Whewwww!!! That took some reading!! but enjoyed all the different ‘chats’…Manuka honey…not heard of that before, sounds pricey!
Gennie sounds like your’e off on a camping trip…well done you for sticking to your guns…figuratively speaking…we used to take our kids when they were little. Started with an A-frame tent, then onto a trailer tent, then finished with a small tourer. Had some fun times.
Sorry to hear about the ‘missed’ chemo Carole, but it looks like the weather is gonna be good…so you’ll be able to take advantage of it and go out with your dogs…happy walking!!
So you are having rads Sandra! It’s trying to hold everything in
your head isn’t it. Doesn’t help when your head feels like an overstuffed pillow. Think they should write down some of the things they tell you and not expect you to remember…remember…er remember stuff!!!
Val great news about the ‘leg’…maybe your stick should be a ‘wooden lightning bolt’…or not!
Ros…sorry your’e having a tough time, rant along there!!! we’re with you!!!
Thanks Sal, Jane, Mary and Theresa I did have a grrrreat time! Hubby even wants to go again soon…
Hi Martina hope all goes well with you.
Di, it’s your results and next step tomorrow isn’t it, will be thinking of you…all things crossed!!
Hi Jennie and welcome. It’s been a tough old year for you so here’s to a better one this year
Still thinking of you and you’re op this week Lizzy. We drove through your neck of the woods to get to Skipsea. It’s a lovely town!
Glad you’re enjoying the work at the stables, good therapy too!
Phew !!! Took ages to read, but little Miss Nosey here enjoyed it!
Don’t think I’ve missed anyone!!!
OOOh just remembered…it’s that overstuffed pillow syndrome Sandra…Is Scotia having an ‘affaire’ , notice the french spelling, with the bartend then…oooohhh, how exciting!!!
Take care all, gonna get something to eat…been too busy on here to get anything yet!!! munch munch munch!!!
catch ya
Helenxx
Yay on your results Sandra - I don’t know my ER and PR scores (I must ask) but I was told I am “highly” hormone postive. I was also told that had my results been the same as yours (i.e. a tumour less than 2cm) chemo wouldn’t have been statisticcally worth it even though I’m 41. It’s really the size of mine (35mm, grade 2) that means I am having the joy of being poisoned.
However, much as I’m thrilled for those of you who don’t have to do it - and I really, genuinely am for all of you - I feel SO pissed off that I’m having to. Today I’m hating it all. I’m sitting here with my bald head, my sore eye, emotionally wobbly and just hating it. Bah.
Normal service will be resumed shortly.
Re the mirena - now I questioned my onc about this quite closely and she said there’s no evidence that it makes any difference. However, she also freely admitted that there is another Onc in her department who is very anti- them and would insist on it being removed. For her the biggest risk is pregnancy during/post chemo rather than the tiny amount of localised hormone in the coil. However, when it comes time to replace it I should hopefully be through chemo etc and I think I might just not replace it. For myself I just don’t want to put anything in my body that might increase my risk of this happening again, however theoretical that risk may be. For now the thing is almost 5 years old and the amount of hormone coming out of it will be negligible at this point.
Re the weekend - the compromise agreed on, for those of you desperate to know the outcome of the saga (lol) - is that we are going camping for 2 nights Sat & Sun. I did lobby for at least a centrally heated caravan, but OH was a seasoned camper of many a year before I showed him what a proper holiday looked like and he’s now keen as mustard. I think it will be chilly but the kids will love it and I’ll just have to take many clothes to keep warm. Possibly some alcohol too.
Welcome back Helen and good luck for tomorrow Di.
Work for me tomorrow. No last minute reprieve, it’s nose to the grindstone. Do I feel like it? Do I cocoa.
Oh yes I meant to say re cording. I had that. It started off going from shoulder to elbow, that resolved and then it went elbow to thumb. All I did was keep stretching it out - I mean really stretch it so it hurt and oddly it eased off after the big stretch for a while. Also massaging it with a bit of almond oil. Eventually it just faded away and is fine now but it’s bloomin sore isn’t it and yes, it kicked in round about 6 weeks after surgery which I wasn’t expecting. I have full mobility in my arm and shoulder now though, so hopefully you’ll be ok Sal.
