope your all well.

Jane … just turn your jacket inside out!

Hi Jane, am afraid there is no getting away from the fact that we have just got to eat less, eat things that aren’t high in fat sugar and salt,that will be the rains then,lol, and do more exercise, or in my case do some exercise would be a good start ! I know it’s not rocket science but for me it is getting my head round it,I just HAVE to get down to it. Bit morbid I know but I do think that if I’m unlucky enough to get this damn thing again I want to be in better shape for fighting it off and coping with it if there is a next time.

I have been having the oatso simple porridge for breaky,only two mins in a microwave in the morning,ideal, then I have been having a big bowl of homemade soup for lunch and just watching my portions for a normal tea so am eating the same as everybody else. Have cut out all the snacks too, so no scones with a cuppa for me !

As for exercise,have just been on the wii fit which is a bit of a laugh and just gets you moving and will get my sizeable bottom in gear this week and start taking the dogs out for a proper long walk which doesn’t involve me just meandering along daydreaming.
I will post the soup recipes that I have used this week on the cooking thread. Good luck !

Sandra x

I am very disturbed by the fact that a journalist from a magazine is posting on the site and has access not only to our comments but also to our pictures.I have removed my photo and will replace it with an anonymous picture when I work out how:)As for comments,because this is a public site we can be quoted in brief without our permission.Do take care my loves.
ps on a lighter[or heavier]note I just ate two toasted tea cakes for lunch [wicked grin]
Valxx

Oh My…Are they allowed to use our photograph’s??

I did it!This is a sunset taken in Turkey last August.Most of you know what I look like in RL anyway :slight_smile:
Jane I just dont know,I dont want to take the risk.

Jane - it is on the mastectomy pride thread… i must admit one of the things that concerned me most was when the woman from the mag glibbly said she would use comments from it for the mag…:frowning:

Theresa

Yes Theresa, I have been following that and found some of the woman’s comments offencive. Seemed like people were being told off for having an opinion. Also felt like a promotional piece for the mag. I have joined the face book group that one of the ladies mentioned.

Jane I don’t know the other name for boiling beef. It could be called ā€œhockā€ but it is only suitable for soup really and you need to cook it slowly for quitea while and it is sort of stringy in the fibres of the meat. After you have made the soup you can either chop it up and put into the soup removing bone if there is any. In the ā€œold daysā€ they would use the meat for the second course with potatoes. Left cold it is lovely in a sandwich. Sandra do you know nname for boiling beef? I know there are different names for different cuts of meat in different areas of the country. Or ask your butcher Jane.

Is it similar to brisket?

Not really. I do buy brisket too to ā€œpot roastā€. It is similar in texture to ā€œskirt steakā€ which I use to make steak pie.
This reminds me of visiting a butcher in the Borders. If anyone asked for " spale bone" for instance and I didn’t know what to do with it, I would ask the customer how they were going to cook it. And they would say oh I coook it like this and I am making ā€œsuch and suchā€.
Well one day a young woman came in and asked for pig’s skin. Oh I thought, is this going to be for pork scratchings or pork crackling or something else…
Well it was for something else…she said it was for her husband. He was a tatooist and used it to practice designs on…not the recipe I thought it would be!..

jane - didn’t realise you were on facebook…:smiley: do you have any of us as friends…?

just going to change my piccie back to Molly as well…

Theresa x

Hi all,

Well as those of you who are on my FB will know. My lovely new snowboots arrived today. Not a sign of the white stuff now!!! On the plus side hate it anyway. Wet, cold, slushy, slippery - you can keep it but i did want to wear my new silver snow boots.

On the subject of eating too much, i know i need to lose weight and was managing it well before crimbo but since beginning of January have had my nose in the trough all evening. I am good all day, i mean i eat sensibly and then evening. Have meal, have pudding, have some fruit as a snack, have some chocs, have some crisps, look in the fridge for what else i can get my teeth into. Going back to ww on tues and dreading it. I am considering trying a Paul Mckenna type hypnotherapist. I actually like going to the gym (will be going this afternoon) but after school when i get home i have not felt up to doing any exercise (tired or lazy? i cant decide). Hopefully now the cold spell is easing i will get back on the treadmill so to speak.

Jane i read Caron Keatings story as well and but could not relate it to my own situation in any way. I think she definitely had undiagnosed depression as her actions were not that of a totally rational person. However, I do not have secondaries so I could be talking out the back of me.

Victoria, when the doctor delivered the news to me, the doctor had a smile on his face and kept smiling even when i sat there and told him it sounded like a crap prognosis really. 19/23 infected with nodal spread, microscopic margins. When i walked out of there, I really thought i would have secondaries. I had a bone/ct scan which showed no further spread. I am, cautiously optimistic now. Well they are offering me a recon so they cant think i am ready for the knackers yard yet!!!

Oh where is the mastectomy pride thread? Sorry nosy, want to see whats going on there. What heading is it under?

Ciao for now.

Linda

Linda - it is in current issues / hot topics…

Oh and I’m also totally convinced I am the one…:smiley: Spent six months totally convinced of the fact when i was having chemo… when it was agreed i needed the second mastectomy the surgeon (who wasn’t the one who diagnosed me…) actually said - this isn’t going to mean you are going to live any longer than we have already told you… except my onc point blank refused to tell me when i straight out asked her my prognosis… So guess i am just going to see what happens all i do know… IBC and secondaries… it tends to be short and dramatic… with one year being good… still they are developing new treatments all the time and will just have to see…

Theresa x

I have been on face book for a while now Theresa but am not entirely sure how it works, so its just me all on my ikkle lonesome LOL, BTW if you search for me, my surname is not as it appears on email. Didn’t trust tinternet at all, when we first got it many moons ago. Thought if I used my own surname people would be able to look me up in the phone book.

Val, if Sandra doesn’t know I will ask the butcher. Thanks anyway. I’m definitely going to make it.

I too thought some of k ks actions were not rational and could not relate it to my own situation. Its just that she had such a low grade, no nodes, only rads. And 5yrs on… Makes you wonder. However, I do wonder if the fact she refused to have hormone treatment, made a differance to the outcome.

Jacq, great idea about the coat but it just isn’t worth it. Instant dismisal and there is always someone ready to report you. We have such a strong drugs and alcohol policy at work. Its much lower than the drink drive policy and we are tested randomly. One of the bad things about being a train driver, means I can’t always have a drink when we go out but hey ho… swings and roundabouts.

Off to finish emptying the last of anything naughty in the kitchen. hehehehe I am so going to have a bloated tummy by bed time.

Hi all,

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Hi everyone - my you’ve all been busy posting. Welcome to Monica and knitnut (hopes that’s right). I seem to be doing OK at work, bit strange though as we are moving offices at the end of next week so most of the time is spent sorting out old papers and doing catch up reading. OH took me to the station on Friday and collected me as the roads and pavements were sooo slippy. Rain has now started and temp has increased so the snow is melting, but it’s still slippy!! really hope its all gone by Monday.

I’m hoping to lose some weight, ideally a stone would be good. Trying to do it by eating smaller portions and when the snow has gone taking more walks.

Love to all

Clare XX

So you can all put your pretty faces back on!