Hi everyone I have just been given the dreaded news this week but am totally confused. I have metaplastic triple negative breast cancer. I went through my work private medical provider and the experience wasn’t great so much so I’ve been referred back to NHS. But as a result I’ve been given this diagnosis over the phone, there’s been no aftercare so no cancer nurse or anyone to speak to regarding what that diagnosis means for me. I’m waiting for my appointment at the hospital but feeling totally overwhelmed. Has anyone else been diagnosed with this cancer that could advise
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Hi. So sorry to hear you’re going through this. Awful that you were told over the phone! My daughter was diagnosed with triple negative BC earlier this summer so we understand what you’re going through. She is now currently undergoing chemo and is well into a 12 week course (4 rounds) and doing well. She will then have an MRI followed by a course of EC chemo (max 4 rounds) then she is having a mastectomy and further immunotherapy and possible radiotherapy afterwards. The first few weeks are the hardest as you will be undergoing lots of tests to discover the extent of your cancer. She had two tumours in one breast along with some rogue cancer cells (she was assured it had been caught early). Her lymph nodes were also affected, but is clear of cancer elsewhere. Her oncologist told her she will get through it, and be free of cancer after her treatment is over. Now that she is on her treatment path, life is a little easier. One day and step at a time. Sending hugs and best wishes. You’ll get through it 
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@deedee4 welcome to the forum . I’ve had similar news( about another cancer ) over the phone with no support and no-one to discuss it with , it makes it so much harder to cope with ,it’s such a shock .
I would suggest you ring the lovely nurses on the Breast Cancer Now helpline tomorrow when they open ,they are very knowledgable and also very calming .
0808 800 6000
Lots of support here too .Best wishes Jill x
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@deedee4 sorry to hear about your diagnosis.
I have recently been diagnosed as TNBC, I had my lumpectomy 25/7 and my small tumour had grown to 35mm. Surgery went well but was told at the outset I would need chemotherapy and Radiotherapy due to TNBC (grade3) so need belt and braces.
I had my oncology appointment yesterday and start my chemo next Friday.
I am sure when you get picked up by the NHS you will get lots of information and support.
There is a Facebook group for TNBC (UK and Ireland) that id recommend looking into when you are ready. I would probably give the American version a swerve as we have different treatment and processes but the UK group seems to be very well managed to get a balance of information without the scaremongering you can find elsewhere.
If I can help you at all just get back in touch…I’ll probably be a few steps ahead of you with my treatment and it may end up being quite similar.
I would definitely chase up NHS now to ensure you are in process and get the treatment and support you need ASAP. Sending positive vibes your way 
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