Also, I’m with you Carole on the hysterectomy. My current thinking is just take the lot out and have done with it. No risk of ovarian, cervical or womb cancer either if you get rid. No doubt it’s not that simple as these things never seem to be, but that’s my view unless I’m persuaded otherwise.
Thanks for all the positive vibes for tomorrow, they are sooooo appreciated. Hope to have as good a report as you Sandra.
Great reading all your recent posts and taking in all the info, I was wondering about cording Sal, the pain from my armpit to elbow is extreme and as you describe Gen the stretching feels like it’s going to snap or something, I need a piece of wood to bite on! The swelling all across my chest right up under my armpit from the MX and clearance is so awful and makes me feel quite sick to look at, I thought it would have gone down by now, the first op was over 5 weeks ago. Sorry to moan, I’m just getting frustrated now at feeling worse each day instead of better
On a brighter note, loving the wildlife reports, alreading looking forward to Springwatch…I really must get out more!
Pecker up kiddo. Only 3 working days of the week left. And don’t just Bah, go BAAAAAHHHHH@?%%!!. Sucksville it most definitely is. But Storm Riders do what Storm Riders do, and you’ll do it! One tiny year, one huge lifetime.
And you had a huge op Di. It’ll take time. Who’s the Rider? Bilbo is.
We need a motto, like All for One, One for All. Any ideas anybody?
I had cording, but didn’t know it was that until I went for the second set of results and I asked questions. It’s like a short piece of string attached to your arm, from armpit to wrist. You can’t stretch it fully, but you have to keep up with the arm excercises and it should help. Mine did, but it’s come back a little bit with this op. Hey ho…haven’t done any over the weekend, so on with the dvd excercise disc…in truth I’m not really good at keeping up with them, so I can give advice, but not always follow it…huh!
You shout and rant Di, adrenalin is good for the soul!!
sandra - great news - no chemo - yaaaaaahhhhhh!! Di - thinking of you tomorrow…Helen, glad you had a great time!! Gen - my head’s shinier than yours nah nah nah na na…mary x
Oh red - sorry to hear the chemo hasn’t been working… What size is the tumour now compared to when you were diagnosed? Sorry that i can’t remember - what status are you for er, pr and her2? You might find that tamoxifen or herceptin work well at zapping the baddies.
{{{hugs}}} Theresa x
The mods have just started a new subforum for the people like me with IBC and someone on there has just said chemo didn’t work at all at shrinking her tumour but once she got onto herceptin it worked wonders.
{{{hugs}}} I know a bit of how you feel - i was worried when i was on my chemo as my tumour shrank from 5.5cm to 2.4cm with the first 3 AC but then stayed the same…
Huge good luck vibes for tomorrow Di. Hope you don’t have too long a wait,my appointment was for 11 didn’t get seen til 12, grrr those delays drive you mad !
Re cording was told by bcn that if it got that bad she comes round and stretches it until it literally “snaps” … OUCH !!! didn’t much fancy that so I have been doing my arm exercises non stop and I know am lucky with just lumpectomy and only 4 nodes out but 5 weeks post op my arm and movement is great,even if am sitting watchn tv am waving or stretching every so often.
Have been told that will get rads appointment through in next couple of weeks so should start roughly 8 weeks post surgery.
Gen,if you go on the mirena coil website and take a look at their info they don’t recommend the coil to people with breast cancer…jeez ,who do you listen to… they also say to watch it if you have migraines !!! I don’t remember being told that when having it fitted. Glad you got your trip sorted,at least it’s a caravan and not a tent !!!
Sandra - no it’s a tent not a caravan. Chillsville! Brrrr Also I have migraines and nobody mentioned that with the mirena. Lordy I might just take the beggar out myself, how hard can it be?!
Nikki - some more hugs for you here. Keep talking, we’re here
And also big up to Steel who just called and stirred me out of my blue funk to fight another day with silver spurs flashing the flamenco beat.
